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Kami

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Feb 21, 2005, 7:09:41 PM2/21/05
to
Hi All,

After my post regarding treatment vs. not, I had my doctors appointment
today. Bad news is the lessons in my brain have gotten alittle larger.
Good news is she is prescribing Tysabri!! I know that getting the med
might take a while according to what I have read here but I am excited.
The doctor told us(my husband & I) that she was at a conference about
it over the weekend and she was able to see the raw data (not the data
put out by the manufacturer) and she said the information she saw was
"jaw dropping"!!

Does anyone know how Medicare is handling this one?

I am feeling more positive than I have been!!

Smiles!
Kami


KKT

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Feb 21, 2005, 9:57:48 PM2/21/05
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Kami wrote:

Congratulations! I hope you and everyone else who's trying this
treatment will report on your experience ... preferably before 4/15
when I next see my neuro! ;-)

Kathie

Dove 1

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Feb 22, 2005, 2:46:06 AM2/22/05
to
OH KAMI ---
I am happy for your prescrition --- but not about the increase of your
leisions --
I wish you success in your new treatment ----- Jaw-dropping sounds
positive to me -
dove

rose

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Feb 22, 2005, 9:45:21 AM2/22/05
to
> Does anyone know how Medicare is handling this one?

hi kami,

my neurologist told me that medicare was going to cover 80% of the cost
of tysabri. he said it was at the stage where doctors could find out
more about coverage that patients, and there's nothing on the
medicare.gov site specifically relating to tysrabi, so i guess he was
correct about that last part.

he did say medicare would pay the 80 percent, for sure, though. not
sure about the specifics -- your doc him/herself would probably know
more, or the doc's insurance billing person at least.

best of good fortune with tys -- from what i've seen, it looks like
this stuff will blow the CRAB drugs out of the water.

rose

Michael

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Feb 22, 2005, 10:00:14 AM2/22/05
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In <news:1109083521.9...@o13g2000cwo.googlegroups.com>,

rose said:
> best of good fortune with tys -- from what i've seen, it looks like
> this stuff will blow the CRAB drugs out of the water.

I think this calls for a new acronym. :-)

How about "BRACT"?

((U))
M


CW

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Feb 22, 2005, 3:22:49 PM2/22/05
to

"Michael" <muir...@haidagwaii.net> wrote in message
news:cpSdnZoEWqO...@qcislands.net...


BARCT
TRABC
TRCBA
TARBC
TARCB
RATCB (my favorite - ratcub!)
RTBCA......

CW


Michael

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Feb 22, 2005, 3:38:30 PM2/22/05
to
In <news:2GMSd.17675$NB7....@fe08.lga>,
CW said:

> RATCB (my favorite - ratcub!)

That's cool. Cub loves rats. :-)


Joyce

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Feb 22, 2005, 3:48:30 PM2/22/05
to
oh thats great Kami...I am supposed to start Tysabri in April or as soon as
our hospital gets it in. seems like it will be the "IN" drug. but of course
we don't know yet how we shall respond to it but having been on copaxone for
8 years now my neuro thinks it is no longer helping, I have had no changes
in my MRI in 3 years but have gone from RRMS to Progressive MS. I wonder how
he knows that ?

Joyce


Laura

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Feb 22, 2005, 4:57:06 PM2/22/05
to

BRACT sounds lile some sort Of treatment for an std - maybe because
brzact rhymyes with tract! I allways refered to the current treatment
as ABCR drugs anyway..ABC was what wwe mostly refered to them before
rebif anyway.

I vote that since IT IS our illness ythat we pick the name.. i vote for
Bob. my son keeps saying his name is bob (he's Jake?) . So I willcall
the treatments for MS...BOB

Michael

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Feb 22, 2005, 5:06:54 PM2/22/05
to
In <news:o8KdnWjerZw...@wideopenwest.com>,
Laura said:

> CW wrote:
>> "Michael" <muir...@haidagwaii.net> wrote in message
>> news:cpSdnZoEWqO...@qcislands.net...
>>
>>> In <news:1109083521.9...@o13g2000cwo.googlegroups.com>,
>>> rose said:
>>>
>>>> best of good fortune with tys -- from what i've seen, it looks like
>>>> this stuff will blow the CRAB drugs out of the water.
>>>
>>> I think this calls for a new acronym. :-)
>>>
>>> How about "BRACT"?
>>>
>>> ((U))
>>> M
>>
>>
>>
>> BARCT
>> TRABC
>> TRCBA
>> TARBC
>> TARCB
>> RATCB (my favorite - ratcub!)
>> RTBCA......
>>
>> CW
>>
>>
>
> BRACT sounds lile some sort Of treatment for an std

Silly... bracts are plant parts:

bract

n : a modified leaf or leaflike part just below and protecting an
inflorescence.

> - maybe because
> brzact rhymyes with tract! I allways refered to the current
> treatment as ABCR drugs anyway..ABC was what wwe mostly refered to
> them before rebif anyway.
>
> I vote that since IT IS our illness ythat we pick the name.. i vote
> for Bob. my son keeps saying his name is bob (he's Jake?) . So I
> willcall the treatments for MS...BOB

Ummm... Bob is already taken.

http://www.zug.com/scrawl/analbob/analbob2.html

*WARNING* While reading this, please do not attempt to eat or drink
anything you don't wish to wipe from your monitor screen, keyboard, clothes,
floor, walls... :-)

((U))
M

((U))
M


Laura

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Feb 22, 2005, 5:31:59 PM2/22/05
to

Yest i have read about the stories of Bob the anal fissure..made it
evemn more humorous to me when my son began isisting on being called Bob
or he began telling foks his name was bob and then refused to answer to
Bob..an interesting way of telling people you don't care what they
sy..ahh an 11 YO,, so much fun to have around....

Kelly

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Feb 22, 2005, 6:21:27 PM2/22/05
to
My idea was ACRBT...ACRoBaT...

Kelly

Rob Duncan

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Feb 23, 2005, 6:12:39 PM2/23/05
to

"rose" <rosedaw...@yahoo.com> wrote in message
news:1109083521.9...@o13g2000cwo.googlegroups.com...

Thats sounds to me to be a rather bold overstatement. Yes its much better,
but its not going to alter reality. Novantrones stats are still better.


Rob


Jodi

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Feb 23, 2005, 8:40:57 PM2/23/05
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> "rose" <rosedaw...@yahoo.com> wrote in message
> news:1109083521.9...@o13g2000cwo.googlegroups.com...
>> my neurologist told me that medicare was going to cover 80% of the cost
>> of tysabri.

The nurse gave us an estimate of $4000/month total cost. At 80% coverage
you'll owe $800 month. Does medicare have an out of pocket cap?

Jodi


rose

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Feb 24, 2005, 10:06:40 AM2/24/05
to
Rob Duncan wrote:

> "rose" <rosedaw...@yahoo.com> wrote in message
> news:1109083521.9...@o13g2000cwo.googlegroups.com...

> > best of good fortune with tys -- from what i've seen, it looks like
> > this stuff will blow the CRAB drugs out of the water.
> >
> > rose

> Thats sounds to me to be a rather bold overstatement. Yes its much
better,
> but its not going to alter reality. Novantrones stats are still
better.

hi rob,

but novantrone isn't a CRAB drug. from what i've read and talked about
with the doc, tysabri seems to be most effective at reducing relapse
rates, and the effectiveness looks to be much better than that of the
CRAB drugs. plus it's a once-monthly infusion, as opposed to a daily,
every-other-day, or 3Xweekly injection. my guess is that both docs and
patients who are able to afford it would go for tysabri over betaseron,
avonex, copaxone, and rebif to a large extent.

novantrone is different; it's not intended to reduce relapse rates per
se, but to affect disease progression whether or not the person has
relapses.

i do believe tysabri will be the initial treatment of choice for many
docs and patients now that it's been approved -- since it's been
approved for RRMS, my bet is that it'll take over a big part of the
current CRAB market. if/when my neuro gives the go-ahead, it will be
back to novantrone for me, but if i was still RR, using a CRAB drug,
and insured, it would probably be tysabri rather than beta, avonex,
copaxone, or rebif.

102 and holding...maybe i'll get my next infusion sooner than i'd
thought! :->

rose

rose

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Feb 24, 2005, 10:30:26 AM2/24/05
to
Jodi wrote:

hi jodi,

the general prescription coverage that's scheduled to start next year
has them, but from what the doc says, tysabri is in a separate category
-- medicare has already begun coverage on the 'M.S. Injectables,' and
tysabri will be included with those, which standard medicare is now
covering 80% of the cost of.

for the genral prescription coverage, each enrolee will be selecting a
'prescription drug plan.' this is how the medicare.gov site says that
part will work:

---------------
"Prescription Drug Benefits will be added to Medicare in 2006. All
people with Medicare will be able to enroll in plans that cover
prescription drugs. Plans might vary, but in general, this is how they
will work:

* You will choose a prescription drug plan and pay a premium of about
$35 a month.
* You will pay the first $250 (called a "deductible").
* Medicare will pay 75% of drug costs between $250 and $2,250 in drug
spending. You will pay only 25% of these costs.
* You will pay 100% of drug costs above $2,250 until you reach $3,600
in out-of-pocket spending.
* Medicare will pay about 95% of the costs after you have spent $3,600.

Some prescription drug plans may have additional options to help you
pay the out-of pocket costs.

Extra help will be available for people with low incomes and limited
assets. Most significantly, people with Medicare in the greatest need,
who have incomes below a certain limit won't have to pay the premiums
or deductible for prescription drugs. The income limits will be set
in 2005. If you qualify, you will only pay a small co-payment for
each prescription you need.

Other people with low incomes and limited assets will get help paying
the premiums and deductible. The amount they pay for each
prescription will be limited."
---------------

for coverage before the general prescription benefit goes into effect
on Tysabri and the CRABs, i've been depending mostly on what my
neurologist says, as i've been unable to find out anything on my own
using the medicare.gov site. personally, i won't be able to pay the
20%, but in my own case, we're looking at continuing with novantrone,
and since the administration is less frequent, we should be able to
keep covering that.

rose

Jodi

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Feb 24, 2005, 4:24:14 PM2/24/05
to

"rose" <rosedaw...@yahoo.com> wrote in message
news:1109259026....@o13g2000cwo.googlegroups.com...

> personally, i won't be able to pay the
> 20%,

I don't *think* tysabri has any patient assistance programs going yet. My
daughter is low income and they told us we would have to pay $3000 (cap +
deductible). They never asked income info, just for insurance info. I
wonder if they will eventually have a program set up like the CRABS have?

>but in my own case, we're looking at continuing with novantrone,
> and since the administration is less frequent, we should be able to
> keep covering that.

My daughter is on a program through the cancer place that administers the
Novantrone. They waived all her deductibles. It really helped alot. They
even offer PT, dietician services and some exercise classes.

Jodi


>
> rose
>


Rob Duncan

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Feb 24, 2005, 4:55:08 PM2/24/05
to

"rose" <rosedaw...@yahoo.com> wrote in message
news:1109257600.1...@z14g2000cwz.googlegroups.com...

> Rob Duncan wrote:
>
>> "rose" <rosedaw...@yahoo.com> wrote in message
>> news:1109083521.9...@o13g2000cwo.googlegroups.com...
>> > best of good fortune with tys -- from what i've seen, it looks like
>> > this stuff will blow the CRAB drugs out of the water.
>> >
>> > rose
>
>> Thats sounds to me to be a rather bold overstatement. Yes its much
> better,
>> but its not going to alter reality. Novantrones stats are still
> better.
>
> hi rob,
>
> but novantrone isn't a CRAB drug. from what i've read and talked about
> with the doc, tysabri seems to be most effective at reducing relapse
> rates, and the effectiveness looks to be much better than that of the
> CRAB drugs. plus it's a once-monthly infusion, as opposed to a daily,
> every-other-day, or 3Xweekly injection. my guess is that both docs and
> patients who are able to afford it would go for tysabri over betaseron,
> avonex, copaxone, and rebif to a large extent.
>
> novantrone is different; it's not intended to reduce relapse rates per
> se,

Huh? Where did you read that? Its its main feature. Reduction in
relapses. As far as I understand.

> but to affect disease progression whether or not the person has
> relapses.

True, but theres no "but". Its not either/or, as far as I know.

> i do believe tysabri will be the initial treatment of choice for many
> docs and patients now that it's been approved -- since it's been
> approved for RRMS, my bet is that it'll take over a big part of the
> current CRAB market. if/when my neuro gives the go-ahead, it will be
> back to novantrone for me, but if i was still RR, using a CRAB drug,
> and insured, it would probably be tysabri rather than beta, avonex,
> copaxone, or rebif.

Same here. If I get paranoid enough, I will probably go on Tysabri. I fear
a relapse.

> 102 and holding...maybe i'll get my next infusion sooner than i'd
> thought! :->
>
> rose

102?


Rob


rose

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Feb 25, 2005, 9:57:56 AM2/25/05
to
Jodi wrote:

> I don't *think* tysabri has any patient assistance programs going
yet. My
> daughter is low income and they told us we would have to pay $3000
(cap +
> deductible). They never asked income info, just for insurance info.
I
> wonder if they will eventually have a program set up like the CRABS
have?

i'm virtually positive that they will. when i first became interested
in trying copaxone, at that time, teva was using NORD -- the national
org for rare diseases -- for its coverage-for-the-uninsured funding.
they continued going through NORD for quite some time, but eventually
developed a patient assistance program.

i was in the middle of a clinical trial for rebif when it was approved
sooner than expected by the FDA -- Serano had no program in place at
the time, but they've got one now. the pharma-co's would rather get
SOME money than nothing at all. i'm sure they'll have one for tysabri
before too much longer, we'll just have to wait and see what the
specifics might involve.

> My daughter is on a program through the cancer place that administers
the
> Novantrone. They waived all her deductibles. It really helped alot.
They
> even offer PT, dietician services and some exercise classes.

that's great!! the state has been picking up my deductibles for me for
a while, but i think that's one of the things getting cut from the
california budget. the full-service program sounds fantastic. :->

best,
rose

rose

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Feb 25, 2005, 10:12:30 AM2/25/05
to
Rob Duncan wrote:

> "rose" <rosedaw...@yahoo.com> wrote in message

> news:1109257600.1...@z14g2000cwz.googlegroups.com...

> > novantrone is different; it's not intended to reduce relapse rates
per
> > se,
>
> Huh? Where did you read that? Its its main feature. Reduction in
> relapses. As far as I understand.
>
> > but to affect disease progression whether or not the person has
> > relapses.
>
> True, but theres no "but". Its not either/or, as far as I know.

sorry, ws thinking about my own situation -- maybe a more clear
statement would be 'it's not intended to reduce relapse rates ONLY, but
to affect disease progression whether or not the person has relapses.'

i don't seem to be SPMS with superimposed relapses -- coming up on 5
years since my last one. therefore, in my own case, reduction in
relapse rate isn't so important, but stopping, slowing, or even
possibly improving, the rate at which disability encroaches is a VERY
important consideration.

> > 102 and holding...maybe i'll get my next infusion sooner than i'd
> > thought! :->
> >
> > rose
>
> 102?

that's my weight, LOL. I had to delay, then interrupt, the novantrone
doses because i'd been losing weight again -- down to 93 lb. this time.
the neuro and oncologist who'd given my first infusion agreed, no
continuation till i was over 100 lbs. and managed to stay that way with
no backsliding for 'several months.' i held steady at 99 lbs. for quite
a while, now i'm hanging in there at 102. oink, oink! ;-> the next
novantrone dose was originally set for april, but the neuro and
oncologist said not to expect to continue on schedule. i see the neur
in a couple weeks, and i'm sure he'll be happy about the weight gain.
fingers crossed that nothing weird starts happening in the meantime,
maybe i won't have to wait as long as i'd feared to continue with the
novantrone treatment!

rose

Rob Duncan

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Feb 27, 2005, 3:44:11 AM2/27/05
to

"rose" <rosedaw...@yahoo.com> wrote in message
news:1109344350.6...@l41g2000cwc.googlegroups.com...

Rose, its interesting you say that. Recently I noticed I had two messages
in my "drafts" column. The first was to Sylvia thanking her for the
gorgeous nudy pics of her, the second was a response to you for a weight
gain drink. Would you like that I post it again? Its a good one. Easy to
make, a tad expensive at first, but the ingredients last for a while, and it
goes to create lean body mass, and no fat.


Rob


rose

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Feb 27, 2005, 10:50:18 AM2/27/05
to
Rob Duncan wrote:

> > oncologist said not to expect to continue on schedule. i see the
neur
> > in a couple weeks, and i'm sure he'll be happy about the weight
gain.
> > fingers crossed that nothing weird starts happening in the
meantime,
> > maybe i won't have to wait as long as i'd feared to continue with
the
> > novantrone treatment!
> >
> > rose
>
> Rose, its interesting you say that. Recently I noticed I had two
messages
> in my "drafts" column. The first was to Sylvia thanking her for the
> gorgeous nudy pics of her,

:->

the second was a response to you for a weight
> gain drink. Would you like that I post it again? Its a good one.
Easy to
> make, a tad expensive at first, but the ingredients last for a while,
and it
> goes to create lean body mass, and no fat.

for real, rob? i've been on an insane 5,000-calorie-a-day 'diet' for so
long i feel like a stuffed christmas turkey. the docs have had me
supplementing with 'ensure' -- i use a generic with the same
ingredients. the docs said that this would help me maintain more lean
muscle mass because of the high protein conent.

would your recipe be better than the commercial stuff -- 'better' as in
better at what the ensure is suppsed to do? I HAVE been losing muscle
mass, and it's a major bummer.

i bet it would taste better than the protein drinks the docs have been
recommending -- or at least hope so! ;->

a repost would be great; thanks, rob!
rose

Rob Duncan

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Feb 27, 2005, 9:53:19 PM2/27/05
to

"rose" <rosedaw...@yahoo.com> wrote in message
news:1109519418.3...@g14g2000cwa.googlegroups.com...

Pardon my cursing, but that shits crap.

> would your recipe be better than the commercial stuff -- 'better' as in
> better at what the ensure is suppsed to do? I HAVE been losing muscle
> mass, and it's a major bummer.

Ensure is well martketed shit. Pardon my cursing, but its technically the
proper word. Yes, my recipe is better.

> i bet it would taste better than the protein drinks the docs have been
> recommending -- or at least hope so! ;->
>
> a repost would be great; thanks, rob!
> rose

Well, Id deleted it, but Ill re-write it.

First, buy a large container of "Designer Whey" Protein. (
http://www.designerwhey.com/ ) Then a large can of powdered lecithin.
Then, and you dont have to do this, but I would, buy a can of Creatine.
(the money is already starting to add up fast at this point.) Buy a large
containor of Flax Seed oil thats high in Lignans.

This will last you quite a while.

For breakfast dump into a blender 2 cups milk, 1 scoop of the protein
powder, 1 tablespoon of granulated lecithin, one level teaspoon of Creatine,
and a tablespoon of the high Lignan Flax oil. Blend for a bit until its
mixed together. Or for a lot for a real airated smoothy type drink blend
for a long time. (I dont like that btw. Why put all that air into it? But
some do. So try both ways) Pour into a large cup.

Take your blender thing and fill it with water. Put it back on the machine.
Blend for a bit. Then pour it out. Then set it in your sink and fill it up
again and let it sit. That makes cleaning it a breeze. Always do that, as
if that stuff dries, its hell to clean.

Drink. Enjoy. I would buy the plain chocolate. Well... because its
chocolate. The Vanilla tastes really good also. Im not going to get into
the reasons for all the ingredients, but you need them and you WILL gain
weight. I promise you that, on my soul. This protein powder was developled
by a past aquantence of mine for this express purpose. Gaining muscle-mass.
That it has all the other bonefied, scientifically verified benefits, is
simply a bonus. An artifact of its origins and manufacturing process, if
you will.

Eating that much protein first thing in the morning not only alters your
metabolism, and insulin/blood glucose levels, its anobolic. Meaning it
alters your bodies normal behavior. It turns it towards creating muscle
mass. It also alters your day long appetite patterns towards one where
youll crave protein rich foods over sweets and fats. (proven many, many
times in studies)

Obviously thats more than a tiny little expensive can of shit. But anyone
can drink 2 cups of anything unless theyre purposefully starving themselves.
So if it seems a bit much, take your time, you dont have to drink it all at
once. Take fifteen minutes, a half hour, whatever. Just drink it.

In the long run, buying all that and making your own, much better and more
nutritious protein drink, costs more. But it actually works, where those
little tiny cans of crap accomplish nothing exept to keep a starving person
alive. We want to progress, not just remain alive.

Have a real lunch. Make yourself do it. Eat a protein rich food with it.
Such as a big hunk of cheese or some fish, or tuna salad, or, well, a Burger
King Whopper without the mayo. When youre as light as you are, theres no
point in watching fats a whole lot. Being too skinny is worse than
consuming too many high cholesterol fats. Our bodies, when not obese and
overeating, can handle cholesterol just fine.

I wouldnt take your vitamins at this time. I would take them later in the
day, with your evening meal. Limit your snacking until after your evening
meal, then, of course, snack all you want. A lot of times people who are
too thin complain that they eat lots of calories, by snacking all day long.
Well, that doesnt cause a spike in insulin which is required to initiate the
anobolic process of rebuilding atrophied muscles. You need to avoid
snacking until after dinner. And trust me, you WILL develop one heck of an
appetite once you stick to that schedule... within a week.

The body has a mind of its own. It will learn when its about to be fed, as
long as snacking is eliminated, and a very strong hunger will result prior
to breakfast, lunch and dinner. You will wake up hungry, you will be hungry
before lunch, and itll happen again prior to dinner. As long as you avoid
snacking throughout the day.

Theres no problem with low-blood sugar as these are slowly and over time
absorbed into your bloodstream. So it cures that as well, if thats a
problem for you. I cant stress enough, DONT SNACK, and always eat real
meals. One way to add to this weight gain plan is to eat large toasted
bagels loaded with globs of yummy cream cheese. The real kind. Not that
1/3 less fat garbage satanic tasting fraud thats advertised as cream cheese.
Its not. Its refuse from a sewage treatment plant. Never buy that stuff.

I suppose I could get into the specific reasoning for each ingredient. But
I wont. Ill point you to medline if youde like to investigate all the
health benefits of each. When I began lifting weights I went from an
astonishingly skinny 138lbs to over 185lbs. (I was so thin my left lung
spontaniously collapsed twice and I had to have surgery to scar it to my
chest wall so it wouldnt happen again.) I went from not being able to
benchpress a barbell with two 45s on it, to benching near 300lbs. (I think
I was like 5lbs away) I went from being only able to do 6 chinups, to doing
about 15, real slow up and down ones, with two 45lb plates hanging between
my legs from a strap around my waiste. When I couldnt do anymore, Stef, or
her identical twin sister, would help lift me up to the top, and then jump
on my back and Id lower myslef down as slow as possible. I was able to
squat well past 450 and could nearly deadlift 500lbs. I have a VERY light
frame. My biceps were near 16 inches while my wrists measure less than 7 in
circumfrance.

I accomplished all that... IN LESS THAN A YEAR. So, I promise you... You
will gain weight. (I wish it was easy for you to get to a pool so you could
exercise. Exercise helps turn on the anobolic process within the muscle
cells themselves. But in anycase, you will gain weight. "IF" you make
yourself eat real meals at Lunch and Dinner. Hard boiled eggs come in handy
as a protein food for those meals.


Rob
(Sorry for being so long-winded.)


rose

unread,
Feb 28, 2005, 10:47:40 AM2/28/05
to
Rob Duncan wrote:
> Rob
> (Sorry for being so long-winded.)

not at all, i appreciate th extra info.

thanks a lot, rob, today is payday for dennis, and while some of the
ingredients may be expensive, it's the kind of expensive we can do
without bankrupting ourselves, so i'm definitely going to give this a
try.

thanks aagain! :->
rose

Rob Duncan

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Feb 28, 2005, 6:09:51 PM2/28/05
to

"rose" <rosedaw...@yahoo.com> wrote in message
news:1109605660....@o13g2000cwo.googlegroups.com...

I should mention, as much as I dislike GNC, they may be the best place to
buy the Designer Whey Protein, and the creatine. Ignore the ignorant
minimum wage employee's advice. That is very important. Buy the cheapest
thing of creatine you can find. Buy one that has no other products or
additives in it. (The employees work on commision so theyll rip you off the
first chance they get by feeding you misinformation.) Creatine is
manufactured easily and it matters not if its made in China, the USA, or
Timbucktoo. Ignore any advice or recomendations on the container. You only
need one level teaspoon a day.

If you have a Fred Meyers, thats the place to get the Flax Seed Oil and
Lecithin. In the healthfood section. The Flax Seed Oil comes in a black
plastic container thats about 8 inches tall. (I just cant think of the
brands name at the moment.) You want the one that says on the front label
that its high in Lignans. It has a nutty flavor and when mixed with the
protein powder, lecithin, and creatine, it all ends up tasting pretty good.
Especially mixed in with the chocolate protein powder. But as I said, the
Vanilla isnt half-bad either. The French Vanilla sucks. Im not even sure
if they make that anymore.

That should also be the place for granulated Lecithin. The manufacturer is
irrelivent. Again you want something without any other products or
additives in it. You could price everything at GNC if you like. They have
a discount card that comes in handy, and is financially worthwhile if you
purchase it.

If this all ends up being too expensive, then at least buy the Designer Whey
Protein and make a shake with that. I know money adds up fast, so modify
the recipe as finances dictate, but at min take the protein. The guy who
created it is Dan Duchaine. While hes no longer with us, his legacy lives
on in that product. He'd helped hundreds of pro, amatuer, and Olympic
athletes personally and was, in large part, a piece to Americas success in
sports over the past two decades. A good man. RIP


Rob


rose

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Mar 1, 2005, 10:26:56 AM3/1/05
to
Rob Duncan wrote:

> I should mention, as much as I dislike GNC, they may be the best
place to
> buy the Designer Whey Protein, and the creatine.

hi rob,

the designer whey protein website link you provided said that one of
the places DWP was sold was albertson's. yesterday was dennis's payday,
and every payday i order groceries online from albertson's. i checked,
and they had the DWP available, so i ordered it in chocolate flavor.
the grocery delivery guy comes this morning, so i should have that
later today!

henry's natural food store has creatine and lecithin granules. i
haven't got the flax seed oil yet -- henry's didn't have it -- but
there are other health/nutrition places around, so i'm sure i'll be
able to track it down.

this is gonna be fun -- seriously! :->

> the recipe as finances dictate, but at min take the protein. The guy
who
> created it is Dan Duchaine. While hes no longer with us, his legacy
lives
> on in that product. He'd helped hundreds of pro, amatuer, and
Olympic
> athletes personally and was, in large part, a piece to Americas
success in
> sports over the past two decades. A good man. RIP

rob, i know that name -- not from the 'steroid guru' stuff, i think i
may have met him. was he in san diego in the mid-to-late-80s? i used to
work out at fisher's gym in 'spun valley' -- hee, that would be spring
valley, CA, san diego's east county. fisher's was for 'serious
bodybuilders,' not girly-girls and girly-men. ;-> squats, pull-ups,
bench presses, no aerobics classes with matching headbands and leotards
-- that kind of place. i really liked it! anyway, they had a nutrition
seminar there, and i'm pretty sure dan duchaine was a major part of it.
the seminar didn't deal with performance enhancing substances, pretty
straightforward nutritinal advice and advice re supplements that were
legally available.

not sure, but i think it could've been the same guy. if he was a friend
of yours, i'm sorry for your loss. i'm assemblig the ingredients for
his recipe as we speak -- oh, as in getting them all, not QUITE ready
to assemble for consumption, but am definitely in theprocess.

here's hoping, huh? :->
thanx again,
rose

Rob Duncan

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Mar 1, 2005, 4:45:01 PM3/1/05
to

"rose" <rosedaw...@yahoo.com> wrote in message
news:1109690816....@o13g2000cwo.googlegroups.com...

Just so I retain the credit Ive earned, thats my recipe. Dan invented
Designer Whey. (Among a bunch of other things.) Theres another type of oil
that can be used, but it helps spur the metabolism of bodyfat, but in your
case, thats the last thing you need. Dan was a good guy. Im still
frustrated and confused over his death. He died of renal failure of an
untreated kidney disease, that he knew he had.

Rob


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