> Just a bit to add to this post from a few days ago.   I had joined
> this study in early 2007 when visiting Atlanta , Georgia and recently
> got an email from Elizabeth Iski, the site co-ordinator-researcher at
> the Shepherd Center there requesting I call Sara Nels at the ACP about
> telling my story regarding the study.  They are recruiting for more
> volunteers and wanted quotes from those already involved.  Today, I
> heard from Sarah Nels from the San Francisco office and we spoke for
> about an hour.
> As the post from Grace states, the Guthy Jackson foundation has
> promised a grant to pay for the enrollment costs for  the addition of
> 20 patients with NMO to the study.  That translates to about $50,000
> as it costs on average, $2500 to enroll each person.  But they would
> like to see these people enrolled by the end of March. That seems to
> be an agressive goal, but this is an agressive disease as many of you
> here know.
> If any of you reading this would like to know more about the
> Accelerated Cure Project or would like to participate and have
> questions about the process or have problems with logistics; please
> email me and I will be happy to share my experience with you.
> I can tell you that several of the group here joined while we were out
> in Seattle, and there are others, like me who were already
> enrolled....but here is an opportunity for anyone with NMO to
> participate in a study looking for the etiology and eventually a cure
> for demyelinating disease ;where a new organization, dedicated to
> finding the cause and cure for NMO is so convinced that the
> Accelerated Cure Project is on to something, that they are promising
> $50,000 in their first year of existence to advance the progress
> already shown by the ACP.  For those of you who don't deal with
> charities on a regular basis, a start-up charity donating $50 grand in
> their first year is almost unheard of. Please take a moment to look at
> the website : www.acceleratedcure.org
> and if you have questions, please email me.

> Corrine

> PS...I have heard that at the Symposium in Seattle, some 47 were
> recruited, most of them with TM ....wouldn't it be great to see that
> many with NMO added to the repository!

> > Date: Thu, 29 Jan 2009 16:07:05 -0800
> > Subject: Re: Accelerated Cure Project/Guthy-Jackson Charitable Foundation
> > From: rushcree...@yahoo.com
> > To: Devics-support@googlegroups.com

> > Just a bit to add to this post from a few days ago. I had joined
> > this study in early 2007 when visiting Atlanta , Georgia and recently
> > got an email from Elizabeth Iski, the site co-ordinator-researcher at
> > the Shepherd Center there requesting I call Sara Nels at the ACP about
> > telling my story regarding the study. They are recruiting for more
> > volunteers and wanted quotes from those already involved. Today, I
> > heard from Sarah Nels from the San Francisco office and we spoke for
> > about an hour.
> > As the post from Grace states, the Guthy Jackson foundation has
> > promised a grant to pay for the enrollment costs for the addition of
> > 20 patients with NMO to the study. That translates to about $50,000
> > as it costs on average, $2500 to enroll each person. But they would
> > like to see these people enrolled by the end of March. That seems to
> > be an agressive goal, but this is an agressive disease as many of you
> > here know.
> > If any of you reading this would like to know more about the
> > Accelerated Cure Project or would like to participate and have
> > questions about the process or have problems with logistics; please
> > email me and I will be happy to share my experience with you.
> > I can tell you that several of the group here joined while we were out
> > in Seattle, and there are others, like me who were already
> > enrolled....but here is an opportunity for anyone with NMO to
> > participate in a study looking for the etiology and eventually a cure
> > for demyelinating disease ;where a new organization, dedicated to
> > finding the cause and cure for NMO is so convinced that the
> > Accelerated Cure Project is on to something, that they are promising
> > $50,000 in their first year of existence to advance the progress
> > already shown by the ACP. For those of you who don't deal with
> > charities on a regular basis, a start-up charity donating $50 grand in
> > their first year is almost unheard of. Please take a moment to look at
> > the website : www.acceleratedcure.org
> > and if you have questions, please email me.

> > Corrine

> > PS...I have heard that at the Symposium in Seattle, some 47 were
> > recruited, most of them with TM ....wouldn't it be great to see that
> > many with NMO added to the repository!

> Judy,
>     My first trip to the Shepherd Center was around Easter 2007.  I
> have tough veins and after 8 or 10 trys, no luck.  Elizabeth
> petitioned the study sponsor to allow a port to be put in and they
> agreed.  I went back in August 2007, and fortunately for me, the 1/2
> gallon of water (it seemed like it anyways) and small bag a chips I
> ate right before we got there inflated my veins enough that we didn't
> have to have the port. Point is, they will use your port for the
> blood.
>     I live in Ohio, so it was 2 trips south to get fully enrolled, so
> I am happy to see OSU coming on board now.  Eventually, there will be
> a site in California, most likely USC or Stanford, but it may take a
> year or so.
>     If anyone lives within 5 hours of Columbus, and needs help with
> logistics, I would be willing to help get you there...
>                                                         Corrine

> The packet of questions is long...but remember, no one knows what it
> is that triggers these demylenating disorders.  All those ansewers are
> entered into a database and commonalities are researched.  The answers
> are out there...

> Just a bit to add to this post from a few days ago. I had joined
> this study in early 2007 when visiting Atlanta , Georgia and recently
> got an email from Elizabeth Iski, the site co-ordinator-researcher at
> the Shepherd Center there requesting I call Sara Nels at the ACP about
> telling my story regarding the study. They are recruiting for more
> volunteers and wanted quotes from those already involved. Today, I
> heard from Sarah Nels from the San Francisco office and we spoke for
> about an hour.
> As the post from Grace states, the Guthy Jackson foundation has
> promised a grant to pay for the enrollment costs for the addition of
> 20 patients with NMO to the study. That translates to about $50,000
> as it costs on average, $2500 to enroll each person. But they would
> like to see these people enrolled by the end of March. That seems to
> be an agressive goal, but this is an agressive disease as many of you
> here know.
> If any of you reading this would like to know more about the
> Accelerated Cure Project or would like to participate and have
> questions about the process or have problems with logistics; please
> email me and I will be happy to share my experience with you.
> I can tell you that several of the group here joined while we were out
> in Seattle, and there are others, like me who were already
> enrolled....but here is an opportunity for anyone with NMO to
> participate in a study looking for the etiology and eventually a cure
> for demyelinating disease ;where a new organization, dedicated to
> finding the cause and cure for NMO is so convinced that the
> Accelerated Cure Project is on to something, that they are promising
> $50,000 in their first year of existence to advance the progress
> already shown by the ACP. For those of you who don't deal with
> charities on a regular basis, a start-up charity donating $50 grand in
> their first year is almost unheard of. Please take a moment to look at
> the website : www.acceleratedcure.org
> and if you have questions, please email me.

> Corrine

> PS...I have heard that at the Symposium in Seattle, some 47 were
> recruited, most of them with TM ....wouldn't it be great to see that
> many with NMO added to the repository!

> Just a bit to add to this post from a few days ago. I had joined
> this study in early 2007 when visiting Atlanta , Georgia and recently
> got an email from Elizabeth Iski, the site co-ordinator-researcher at
> the Shepherd Center there requesting I call Sara Nels at the ACP about
> telling my story regarding the study. They are recruiting for more
> volunteers and wanted quotes from those already involved. Today, I
> heard from Sarah Nels from the San Francisco office and we spoke for
> about an hour.
> As the post from Grace states, the Guthy Jackson foundation has
> promised a grant to pay for the enrollment costs for the addition of
> 20 patients with NMO to the study. That translates to about $50,000
> as it costs on average, $2500 to enroll each person. But they would
> like to see these people enrolled by the end of March. That seems to
> be an agressive goal, but this is an agressive disease as many of you
> here know.
> If any of you reading this would like to know more about the
> Accelerated Cure Project or would like to participate and have
> questions about the process or have problems with logistics; please
> email me and I will be happy to share my experience with you.
> I can tell you that several of the group here joined while we were out
> in Seattle, and there are others, like me who were already
> enrolled....but here is an opportunity for anyone with NMO to
> participate in a study looking for the etiology and eventually a cure
> for demyelinating disease ;where a new organization, dedicated to
> finding the cause and cure for NMO is so convinced that the
> Accelerated Cure Project is on to something, that they are promising
> $50,000 in their first year of existence to advance the progress
> already shown by the ACP. For those of you who don't deal with
> charities on a regular basis, a start-up charity donating $50 grand in
> their first year is almost unheard of. Please take a moment to look at
> the website : www.acceleratedcure.org
> and if you have questions, please email me.

> Corrine

> PS...I have heard that at the Symposium in Seattle, some 47 were
> recruited, most of them with TM ....wouldn't it be great to see that
> many with NMO added to the repository!

> Just a bit to add to this post from a few days ago. I had joined
> this study in early 2007 when visiting Atlanta , Georgia and recently
> got an email from Elizabeth Iski, the site co-ordinator-researcher at
> the Shepherd Center there requesting I call Sara Nels at the ACP about
> telling my story regarding the study. They are recruiting for more
> volunteers and wanted quotes from those already involved. Today, I
> heard from Sarah Nels from the San Francisco office and we spoke for
> about an hour.
> As the post from Grace states, the Guthy Jackson foundation has
> promised a grant to pay for the enrollment costs for the addition of
> 20 patients with NMO to the study. That translates to about $50,000
> as it costs on average, $2500 to enroll each person. But they would
> like to see these people enrolled by the end of March. That seems to
> be an agressive goal, but this is an agressive disease as many of you
> here know.
> If any of you reading this would like to know more about the
> Accelerated Cure Project or would like to participate and have
> questions about the process or have problems with logistics; please
> email me and I will be happy to share my experience with you.
> I can tell you that several of the group here joined while we were out
> in Seattle, and there are others, like me who were already
> enrolled....but here is an opportunity for anyone with NMO to
> participate in a study looking for the etiology and eventually a cure
> for demyelinating disease ;where a new organization, dedicated to
> finding the cause and cure for NMO is so convinced that the
> Accelerated Cure Project is on to something, that they are promising
> $50,000 in their first year of existence to advance the progress
> already shown by the ACP. For those of you who don't deal with
> charities on a regular basis, a start-up charity donating $50 grand in
> their first year is almost unheard of. Please take a moment to look at
> the website : www.acceleratedcure.org
> and if you have questions, please email me.

> Corrine

> PS...I have heard that at the Symposium in Seattle, some 47 were
> recruited, most of them with TM ....wouldn't it be great to see that
> many with NMO added to the repository!