Account Options

  1. Sign in
The old Google Groups will be going away soon, but your browser is incompatible with the new version.
Google Groups Home
« Groups Home
AAC in ITU
There are currently too many topics in this group that display first. To make this topic appear first, remove this option from another topic.
There was an error processing your request. Please try again.
flag
  17 messages - Collapse all  -  Translate all to Translated (View all originals)
The group you are posting to is a Usenet group. Messages posted to this group will make your email address visible to anyone on the Internet.
Your reply message has not been sent.
Your post was successful
 
From:
To:
Cc:
Followup To:
Add Cc | Add Followup-to | Edit Subject
Subject:
Validation:
For verification purposes please type the characters you see in the picture below or the numbers you hear by clicking the accessibility icon. Listen and type the numbers you hear
 
Judge Simon (BARNSLEY HOSPITAL NHS FOUNDATION TRUST)  
View profile  
 More options Apr 17 2012, 11:36 am
From: "Judge Simon (BARNSLEY HOSPITAL NHS FOUNDATION TRUST)" <simon.ju...@nhs.net>
Date: Tue, 17 Apr 2012 16:36:12 +0100
Local: Tues, Apr 17 2012 11:36 am
Subject: AAC in ITU

Hi all,

An ITU department have approached us regarding options for improving communication for some of their patients with tracheotomies who are temporarily unable to communicate. Up to now they have 'made do' with lip reading, alphabet boards and writing.

I have a number of thoughts about a range of AAC possibilities for this kind of environment (and know about the Dundee ITU-AAC research project) and can imagine a kind of 'booklet/tool kit' of options that the nurses could use.

Does anyone else have experience of this to share? Are there any resources specifically designed for this environment around?

Thanks in advance.

Cheers,I

Simon

Senior Clinical Scientist
Assistive Technology Team

simon.ju...@nhs.net
01226 432159

www.barnsleyhospital.nhs.uk/at

Dept of Medical Physics
Block 14
Barnsley District General Hospital Foundation Trust Gawber Road Barnsley
S75 2EP

*************************************************************************** *****************************************

This message may contain confidential information. If you are not the intended recipient please inform the
sender that you have received the message in error before deleting it.
Please do not disclose, copy or distribute information in this e-mail or take any action in reliance on its contents:
to do so is strictly prohibited and may be unlawful.

Thank you for your co-operation.

NHSmail is the secure email and directory service available for all NHS staff in England and Scotland
NHSmail is approved for exchanging patient data and other sensitive information with NHSmail and GSi recipients
NHSmail provides an email address for your career in the NHS and can be accessed anywhere

*************************************************************************** *****************************************


 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
Baker Lesley  
View profile  
 More options Apr 17 2012, 11:45 am
From: "Baker Lesley" <Lesley.Ba...@gstt.nhs.uk>
Date: Tue, 17 Apr 2012 16:45:14 +0100
Local: Tues, Apr 17 2012 11:45 am
Subject: RE: [AAC Forum] AAC in ITU

In our PICU environment we also use these 'make do' options plus:

-          Using Lightwriter or own mobile phone to type out a message,
as long as necessary manual dexterity has been maintained

-          Picture based communication books / boards for our younger or
non-literate patients

-          BigMack switch with simple 'Help!' message to alert nursing
staff to any problem (although all tracheostomy patients on PICU have
one-to-one care anyway, though a patient may want to communicate with
the nurse while she is looking down writing her notes)

I now this is all common sense basic stuff but hope it's useful anyway.

Lesley

________________________________

From: cm-aac-forum@googlegroups.com
[mailto:cm-aac-forum@googlegroups.com] On Behalf Of Judge Simon
(BARNSLEY HOSPITAL NHS FOUNDATION TRUST)
Sent: 17 April 2012 16:36
To: cm-aac-forum@googlegroups.com
Subject: [AAC Forum] AAC in ITU

Hi all,

An ITU department have approached us regarding options for improving
communication for some of their patients with tracheotomies who are
temporarily unable to communicate. Up to now they have 'made do' with
lip reading, alphabet boards and writing.

I have a number of thoughts about a range of AAC possibilities for this
kind of environment (and know about the Dundee ITU-AAC research project)
and can imagine a kind of 'booklet/tool kit' of options that the nurses
could use.  

Does anyone else have experience of this to share? Are there any
resources specifically designed for this environment around?

Thanks in advance.

Cheers,I

Simon

Senior Clinical Scientist
Assistive Technology Team

simon.ju...@nhs.net
01226 432159

www.barnsleyhospital.nhs.uk/at

Dept of Medical Physics
Block 14
Barnsley District General Hospital Foundation Trust Gawber Road Barnsley
S75 2EP

************************************************************************
********************************************

This message may contain confidential information. If you are not the
intended recipient please inform the
sender that you have received the message in error before deleting it.
Please do not disclose, copy or distribute information in this e-mail or
take any action in reliance on its contents:
to do so is strictly prohibited and may be unlawful.

Thank you for your co-operation.

NHSmail is the secure email and directory service available for all NHS
staff in England and Scotland
NHSmail is approved for exchanging patient data and other sensitive
information with NHSmail and GSi recipients
NHSmail provides an email address for your career in the NHS and can be
accessed anywhere

************************************************************************
********************************************

--
GUIDELINES - COMMUNICATION MATTERS AAC FORUM

1. The purpose of this email group is for people to share experiences
and information about Augmentative and Alternative Communication (AAC).
The views and opinions expressed are those of individuals and do not
represent the views of Communication Matters.

2. This email group must not be used for advertising or promoting goods
or services.

3. * COMMERCIAL INTERESTS *
If you are a supplier or have commercial interests, you must preface
each of your posts with the words 'COMMERCIAL INTERESTS DECLARED'.

Although this group is not actively moderated, Communication Matters
reserves the right to remove messages and members considered offensive,
libellous, or not following the above guidelines.

To post to this group, email: cm-aac-forum@googlegroups.com
To unsubscribe from this group, email:
cm-aac-forum+unsubscribe@googlegroups.com
For more options, visit: http://groups.google.com/group/cm-aac-forum

*************************************************************************** **********

The information contained in this message and or attachments is intended only for the
person or entity to which it is addressed and may contain confidential and/or
privileged material. Unless otherwise specified, the opinions expressed herein do not
necessarily represent those of Guy's and St Thomas' NHS Foundation Trust or
any of its subsidiaries. The information contained in this e-mail may be subject to
public disclosure under the Freedom of Information Act 2000. Unless the information
is legally exempt from disclosure, the confidentiality of this e-mail and any replies
cannot be guaranteed.

Any review, retransmission,dissemination or other use of, or taking of any action in
reliance upon, this information by persons or entities other than the intended
recipient is prohibited. If you received this in error, please contact the sender
and delete the material from any system and destroy any copies.

We make every effort to keep our network free from viruses. However, it is your
responsibility to ensure that this e-mail and any attachments are free of viruses as
we can take no responsibility for any computer virus which might be transferred by
way of this e-mail.

*************************************************************************** **********


 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
Sandra Hartley  
View profile  
 More options Apr 17 2012, 12:19 pm
From: "Sandra Hartley" <san...@logan-technologies.com>
Date: Tue, 17 Apr 2012 17:19:10 +0100
Local: Tues, Apr 17 2012 12:19 pm
Subject: RE: [AAC Forum] AAC in ITU

Commercial interest declared

I would have thought the iPAD is amongst the solutions now available and if
dexterity is affected fitting a keyguard would offer the added support.

I also have some experience of MegaBee being used in this environment when
accessibility is compromised. It has the advantage of being designed for a
sterile environment

Sandra

Sandra Hartley,  BSc. MRCSLT

Marketing Director

Logan Technologies Ltd

(subsidiary of ProxTalker.com, LLC)

office: 0845 5190871

fax: 0845 5190872

mobile: 07763 166959

email: san...@logan-technologies.com

 <http://www.ProxTalker.com> www.logan-technologies.co.uk

skype: logan-technologies

From: cm-aac-forum@googlegroups.com [mailto:cm-aac-forum@googlegroups.com]
On Behalf Of Baker Lesley
Sent: 17 April 2012 16:45
To: cm-aac-forum@googlegroups.com
Subject: RE: [AAC Forum] AAC in ITU

In our PICU environment we also use these 'make do' options plus:

-       Using Lightwriter or own mobile phone to type out a message, as long
as necessary manual dexterity has been maintained

-       Picture based communication books / boards for our younger or
non-literate patients

-       BigMack switch with simple 'Help!' message to alert nursing staff to
any problem (although all tracheostomy patients on PICU have one-to-one care
anyway, though a patient may want to communicate with the nurse while she is
looking down writing her notes)

I now this is all common sense basic stuff but hope it's useful anyway.

Lesley

  _____  

From: cm-aac-forum@googlegroups.com [mailto:cm-aac-forum@googlegroups.com]
On Behalf Of Judge Simon (BARNSLEY HOSPITAL NHS FOUNDATION TRUST)
Sent: 17 April 2012 16:36
To: cm-aac-forum@googlegroups.com
Subject: [AAC Forum] AAC in ITU

Hi all,

An ITU department have approached us regarding options for improving
communication for some of their patients with tracheotomies who are
temporarily unable to communicate. Up to now they have 'made do' with lip
reading, alphabet boards and writing.

I have a number of thoughts about a range of AAC possibilities for this kind
of environment (and know about the Dundee ITU-AAC research project) and can
imagine a kind of 'booklet/tool kit' of options that the nurses could use.  

Does anyone else have experience of this to share? Are there any resources
specifically designed for this environment around?

Thanks in advance.

Cheers,I

Simon

Senior Clinical Scientist
Assistive Technology Team

simon.ju...@nhs.net
01226 432159

www.barnsleyhospital.nhs.uk/at

Dept of Medical Physics
Block 14
Barnsley District General Hospital Foundation Trust Gawber Road Barnsley
S75 2EP

*************************************************************************** *
****************************************

This message may contain confidential information. If you are not the
intended recipient please inform the
sender that you have received the message in error before deleting it.
Please do not disclose, copy or distribute information in this e-mail or
take any action in reliance on its contents:
to do so is strictly prohibited and may be unlawful.

Thank you for your co-operation.

NHSmail is the secure email and directory service available for all NHS
staff in England and Scotland
NHSmail is approved for exchanging patient data and other sensitive
information with NHSmail and GSi recipients
NHSmail provides an email address for your career in the NHS and can be
accessed anywhere

*************************************************************************** *
****************************************

  _____  

The information contained in this message and or attachments is intended
only for the person or entity to which it is addressed and may contain
confidential and/or privileged material.

Unless otherwise specified, the opinions expressed herein do not necessarily
represent those of Guy's and St Thomas' NHS Foundation Trust or any of its
subsidiaries.

The information contained in this e-mail may be subject to public disclosure
under the Freedom of Information Act 2000. Unless the information is legally
exempt from disclosure, the confidentiality of this e-mail and any replies
cannot be guaranteed.

Any review, retransmission,dissemination or other use of, or taking of any
action in reliance upon, this information by persons or entities other than
the intended recipient is prohibited. If you received this in error, please
contact the sender and delete the material from any system and destroy any
copies.

We make every effort to keep our network free from viruses. However, it is
your responsibility to ensure that this e-mail and any attachments are free
of viruses as we can take no responsibility for any computer virus which
might be transferred by way of this e-mail.

  _____  

--
GUIDELINES - COMMUNICATION MATTERS AAC FORUM

1. The purpose of this email group is for people to share experiences and
information about Augmentative and Alternative Communication (AAC). The
views and opinions expressed are those of individuals and do not represent
the views of Communication Matters.

2. This email group must not be used for advertising or promoting goods or
services.

3. * COMMERCIAL INTERESTS *
If you are a supplier or have commercial interests, you must preface each of
your posts with the words 'COMMERCIAL INTERESTS DECLARED'.

Although this group is not actively moderated, Communication Matters
reserves the right to remove messages and members considered offensive,
libellous, or not following the above guidelines.

To post to this group, email: cm-aac-forum@googlegroups.com
To unsubscribe from this group, email:
cm-aac-forum+unsubscribe@googlegroups.com
For more options, visit: http://groups.google.com/group/cm-aac-forum

--
GUIDELINES - COMMUNICATION MATTERS AAC FORUM

1. The purpose of this email group is for people to share experiences and
information about Augmentative and Alternative Communication (AAC). The
views and opinions expressed are those of individuals and do not represent
the views of Communication Matters.

2. This email group must not be used for advertising or promoting goods or
services.

3. * COMMERCIAL INTERESTS *
If you are a supplier or have commercial interests, you must preface each of
your posts with the words 'COMMERCIAL INTERESTS DECLARED'.

Although this group is not actively moderated, Communication Matters
reserves the right to remove messages and members considered offensive,
libellous, or not following the above guidelines.

To post to this group, email: cm-aac-forum@googlegroups.com
To unsubscribe from this group, email:
cm-aac-forum+unsubscribe@googlegroups.com
For more options, visit: http://groups.google.com/group/cm-aac-forum


 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
Barney Hawes  
View profile  
 More options Apr 17 2012, 12:20 pm
From: Barney Hawes <bar...@sensorysoftware.com>
Date: Tue, 17 Apr 2012 17:20:05 +0100
Local: Tues, Apr 17 2012 12:20 pm
Subject: Re: [AAC Forum] AAC in ITU
** COMMERCIAL INTEREST **

Hi Simon,

What sort of things do you envisage might be useful that would not be
provided on an iPad with Grid Player and the free grid sets?

Can you share some of the requirements or use-cases for people
recovering from a tracheotemy?

Barney

On 17 April 2012 16:36, Judge Simon (BARNSLEY HOSPITAL NHS FOUNDATION

--
Barney Hawes
Sensory Software International Ltd

 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
Taylor, Barry  
View profile  
 More options Apr 17 2012, 12:18 pm
From: "Taylor, Barry" <Barry.Tay...@hey.nhs.uk>
Date: Tue, 17 Apr 2012 17:18:09 +0100
Local: Tues, Apr 17 2012 12:18 pm
Subject: RE: [AAC Forum] AAC in ITU

Sandra

I would worry about the potential for electrical interference from an
ipad which has the ability to produce wifi or 3G signals in close
proximity to external pacers & other kit.  Insisting it's turned off
isn't foolproof.

Barry

Barry Taylor, Clinical Scientist
Medical Physics Service
Tulley Medical Physics Building, Hull Royal Infirmary
Anlaby Road, Hull HU3 2JZ

Tel: 01482 608971, Fax: 01482 608951
Internal extension HRI 608971
barry.tay...@nhs.net
rehabilitation.engineer...@hey.nhs.uk
Web page http://www.hey.nhs.uk/content/services/rehabEngineering.aspx


 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
Ian JayBee  
View profile  
 More options Apr 17 2012, 12:20 pm
From: "Ian JayBee" <i...@jaybee.org.uk>
Date: Tue, 17 Apr 2012 17:20:56 +0100
Local: Tues, Apr 17 2012 12:20 pm
Subject: RE: [AAC Forum] AAC in ITU

Commercial Interest Declared

We have had very preliminary discussions with NHS on using JayBee on a
tablet computer. Advantage is that touch, mouse, camera mouse, Face Mouse,
Switch or Carer Switching can be used. Either the delivered database of
phrases etc could be delivered or specific database for given situation.

Cheers

Ian S

From: cm-aac-forum@googlegroups.com [mailto:cm-aac-forum@googlegroups.com]
On Behalf Of Judge Simon (BARNSLEY HOSPITAL NHS FOUNDATION TRUST)
Sent: 17 April 2012 16:36
To: cm-aac-forum@googlegroups.com
Subject: [AAC Forum] AAC in ITU

Hi all,

An ITU department have approached us regarding options for improving
communication for some of their patients with tracheotomies who are
temporarily unable to communicate. Up to now they have 'made do' with lip
reading, alphabet boards and writing.

I have a number of thoughts about a range of AAC possibilities for this kind
of environment (and know about the Dundee ITU-AAC research project) and can
imagine a kind of 'booklet/tool kit' of options that the nurses could use.  

Does anyone else have experience of this to share? Are there any resources
specifically designed for this environment around?

Thanks in advance.

Cheers,I

Simon

Senior Clinical Scientist
Assistive Technology Team

simon.ju...@nhs.net
01226 432159

www.barnsleyhospital.nhs.uk/at

Dept of Medical Physics
Block 14
Barnsley District General Hospital Foundation Trust Gawber Road Barnsley
S75 2EP

*************************************************************************** *
****************************************

This message may contain confidential information. If you are not the
intended recipient please inform the
sender that you have received the message in error before deleting it.
Please do not disclose, copy or distribute information in this e-mail or
take any action in reliance on its contents:
to do so is strictly prohibited and may be unlawful.

Thank you for your co-operation.

NHSmail is the secure email and directory service available for all NHS
staff in England and Scotland
NHSmail is approved for exchanging patient data and other sensitive
information with NHSmail and GSi recipients
NHSmail provides an email address for your career in the NHS and can be
accessed anywhere

*************************************************************************** *
****************************************

--
GUIDELINES - COMMUNICATION MATTERS AAC FORUM

1. The purpose of this email group is for people to share experiences and
information about Augmentative and Alternative Communication (AAC). The
views and opinions expressed are those of individuals and do not represent
the views of Communication Matters.

2. This email group must not be used for advertising or promoting goods or
services.

3. * COMMERCIAL INTERESTS *
If you are a supplier or have commercial interests, you must preface each of
your posts with the words 'COMMERCIAL INTERESTS DECLARED'.

Although this group is not actively moderated, Communication Matters
reserves the right to remove messages and members considered offensive,
libellous, or not following the above guidelines.

To post to this group, email: cm-aac-forum@googlegroups.com
To unsubscribe from this group, email:
cm-aac-forum+unsubscribe@googlegroups.com
For more options, visit: http://groups.google.com/group/cm-aac-forum


 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
vicky rogerson  
View profile  
 More options Apr 17 2012, 12:37 pm
From: vicky rogerson <rogersonvi...@hotmail.com>
Date: Tue, 17 Apr 2012 17:37:34 +0100
Local: Tues, Apr 17 2012 12:37 pm
Subject: Re: [AAC Forum] AAC in ITU

At frenchay we are currently involved in a research project looking into the viability and effectiveness of providing each ward which contains critical care beds (including itu and icu) a communication pack.

Findings to date are suggesting that low tech devices are the most appropriate as experience has shown that pt's are generally too Ill/ drowsy to learn new equipment, equipment regularly goes walkies on wards and there is the massive ongoing issue of training for both staff and pt's - this is tricky enough for low tech!

Hope this gives some insight into our experience

Sent from my iPhone

On 17 Apr 2012, at 17:20, "Ian JayBee" <i...@jaybee.org.uk> wrote:


 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
Judge Simon (BARNSLEY HOSPITAL NHS FOUNDATION TRUST)  
View profile  
 More options Apr 17 2012, 12:39 pm
From: "Judge Simon (BARNSLEY HOSPITAL NHS FOUNDATION TRUST)" <simon.ju...@nhs.net>
Date: Tue, 17 Apr 2012 17:39:58 +0100
Local: Tues, Apr 17 2012 12:39 pm
Subject: RE: [AAC Forum] AAC in ITU
Hi all,

Many thanks for the quick replies all.

As well as the 'kit options' , I'm more interested in the resources and previous 'kits' of techniques/methods/devices that people have tried/succeeded with.

The particularly characteristics of this group (in reply to Barney) are, I think:
 - they are likely only 'temporary AAC users'
 - they probably have some other methods for some things
 - they are in a specific medical environment (and thus there are issues of sterilisation, EMG etc to consider)
 - they may well be very ill and potentially medicated some often tired/ill/unmotivated etc (and thus, potentially, need systems with low learning/training demand).
 - staff may have little time to be partner-assisting the communication and/or may have to prioritise other urgent medical needs.
 - equipment will be multi-user and need to be quickly re-commissioned
 - high value/desirable equipment may disappear (i.e. be stolen).

? Probably more, but this is my current list (based only on limited input so far and starting with 1 case patient).

Cheers again,

Simon


 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
Judge Simon (BARNSLEY HOSPITAL NHS FOUNDATION TRUST)  
View profile  
 More options Apr 17 2012, 12:42 pm
From: "Judge Simon (BARNSLEY HOSPITAL NHS FOUNDATION TRUST)" <simon.ju...@nhs.net>
Date: Tue, 17 Apr 2012 17:42:21 +0100
Local: Tues, Apr 17 2012 12:42 pm
Subject: RE: [AAC Forum] AAC in ITU
Hi Vicky,

Brilliant - this sounds very interesting (and along the lines I was guessing). Is this pack and/or paper available (I guess not or you'd have linked to it)!

Cheers

Simon

Sent from my generic computing device. (-;


 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
Julius.Deutsch  
View profile  
 More options Apr 17 2012, 4:33 pm
From: "Julius.Deutsch" <julius.deut...@gmx.de>
Date: Tue, 17 Apr 2012 22:33:03 +0200
Local: Tues, Apr 17 2012 4:33 pm
Subject: Re: [AAC Forum] AAC in ITU

I think one easy to use low-tech equipment might be SpeakBook
(http://www.speakbook.org/). It is easy to use and free.
For people with no visual problems could Mediwrite be an option to
communicate. It works a single switch. There is a demo video at
https://vimeo.com/25575437.

Regards

Julius

Am 17.04.2012 17:36, schrieb Judge Simon (BARNSLEY HOSPITAL NHS
FOUNDATION TRUST):

--
Mit freundlichen Grüßen

J. Deutsch


 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
Katilea  
View profile  
 More options Apr 17 2012, 4:41 pm
From: Katilea <kati...@sky.com>
Date: Tue, 17 Apr 2012 21:41:30 +0100
Local: Tues, Apr 17 2012 4:41 pm
Subject: Re: [AAC Forum] AAC in ITU

I use an iPad with Proloquo2go as my communication aid so if I had to go into hospital do they have a right to take it away if its my voice?..  and how am I meant to tell them what my symptoms are etc if they have confiscated it in case it interferes with equipment?

Having to point to each letter individually(on a low tech letterboard for instance)  to say entire sentences is going to much harder when already ill than using my own device with all sentences pre-stored etc.

Kati

On 17 Apr 2012, at 17:18, Taylor, Barry wrote:

...

read more »


 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
Jacqui Malthouse - Liberator Ltd  
View profile  
 More options Apr 17 2012, 3:03 pm
From: "Jacqui Malthouse - Liberator Ltd" <jac...@liberator.co.uk>
Date: Tue, 17 Apr 2012 20:03:38 +0100
Local: Tues, Apr 17 2012 3:03 pm
Subject: RE: [AAC Forum] AAC in ITU

Hi Simon,

I am writing from a personal perspective. As you maybe aware my Mum had
a radical neck resection and was without a voice a total of 8 weeks.
Then afterwards a slow process to produce some intelligible speech.
During some of this time she felt very isolated and alone.

I feel as you will be aware that all patients feel differently and AAC
implementation is a personal choice to a patient coping with their loss
of speech.  As for my Mum she did not feel like writing (this was due to
a flap being taken from her arm and shoulder) and the thought of a
communication board was not an option as this did not give her a voice.
A VOCA was the answer for my Mum, but also what was important to her was
the content of  vocabulary being available to her, it had to be
individual , functional, frequently used vocabulary that could be used
in many different ways to enable her to structure her own phrases to
spontaneously communicate.

She realised during her experience that how lonely you feel when you do
not have a voice, even though she could write, it could not replace her
voice.

The patients on Head and Neck Units are all placed in wards where they
are all sharing the same experiences, if these wards could have basic
packages of AAC (VOCA), maybe there experience may not have to be so
lonely.

There are many support groups that my Mum attends, if you wish for
patients views on their experiences, I will gladly pass details onto
you.

Hope you are well

Jacqui Malthouse

Regional AAC Consultant

Liberator Ltd

Tel: 07825 512669

  <http://www.facebook.com/LiberatorLtd>  
<https://twitter.com/LiberatorLtd>  
<http://www.youtube.com/LiberatorAACvideos>  
<http://www.aacandautism.co.uk/>    <http://www.aaclanguagelab.com/>

www.liberator.co.uk <http://www.liberator.co.uk/>

We have a huge selection of products in our e-store.

www.liberatorsupport.com <http://www.liberatorsupport.com/>

Helping you support communication, inclusion & independence.

From: cm-aac-forum@googlegroups.com
[mailto:cm-aac-forum@googlegroups.com] On Behalf Of Judge Simon
(BARNSLEY HOSPITAL NHS FOUNDATION TRUST)
Sent: 17 April 2012 16:36
To: cm-aac-forum@googlegroups.com
Subject: [AAC Forum] AAC in ITU

Hi all,

An ITU department have approached us regarding options for improving
communication for some of their patients with tracheotomies who are
temporarily unable to communicate. Up to now they have 'made do' with
lip reading, alphabet boards and writing.

I have a number of thoughts about a range of AAC possibilities for this
kind of environment (and know about the Dundee ITU-AAC research project)
and can imagine a kind of 'booklet/tool kit' of options that the nurses
could use.  

Does anyone else have experience of this to share? Are there any
resources specifically designed for this environment around?

Thanks in advance.

Cheers,I

Simon

Senior Clinical Scientist
Assistive Technology Team

simon.ju...@nhs.net
01226 432159

www.barnsleyhospital.nhs.uk/at

Dept of Medical Physics
Block 14
Barnsley District General Hospital Foundation Trust Gawber Road Barnsley
S75 2EP

************************************************************************
********************************************

This message may contain confidential information. If you are not the
intended recipient please inform the
sender that you have received the message in error before deleting it.
Please do not disclose, copy or distribute information in this e-mail or
take any action in reliance on its contents:
to do so is strictly prohibited and may be unlawful.

Thank you for your co-operation.

NHSmail is the secure email and directory service available for all NHS
staff in England and Scotland
NHSmail is approved for exchanging patient data and other sensitive
information with NHSmail and GSi recipients
NHSmail provides an email address for your career in the NHS and can be
accessed anywhere

************************************************************************
********************************************

--
GUIDELINES - COMMUNICATION MATTERS AAC FORUM

1. The purpose of this email group is for people to share experiences
and information about Augmentative and Alternative Communication (AAC).
The views and opinions expressed are those of individuals and do not
represent the views of Communication Matters.

2. This email group must not be used for advertising or promoting goods
or services.

3. * COMMERCIAL INTERESTS *
If you are a supplier or have commercial interests, you must preface
each of your posts with the words 'COMMERCIAL INTERESTS DECLARED'.

Although this group is not actively moderated, Communication Matters
reserves the right to remove messages and members considered offensive,
libellous, or not following the above guidelines.

To post to this group, email: cm-aac-forum@googlegroups.com
To unsubscribe from this group, email:
cm-aac-forum+unsubscribe@googlegroups.com
For more options, visit: http://groups.google.com/group/cm-aac-forum

--
Scanned by iCritical.

  image001.png
3K Download

  image002.png
4K Download

  image003.png
3K Download

  image004.jpg
2K Download

  image005.jpg
2K Download

 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
PAUL CLEMENTS  
View profile  
 More options Apr 18 2012, 4:07 am
From: PAUL CLEMENTS <paulc...@btinternet.com>
Date: Wed, 18 Apr 2012 09:07:48 +0100 (BST)
Local: Wed, Apr 18 2012 4:07 am
Subject: Re: [AAC Forum] AAC in ITU

Hi
I did a stint in ITU many years pre the arrival of my AAC user. Some patients have trachies as a result of  head/neck surgery or injuries - this group often have a planned admission and the stay in ITU is often short.For those with a planned admission I would like to think that they were been given information on the use of a low tech book/board before hand. Many of the staff I worked with were very skilled at communicating with pateients.The other main group is those who are going to be requiring longer term ventalition. I can think of the very occasional patient that for whom a more high tech device would be  helpful but on the whole think well designed low tech would be more useful. A selection of simple low tech books or laminated boards for both eye pointing , finger pointing and auditory scanning. Picture and text based with a well chosen set of vocabulary. Along with a quick tips guide on how they might be used.
Simple message devices like a Big Mac for "starting" the conversation would be useful - the nurse may be in your bed space but needs a prompt. For those using eye pointing a sign on the wall that they can eyeball to indicate "I want to tell you something".
Liza Clements

________________________________
 From: Judge Simon (BARNSLEY HOSPITAL NHS FOUNDATION TRUST) <simon.ju...@nhs.net>
To: "cm-aac-forum@googlegroups.com" <cm-aac-forum@googlegroups.com>
Sent: Tuesday, 17 April 2012, 16:36
Subject: [AAC Forum] AAC in ITU

Hi all,
 
An ITU department have approached us regarding options for improving communication for some of their patients with tracheotomies who are temporarily unable to communicate. Up to now they have 'made do' with lip reading, alphabet boards and writing.
 
I have a number of thoughts about a range of AAC possibilities for this kind of environment (and know about the Dundee ITU-AAC research project) and can imagine a kind of 'booklet/tool kit' of options that the nurses could use.   
 
Does anyone else have experience of this to share? Are there any resources specifically designed for this environment around? 
 
Thanks in advance.
 
Cheers,I

Simon

Senior Clinical Scientist
Assistive Technology Team

simon.ju...@nhs.net
01226 432159

www.barnsleyhospital.nhs.uk/at

Dept of Medical Physics
Block 14
Barnsley District General Hospital Foundation Trust Gawber Road Barnsley
S75 2EP
    
*************************************************************************** *****************************************

This message may contain confidential information. If you are not the intended recipient please inform the
sender that you have received the message in error before deleting it.
Please do not disclose, copy or distribute information in this e-mail or take any action in reliance on its contents:
to do so is strictly prohibited and may be unlawful.

Thank you for your co-operation.

NHSmail is the secure email and directory service available for all NHS staff in England and Scotland
NHSmail is approved for exchanging patient data and other sensitive information with NHSmail and GSi recipients
NHSmail provides an email address for your career in the NHS and can be accessed anywhere

*************************************************************************** *****************************************

--
GUIDELINES - COMMUNICATION MATTERS AAC FORUM
 
1. The purpose of this email group is for people to share experiences and information about Augmentative and Alternative Communication (AAC). The views and opinions expressed are those of individuals and do not represent the views of Communication Matters.
 
2. This email group must not be used for advertising or promoting goods or services.
 
3. * COMMERCIAL INTERESTS *
If you are a supplier or have commercial interests, you must preface each of your posts with the words 'COMMERCIAL INTERESTS DECLARED'.
 
Although this group is not actively moderated, Communication Matters reserves the right to remove messages and members considered offensive, libellous, or not following the above guidelines.
 
To post to this group, email: cm-aac-forum@googlegroups.com
To unsubscribe from this group, email: cm-aac-forum+unsubscribe@googlegroups.com
For more options, visit: http://groups.google.com/group/cm-aac-forum


 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
harris catherine  
View profile  
 More options Apr 18 2012, 5:20 am
From: harris catherine <catherineahar...@blueyonder.co.uk>
Date: Wed, 18 Apr 2012 10:20:54 +0100
Local: Wed, Apr 18 2012 5:20 am
Subject: Re: [AAC Forum] AAC in ITU

I agree with Vicky,

I did some 'rolling training' at Gloucester and found that staff tended to
stick to the low tech stuff which was provided-I made up and variety of low
tech laminated charts with instructions on the back which were kept on ITU.
The benefit of the training was that call bells with switch access were
requested more frequently. I did however have to spend time trying to find
all the components once the person moved on!
For people who were able I did use the good old Lightwriter as at least it
could be cleaned with Cliniwipes following use. One of the main ongoing
issues was infection control.

Other attempts to  introduce alternative high tech options were not very
successful as there were issues over power sources, charging, and just the
amount of equipment already out.

Hope this adds to the discussion.
Cathy Harris

On 17 April 2012 17:37, vicky rogerson <rogersonvi...@hotmail.com> wrote:


 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
Joris Verrips  
View profile  
 More options Apr 18 2012, 6:25 am
From: Joris Verrips <j.verr...@gmail.com>
Date: Wed, 18 Apr 2012 03:25:40 -0700 (PDT)
Local: Wed, Apr 18 2012 6:25 am
Subject: Re: AAC in ITU
I think you must -also- speak to those nurses at that department to
see what their problem is, and not forget about what problems patients
and family  members may have. If they use an electronic patient file,
one issue might be who enters patient's comments into that, who is
responsible for this patient's communication needs.

 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
Wade Will (EASTERN AND COASTAL KENT PCT)  
View profile  
 More options Apr 19 2012, 4:05 am
From: "Wade Will (EASTERN AND COASTAL KENT PCT)" <will.w...@nhs.net>
Date: Thu, 19 Apr 2012 09:05:49 +0100
Local: Thurs, Apr 19 2012 4:05 am
Subject: Re: [AAC Forum] AAC in ITU

This doesn't really answer your question Simon(!) but I know that John Costello from the Boston Children's hospital does talk about their "Kit" in acute and ICU work  e.g.:
https://www.youtube.com/watch?v=qPQaW21Bpmw

And..
http://www.ohioslha.org/pdf/Convention/2009%20Handouts/Costello%20AAC...
And this is a nice little presentation too (some nice Mounting images in this!)
http://www.uiowa.edu/~comsci/research/speechlab/powerpoints/Implement...

And a nice list (if not a little outdated) of references on the topic:
http://aac.unl.edu/reference/AACICU.doc

Will
--
Will Wade
Lead Occupational Therapist
Kent Communication & Assistive Technology Service

The Old Railway School
Wainwright Place
Newtown
Ashford
Kent  TN24 0PF

Tel:      01233 629859
Mob:      07968 050808
Fax:     01233 639516

If your email is a request for information made under the terms of the Freedom of Information Act 2000, please forward to: FOI Lead, Kent Community Healthcare Trust, Trinity House, 110-120 Upper Pemberton, Eureka Business Park, Kennington, Ashford, Kent. TN25 4AZ. Telephone: 01233 667940. Email: kcht....@nhs.net

From: Katilea <kati...@sky.com<mailto:kati...@sky.com>>
Reply-To: "cm-aac-forum@googlegroups.com<mailto:cm-aac-forum@googlegroups.com>" <cm-aac-forum@googlegroups.com<mailto:cm-aac-forum@googlegroups.com>>
To: "cm-aac-forum@googlegroups.com<mailto:cm-aac-forum@googlegroups.com>" <cm-aac-forum@googlegroups.com<mailto:cm-aac-forum@googlegroups.com>>
Subject: Re: [AAC Forum] AAC in ITU

I use an iPad with Proloquo2go as my communication aid so if I had to go into hospital do they have a right to take it away if its my voice?..  and how am I meant to tell them what my symptoms are etc if they have confiscated it in case it interferes with equipment?

Having to point to each letter individually(on a low tech letterboard for instance)  to say entire sentences is going to much harder when already ill than using my own device with all sentences pre-stored etc.

Kati

On 17 Apr 2012, at 17:18, Taylor, Barry wrote:

Sandra
I would worry about the potential for electrical interference from an ipad which has the ability to produce wifi or 3G signals in close proximity to external pacers & other kit.  Insisting it’s turned off isn’t foolproof.

Barry

Barry Taylor, Clinical Scientist
Medical Physics Service
Tulley Medical Physics Building, Hull Royal Infirmary
Anlaby Road, Hull HU3 2JZ

Tel: 01482 608971, Fax: 01482 608951
Internal extension HRI 608971
barry.tay...@nhs.net<mailto:barry.tay...@nhs.net>
rehabilitation.engineer...@hey.nhs.uk<mailto:rehabilitation.engineer...@hey.nhs.uk>
Web page http://www.hey.nhs.uk/content/services/rehabEngineering.aspx

...

read more »


 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
Landmarka Telemetry  
View profile  
 More options Apr 19 2012, 6:55 am
From: Landmarka Telemetry <landma...@gmail.com>
Date: Thu, 19 Apr 2012 11:55:43 +0100
Local: Thurs, Apr 19 2012 6:55 am
Subject: Re: [AAC Forum] AAC in ITU

*** Commercial Interest Declared ***

In conjunction with Frenchay Hospital we developed a range of alphabet
boards which are immune to Healthcare associated infections and are used in
ICUs and are readily available fro our agents.

The need to use them within ICUs was one of the basic requirements, so they
have been designed with this in mind as well as including features such as
keyguards, non-slip, washable different sizes and layouts, etc, etc.
http://www.FAB.uk.com

Lyndon Owen
Managing Director
E2L Products Limited
19 White Swan Court, MONMOUTH, NP25 3NY

On Thu, Apr 19, 2012 at 9:05 AM, Wade Will (EASTERN AND COASTAL KENT PCT) <

...

read more »


 
You must Sign in before you can post messages.
To post a message you must first join this group.
Please update your nickname on the subscription settings page before posting.
You do not have the permission required to post.
End of messages
« Back to Discussions « Newer topic     Older topic »