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Description: Welcome. This Group is linked to the website of the support group for Congenital TTP.  www.CongenitalTTP.com and it exists in order to connect with and share information and experiences of those people affected by Congenital TTP. 

 

Also born with congential TTP 
  I came across your website in serach of a group with TTP to talk to. What a perfect one to find :). I am 27 years old and I too was born with congenital TTP. I recieve blood transfusions regularly. If you have any information to share with me or if I can be of any help to you I will gladly do so. Thank you very much for having this group... more »
By megirl  - Sep 15 2008 - 3 new of 3 messages    

ARC1779 for TTP 
  Hi, I have found one article on internet drug for TTP. Has any one knows about this.... Pls reply..... ------------------------------ ------------------------------ ------------------------------ ------------------- ARC1779 for TTP ARC1779 is currently in Phase 2 clinical development with a clinical... more »
By skharoon  - Sep 9 2008 - 3 new of 3 messages    

Hello 
  My name is kuky, I am deeply sadden for the challenges your infant will have to face because of ttp. I myself am a ttp survivor and my ttp is idiopathic. I really feel for the both of you. I can tell just by looking at your picture that you both make a strong couple and that God will never put on you more than what you can handle. As you pray... more »
By kuky  - Sep 3 2008 - 1 message    

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