This email serves as an announcement of the formation of The Guthy- Jackson Charitable Foundation. The foundation is dedicated to funding biomedical research to understand the pathophysiology and biochemistry of Neuromyelitis Optica (NMO) Spectrum Disease. The Foundation's goal is to find answers that will lead to the prevention, clinical treatment programs and a potential cure for NMO.
The Foundation is also dedicated to providing as many resource avenues as possible to all those affected by NMO. As such, Devic s Support has been listed as a resource on the Foundation's website along with a link to your website. We invite you to see your link on the Foundation's website at:
We ask for your support by considering the Foundation as a valuable resource in NMO by adding the Foundation and a link to its website on your website links page.
On behalf of The Guthy-Jackson Charitable Foundation, we thank you in advance, and if you have any questions please do not hesitate to contact me.
No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.8/1898 - Release Date: 1/16/2009 3:09 PM
I am so excited that we have someone who is willing to fund research, I can
hardly wait to give this information to my doctors. I want to see if anyone
is willing to go to the meetings. I think one will want to go. So I better
get off the computer and get this printer out and send it to her.
How have you been feeling lately? I am doing alright but i keep getting
coldsores and i am getting tired of it[?]! Well I need to get going.
On Sat, Jan 17, 2009 at 10:31 AM, KMC <getrhy...@swagents.com> wrote:
> Who sent this to you? I have to read all the info on the site - but
> in the about us they have abbreviated bios so people will know who it
> is .
> I guess she's choosing her own way of announcing, which is perfect.
> Yeah! I hope people get excited!
> xoxo, kendall
> On Jan 16, 2009, at 6:13 PM, Grace wrote:
> > Dear Devic's Support Group Owner,
> > This email serves as an announcement of the formation of The Guthy-
> > Jackson Charitable Foundation. The foundation is dedicated to funding
> > biomedical research to understand the pathophysiology and
> > biochemistry of
> > Neuromyelitis Optica (NMO) Spectrum Disease. The Foundation's goal
> > is to
> > find answers that will lead to the prevention, clinical treatment
> > programs
> > and a potential cure for NMO.
> > The Foundation is also dedicated to providing as many resource
> > avenues as
> > possible to all those affected by NMO. As such, Devic s Support
> > has been
> > listed as a resource on the Foundation's website along with a link
> > to your
> > website. We invite you to see your link on the Foundation's
> > website at:
> > We ask for your support by considering the Foundation as a valuable
> > resource in NMO by adding the Foundation and a link to its website
> > on your
> > website links page.
> > On behalf of The Guthy-Jackson Charitable Foundation, we thank you in
> > advance, and if you have any questions please do not hesitate to
> > contact me.
I am so excited. I would go, if the travel isn't too far. Let me know where and when? I would love to see a cure for Devic's.
Gina
Date: Sat, 17 Jan 2009 17:40:05 -0600Subject: Re: New Neuromyelitis Optica Foundation AnnouncementFrom: barb...@partyka.orgTo: Devics-supp...@googlegroups.comHi Kendall,I am so excited that we have someone who is willing to fund research, I can hardly wait to give this information to my doctors. I want to see if anyone is willing to go to the meetings. I think one will want to go. So I better get off the computer and get this printer out and send it to her.How have you been feeling lately? I am doing alright but i keep getting coldsores and i am getting tired of it! Well I need to get going. Let me know how you are doing,Barb
On Sat, Jan 17, 2009 at 10:31 AM, KMC <getrhy...@swagents.com> wrote:
Who sent this to you? I have to read all the info on the site - butin the about us they have abbreviated bios so people will know who itis .I guess she's choosing her own way of announcing, which is perfect.Yeah! I hope people get excited!xoxo, kendall
On Jan 16, 2009, at 6:13 PM, Grace wrote:>> Dear Devic's Support Group Owner,>> This email serves as an announcement of the formation of The Guthy-> Jackson Charitable Foundation. The foundation is dedicated to funding> biomedical research to understand the pathophysiology and> biochemistry of> Neuromyelitis Optica (NMO) Spectrum Disease. The Foundation's goal> is to> find answers that will lead to the prevention, clinical treatment> programs> and a potential cure for NMO.>> The Foundation is also dedicated to providing as many resource> avenues as> possible to all those affected by NMO. As such, Devic s Support> has been> listed as a resource on the Foundation's website along with a link> to your> website. We invite you to see your link on the Foundation's> website at:>> http://guthyjacksonfoundation.org/resources.php>> We ask for your support by considering the Foundation as a valuable> resource in NMO by adding the Foundation and a link to its website> on your> website links page.>> On behalf of The Guthy-Jackson Charitable Foundation, we thank you in> advance, and if you have any questions please do not hesitate to> contact me.>> Best Regards,>> Derek Blackway>>>>> ----------------------------------------------------------------------> ---------->>>> No virus found in this incoming message.> Checked by AVG - http://www.avg.com> Version: 8.0.176 / Virus Database: 270.10.8/1898 - Release Date:> 1/16/2009> 3:09 PM>>> >
THank GOD!!!! Finally it seems someone is looking to help this lone
group of people. Gary wanted me to look something up on the net
yesterday. I told him I was already in contact with everything I could
get my hands on. I said,"you do realize that you have a RARE
disease." Maybe we can get some exposure as well now. I'm tired of
telling Drs more educated than me about a disease they have never
heard of. Gary woke me up early morning hours to say the feeling was
messing up in his legs. At this point, we are waiting out some oral
preds for the day and will see Dr tomorrow. Dang it! Here we go
again! Been contemplating Rituxan, looks more real now.
This is great news. i'm anxious to follow this and see their protocol
for how to award money. also, i hope some of our members who go to
the doctors who went to the first meeting will ask their drs. about
the foundation.
On Jan 18, 10:44 am, amelia <ameliacl...@bellsouth.net> wrote:
> THank GOD!!!! Finally it seems someone is looking to help this lone
> group of people. Gary wanted me to look something up on the net
> yesterday. I told him I was already in contact with everything I could
> get my hands on. I said,"you do realize that you have a RARE
> disease." Maybe we can get some exposure as well now. I'm tired of
> telling Drs more educated than me about a disease they have never
> heard of. Gary woke me up early morning hours to say the feeling was
> messing up in his legs. At this point, we are waiting out some oral
> preds for the day and will see Dr tomorrow. Dang it! Here we go
> again! Been contemplating Rituxan, looks more real now.
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