Description:
Welcome to Devic's support. Support and information for patients with Devic's / NMO, their caregivers and friends. We also welcome all researchers and clinicians. Please find the time to read over member stories and post your own experiences.
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 Magnetic resonance spectroscopy evaluation in patients with neuromyelitis optica. (J Neurol Neurosurg Psychiatry. 2010 Apr;81(4):409-11.)
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J Neurol Neurosurg Psychiatry. 2010 Apr;81(4):409-11. Magnetic resonance spectroscopy evaluation in patients with neuromyelitis optica. de Seze J, Blanc F, Kremer S, Collongues N, Fleury M, Marcel C, Namer IJ. Department of Neurology, Hôpital Civil, 1 place de l'hôpital, BP 426, 67091, Strasbourg cedex, France. jerome.de.s...@chru-strasbourg .fr... more »
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Diagnosis of Neuromyelitis Spectrum Disorders: comparative sensitivities and specificities of immunohistochemical and immunoprecipitation assays.(Arch Neurology 2009 Sep;66(9): 1134-8)
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Arch Neurol. 2009 Sep;66(9):1134-8. Diagnosis of neuromyelitis spectrum disorders: comparative sensitivities and specificities of immunohistochemical and immunoprecipitation assays. McKeon A, Fryer JP, Apiwattanakul M, Lennon VA, Hinson SR, Kryzer TJ, Lucchinetti CF, Weinshenker BG, Wingerchuk DM, Shuster EA, Pittock SJ.... more »
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Our site is now dedicated to Cindy Powell.
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We have updated our Homepage, in dedication to Cindy. No one was a
better example of grace and courage for the NMO Community. What an
amazing example she was.
Cindy, we love you and will forever miss you.
Grace
-- You received this message because you are subscribed to the Google Groups "Devic's Support" group.... more »
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Aquaporin-4 – binding autoantibodies in patients with NMO impair glutamate transport by downregulating EAAT2.
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Aquaporin-4 – binding autoantibodies
in patients with neuromyelitis optica
impair glutamate transport by downregulating
EAAT2
Shannon R. Hinson , 1 Shanu F. Roemer , 2 Claudia F. Lucchinetti , 2
James P. Fryer , 1 Thomas J. Kryzer , 1 Jayne L. Chamberlain , 3
Charles L. Howe , 2,3 Sean J. Pittock , 1,2 and Vanda A. Lennon 1,2,3... more »
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Neuromyelitis optica preceded by hyperCKemia episode. (PubMed)
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Neurology. 2010 May 11;74(19):1543-5.
Neuromyelitis optica preceded by hyperCKemia episode.
Suzuki N, Takahashi T, Aoki M, Misu T, Konohana S, Okumura T,
Takahashi H, Kameya S, Yamaki K, Kumagai T, Fujihara K, Itoyama Y.
Department of Neurology, Tohoku University School of Medicine, Aoba-
ku, Sendai 980-8574, Japan. na...@em.neurol.med.tohoku.ac. jp... more »
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Tamika Fitzpatrick has passed. (Message from her Mother)
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Attention All:
It has been sometime sense you all last heard from me (Tamika
Fitzpatrick's mom). Regrettfully, I wanted to all let you know through
the 5 years of Tamika dealing with her disease, she passed away on
January 9, 2010. Of course today, was somewhat of a memorial for my
family because Tamika served in the military while discovering she had... more »
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(Dr. Greenberg UTSW) AAN: Lowering Rituximab Dose Saves $$$ But Has Risks
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This report is part of a 12-month Clinical Context series.
By Ed Susman, Contributing Writer, MedPage Today
Published: April 17, 2010
Reviewed by Ari Green, MD; Assistant Professor, University of
California, San Francisco and
Dorothy Caputo, MA, RN, BC-ADM, CDE, Nurse Planner Earn CME/CE credit... more »
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Watch NMO Patient Day Online!
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Participate in the NMO Patient Day online - it's the next best thing
to being there in person!
The NMO Patient Day will be streamed live over the Internet through
its webcast on Nov. 10, 2010.
Online participants will be able to view the presentations and email
questions that might be selected to be read aloud.... more »
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NMO AWARENESS TEE SHIRT ORDERS.
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If any of you would like to order an NMO Awareness Tee Shirt, please
sign up here. They were designed by member Amelia Clark. The colors
are red, and blue. The cost is $10.00 Amelia did a fantastic job and
they're a wonderful way to spread NMO Awareness.
Gracie
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FW: Vote to Help NORD Empower Patients and Families
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Let’s support NORD to help empower patients and families! Details are below…
...
[cid:image001....@01CBAB4E.6A1 019F0]
Vote to Help NORD Empower Patients and Families
NORD is in this month's Pepsi Refresh Challenge Project and needs your help! In this project, organizations win grants by receiving the most votes in their category. NORD has proposed an idea that has been accepted by Pepsi for the $50,000 category. It is based on the belief that knowledge is power, and that rare disease patients and their families need information to be their own best advocates.... more »
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Patient Retreat in Frisco Colorado
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Hi everyone,
I have some very exciting news to announce, I have been working with
my husband and with Grace to come up with a retreat for patients,
caregivers, and family members to our Hotel in Frisco Colorado. I know
a lot of us patients travel to conferences and doctors to get more
educated and make sure we are taking care of ourselves correctly. Eric... more »
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Caution for Members.
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Have recently come into contact with several individuals who profess
to have the cure for autoimmune disease, including NMO. Please, be
very careful when doing your research. Don't consider giving up your
physician prescribed target treatments for a vitamin, supplement, or
for any metaphysical voodoo that comes down the pike, and be very wary... more »
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Members---Group information/Archives
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As most of you know, this group is, and always has been, a Public
group. The reason for this is so that people will be able to find it
and access the information.
Although I do have the ability to *Remove* individual posts, I cannot
prevent an inoperable Link for a removed post, from coming up in a... more »
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Huge Thank Yous to Erin O'Brien Miller.
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Hello all,
I wanted to let you all know that Erin O'Brien Miller has agreed to
come on board with me here at Devic's Support. We've needed an extra
pair of hands and eyes now for quite some time, and I'm so looking
forward to working with Erin. Erin has a wonderful way of
communicating with members, patients, and caregivers, and is going to... more »
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A Message from the Tan family. (TV Interview)
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Hi everyone,
Big Ten Network has a show called The Journey 2011, about the lives of
Big Ten Basketball players. Usually the show will air after a Big Ten
game. If that game runs long, then the show will come on immediately
afterwards. This week one the four players featured will be Darius... more »
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NMO Diaries
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Good afternoon everyone,
In honor of Rare Disease Day we are happy to announce the launch of
our website NMO Diaries. Christine, Erin and Jenna have been working
very hard to create a site that NMO patients and caregivers can see
how three women are living life to the fullest after being diagnosed... more »
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Membership: From Derek at Spectrum.
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Hello Everyone,
The Spectrum/Devic's Support Integration launch date is March 3.
We are up and running for internal testing only. Any test emails to
this address before Thursday will be forwarded to our moderation
queue, which is what some of you may have already experienced. Please
wait until you receive an announcement on March 3, stating that the... more »
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Possible Relapse
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Hello Grace
Im Fredy, Sarah's husband, she has devic since 2007. She is at hospital
now, on Sunday 13 had a fever (38.1) and sometimes, now she has only a
little weakness in legs, after analysis yesterdey her Doctor ordered
methilprednisolone, at night she sweat. How to know if she has a relapse or... more »
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Hi! I suppose you are interested in good and happy life, don’t you?. [link]
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7
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Smile and be happy with this new stuff!.. [link]
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Fw: 2011 NMO Patient Day Webcast
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----- Forwarded Message ----- ...To: Dan Behne <dbe...@allggf.org> Sent: Thursday, November 3, 2011 11:20 AM ...Hello to all, Another year has passed and we are in the final countdown to the 2011 NMO Patient Day! I hope that each and every one of you are as excited as we are. We plan to have a day packed with useful information for all to use. Attached you will find the 2011 NMO Patient Day Agenda for your use.... more »
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Just received first 5 day round of IVIG
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Hello all,
I have had numerous problems for the past 10 years and was diagnosed
in Jan 2010 with MS. Upon seeking another opinion (after no MS
therapies worked) I was told I could have NMO. I go back on the 7th
of OCt. and expect to be diagnosed and get my treatment plan. THe
IVIG really helped me with my pain. Before it was coming through the... more »
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