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Description: Support group forum for those dealing with central retinal vein occlusion (CRVO).
 

flag RVO SURVEY is ready for your input 
  Fellow CRVO group members, First, let me thank those folks (18 in all) who took the time to complete our 4-question trial survey. We are now ready to begin collecting data from the longer, complete survey. The new RVO survey is now up and running. I hope your will take a few minutes to complete it. Just follow this link:... more »
By Myrna G.  - Mar 18 - 26 new of 26 messages    

New to CRVO - question about floaters 
  Hi everyone, I am 37 years old female. I started seeing weird things, like white clouds about a month ago. I was referred to an oftalmologist who said there was a blockage and to wait a month to clear. They did blood tests and everything came back normal, except for a cell that is normally present when you have a lot of allergies...I had a lot of... more »
By Ivy  - May 25 - 4 new of 4 messages    

Discouraged and Depressed 
  It was a really bad day, so if you are not in the mood for whining, back away from this post. I had my Avastin injection a week and a half ago. I called the RS on Wednesday because I was seeing little to no improvement in my vision and no relief of my pain. They suggested that I switch to 800mg of... more »
By Wormie  - May 25 - 6 new of 6 messages    

My Up-Date and Results ! 
  But first let me explain that my R/S wanted me to come in yesterday when I called him because this sounded very serious. But I had no way to get there and since my appmnt. was for today , I wanted to hold off. Well today I went as scheduled and here is what he found... The veins inside my eye were growing much more rapidly than normal to... more »
By De Bo  - May 23 - 19 new of 19 messages    

Now What ? (not funny) 
  I was talked into it and went camping this past Thursday / Friday. A bit uncomfortable but I survived... but Saturday when I got home, it felt like my eye was beginning to throb. By Sunday, the throbbing became very severe and somewhat painful. Yesterday, Monday, it felt as though the back of my eye was being squeezed with a pair of vise grips... more »
By De Bo  - May 22 - 19 new of 19 messages    

Vitamin D 
  Low or deficient Vitamin D has become epidemic in recent years, probably due to the misguided notion that sunlight is dangerous, and that we should all be smearing our bodies with the toxic chemicals in sunblock. The lack of sufficient Vitamin D can create havoc with every system within the body. It has been linked to many diseases,... more »
By SharC  - May 21 - 4 new of 4 messages    

Pain 
  From reading here, it seems that most people do not have pain with their occlusions. I'm one of the "lucky ones" who does, but I know that I'm not the only one out there. My doctor told me to take advil or aleve daily to help reduce the inflammation and pain, but since my last injection on Tuesday, the... more »
By Wormie  - May 20 - 5 new of 5 messages    

Pre-op visit 
  Had my pre-op visit this past Thursday, for my Vitrectomy & membrane peel. Doc said eye looking so much better - so good that he almost considered cancelling my surgery. God is GOOD! Last visit (which was a 6-week appt) my OCT was back up to 604, vision @ 20/160 & membrane was cauing quite a bit of traction - which... more »
By jan  - May 20 - 11 new of 11 messages    

Update on my CRVO 
  Been a while, so here is my update. I have a sudden CRVO back in Jan. Vision was 20/40. Dr. decided to wait and see. It improved slightly but went down hill quickly. Two months later my vision was 20/60. My regular RS was unavailable so saw a new one. She was shocked he didn't do any treatment. She gave me a shot of Avastin. The shot wasn't bad... more »
By Mark Cook  - May 18 - 7 new of 7 messages    

Hair loss 
  Hello all, I know the subject of hair loss from the Avastin injections must have been discussed somewhere on this forum I just can't seem to find it. I've had 11 injections, one just about every 5 weeks for the last year and a half. It is a chemotherapy drug after all and although a small amount is given, and I'm not finding clumps of hair in the sink, I... more »
By Ruthie  - May 18 - 13 new of 13 messages    

My 1st Follow up Appointment 
  I had an appointment today at the hospital. My first follow up 2 months on from my vein occlusion. Thanks to this group, i went armed with lots of questions (and much more knowledge!). The doctors were really helpful and the visit threw up a couple of unexpected things. First, after my pupil was dilated, they confirmed, i DONT have Hemi as... more »
By paulvev  - May 18 - 13 new of 13 messages    

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