Medical and Scientific Profiles

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Anthony Broad-Crawford

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Aug 18, 2008, 10:27:07 AM8/18/08
to DataPortability.General
I have done some searching on this site and haven't found much focus
on the medical / scientific focus for profile interoperability. If it
exists, I would like to actively participate in the discussion. If
not, I would like to begin the discussion. I am the CTO of a
professional networking site that focuses on the medical community
(Within3) and we would like to both participate in building and
utilizing the standards being set by this project. I discuss the
importance / impact to our industry and platform on my blog (http://
anthonybroadcrawford.com/index.php/scientific-and-medical-profile-
interoperability/). Please let me know as I look forward to
participating.

TSchultz55

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Aug 20, 2008, 1:11:39 PM8/20/08
to DataPortability.General
Anthony,

Good thoughts. A few of us have been in some sporadic discussions
about the possibility of extending DP to other areas such as the
medical/scientific community. Your insight would be undoubtedly
invaluable.

Shot you over an email to establish some sort of communication
regarding this. If anyone else out there would like to contribute as
well, please feel free to let us know!

Cheers,

Tim

On Aug 18, 10:27 am, Anthony Broad-Crawford <abroad-

Brady Brim-DeForest

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Aug 20, 2008, 1:17:16 PM8/20/08
to dataportabi...@googlegroups.com
Without a doubt. The medical/scientific arenas, as well as
banking/financial, could all benefit from further data portability
related discussions.

Welcome to the conversation Anthony,

Brady

Deepak Singh

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Aug 20, 2008, 10:43:14 PM8/20/08
to DataPortability.General
Scientific data portability has come up quite often in discussions in
the Life Scientist Group on friendfeed. At issue the number of
"scientific" social networks, as well as sites to share references,
etc.

A good starting point would be Euan's post
http://blogs.nature.com/wp/nascent/2008/08/data_portability_for_scientifi.html

Cameron Neylon wrote an open letter which highlights many of the
issues of interest.

http://blog.openwetware.org/scienceintheopen/2008/08/06/an-open-letter-to-the-developers-of-social-network-and-%E2%80%98web-20%E2%80%99-tools-for-scientists/

From my perspective, the key is to do what is required without
reinventing the wheel (read, try and avoid inventing new standards/
specifications) while maintaining items of scientific interest.

Cheers

Deepak

Deepak

On Aug 20, 10:17 am, "Brady Brim-DeForest" <brad...@gmail.com> wrote:
> Without a doubt. The medical/scientific arenas, as well as
> banking/financial, could all benefit from further data portability
> related discussions.
>
> Welcome to the conversation Anthony,
>
> Brady
>

Mark Scrimshire (ekivemark)

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Sep 15, 2008, 2:02:24 PM9/15/08
to DataPortability.General
I work for a HealthCare Payer and have been pushing this agenda as
part of HealthCamp. I am going to put HealthCampNy sessions on the
agenda at the Web 2.Open track of the Web 2.0 Expo in New York next
week (Sep 16-17). There will also be a Birds of a Feather session on
Health 2.0 and Open Standards on Wednesday evening.

Find out more at http://barcamp.org/HealthCampNy

Regards

Mark Scrimshire
http://ekive.blogspot.com

On Aug 20, 10:43 pm, Deepak Singh <mnd...@gmail.com> wrote:
> Scientific data portability has come up quite often in discussions in
> the Life Scientist Group on friendfeed.  At issue the number of
> "scientific" social networks, as well as sites to share references,
> etc.
>
> A good starting point would be Euan's posthttp://blogs.nature.com/wp/nascent/2008/08/data_portability_for_scien...
>
> Cameron Neylon wrote an open letter which highlights many of the
> issues of interest.
>
> http://blog.openwetware.org/scienceintheopen/2008/08/06/an-open-lette...

Dennis D. McDonald

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Sep 16, 2008, 7:47:23 AM9/16/08
to DataPortability.General
Anthony, I left this comment on your blog post and would be happy to
discuss further:

--------------------------------------------

Anthony, are you sure, as the number of professional networks
proliferate, that there will be a need to maintain identical
professional profiles across multiple networks? Or, as is the case
with scientific specialization and sub-specialization, will there be a
need to maintain slightly different profiles that promote a particular
aspect or version of your experience depending on the network’s
collective identity?

Here’s one of my own blog posts that addresses some similar issues:

“Facebook Connect Raises Complex Data Portability and Data Sharing
Issues”

http://www.ddmcd.com/connect.html

danielabarbosa

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Oct 2, 2008, 2:34:41 AM10/2/08
to DataPortability.General
Looks like Anthony and the rest of the crew is making some progress
and we look forward to hearing from them what their objectives will be
so the steering committee can support their work going forward (Trent
and I have been involved- Trent more then me!)

If you are interested in participating please make sure you contact
Anthony- see his post here:
http://anthonybroadcrawford.com/index.php/dataportability-healthcare-task-force/


thanks!

danielabarbosa

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Oct 26, 2008, 12:20:44 PM10/26/08
to DataPortability.General
Here are Mark Scrimshire's notes from the recent Health Camp in SF
since it was referenced above and i know that many of you are
interested in Health and Medical issues and Data Portability issues
were discussed.

http://ekive.blogspot.com/2008/10/healthcampsf-more-fascinating.html

I know that the Heath Care DataPortability Taskforce has been busy -
here is an update from Trent as pulled from our weekly Steering
Committee meeting on October 20th:
>>>>>>
Health Care Task Force Proposal (Trent)
o Solicited opinions from various participants in the Healthcare,
Pharma, and Clinical Research communities
o Proposed charter draft being worked with Trent and Anthony Broad-
Crawford
o Plan to finalize within the next week, then circulate on the
public list, then propose to Steering for ratification
>>>>>

So stay tuned- or drop Anthony or Trent a note if you want to get
involved.

EricNeumann

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Nov 2, 2008, 3:45:36 PM11/2/08
to DataPortability.General

I'm finding this discussion thread interesting, and quite timely as
well. I am pleased to see that so many realize how urgent medical DO
is, and its potential impact on controlling helathcare costs and
quality.

I also want to let people know of concurrent activities regarding
medical profiling and some defined scenarios are clinical trials,
which may be useful to you as well...
http://esw.w3.org/topic/HCLS/ClinicalObservationsInteroperability/

For anyone interested in an excellent examples of an in-house approach
utilizing Semantic Web standards (and ontologies), please look at...
http://www.w3.org/2001/sw/sweo/public/UseCases/ClevelandClinic/

cheers,
Eric

Clinical Semantics Ggroup
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