While I am new to this list in terms of being an active participant, I have occasionally monitored postings with special interest in the opinions of parents, especially regarding the issue of "aversives". I was involved in the development of SIBIS and published some of the original research on it as well as the use of contingent electric shock for the treatment of rumination as far back as the 1970s so I have to put my two cents worth on the aversives issue.
First, the isssue is never - aversives vs positive only treatment - the issue is - does an aversive need to be added to a positive intervention to achieve the desired success? Anti-aversive advocates would have you believe that you have to choose between the two - not true.
Second, people often assume that shock treatment means that the person is shocked on some ongoing basis. Indeed, if contingent shock treatment is ultimately successful, the person isn't getting shocked. That is, if the rate of head hitting is zero, no shocks are given. One boy treated with SIBIS went an entire school year without a shock because he did not hit himself. His rate had been 120 hits per minute during baseline sessions prior to treatment. If shock treatment does not result in a dramatic reduction in SIB then it should not be continued....... deciding on how many shocks vs how much suppression is the job of parents, clinicians and oversight committees.
Third, in response to the choice issue, over half of the individuals that I know of who have been treated with SIBIS show behaviors indicating that they want the device on. If these people actively went to the refrigerator and got a glass of soda, we would conclude that they wanted soda, correct?
Stephen Drake's arguement that some choices should never be given (e.g., slavery) is ludicrous and irrelevant in this case. Slavery is illegal because a person is not given a choice. If I want to make an agreement to serve someone in return for food and lodging, I can do so of my own free will, the person can't force me - that is the illegal part. Parents or guardians can legally make informed choices for their children. If that choice is not illegal and is made in good faith then so be it. It is not a problem that people have different opinions regarding aversives, it is a problem when some try to impose their opinions on others through legislation or intimidation. Sojolan can tell you about that feeling....
Many in the academic and DD community don't give much credence to Syracuse University Special Education anyway because of the debacle of FC and other matters (cf. Linscheid & Landau, Going all out pharmacologically: A re- examination fo Berkman and Meyer's, Alternative strategies and multiple outcomes in remediation of severe self-injury: Going all out non-aversively, Mental Retardation, 31, 1-6).
Power to responsible parents who make the efforts to help their children when the system fails them, let's listen to them and lets also get the facts before we judge.
The amount of misinformation about SIBIS and aversives is disheartening. I recently heard a lecture by an anti-aversive advocate who stated that SIBIS delivers 64 jolts of electricity. This is blatantly false. The fact is that electricity cycles on and off 16 times during the 0.2 seconds of shock duration. It is perceived as only one shock, not 16 and certainly not 64 shocks. The cycling on and off was specifically planned to reduce the total amount of electricity not as a way to make it more aversive. These facts are contained in the original research article on SIBIS (Linscheid et al, 1990, Joural of Applied Behavior Analysis)- Clearly this rabid anti-aversive advocate was wrong, most likely had never even read the research and was stating things in a way to make the treatment appear in the worst light.
My only plea is to be informed first, decide second but keep an open mind, no one ever died of an open mind......
Judg...@aol.com (Matthew Israel) writes: >2. It is true that most persons do not realize how infrequent is the need >for the use of supplementary skin-schock aversives in an effective >program. At JRC, about 45% of the students do not require any >supplementary skin-shock aversives. Of those who do require them, the >average (median) student receives three 2-second applications per week.
Of the students receiving aversive therapy at BRI:
What is the range of frequency and duration of skin-shock aversives? For example, are there students who receive applications several times daily or for durations of much longer than 2 seconds?
For those students that do not receive skin-shock aversives, do they receive other kinds of aversives? If so, what kind of aversives do they receive?
Please post your answer publicly as I am sure others would like to read the answers too. If I receive a private response, I will assume it was meant for public distribution and act accordingly.
In article <AUTISM%95111414465...@SJUVM.STJOHNS.EDU>,
Tom=Linscheid%Psych%...@ALOHA.CHI.OHIO-STATE.EDU wrote: > While I am new to this list in terms of being an active participant, I > have occasionally monitored postings with special interest in the opinions of > parents, especially regarding the issue of "aversives".
In response to Dr. Linscheid¹s three points:
1. I agree very much with your first point. Dr. Leo Reyna has suggested that the phrase ³aversive therapy² is inaccurate as applied to programs such as the SIBIS programs you have overseen or those which take place at the Judge Rotenberg Educational Center (JRC). A more accurate description would be ³reward therapy, with supplementary aversives, if needed, to treat those behaviors for which reward therapy alone is ineffective.²
2. It is true that most persons do not realize how infrequent is the need for the use of supplementary skin-schock aversives in an effective program. At JRC, about 45% of the students do not require any supplementary skin-shock aversives. Of those who do require them, the average (median) student receives three 2-second applications per week.
3. I think many persons on this list would be interested in a simple and readable summary of the Linscheid & Landau paper you refer to, and your comments on its significance. Could you post one?
On Tue, 14 Nov 1995 Tom=Linscheid%Psych%...@ALOHA.CHI.OHIO-STATE.EDU wrote:
> First, the isssue is never - aversives vs positive only treatment - the issue > is - does an aversive need to be added to a positive intervention to achieve > the desired success? Anti-aversive advocates would have you believe that you > have to choose between the two - not true.
That's not exactly correct. So-called "anti-aversive advocates" generally hold that individuals have the right to be free of certain kinds of "treatment" - ones involving pain, deprivation, humiliation, etc.
> Second, people often assume that shock treatment means that the person is > shocked on some ongoing basis. Indeed, if contingent shock treatment is > ultimately successful, the person isn't getting shocked. That is, if the > rate of head hitting is zero, no shocks are given. One boy treated with > SIBIS went an entire school year without a shock because he did not hit > himself. His rate had been 120 hits per minute during baseline sessions > prior to treatment. If shock treatment does not result in a dramatic > reduction in SIB then it should not be continued....... deciding on how many > shocks vs how much suppression is the job of parents, clinicians and > oversight committees.
I see. So, guidelines for appropriate use is up to the team. Are you saying that there is no place, in your opinion, for identifying certain guidelines for differentiating "therapy" from abuse? In other words, I think that most people would agree that giving someone a hard slap every time they picked their nose would be abusive (at least I hope so). If you agree that something like that is clearly abusive, then, in principle, you have agreed that there *are* general paramaters that can be drawn, even for those who believe that harsh punishment is justified in some cases.
> Third, in response to the choice issue, over half of the individuals that I > know of who have been treated with SIBIS show behaviors indicating that they > want the device on. If these people actively went to the refrigerator and > got a glass of soda, we would conclude that they wanted soda, correct?
Interesting. What are the behaviors that indicate that desire? Do you advocate limiting use of the device to those who self-initiate its use?
> Stephen Drake's arguement that some choices should never be given (e.g., > slavery) is ludicrous and irrelevant in this case. Slavery is illegal > because a person is not given a choice. If I want to make an agreement to > serve someone in return for food and lodging, I can do so of my own free > will, the person can't force me - that is the illegal part. Parents or > guardians can legally make informed choices for their children. If that > choice is not illegal and is made in good faith then so be it. It is not a > problem that people have different opinions regarding aversives, it is a > problem when some try to impose their opinions on others through legislation > or intimidation. Sojolan can tell you about that feeling....
Perhaps another example might be more agreeable. Many parents of children with severe disabilities in the 50s and 60s were given a choice: Placement in a large custodial institution or nothing. Fortunately, this started to change in the 70s, with little help (but a fair amount of opposition from) the professional community.
> Many in the academic and DD community don't give much credence to Syracuse > University Special Education anyway because of the debacle of FC and other > matters (cf. Linscheid & Landau, Going all out pharmacologically: A re- > examination fo Berkman and Meyer's, Alternative strategies and multiple > outcomes in remediation of severe self-injury: Going all out non-aversively, > Mental Retardation, 31, 1-6).
The response (by Meyer and Berkman) to the article you cited would also be illuminating. I can post some excerpts if you like.
Syracuse has a long history of being involved in research and activities not popular in the field of developmental disabilities. Burton Blatt, the late Dean of Education here, broke the professional silence on the hellish conditions in custodial institutions in the book _Christmas in Purgatory_. Many academics and professionals were, of course, publishing study after study in these ready-made "laboratories" - none of these peer-reviewed articles ever alluded to the conditions of squalor, neglect and abuse that Blatt exposed to the world.
Syracuse has also actively advocated and supported inclusion of people with disabilities in public schools and the community. The successful efforts toward integrating students with disabilities have been going on for about a quarter century here. SU was also active in the beginnings of deinstitutionalization, parent advocacy, and self-advocacy of people with disabilities.
I guess I would have to agree that there are many in the academic and DD community who don't give credence to these developments or organizations that support them.
By the same token, it should be noted that "radical" organizations like the Arc, as evidenced by their position statement on behavior programming, don't give much credence to researchers who focus on pain, deprivation, etc. as behavior modifiers.
> My only plea is to be informed first, decide second but keep an open mind, no > one ever died of an open mind......
Not quite accurate. Your plea also involves keeping these "treatments" available for others no matter what we as individuals decide.
*************************************************************************** * Stephen Drake sndr...@mailbox.syr.edu Facilitated Communication Institute sndr...@sued.syr.edu Syracuse University 370 Huntington Hall Phone:(315)443-3702 Syracuse, NY 13244 r u v *The bell-shaped c e is a metaphor* *************************************************************************** *
Tom=Linscheid%Psych%...@ALOHA.CHI.OHIO-STATE.EDU writes: > While I am new to this list in terms of being an active participant, I >have occasionally monitored postings with special interest in the opinions of >parents, especially regarding the issue of "aversives". I was involved in >the development of SIBIS and published some of the original research on it as >well as the use of contingent electric shock for the treatment of rumination >as far back as the 1970s so I have to put my two cents worth on the aversives >issue.
>First, the isssue is never - aversives vs positive only treatment - the issue >is - does an aversive need to be added to a positive intervention to achieve >the desired success? Anti-aversive advocates would have you believe that you >have to choose between the two - not true.
And pro-aversive advocates would have you believe that no treatment is complete unless it includes an aversive component. Also not true. Pro-aversive advocates would also have you believe that aversives are a safe and highly effective form of therapy that is important to have available as a last resort. Yet these are all myths. There is no research literature to support these claims.
>Second, people often assume that shock treatment means that the person is >shocked on some ongoing basis. Indeed, if contingent shock treatment is >ultimately successful, the person isn't getting shocked. That is, if the >rate of head hitting is zero, no shocks are given. One boy treated with >SIBIS went an entire school year without a shock because he did not hit >himself. His rate had been 120 hits per minute during baseline sessions >prior to treatment. If shock treatment does not result in a dramatic >reduction in SIB then it should not be continued....... deciding on how many >shocks vs how much suppression is the job of parents, clinicians and >oversight committees.
So you agree with the anti-aversive side that cases where aversives and restraints are used long term (in some cases, 15 years or more) are an outrage? I am pleased to hear there is a maximum time limit on the use of the SIBIS helmet. Now, will you please state publicly what the limit is, so that we can use that information to identify professionals who are abusing the device?
>Third, in response to the choice issue, over half of the individuals that I >know of who have been treated with SIBIS show behaviors indicating that they >want the device on. If these people actively went to the refrigerator and >got a glass of soda, we would conclude that they wanted soda, correct?
People who work in the child abuse field, like me, know that it is not at all unusual to interview children who have been abused and have the children tell you that they did something to deserve the abuse and their parents were right to inflict it. By your reasoning, such cases should not be prosecuted, because the child consented to the abuse.
>Stephen Drake's arguement that some choices should never be given (e.g., >slavery) is ludicrous and irrelevant in this case. Slavery is illegal >because a person is not given a choice. If I want to make an agreement to >serve someone in return for food and lodging, I can do so of my own free >will, the person can't force me - that is the illegal part. Parents or >guardians can legally make informed choices for their children. If that >choice is not illegal and is made in good faith then so be it.
Ah, but what if the choice *is* illegal, as, for example, the use of SIBIS helmets here in my home state of Pennsylvania? (We have severely disabled people here in PA, but somehow we get along without your device.)
>It is not a
>problem that people have different opinions regarding aversives, it is a >problem when some try to impose their opinions on others through legislation >or intimidation. Sojolan can tell you about that feeling....
I have been trying to find the time to prepare a detailed response to a few of the principal issues and questions which have been raised about JRC in this and other forums. I hope to complete it and to post it sometime within the coming months. It should answer some of the questions that have been posed to me in this thread. I have noted the interest that has been expressed in certain topics. Information about some or all of these topics may eventually be presented within material I prepare for this forum or for our home page. I would second Dr. Linscheid's recent suggestion that readers should not form opinions about JRC based on newspaper articles.
If you are a reader of messages in this forum, and would like to obtain accurate information about any aspect of JRC immediately, I suggest that you telephone me or visit our program. I would also be happy to put you in touch with past or current parents of students at JRC. Also, as I have noted in an earlier post, we have an open door policy, and welcome all visitors, with or without notice. I would welcome the opportunity to speak to you about your concerns or questions.
-- Matthew L. Israel, Ph.D. Executive Director Judge Rotenberg Educational Center 240 Laban Street Providence, Rhode Island 02909 E-mail:Judg...@aol.com Home Page:www.tiac.net/users/judgrc