I recently posted a message about my father (although undiagnosed),
starting a pulse steroid treatment.
Well, we started the treatment of 1000 mg of prednisone for a day, and
it's the 4th day now.
I wonder how immediate were your improvements during treatment?
Since i have read many cases stating a "very immediate improvement", i
got my hopes too high and waiting for a miracle to happen.
After 5 pulse steroid injections, we are going to gie a break for 2
days and then start the second phase of another 5 pulse treatments.
Never had that level of pulse treatments. I did get 50 mg/day
treatments (x 2 weeks) for asthma (exacerbated by bronchitis) this
past January. My AE symptoms got better within a week - improved gait,
decrease in tremors, clearer brain function; but when I dropped back
down to my usual 10mg/day dosage (for multiple autoimmune disorders),
my AE symptoms got worse.
Every one is different in their response to medication - some sooner
than others, some greater response than others. Hope that your dad has
a good, quick response...
On Oct 20, 5:18 am, definitelymaybe <baharno...@gmail.com> wrote:
> I recently posted a message about my father (although undiagnosed),
> starting a pulse steroid treatment.
> Well, we started the treatment of 1000 mg of prednisone for a day, and
> it's the 4th day now.
> I wonder how immediate were your improvements during treatment?
> Since i have read many cases stating a "very immediate improvement", i
> got my hopes too high and waiting for a miracle to happen.
> After 5 pulse steroid injections, we are going to gie a break for 2
> days and then start the second phase of another 5 pulse treatments.
On Tue, Oct 20, 2009 at 12:54 PM, CeeKay7 <connieki...@gmail.com> wrote:
> Never had that level of pulse treatments. I did get 50 mg/day
> treatments (x 2 weeks) for asthma (exacerbated by bronchitis) this
> past January. My AE symptoms got better within a week - improved gait,
> decrease in tremors, clearer brain function; but when I dropped back
> down to my usual 10mg/day dosage (for multiple autoimmune disorders),
> my AE symptoms got worse.
> Every one is different in their response to medication - some sooner
> than others, some greater response than others. Hope that your dad has
> a good, quick response...
> On Oct 20, 5:18 am, definitelymaybe <baharno...@gmail.com> wrote:
>> Hello all,
>> I recently posted a message about my father (although undiagnosed),
>> starting a pulse steroid treatment.
>> Well, we started the treatment of 1000 mg of prednisone for a day, and
>> it's the 4th day now.
>> I wonder how immediate were your improvements during treatment?
>> Since i have read many cases stating a "very immediate improvement", i
>> got my hopes too high and waiting for a miracle to happen.
>> After 5 pulse steroid injections, we are going to gie a break for 2
>> days and then start the second phase of another 5 pulse treatments.
Zachary is right. My diagnosis of AE came about after eliminating the
other possible diagnoses. There are a lot of what I call "look-alike"
medical conditions and which need to be ruled out. It took several
years to get my problem sorted out - and you may be in the same
position, like it or not. Try to hang in there for the time being....
On Oct 20, 10:38 am, Zachary Lipton <zachary.ch...@gmail.com> wrote:
> How sure are they that your neurological symptoms are autoimmune? Did
> you have ESR? C-Reactive protein?
> I think it's important to remember that this is a diagnosis of
> exclusion that hinges on treatment response. I wouldn't marry myself
> to the diagnosis.
> -Zachary
> On Tue, Oct 20, 2009 at 12:54 PM, CeeKay7 <connieki...@gmail.com> wrote:
> > Never had that level of pulse treatments. I did get 50 mg/day
> > treatments (x 2 weeks) for asthma (exacerbated by bronchitis) this
> > past January. My AE symptoms got better within a week - improved gait,
> > decrease in tremors, clearer brain function; but when I dropped back
> > down to my usual 10mg/day dosage (for multiple autoimmune disorders),
> > my AE symptoms got worse.
> > Every one is different in their response to medication - some sooner
> > than others, some greater response than others. Hope that your dad has
> > a good, quick response...
> > On Oct 20, 5:18 am, definitelymaybe <baharno...@gmail.com> wrote:
> >> Hello all,
> >> I recently posted a message about my father (although undiagnosed),
> >> starting a pulse steroid treatment.
> >> Well, we started the treatment of 1000 mg of prednisone for a day, and
> >> it's the 4th day now.
> >> I wonder how immediate were your improvements during treatment?
> >> Since i have read many cases stating a "very immediate improvement", i
> >> got my hopes too high and waiting for a miracle to happen.
> >> After 5 pulse steroid injections, we are going to gie a break for 2
> >> days and then start the second phase of another 5 pulse treatments.
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