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Description:
Dystonia is a neuromuscular movement disorder that causes muscles to uncontrollably spasm and/or contract. This support group for people in the Greater Washington DC area is affiliated with the Dystonia Medical Research Foundation, www.dystonia-foundation.org.
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March 2010 Newsletter
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Dear Google Group members: Here is the link to our March 2010 Newsletter. [link] ZmVmYTI2OTU2NDk4YTA Please note some important upcoming events: Our May 2 meeting at Holy Cross Hospital and Advocacy Day on May 4-5. We are asking members who received the newsletter by e-mail or regular... more »
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Cervical Dystonia Study
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Dear Google group members: Johns Hopkins is sponsoring a cervical dystonia study. You may be eligible for the study If you have been diagnosed with this condition and have not received BOTOX treatments or if you have this condition and have not been treated with botox within the past 16 weeks. If you... more »
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Congratulations to author Debbi Mack
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Congratulations to Debbi Mack, a member of our dystonia support group, who recently published a novel, Identity Crisis. It is a hardboiled mystery featuring lawyer/sleuth Stephanie Ann "Sam" McRae. Her book recently won the P&E readers poll for best mystery novel. It is available at [link], [link] and [link]. She... more »
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Support Group Meeting Schedule for 2010; Advocacy Day
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Dear support group members: Happy New Year. Mark your calendars. We will have support group meetings at Holy Cross Hospital, Silver Spring, Maryland on March 7, May 2, September 19, and November 14. Meetings will start at 12:30PM. Advocacy Day is scheduled this year for May 4-5. Advocates from around the country come together to educate our legislators on Capitol... more »
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Borders Gift Wrap to raise funds for dystonia and NBC4 Health Expo
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Hi everyone:
Can you spare a few hours to help raise funds for dystonia research
by wrapping gifts at Borders at White Flint Mall, Kensington,
Maryland? All proceeds go to the Dystonia Medical Research
Foundation. We need volunteers for Saturday, December 12 between
9am-11PM and for Sunday, December 13, between 9am-9PM. Please contact... more »
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Reminder about Sept. 13 meeting and Agenda for Nov. 8 meeting
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Dear Google group members:
I hope you are having a good summer. First, a reminder about our
Sept. 13 meeting featuring Dr. Paul Short, who will talk about "Living
with Dystonia As a Chronic Disorder."
Second, we have just posted the agenda for our Nov. 8 meeting,
featuring Dr. Mark Hallett, who will talk about "New Developments in... more »
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Mark Your Calendar: Oct.26 Dystonia Golf & Tennis Classic and Banquet
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Dear friends:
Join us for a day of golf or tennis at the Kenwood Country Club in
Bethesda. Net proceeds go to the Dystonia Medical Research
Foundation, to find a cure for dystonia. If golf and tennis are not
your sports, enjoy the evening auctions, a delicious banquet, and live
entertainment. All participation is tax deductible to the extent... more »
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