Photosensitivity, allergic to light, light sensitivity, sun
Theresa
You probably already know most of this, but if you don't, some of the
information may be helpful for lupus folks.
I am somewhat of a web sleuth, and wanted to share some of the things I have
found on photosensitivity on the web during the past several weeks of
research. For extreme light sensitivity, I found what sun screens work and
what don't. I found web pages on how to diagnose photosensitivity as well as
several medical articles on the different kinds of photosensitivity. Also
web pages on which food or drugs can cause photosensitivity. To protect
yourself from the light, you can also purchase sun protection clothing
including full body swimwear and hats. In my son's extreme case, I ended up
making him a cloth mask to protect him from the sun.
HOW IT BEGAN...
My eleven year old son has a case of light sensitivity. He is so sensitive
that
twenty to forty minutes of exposure to indoor flourescent lights cause an
allergic reaction. It began with my son attending a track and field event
at school. They left him outside for six hours without sun protection on
bleachers, facing the opposite bleachers which were so bright with reflected
light he could not even look at them.
We still don't know the cause of my son's photosensitivity, but on the
bright side, after six weeks, he seems to be getting better. Unfortunately,
last week, I experienced a similar allergic reaction to light with swelling
in my face and down to my throat (I am also allergic to bugs (bees, wasps,
horse flies). Now it is my turn to wear a cloth mask :-(
ON SUN SCREENS AND SUN BLOCKS.....
Total Block sun block (SPF 65) made for people with photosensitivity and
blocks out all light including visible light, UV light and infrared..
Wearing a normal sun screen (SPF 30) and a straw hat, my son had an allergic
reaction to light after only a half an hour under the bright fluorescent
lights in the lunchroom. Wearing Total Block and a straw hat, he was able to
attend school all day long (6 hours plus) without having a reaction. After
trying several sunscreens on my son which did not work, I was a believer in
Total Block. You can get info at www.totalblock.com, and I found it to be
cheapest from www.dermadoctor.com. (I tried Total Block with my light
reaction, but it irritated my already raw, sensitive skin.)
None of the locally available sunscreens worked for my son. I now have a
collection of sun screens that do not work for my son: Neutrogena Sensitive
Skin (SPF 30), Neutrogen Healthy Defense (SPF 45), Water Babies (SPF 45). I
think the reason that they don't work is that they are designed to only
block out ultraviolet light and do not block out the visible light. So for
people extremely sensitive to visible light, most of the sun screens
available at a local store are useless.
Non chemical sun screens containing micronized titanium dioxide and zinc
oxide are safest and the least irritating to the skin, particularly for
babies. BUT no one sells these sunscreens with a high SPF rating. The only
thing I could find locally was Desitin, a zinc oxide diaper rash ointment,
needless to say, it is white, goooey, and stinks and my son would not wear
it. But the same people who make Total Block are coming out with a product
called Cotz (SPF of 58) made of micronized zinc oxide and titanium dioxide.
I am anxious to try it. The Total Block folks said Cotz would be coming out
in a couple of weeks. Look at www.totalblock.com for its release.
Also on sun screens, I ran across an article that says chemical sunscreens
may cause more skin cancer than they prevent. Also, most available
sunscreens only block UV light. Many photosensitive reactions occur in UV
and in visible light (blues, greens). Total Block blocks out all light,
including visible, UV, and infrared. Also according to a paper in Medline,
chemical sun screens are one of the leading photoreactive agents causing
photosensitivity. (Talk about an oxymoron!!!! Now that I am freaking about
drugs and foods that are photoreactive, the last thing I want on my skin is
something that could exacerbate my photosensitivity problem.)
SENSITIVITY TO FLOURESCENT LIGHTS...
Inside the tube, fluorescent lights are pure ultraviolet (UV). Passing
through the coating of the tube, they change to spikes of violet, green and
blue. Incandescent lights have most light in the red part of the light
spectrum (away from the UV, greens and blue which cause photosensitive
reactions). In my quest to relieve my son's condition, I changed out all of
the energy saving flourescent bulbs in the house back to the old fashioned
incandescent bulbs. That seemed to help.
PROTECTING YOURSELF FROM LIGHTS AND THE SUN...
I covered windows with drapes or blankets to block the sunlight. We bought
broad brimmed straw hats for the entire family, and UV sunglasses for both
of the boys. In addition, I sewed up some cloth masks, so my son could play
outside. I used a dark lightweight knit (T-shirt material) for the material.
My son wears the mask whenever he goes outside or rides in the car. To go
into a building, he takes off the mask, and wears Total Block and a straw
hat.
When nothing else works, wear a cloth mask...
Now that I too am experiencing light sensitivity, I made some cloth masks
for myself. Even now, sitting in the dark, with the light from the monitor
shining on my face, I can feel the light on my face. So I put the mask on. I
feel safe behind the mask, only holes for my eyes and my mouth. After
experiencing a severe allergic reaction and having the left side of my face
swell up and the swelling moving down to my throat, I went to trip to the
doctor's office for a shot, I know I cannot afford to have too many of the
swelling reactions or they will put me on steroids or some other horrible
drugs. I have been through bug bites, and I know what happens - the swelling
just gets worse with every bug bite and my sensitivity decreases. The
exposure to the sun is like being bitten by bees over and over again. The
mask seems to be a reasonable alternative to having a severe reaction.
Wearing the mask, I can work in the garden or go outside without suffering
any ill effects. The only problem is that I look like a terrorist!
Well, I hope that my condition goes away very soon. If not, I can only hide
out so long at home, and will have to brave the public wearing THE MASK!!!
Some people have wheelchairs, some people have crutches, and I guess I will
wear a mask.
SUN PROTECTIVE CLOTHING AND HATS....
www.sungrubbies.com has some great sun protection gear. I purchased a neck
to ankle swimsuit for my son and some SPF 30 material to make a mask for him
so he can go swimming. Sungrubbies also sells Total Block and a waterproof
sunblock with an SPF rating of 50, Solbar PF. I bought the Solbar, but have
not yet tried the Solbar sunblock. The site is run by a lady with
photosensitivity. Looks like they have a lot of good sun protection gear
including many broad brimmed hats. Another web site that looked interesting
was http://www.chemosavvy.com . Australia is the leader in sun protection
technology. The ozone hole over the Antartica makes Australia the skin
cancer capitol of the world. A couple of Australian companies make full body
swimsuits (called steamer suit): www.stingray.com.au and www.sunshell.com.au
(Note www.sungrubbies.com in San Diego sells some of the Sunshell products
from the U.S.)
WHAT IS WRONG WITH ME?...
All kinds of things can cause photosensitivity: food, drugs, even a lemon
orchard. Grocers, chefs, farm workers often get photosensitivity from
handling food. People on medication can get photosensitivity from drugs.
Look at the FDA's list at www.sunwellnessmag.com/articles/051medlist.pdf for
photosensitive food and drugs. For a comprehensive plants and foods, go to
http://bodd1.cf.ac.uk/search/all_bodd (Botanical Dermatology Database) and
search for photosensitivity.
For my family, we drink lemonade like pop. Lemons and lemon oil are
photoreactors. Other culprits could be celery, parsley, limes. The entire
citrus family are photoreactors with limes being the worst followed by
lemons then oranges. Another possible culprit causing our photosensitivity
is sodium nitrate and sodium nitrite used in cured meats like bacon, corned
beef, ham, hot dogs. I haven't found any correlation between nitrates and
photosensitivity other than nitrate is nasty and generates free oxygen
radicals which can be used by a photoreaction. Perhaps, eating home cured
meats combined along with nasty well water high in nitrates may have caused
some of the photosensitivity in our family. After reading all about arsenic,
nitrate and a host of other nasty things in well water, we are buying a
reverse osmosis system with ultraviolet treatment that will remove 99% of
bacteria and 99% of other nasties like nitrates and arsenic. What is really
wrong with us? I still don't know.
WHAT KIND OF PHOTOSENSITIVITY DO I HAVE..
Best Practice of Medicine has an excellent article on diagnosing
photosensitivity including a flowchart with boxes and arrows.
http://merck.praxis.md/bpm/bpmviewall.asp?page=CPM02DE418 . I printed this
article and brought it to my family doctor as well as the dermatologist.
(Hey, the doctors don't know everything, and photosensitivity is not that
common, and I am going to help them out as much as I can.) Right now, I am
awaiting test results on my son for lupus and other photosensitive diseases
from teh doctor.
Emedicine.com has many excellent articles written by doctors for doctors.
Search for these topics on Emedicine.com
Urticaria, Solar
Phytophotodermatitis (Plant photosensitivity)
Plant Poisoning, Phytophototoxins - Phytophotodermatitis
Polymorphic Light Eruption
Drug-Induced Photosensitivity http://www.emedicine.com/DERM/topic108.htm
Phytophotodermatitis http://www.telemedicine.org/botanica/bot5.htm
Photosensitivity Skin Disorders describes photosensitivity skin disorders
(PSD) are classified by the light wavelength to which the individual reacts
(helpful in diagnosis)
www.skin-disease.com\sun\solar urticaria\Skin-Disease_com Photosensitivity
Skin Disorders.htm
This article describes the mechanisms of photosensitivity (very technical).
In Vitro Phototoxicity Testing at
http://altweb.jhsph.edu/publications/ECVAM/ecvam02.htm
HOW DO I CURE MY PHOTOSENSITIVITY?
Print out the article at
http://merck.praxis.md/bpm/bpmviewall.asp?page=CPM02DE418 and give it to
your doctor. The doctor should perform tests to rule out photosensitive
diseases like lupus, etc. If you look at the flowchart, eliminating the drug
or food causing the photosensitivity is your next bet. (In my family, we are
drinking bottled water and avoiding all known foods and drugs that can cause
photosensitivity.) After that, all you can do is hope your doctor knows what
he is doing and hope your condition goes away.
Eliminate the light and the sun..
You have a choice: eliminate the sun or lights or eliminate the
photoallergen. If you don't know what the photoallergen is or you have a
photosensitive disease, you can only eliminate the sun and the bright
lights. When my son first had his photosensitivity, our family doctor was
prescribing antihistimines and industrial strength steroids that would
effect his immune system for the next twelve months. Once I figured out my
son's light sensitivity, I stopped giving my son the drugs and simply kept
my son out of the light. Gradually, I learned out how to protect my son from
the sun and the lights with sun blocks, hats, and cloth masks. This gave us
a chance to try changes in our diet and drinking water without risking my
son's health. My son seems to be getting better. Six weeks after the
original sunburn, his neck and arms are no longer sensitized to the light,
and his face seems to be recovering.
Hope this helps...
Theresa
(My email has been made useless by spam, so don't try to send me an email.
Please post to newsgroup.)
P.S. Has anyone found a relationship between sodium nitrate or sodium
nitrite (used in cured meats) and photosensitivity? I looked all over the
web and could not find any relationship between the two. However, my son's
reaction and my light reaction occurred after eating home cured meat
products (as well as drinking lemonade- photoreactive). In addition, the tip
of my tongue and my lips are the most sensitive and sting and burn. I read
that 25% of nitrates consumed are secreted in the saliva. Also, my sweat
stings and burns when my face is exposed to light. I also read that nitrates
and its byproducts are easily secreted through sweat and other body fluids.
Also, nitrates generate free oxygen radicals. Free oxygen radicals when
excited by light can cause photoreactions and actually change one's DNA. I
also read that photoallergens can actually bind with the histimine producing
DNA. This stuff is way over my head, does anybody know anything about this?
Mike Davies
been using this product for over a year without a reaction. It's called
OMBRELLE by L'Oreal. They have SPF 15 all the way up to SPF 60.(the one I
use) It was formulated for "sun intolerant" skin. It offers protection from
UVA and UVB rays. It contains Titanium Dioxide . SPF 60 is a little harder
to find. I live in western Canada and I can always find it at London Drugs.
"Theresa" <the...@tombraiders.com> wrote in message
news:L2qN8.32037$LC3.2...@bgtnsc04-news.ops.worldnet.att.net...
Sal
That was fascinating reading! For years after spending hours gardening
at a time always wondered why I felt so *drunk* and heat stroked etc ...
my tolerance for sunlight has dramatically decreased over time to the
point of even hanging a few bits of washing out on the line now is
dicey. In Australia where I am it is pretty bright with lots of UV rays
too (hole in the ozone layer and all that). Can't remember a time I
didn't go outside with my sunglasses on too, use polarised lenses that
give good visibility in even in low light. The food and
photosensitivity link is interesting, will be making some enquiries into
that now!
Thanks again
Sal
Theresa
I checked out your tip on Ombrelle SPF 60 sun block.
From http://www.ombrelle.com/en/produit/60.asp
"...permanent or temporary skin sensitivity. Specifically formulated for
sun-intolerant skin, Ombrelle SPF 60 combines a high content of the best
known filters, including L'Oréal's patented Mexoryl® SX and stabilized
Parsol® 1789 (Avobenzone) to deliver maximum UVA/UVB protection. It provides
protection throughout the UVA range, as well as 60 times your natural
defense against UVB rays with Titanium Dioxide, a physical sunblock. "
It contains a lot of titanium dioxide to provide 60 times the protection
against UVB. Titanium Dioxide is a physical sun block blocks out
everything (UV, visible and infrared) and that is what I am looking for. I
think I will order some. :-)
(I tried Total Block sun block today for a trip to the store, but it bothers
my skin. I just washed it off.)
This is another sun block that looked promising from the UK.
http://www.auravita.com/products/LORE11470.asp
Ambre Solaire Total Screen By L'Oreal (maybe the same product?)
Sun Protection Factor 60 for Sun Intolerant Skin; anti uva-uvb; photostable;
water resistant; hypoallergenic; fragrance free
Also here is a page on which sun screen ingredients block what wavelengths
of light.
http://www.dermatology.org/skintherapy/stl0205.html
Most sunscreen ingredients only work on the UV bands of light. Only physical
sunscreens, titanium dioxide and zinc oxide work on the UV and visible bands
of light (290-700 nm).
UVB (290-320nm)
UVA (320-400 nm)
visible (violet to red) or 400 to 700 nm (some photosensitivities occur in
blue and green.)
Sunscreen substances that can cause photosensitivity
*benzophenones (Arimis, Clinique)
cinnamates (Arimis, Estee Lauder)
dioxbenzone (Solbar Plus)
oxybenzone (Eclipse, Presun, Shade)
PABA (PreSun)
*PABA esters (Block Out, Sea & Ski, Eclipse)
Here is a study of people using sunscreen and not using sunscreen (SPF15).
http://www.dnd.ca/health/hs_staff_sites/drug_review_fed/Engraph/DR_Sunscreen
ssp_e.asp
"The investigators' conclusion was that "there was no harmful effect of
daily use of sunscreen in the medium-term study". While they found no
harmful effects, there was no clear benefit (i.e. reduction in skin cancer).
"
Argghs! Although I am sure using sunscreens with SPF 60 ratings have
benefits, most sunscreens fail to prevent skin cancer.
Theresa
Theresa
Glad to help out and thank goodness for the web, because if we only
listened to our doctors, we would all think we were crazy. (My own family
doctor would not believe me about my son. A major fight between the school
and my doctor. I threatened to either fire my doctor or get my son kicked
out of school. It worked, I got the note from teh doctor for the school that
I needed. My doctor is really an okay guy, but this was way out of his
field. Even the dermatologist was more than happy to read the article on how
to diagnose photosensitivity. )
Remember you can eliminate the light or the photoallergen. If you can't
eliminate the allergen, eliminate the light. If you have a photosensitive
disease, you may have to learn to live with it. As I have told my son, "You
may have to learn to live with it." He was not very keen on the idea, but he
is not very keen on being a shut in and neither am I.
For real life experiences, do a search on www.google.com and pick the
newsgroup tab.
Also look a phytophotodermatitis or something like that, it lists plants and
foods that cause reactions. But most food/plant reactions are topical (i.e.
apply lemon juice or lime juice to skin and get a reaction like discolored
skin. I.e. Parents squeeze lime juice then touch their kids and are accused
of child abuse from the finger marks left on the kid's skin.) Both my
doctors scoff at getting a photoreaction from drinking lemonade. But, they
could be wrong. I am still at a loss as to what is causing our reactions.
Perhaps a combination of drinking lemonade and eating cured meats???
While I am at it, here is another sun block that looks interesting. LA
ROCHE-POSAY ANTHELIOS "L" TOTAL BLOCK. I have not tried it.
"Anthelios "L" 60 SPF is total sunblock lotion. It has been rigorously
formulated to ensure an extremely high level of protective from the sun,
thanks to an original, patented filter, whose protective action corresponds
exactly to the UVA rays which trigger reaction, and a combination of UVB-UVA
filters. The regular use of this product over the years may help reduce the
chance of premature aging of the skin. 50mL. Active ingredients:
4-methylbenzylidene camphor 5%, titanium dioxide 4%, butyl
methoxydibenzoylmethane (PARSOL 1789) 3%, terephthalylidene dicamphor
sulfonic acid (mexoryl SX) 3.3%. Non-medicinal ingredients: water,
cyclopentasiloxane, C12-15 alkyl benzoate, glyerine, sorbitol,
triethanolamine, aluminum starch octenyl succinate, octyl cocoate, stearic
acid, PEG-100 stearate, PVP/eicosene copolymer, potassium cetyl phosphate,
glyeryl sterate."
Lee Thompson-Herbert
Theresa <jenne-...@worldnet.att.ent> wrote:
>
>It contains a lot of titanium dioxide to provide 60 times the protection
>against UVB. Titanium Dioxide is a physical sun block blocks out
>everything (UV, visible and infrared) and that is what I am looking for. I
>think I will order some. :-)
>(I tried Total Block sun block today for a trip to the store, but it bothers
>my skin. I just washed it off.)
You can buy plain, cosmetic grade titanium dioxide from places that cater
to soap and lotion makers. I mix a small amount of the pigment with water
(it only takes a few drops), then add it to a lotion base that I have already
tried and know is safe (in my case, Curel unscented). Done this way, it's
not goopy, though if you add too much pigment it'll look like you're wearing
clown white. ;}
I buy from this site, they have the best prices I've found. You want the
water-dispersable type. (Yes, that's really $6 for a _pound_)
http://www.wholesalesuppliesplus.com/showProduct.asp?ProductID=440
This particular place also has really good prices on nothing-added jojoba
oil.
--
Lee M.Thompson-Herbert l...@retro.com KoX 1995, SP4
Head Muso, White Rats Morris
Member, Knights of Xenu (1995). Chaos Monger and Jill of All Trades.
"A head-on collision between Morticia Adams and Martha Stewart"
J
Theresa wrote:
> []. In my son's extreme case, I ended up
> making him a cloth mask to protect him from the sun.
>
> HOW IT BEGAN...
> My eleven year old son has a case of light sensitivity. He is so sensitive
> that
> twenty to forty minutes of exposure to indoor flourescent lights cause an
> allergic reaction. It began with my son attending a track and field event
> at school. They left him outside for six hours without sun protection on
> bleachers, facing the opposite bleachers which were so bright with reflected
> light he could not even look at them.
> We still don't know the cause of my son's photosensitivity, but on the
> bright side, after six weeks, he seems to be getting better. Unfortunately,
> last week, I experienced a similar allergic reaction to light with swelling
> in my face and down to my throat (I am also allergic to bugs (bees, wasps,
> horse flies). []
All good but shouldn't you and he be seeking diagnosis first?
What if you both have Lupus or some of the other sun-sensitive illnesses (that
can also affect/attack the organs)?
J- wishing she'd saved the list she posted here once.
xeroderma pigmentosum
porphyria
http://www.lupuscanada.org/en/archive/skin_rashes_in_lupus_erythemat.html
Skin Rashes In Lupus Erythematosus
KC
I'll add more of my respected opinion later <SEG>
Just wanted to point out that the latest LFA newsletter is *full* of
excellent photosensitivity information. If you don't have it, you
might try to get a copy from your chapter or if you're overseas (or
not) you could probably talk some unwitting kitty cat into sending a
copy. :-) I can probably get a few extras from the office and send
them out...
kcat
J Rogow
Can you scan them and email them?
"KC" <kcdo...@ghg.net> wrote in message
news:oqsegu8klsg2n0m7s...@4ax.com...
Janers
I just got my copy of the "newletter" and you are right, excellant
information.
I think everyone should join their local Lupus chapter. Come on guys,
get in the "LOOP"
hate to push this but if WE don't get informed, how can we INFORM the
public of our disease and needs
hugs to all
janers
Theresa
It does seem odd with all of the companies making sunscreen that we have to
resort to making our own.
For home made sunscreen, I ran across this.
Home Made Sun Block- To make your own sun-block You will need USP grade
titanium oxide or zinc oxide available from compounding pharmacies. You
will also need some almond oil (or other good oil) and beeswax. Make in
proportion of 1 cup oil to 1 oz beeswax and 1-2 Tablespoons zinc or titanium
oxide. Heat the oil just enough to melt the wax (grate or chop it first),
then add the titanium or zinc oxide. From
http://www.ultrasw.com/cheryl/Products.htm
Also another source:
Zinc Oxide medical grade. USP grade
http://www.pulpdent.com/perio/zink.html
I did some more searching and found Mustela Total sun protection lotion, a
mineral sunscreen, SPF 25. It uses zinc oxide (5%) and titanium dioxide
(9.8%) as physical blockers. Hypoallergenic and sold in many baby stores.
Information is at www.mustela.com and I was able to find a local store. I
just put it on my face and so far it feels good and doesn't irritate my
already irritated skin. (I hope it works, because at the rate I am buying
sun screen, I will be able to open my own store of slightly used sun
screens. :-) )
Mustela Total Sun Protection Lotion SPF 25 (Pricey, with tax, almost $20 US
for 4 oz)
INGREDIENTS: Water, pentaerythrityl tetraethylhexanoate, titanium dioxide,
cyclomethicone, zinc oxide, C12-15 alkyl benzoate, glycerin, dicaprylyl
ether, cyclopentasiloxane, ethylhexyl dimethicone ethoxy glucoside,
propylene glycol diethylhexanoate, sodium chloride, PEG-45/dodecyl glycol
copolymer, PEG-30 dipolyhydroxystearate, glycine soja (soybean) oil
unsaponifiables, dextrin palmitate, phenoxyethanol, C1 77492, hydroxypropyl
guar, aloe barbadensis leaf extract, iron oxide, methylparaben,
dimethicone/vinyldimethicone crosspolymer, disodium edta, zinc gluconate,
butyparaben, tartaric acid, ethylparaben, propylparaben, C1 77491
Theresa
Theresa
probably some of the other things you mentioned. We should find out the test
results at the next doctor's appointment.
I have been very frustrated since it all began. It took four days to figure
out what was happening to my son, by then the doctor had him on
Dexamethasone (impacts his immune system for twelve months). On Dex, my son
felt like he was going to vomit and the emergency room doctor took him off
of the steroids. We, not the doctor, figured out the photosensitivity, and
then I needed a note from school and the doctor wouldn't even believe me
(our family doctor since the kids were born!) I had to threaten him that we
would go somewhere else. I have spent a great deal of time on teh web trying
to learn about what is going on with my son.
I have been through bad doctors with my back, suffering for four years
because I believed the damned doctor. After seeing a doctor who knew what
they were doing, I now live without pain most of the time (except for when I
use shovels too much). I won't let the same thing happen with my son. I
truly believe learning as much or more about what is going on as I can.
When seeing the dermatologist, the sun block (Total Block) I had found on
the web was better than the dermatologist was using.
Anyway, enough ranting about doctors.
Theresa
Andy
<kcdo...@ghg.net> wrote
[
>I can probably get a few extras from the office and send
>them out...
>
--
Andy [Editor, Austrian Philatelic Society]
For Austrian philately <URL:http://www.kitzbuhel.demon.co.uk/austamps>
For Lupus <URL:http://www.kitzbuhel.demon.co.uk/lupus>
For my other interests <URL:http://www.kitzbuhel.demon.co.uk>
KC
wrote:
>
>Can you scan them and email them?
I can try. previous experience with scanning text on my cheapo
scanner has been negative.
Shelagh
photsensitivity issues and skin involvements... everyone should support
theirs and other countries' support groups in order to get the money
raised toward research and the like!
I'll get off my pedestal now ;)
--
from Shelagh <:)
valle...@telus.net
Lupus - Invisible in Plain Sight AT
http://www3.telus.net/valleylupus/index.html
"Janers" <roja...@bright.net> wrote in message
news:3oLN8.985$Mv6.1...@cletus.bright.net...
JRogow
If you can't you have my address, or did you toss it?
KC
wrote:
>If you can't you have my address, or did you toss it?
>
pro'lly. but don't send it just yet - let me try to scan and dig
around in my "files" (a bag in the closet) for your addy.
k
JRogow
I had a chance to educate some people about Lupus today.
Also, unfortunately, I also found out that a friend lost her Lupus sister
last winter. They are native American, one of the most susceptible
groups for this disease.
I slathered #60 sunblock this morning, it seems to have worked.
I'm shooting better than I had thought, but still towards the bottom of my
class, and definitely the lowest in our posse (it's full of some of the best
men shooters, I'm the only gal).
You'd laugh to see me with my full garb - and a bright red Solumbra golf
umbrella! It clashes with my hat, but, oh well<g>.
Fortunately, every stage has a sun shelter, so I only need the bumbershoot
between stages or walking to the car.
My back hurts and I'm really tired, we're going to a cowboy poet event
tonight, so I'm gonna take a nap now.
Eleanor
having fun that is what counts.
Hope you had a great time at the cowboy poet event.
Sherry
KC
wrote:
>
>I had a chance to educate some people about Lupus today.
Good.
>
>Also, unfortunately, I also found out that a friend lost her Lupus sister
>last winter. They are native American, one of the most susceptible
>groups for this disease.
:-( I'm sorry. while it's not the norm - it's still a tough reality
to face sometimes with this DD.
>I slathered #60 sunblock this morning, it seems to have worked.
Gut again.
>
>I'm shooting better than I had thought, but still towards the bottom of my
>class, and definitely the lowest in our posse (it's full of some of the best
>men shooters, I'm the only gal).
so - if you were in Scotland you'd be tossing the caber (sp?) right?
:)
Andy
<kcdo...@ghg.net> wrote
[
>
>so - if you were in Scotland you'd be tossing the caber (sp?) right?
Well, the spelling is...
JRogow
> On Fri, 14 Jun 2002 17:04:58 -0700, "JRogow" <JRo...@Ridgenet.net>
> wrote:
>
> >
> >I had a chance to educate some people about Lupus today.
>
> Good.
> >
> >Also, unfortunately, I also found out that a friend lost her Lupus sister
> >last winter. They are native American, one of the most susceptible
> >groups for this disease.
>
> :-( I'm sorry. while it's not the norm - it's still a tough reality
> to face sometimes with this DD.
I know - but she was doing so well last time I saw her.
>
> >I slathered #60 sunblock this morning, it seems to have worked.
>
> Gut again.
Yep, I'm hooked on the stuff - although I sorta missed hearing my skin
saute.
> >
> >I'm shooting better than I had thought, but still towards the bottom of
my
> >class, and definitely the lowest in our posse (it's full of some of the
best
> >men shooters, I'm the only gal).
>
> so - if you were in Scotland you'd be tossing the caber (sp?) right?
> :)
Nope, I'd be watching the caber-thrower!
JRogow
"Eleanor" <ehu...@elp.rr.com> wrote in message
news:c1xO8.10654$9b.7...@typhoon.austin.rr.com...
> Glad that your scores are better than you thought...but as long as you are
> having fun that is what counts.
>
> Hope you had a great time at the cowboy poet event.
It was wonderful, he (Richard Elloyan) is fantastic. A truly magic evening.
I'm really fighting for the lowest scores - there's another gal who is
having
a bad shoot, she is neck and neck with me for the "broken bucket".
So far, I feel better than I have in quite a while. I'm being SO careful to
stay out of the sun and not obsess over missed shots. I'll probably end
up paying for this - but it will be worth it (I hope<g>).
Gotta go and take a nap then get togged out for the dinner/awards tonight.
This isn't most people's idea of fun - but it sure works for MOTH and me!