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Description:
Welcome. This Group is linked to the website of the support group for Congenital TTP. www.CongenitalTTP.com and it exists in order to connect with and share information and experiences of those people affected by Congenital TTP.
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Also born with congential TTP
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I came across your website in serach of a group with TTP to talk to.
What a perfect one to find :). I am 27 years old and I too was born
with congenital TTP. I recieve blood transfusions regularly. If you
have any information to share with me or if I can be of any help to
you I will gladly do so. Thank you very much for having this group... more »
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ARC1779 for TTP
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Hi,
I have found one article on internet drug for TTP.
Has any one knows about this....
Pls reply.....
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ARC1779 for TTP
ARC1779 is currently in Phase 2 clinical development with a clinical... more »
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Hello
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My name is kuky, I am deeply sadden for the challenges your infant
will have to face because of ttp. I myself am a ttp survivor and my
ttp is idiopathic. I really feel for the both of you. I can tell just
by looking at your picture that you both make a strong couple and that
God will never put on you more than what you can handle. As you pray... more »
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