Devic's Support Google Group

Re: Cindy

grace...@gmail.com (Grace) — Sat, 19 Dec 2009 10:10:01 UT

Hi Lin,
You asked how one would know if their disease was Monophasic (One
attack only.) versus a Relapsing disease course. That's just it,
there is no concrete way of knowing. Roughly 80 per cent of all cases
are Relapsing and the same number are women. Typically, a Monophasic
(One attack only.) patient is hit very hard with their first and only

Lin--One attack only versus relapsing disease.

grace...@gmail.com (Grace) — Sat, 19 Dec 2009 10:05:11 UT

Re: Cindy

spindo...@optonline.net — Sat, 19 Dec 2009 05:25:04 UT

Cara,
I am crying as I read these posts. They are so beautiful and loving. The level of compassion and support here is more than touching, it is truly a gift. Please never feel ashamed to want to spare a loved from pain and suffering. Instead, feel proud that you found the courage to be there with your beloved friend as she makes this incredibly difficult decision. Rejoice in your friendship and that you have the amount of love necessary in your heart to stand by your friend no matter what. You know so many of us have lost even those who we thought were good or best friends as they have found it too much of a challenge to witness us when we are very ill. Not you Cara, you suck it us not allowing your own feelings to take away from your time with Cindy. I love you Cara. You are a straight shooter and I wish I had one ounce of the courage you have shown these past few years.

Re: Cindy

spindo...@optonline.net — Sat, 19 Dec 2009 05:16:40 UT

Cara dear,
Just catching up on my email from the past few days to read your posts re Cindy's current situation. I don't even know how to put into words what I am feeling. And that isn't fair as it is Cindy and her family as well as you her BFF(for real) who are going through the agonizing decision making process. I ache for Cindy and her need to know too much about her disease inorder to make decisions that no one should have to make. The courage needed to make these decisions makes me feel weak in the knees. Knowing that Carey and Lisa are going through the same process for their little fellow can knock the breath out of you.

Videos

sheliasheck...@sistamoonfoundationfordevicsdisease.com (Shelia Sheckles) — Sat, 19 Dec 2009 03:48:35 UT

Cognitive Therapy[link] <[link]>
Weights
[link] <[link]>
Shelia ShecklesFounder & CEOSistaMoon Foundation[link] <[link]>

Prayers

sheliasheck...@sistamoonfoundationfordevicsdisease.com (Shelia Sheckles) — Sat, 19 Dec 2009 03:47:47 UT

I want Cindy and Collin and their families to know that I have adn will contiue to keep them in my prayers. I know that God does hear our prayers and I know that he will see us through these tough and sometimes sad times in our lives. Pleae keep the faith and know everything will be alright.Shelia ShecklesFounder & CEOSistaMoon Foundation[link] <[link]>

Bringing Awareness and Spreading Hope

sheliasheck...@sistamoonfoundationfordevicsdisease.com (Shelia Sheckles) — Sat, 19 Dec 2009 03:18:49 UT

Case Management
[link] <[link]>
Infusion
[link] <[link]>
We experienced Techicle Difficulty with the Camera and will bring you next months' infusion live.Shelia ShecklesFounder & CEOSistaMoon Foundation[link] <[link]>

Bringing Awareness and Spreading Hope

sheliasheck...@sistamoonfoundationfordevicsdisease.com (Shelia Sheckles) — Sat, 19 Dec 2009 03:15:02 UT

Physical Therapy
[link] <[link]>
Physical Therapy 2
[link] <[link]>
Occupational Therapy
[link] <[link]>

Re: Cindy

gtmrs...@yahoo.com (s s) — Sat, 19 Dec 2009 03:08:22 UT

Lisa, Cara, I just want to wrap both of you up in a big hug. You are both such special, amazing, STRONG women. Your families and friends are all so blessed to have you in their lives. Making medical decisions is HARD and can be agonizing. When you have to make them for a loved one, it's exponentially worse. You don't always know what's the right thing to do, but all anyone can do is their best, and I have NO DOUBT that you both do exactly that. Lisa, I'm so glad that Mishelle is ok. I know you must have been terrified.

Re: Cindy

carah...@insightbb.com — Sat, 19 Dec 2009 00:56:35 UT

Lol this was my first draft and I thought I deleted it by mistake! That's why the second one was shorter hahahaha

Sent on the Sprint® Now Network from my BlackBerry®

-----Original Message-----
To: <devics-support@googlegroups.c om>

Lisa,

I am so proud of you right now and even more importantly....I instantly felt how proud the Lord is of you for sharing that. This is all so heavy....and I have unconfessed sins myself of poor choices I've made since this has happened. We act out in our humanness and make bad decisions sometimes. More so when we are hurting and tired of it! I am so glad your daughter is ok and perhaps this was what needed to happen for you to feel peace about some big decisions and also to work on healing for all of you...not just precious Collin.

Re: Cindy

carah...@insightbb.com — Sat, 19 Dec 2009 00:51:18 UT

I'm so proud of you and thank you so much for sharing! I will be praying for ALL of you Lisa. Total healing! I'm so glad she's physically ok. Now you can work on her thoughts. We know her heart is good....look at her parents! The poor darling....you tell her I have made some really poor choices this year too. When you are hurting its even easier to mess up.

Re: Cindy

carah...@insightbb.com — Sat, 19 Dec 2009 00:45:58 UT

Lisa,

Re: Cindy

angsh...@gmail.com — Sat, 19 Dec 2009 00:32:31 UT

Cara,
DO NOT BE ASHAMED!! You have NOTHING to be ashamed over, nothing! You have
fought with her, cried with her, mourned the loss of her functions with her,
etc. You have been her friend! It is nothing shameful to not want her to do
this, really! I feel the same way about Collin too. I don't want him to do

Re: Cindy

carah...@insightbb.com — Sat, 19 Dec 2009 00:17:16 UT

I am so ashamed that I was thinking she shouldn't do it. I just hate to see her so sick and she is so fragile already. But I forgot for a minute what a fighter she is....its so true.....that's Cindy! So my new attitude with it is "you go girl!".

Cara

Sent on the Sprint® Now Network from my BlackBerry®

Re: Cindy

carah...@insightbb.com — Fri, 18 Dec 2009 23:57:25 UT

Nancy this was beautiful. I hate that the nurse sd that to you, but I love that your dad proved her wrong! I also love that surgeon! What a man!

You are exactly right. Bottom line is I am scared but Cindy wants to fight....so I fully support her!

Sitting with her now as she sleeps listening to my daughter type on a laptop and playing with Cindy's 3 year old nephew. I do feel lucky. :)