MCS Patients Meet Online ..
Ilena Rose
May you and all those in these groups be protected by the Quackwatch
Propaganda Team who spreads disinfo about mulitiple chemical
sensitivity.
Stephen Barrett, never even board certified himself, ridicules it by
calling it a 'fad diagnosis.'
The patients get blamed, as well as everything but the chemicals.
Many women from our international breast implant support group suffer
from MCS, and I am thrilled when voices of reason like Ms Salvador's
drown out the chemical industry noise and denials.
http://breastimplantawareness.blogspot.com
http://ilenarose.blogspot.com
Health Lover
http://www.americanchronicle.com/articles/viewArticle.asp?articleID=36567
Lourdes Salvador
September 3, 2007
Studies estimate that 16% of Americans exhibit symptoms of chemical
sensitivity. Roughly 6% of those meet the established criterion for
multiple chemical sensitivity (MCS). MCS is a chronic condition that
affects multiple organ systems, not specific to any gender, age,
socioeconomic group, or nationality. The onset can be gradual as a
result of chronic low-level exposure, or sudden as a result of a
single acute toxic exposure. Damage may be permanent and irreversible.
The primary recognized treatment is avoidance of all chemical
exposures.
Many everyday products may contain unregulated chemicals that are
neurotoxins and may trigger a reaction from low-level exposures,
including personal and laundry care items, perfumes, colognes,
lotions, deodorants, hair dyes, scented candles, air fresheners,
cleaning products, plastics, carpet, vehicle exhaust, herbicides, and
pesticides. Some people with MCS have been shown in studies to have
slow detoxification systems that hinder the breakdown of these
substances. Symptoms from exposure can range from minor annoyances to
life-threatening reactions. Other conditions that are frequently
comorbid with MCS include chronic fatigue, fibromyalgia, asthma,
allergies, and autoimmune diseases.
The mission of MCS America is to gain respect and understanding for
the many men, women, and children suffering with multiple chemical
sensitivities (MCS), toxic/chemical injury (TI/CI), and other related
disabilities through brochures, printed materials, newsletters,
support groups, public awareness campaigns, and lobbying for the full
recognition of MCS in the medical and legal communities while
promoting mutual respect between fellow human beings and encouraging
all members of the MCS community to participate and create a world in
which there is no threat of toxic injury.
MCS America wants the same recognition for MCS that the Centers for
Disease Control and Prevention (CDC) recently granted to Chronic
Fatigue Syndrome. MCS is particularly significant when one considers
that this condition impacts an estimated 16% of the population as
opposed to 7% who are affected by diabetes, which most Americans are
familiar with, costing billions in treatments, lost income due to
missing work, and absenteeism from school.
Janice Trease, Chapter Coordinator for MCS Nebraska, a subsidiary of
MCS America, notes that even though the Midwest is not heavily
populated, she sees signs of MCS around her every day. Some sufferers
are not aware of their own condition in the early stages and resources
are scarce in Nebraska. A sufferer of MCS herself, she travels 150
miles to Missouri, the nearest treatment center, for medical care.
"Chemical sensitivity affects every aspect of my life. Every contact
must be closely monitored. MCS requires hyper-vigilance to avoid an
unexpected exposure that can cause severe life-altering reactions,"
said Trease.
Trease looks forward to the day when MCS is fully researched and
recognized. Her all time favorite quote by Schopenhauer is "Every
truth passes through three stages before it is recognized. First, it
is ridiculed. Second, it is opposed. Third, it is regarded as self
evident." She says it will be a great day to celebrate when the
scientific community confirms the biomarkers for MCS and the community
regards it as self-evident.
Nebraska residents interested in joining MCS Nebraska and
participating in a discussion group may apply at:
MCS Nebraska Support Group.
For more information, referrals, and resources on MCS Nebraska, see
the MCS Nebraska subsidiary website at MCS Nebraska.
For more information on MCS America, see MCS America.
To join MCS America for support, information, and activism, apply at:
MCS America Members Support Group.
To subscribe to MCS America News, a monthly newsletter, send an email
to subscriptions@mcs-america.
About the Author
Lourdes Salvador is a writer and social advocate based in Hawaii. She
is a passionate advocate for the homeless, having worked with her
local governor to open new shelters and provide services to the
homeless in a new approach to end homelessness. That passion soon
turned to advocacy and activism for victims of multiple chemical
sensitivity. Since 2006, she has been the president of MCS America and
a featured monthly writer for MCS America News. She co-founded MCS
Awareness in 2005. She also serves as Partner, Environmental Education
Week and Partner, Collaborative on Health and the Environment (CHE).
For more information about Lourdes and her advocacy work, please
visit: www.mcs-america.org, www.thetruthaboutmcs.blogspot.com, and
www.cafepress.com/mcsamerica.
Copyrighted © 2007 Lourdes Salvador
Cheeky Bastard
Keyword ESTIMATE = No actual evidence.
Medusa
> Bravo Lourdes.
> May you and all those in these groups be protected by the Quackwatch
> Propaganda Team who spreads disinfo about mulitiple chemical
> sensitivity.
>
> Stephen Barrett, never even board certified himself, ridicules it by
> calling it a 'fad diagnosis.'
He is a well-known jerk and shill for the chemical industry.
> The patients get blamed, as well as everything but the chemicals.
>
> Many women from our international breast implant support group suffer
> from MCS, and I am thrilled when voices of reason like Ms Salvador's
> drown out the chemical industry noise and denials.
>
> http://breastimplantawareness.blogspot.comhttp://ilenarose.blogspot.com
> Health Lover
>
> http://www.americanchronicle.com/articles/viewArticle.asp?articleID=3...
> Lourdes Salvador
> September 3, 2007
<snip excellent article>
I have been told by someone who works with Social Security that MCS is
now recognized as a disability, but good luck getting SS Disability
payments for it. :(((
Thanks for posting this!
Medusa
Mark Probert
You are correct. Their criteria are:
12.07 Somatoform disorders: Physical symptoms for which there are no
demonstrable organic findings or known physiological mechanisms.
The required level of severity for these disorders is met when the
requirements in both A and B are satisfied.
A. Medically documented by evidence of one of the following:
1. A history of multiple physical symptoms of several years duration,
beginning before age 30, that have caused the individual to take
medicine frequently, see a physician often and alter life patterns
significantly; or
2. Persistent nonorganic disturbance of one of the following:
a. Vision, or
b. Speech; or
c. Hearing; or
d. Use of a limb; or
e. Movement and its control (e.g., coordination disturbance, psychogenic
seizures, akinesia, dyskinesia; or
f. Sensation (e.g., diminished or heightened).
3. Unrealistic interpretation of physical signs or sensations associated
with the preoccupation or belief that one has a serious disease or injury;
AND
B. Resulting in at least two of the following:
1. Marked restriction of activities of daily living; or
2. Marked difficulties in maintaining social functioning; or
3. Marked difficulties in maintaining concentration, persistence, or
pace; or
4. Repeated episodes of decompensation, each of extended duration.
Note that this is under Somatoform disorders under the psychiatric
criteria.
blut...@gmail.com
> Ilena Rose wrote:
> > Bravo Lourdes.
> > May you and all those in these groups be protected by the Quackwatch
> > Propaganda Team who spreads disinfo about mulitiple chemical
> > sensitivity.
>
> > Stephen Barrett, never even board certified himself, ridicules it by
> > calling it a 'fad diagnosis.'
>
> > The patients get blamed, as well as everything but the chemicals.
>
> > Many women from our international breast implant support group suffer
> > from MCS, and I am thrilled when voices of reason like Ms Salvador's
> > drown out the chemical industry noise and denials.
>
> >http://breastimplantawareness.blogspot.com
> >http://ilenarose.blogspot.com
> > Health Lover
>
> >www.cafepress.com/mcsamerica.
>
> > Copyrighted © 2007 Lourdes Salvador- Hide quoted text -
>
> - Show quoted text -- Hide quoted text -
>
> - Show quoted text -
Dave,
now that your "cured" of Fibro, does that mean your no longer eligible
for SSI? It's kinda funny how you found a cure right after your long
battle to obtain SSI enit?
lisa
Cheeky Bastard
LOL I NEVER USED THE WORD "CURE" bit I can see where third IS going
I ALWAYS posted 4 me and me only. Take care in YOUR quest.
Cheeky Bastard
Wow typo city in my last reply because of the Ambien. I fell asleep way
early then woke at 2AM and took it and was up till 3:45Am and got up 9AM.
This getting sleep thing is strange too.
Well I NEVER USED THE WORD CURE Lisa. And yes that was a long battle and no
I won't lose it because I still have AS, OA, and IC but will loose it if go
back and work too much, which I plan on going back and already have a few
days just to see how my body reacts and know I'm not ready to take on what I
used to do.
Lastly there is nothing funny about being misdiagnosed 22 years and in
disgust go to one last doctor before wanting to commit suicide and the guy
has me fill out 24 pages and does a head to toe inspection like no other
doctor has ever done and the takes 30 vials of blood and runs 95 test and
comes back with a list of shit that is wrong and starts treating me and I
start feeling the best I have in years.
Paul Holland posed the question to me "what if this is as good as it gets?"
And I replied if this is as good as it gets than its 100% more than I had in
the past and I can accept it. So many things have changed and are still
changing it's scary sometimes. Besides all the symptoms I had the 2 I
visually see each day are the ones that make feel even better over all, no
more dry skin anywhere and my muscle tone coming back. Others are no more
speech or concentration problems and joint pain or hearing problems and my
nails have cleared up and hair coming back.
And most of all in person and on the phone my personality oh and people
have all noticed I have a smile on my face all the time and not a grimmace.
I still go online but it's mostly entertainment to razz the @holes.
CB
fitnessbymarilyn
>
> - Show quoted text -
Cured of Fibro? Well you should let someone know that must be medical
history. There is a doctor in Lake Tahoe who seems to be curing some
with chiropractic manipulations which my insurance will not pay for...
It apears to have something to do with cervical spinal stenosis which
I have been diagnosed with also....
fitnessbymarilyn
Cheeky Bastard
"fitnessbymarilyn" <fitnessb...@gmail.com> wrote in message
news:1189884995.1...@d55g2000hsg.googlegroups.com...
I NEVER TYPED OR SAID CURED!
Anyone that thinks I wrote or typed "cure" is a fucking asshole.
I reserched and did the labs to prove THE ROOT CAUSE of MY FMS CFS.
Now excuse me while I drive to NYC to go have some fun... the rest can sit
home!