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Murielle

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Jul 2, 2007, 4:21:34 PM7/2/07
to
This used to be a thriving ng, small, but active. What happened? Is anyone
still out there who checks in from time to time?

I'd really like to see this ng take off again as there is a growing need for
information about MCS, especially as those of us with it are growing in
numbers daily.

Sincerely,
Murielle


SPeralta

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Jul 5, 2007, 10:59:46 PM7/5/07
to
Hi Murielle,

I signed up a few months ago...don't get any news or feedback. I'm
interested and on other info lists. Willing to share what I've learned
and looking for more help.

Sharon

Leonard

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Jul 6, 2007, 3:05:43 AM7/6/07
to
On Mon, 02 Jul 2007 20:21:34 GMT, "Murielle" <Muri...@invalid.com> wrote:

>This used to be a thriving ng, small, but active. What happened? Is anyone
>still out there who checks in from time to time?

I posted a couple times when this group was last active, and still check
back occasionally.


>I'd really like to see this ng take off again as there is a growing need for
>information about MCS, especially as those of us with it are growing in
>numbers daily.
>
>Sincerely,
>Murielle

Leonard

Jergers

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Jul 6, 2007, 12:56:47 PM7/6/07
to
Murielle wrote:

Still checking in, from time to time.
Major arm and shoulder problems. Too much pain. not heard anything new for MCS
lately.
Other friend barricades herself in her apartment and blocks out incoming odors.
There's lots, of articles, in the archives, if someone wants to start reposting
them, to restart topics for discussion.

Two ways to find.
http://groups.google.com/group/alt.support.mcs/about
http://talkaboutsupport.com/group/alt.support.mcs/

Please do not repost prior exchanges, nor names, nor email addresses, just
articles of interest with the source (newspaper link or webpage link). At your
own risk, for copyright. - I never worried much about that.
Please ignore crossposters. Some are deranged people.
I will read and see how things go for you.


Murielle

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Sep 16, 2007, 10:07:00 PM9/16/07
to
Hi,

I wrote in July and then got caught up in all kinds of drama, well,
melodrama, and just haven't been back.

But I, too, check in from time to time.

Murielle


"Murielle" <Muri...@invalid.com> wrote in message
news:i7dii.18680$tB5.18239@edtnps90...

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