Diet for Dysschwannian Neuropathy??

[Monie]

Hello,
I was diagnosed with this a while ago but had not found any
information on it. My Dr at USC put me on some vitamins which really
seemed to help the symptoms to decrease for some time. Unfortunately
they have started to reoccur with heavy stress in my life. I was told
that the immunogloblin infusions may become necessary...but I would
like to find a way to try to naturally fight this if I can....is there
some sort of diet that helps inhibit the immunoresponse?? and what
part does exercise play in helping to strengthen muscles that are
under attack nerve wise?? I would greatly appreciate any knowledge
you would be willing to share. Thank you very much.

[Imran Khan]

Please see the diet page at www.cidpusa.org  specfic for waht you are looking for.

 

Jenni

[Rich Riccio]

Hi Guy,
I can only share my experience, I was on IVIg for one year. For me - it was a horrible treatment. I don't remember hearing of any organic way of treating this illness. Also be aware that different makers of the medicine can cause reactions that can cause bad rashes, skin burning, skin falling off, some makers of the medicine can cause violent nausea and vomiting. So you have to decide which side effect is the better one to deal with.

Sorry to bring you bad news, but the Dr's won't say anything unless you confront them. But you need to know what to ask them. Keep reading this site. Also John Hopkins also has some info for you.

Rich, Mount Joy, PA USA

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Remember to treat people the way you want to be respected.