Roll call
Mary Fisher
I've only been here for a short time and feel that I'd like to get to know
others.
In case anyone IS reading I'll introduce myself:
I'm an English, old, fat, opinionated, pedantic and arrogant woman with a
husband (Spouse) of 44 years, several grown children and more grandchildren.
Until last year when arthritis got the better of me I kept bees - for 25
years. I still have a couple of hens although we live in the inner city.
In my spare time I'm a beeswax and tallow chandler. If you're REALLY
interested in what else we do you can look at my website but it's irrelevant
to epilepsy.
It really would be good to know more about at least some of the people on
this ng. It seems to me to be very helpful to those who need it. My epilepsy
is very mild since I had a craniotomy in 1993 to remove a meningioma but, as
with my breast cancer, I know that it might not remain stable so I want to
know more about this fascinating condition.
jediandson
I go by Jedi and Son. My real name is Eucke. I am 36, white, male,
America, Christian who was divorced a little over a year ago. I have joint
custody of my 7 year old son but he is with me most of the time. My son
developed epilepsy 1-4-02 and I have been corresponding here since a couple
of weeks after that time. I am my sons fiercest protector and I do as much
as I can to help him in the path he walks. It is this dedication that kept
me from killing my son's first Neurologist. Last thing I need to be is
imprisoned! While I do my best to follow in Christs footsteps I have a
warrior's spirit that thirsts for justice. Because of my faith I am also
aware that there is no justice in this life....its what comes after life. I
am extremely conservative and enjoy most political discussions.
I am here in this NG as I view it as a good source of information to help me
in my care for my son and to, occassionally, help others who are much
earlier in their path than I or my son is. Jedi and Son is my Nom de Net
for here as my son and I love Sci-Fi and the hero Archtype of the Jedi seems
uncommon now a days and its nothing but good IMO!
Jedi and Son
"Mary Fisher" <mary....@zetnet.co.uk> wrote in message
news:3e6cfccb$0$256$4c56...@master.news.zetnet.net...
Dave 忽帕
You can find out about me (photo and all) my VNS page.
http://www.howdydave.com/vns.html
Then again... maybe I'm trying to decieve the world with that photo because
I'm really a young, handsome, rich, desireable, globetrotting playboy with a
woman in every state and shire!
Only my goldfish knows for sure!
--
Dave 忽帕
"Mary Fisher" <mary....@zetnet.co.uk> wrote in message
news:3e6cfccb$0$256$4c56...@master.news.zetnet.net...
Bob
Please permit me to correct that website addres to:
http://www.candlemaker.org.uk/
Looks like an extra "r" snuck in somehow. :-)
Bob
John G. Rune
<mary....@zetnet.co.uk> wrote:
> Hello anyone who bothered to open this post,
And thank you for sharing your opening... er, wait a minute, that
didn't sound right...
> I've only been here for a short time and feel that I'd like to get to know
> others.
Then get up on the table and give us a dance! ;-)
Like so many Americans these days, I am over-educated and
under-employed. I've lost a great many things thanks to my
seizure disorder. But, I believe that I have also gained some
things that I never would have had otherwise. Like modesty!
There's a very old saying that life is only as long as a dream.
> In case anyone IS reading I'll introduce myself:
>
> I'm an English, old, fat, opinionated, pedantic and arrogant woman with a
> husband (Spouse) of 44 years, several grown children and more grandchildren.
I find opinionated, pedantic and arrogant women make the best
lovers. Can't say I'm too thrilled about you being an Englander,
though. Your people taxing our tea and all. ;-]
I have a first-cousin who's a barrister or something over there.
Our family has more or less lost track of one another over the
years. Lots of hard feelings regarding money (not mine, of
course, because I don't have any!), who insulted who first, the
usual nonsense.
My father's side of the family is all muscle and no brains.
Descended from Irish coal miners who came here to, you guessed
it, mine coal! Yeah, real intellectuals. But there's a whole
troop of interesting characters on my mother's side; German, from
the Old Country. I'd say they range from brilliant(???) to
absolutely whacko(!!!) Years ago, my father said that my older
brother was his son and I was my mother's. Guess which side of
the family I take after! ;-)
> Until last year when arthritis got the better of me I kept bees - for 25
> years. I still have a couple of hens although we live in the inner city.
Did the bee stings ever help your arthritis?
> In my spare time I'm a beeswax and tallow chandler. If you're REALLY
> interested in what else we do you can look at my website but it's irrelevant
> to epilepsy.
Well, that and it's none of my beeswax. <groan>
Know any artists doing encaustic painting? I hear it's making a
big comeback.
> It really would be good to know more about at least some of the people on
> this ng. It seems to me to be very helpful to those who need it. My epilepsy
> is very mild since I had a craniotomy in 1993 to remove a meningioma but, as
> with my breast cancer, I know that it might not remain stable so I want to
> know more about this fascinating condition.
Here's my take on this fascinating condition here in the US. If
you're not working, you're considered a parasite. If you submit
a resume that accurately represents your medical history, you're
considered a bad risk. If you omit certain facts from your
medical history and the employer gets wind of it, you're
considered a liar and therefore unreliable. If you miss a few
days a month due to seizures, you're considered newly unemployed.
It's a very circular process.
Personally, I don't blame any employer for not wanting to hire
someone who is an enormous risk to their existence. It's
counter-productive to deliberately put your business in a
position where an employee could sue your ass off. Obviously,
having a seizure disorder dramatically increases the risk of
on-the-job injury. So, if you're not self-employed, you're the
token "employee" needed to satisfy state and federal regs.
Funny thing is, businesses like to hire and fire token employees
on a regular basis. It's a public relations gimmick. "Look at
us, we hire the disabled!" Yeah, sure, one at a time for about
six months. Not a great career move for the token employee, I
can tell you.
> Mary
> www.candlermaker.org.uk
I will definitely check it out.
RudeJohn
Dave 忽帕
Gee...
Ya' sure we're not long lost twin brothers or sumthin' like that? Got the
same sob (or is that s.o.b.?) story about employers too!
BTW: I always thought that you were a eUKer!
Lisa
My name is Lisa. Most of you know me as the one that started that
awful debate on pot. Since then, not only have I quit the pot, I quit
ciggerates too. I figured if I'm going to quit smoking, I might as
well go all the way--and they're both expensive habits. I'm 29 years
old, three kids (ages 7, 9, 12), and married to wonderful man. I've
never been outside of the USA and with the talk of war, I think I'll
keep it that way. I've delivered the newspaper for many years, but
lost my job last year when word got out that I may be having seizures.
In the past year, my husband and I have gotten into body piercing.
My family thinks we're freaks, but we've learned to accept being a
"freak" as a compliment. This is the first newsgroup that I've ever
made more then one post to. I don't like heated debates because I'm
not overly educated like John or some of the other people here.
Future post will prove that my spelling sucks. I would like to be
part of this group for a while. Knowing that I'm not the only one
going through this really does help.
"Mary Fisher" <mary....@zetnet.co.uk> wrote in message news:<3e6cfccb$0$256$4c56...@master.news.zetnet.net>...
Dave 忽帕
Giving up cigarettes, eh?
Did you ever think about taking snuff?
(See my snuff page.)
--
Dave 忽帕
"Lisa" <loosin-...@excite.com> wrote in message
news:19563971.03031...@posting.google.com...
Mary Fisher
"Dave 忽帕" <da...@howdydave.com> wrote in message
news:v6q79r...@corp.supernews.com...
> Howdy Mary!
>
> You can find out about me (photo and all) my VNS page.
>
> http://www.howdydave.com/vns.html
>
> Then again... maybe I'm trying to decieve the world with that photo
because
> I'm really a young, handsome, rich, desireable, globetrotting playboy with
a
> woman in every state and shire!
>
> Only my goldfish knows for sure!
And the women ...
Mary
>
Mary Fisher
"Bob" <spsandl...@inter.net> wrote in message
news:3E6D420D...@inter.net...
>
> Please permit me to correct that website addres to:
> http://www.candlemaker.org.uk/
>
> Looks like an extra "r" snuck in somehow. :-)
You're right. A typo. Not that I expected anyone to try it :-)
Mary
>
> Bob
>
>
Lisa
I tried going to your page. It wouldn't load. No, I've never tried
snuff. Are you suggesting it?
"Dave 忽帕" <da...@howdydave.com> wrote in message news:<v6s21d...@corp.supernews.com>...
Mary Fisher
"John G. Rune" <tact...@ptd.net> wrote in message
news:3e6d5f6...@news.ptd.net...
> On Mon, 10 Mar 2003 20:58:47 -0000, "Mary Fisher"
>
know
> > others.
>
> Then get up on the table and give us a dance! ;-)
Sorry, you missed it. You weren't watching, were you? Too busy telling
everyone how wonderful you are ;-)
>
> Like so many Americans these days, I am over-educated and
> under-employed. I've lost a great many things thanks to my
> seizure disorder. But, I believe that I have also gained some
> things that I never would have had otherwise. Like modesty!
Thank goodness!
>
> There's a very old saying that life is only as long as a dream.
How old is it? I've never heard it ...
>
>
> I find opinionated, pedantic and arrogant women make the best
> lovers.
That's very true. Ask Spouse. Not that he has anything to compare me with.
> Can't say I'm too thrilled about you being an Englander,
> though. Your people taxing our tea and all. ;-]
Just drink it very weak, without sugar or milk. It makes it very economical.
You can't teach a Tyke about nipping a currant in half.
>
>
> My father's side of the family is all muscle and no brains.
> Descended from Irish coal miners
? I didn't know they mined coal in Ireland??? If they did why did they
bother to burn peat?
> who came here to, you guessed
> it, mine coal! Yeah, real intellectuals.
They are very clever people. The Irish could run the worl if only they could
stop fighting among themselves. But they're encouraged in that by their
descendants across the big water.
> But there's a whole
> troop of interesting characters on my mother's side; German, from
> the Old Country. I'd say they range from brilliant(???) to
> absolutely whacko(!!!) Years ago, my father said that my older
> brother was his son and I was my mother's. Guess which side of
> the family I take after! ;-)
Daddy?
>
> > Until last year when arthritis got the better of me I kept bees - for 25
> > years. I still have a couple of hens although we live in the inner city.
>
> Did the bee stings ever help your arthritis?
Of course not. Why should they?
>
> > In my spare time I'm a beeswax and tallow chandler. If you're REALLY
> > interested in what else we do you can look at my website but it's
irrelevant
> > to epilepsy.
>
> Well, that and it's none of my beeswax. <groan>
I have no idea what that means.
>
> Know any artists doing encaustic painting? I hear it's making a
> big comeback.
Yes but they don't do it properly. All they do is lay molten coloured wax on
shiny paper or somesuch., Encaustic means buring and true encaustic painting
is on a very absorbent medium and is 'burned' or at the very least melted
INTO the medium. Once done it's done and can't be removed, unlike the modern
abomination. Many of the ancient frescos were done with encaustic wax
painting. some were painted with water paints on wet plaster but the colours
didn't stay as vibrant.
>
>
> Here's my take on this fascinating condition here in the US. If
> you're not working, you're considered a parasite. If you submit
> a resume that accurately represents your medical history, you're
> considered a bad risk. If you omit certain facts from your
> medical history and the employer gets wind of it, you're
> considered a liar and therefore unreliable. If you miss a few
> days a month due to seizures, you're considered newly unemployed.
> It's a very circular process.
It's getting like that here. Your litiginous values are taking hold ...
>
> Personally, I don't blame any employer for not wanting to hire
> someone who is an enormous risk to their existence. It's
> counter-productive to deliberately put your business in a
> position where an employee could sue your ass off. Obviously,
> having a seizure disorder dramatically increases the risk of
> on-the-job injury. So, if you're not self-employed, you're the
> token "employee" needed to satisfy state and federal regs.
That's the one.
>
> Funny thing is, businesses like to hire and fire token employees
> on a regular basis. It's a public relations gimmick. "Look at
> us, we hire the disabled!" Yeah, sure, one at a time for about
> six months. Not a great career move for the token employee, I
> can tell you.
No.
So do you work?
Mary
Mary Fisher
> My name is Lisa. Most of you know me as the one that started that
> awful debate on pot. Since then, not only have I quit the pot, I quit
> ciggerates too.
Oh well done! It's the hardest thing in the world, I know from experience.
> I figured if I'm going to quit smoking, I might as
> well go all the way--and they're both expensive habits.
You're not kidding.
> I'm 29 years
> old, three kids (ages 7, 9, 12),
It's not good for them either. I'm so pleased that you quit.
> and married to wonderful man. I've
> never been outside of the USA and with the talk of war, I think I'll
> keep it that way. I've delivered the newspaper for many years, but
> lost my job last year when word got out that I may be having seizures.
> In the past year, my husband and I have gotten into body piercing.
> My family thinks we're freaks, but we've learned to accept being a
> "freak" as a compliment.
I used not to like body piercing but now I think that it can be very
attractive. Many of our customers have piercings because they are into a
fantasy life as well as an historical re-enactment one, so I see a lot of
it.
> This is the first newsgroup that I've ever
> made more then one post to. I don't like heated debates because I'm
> not overly educated like John or some of the other people here.
Just don't read the threads which have turned you off. It's nothing to do
with education.
> Future post will prove that my spelling sucks. I would like to be
> part of this group for a while. Knowing that I'm not the only one
> going through this really does help.
That's what support groups are for. I know that they work. Stick around, for
good.
Mary
>
John G. Rune
<da...@howdydave.com> wrote:
> Howdy RJ!
Hey D,
> Gee...
> Ya' sure we're not long lost twin brothers or sumthin' like that? Got the
> same sob (or is that s.o.b.?) story about employers too!
Ever since I was a little kid I've been asking my mom if she's
absolutely _certain_ that my dad and I are related.
As the saying goes, you can pick your friends but your stuck with
family.
> BTW: I always thought that you were a eUKer!
I don't know why, I don't have a funny accent. <g>
> --
> Dave 忽帕
>
> http://www.howdydave.com
Rude
John G. Rune
Well, anyone who likes scifi can't be all bad. :-)
I've been collecting scifi since before you were born. (I was 9
at the time. <g>) I was into horror as well, but scifi and horror
were part and parcel in the day.
Matter of fact, bookstores didn't see much difference between
scifi and horror in prehistoric times. But when all the fantasy
stuff started with D&D, horror suffered a setback because
scifi&horror was replaced by scifi&fantasy. Horror caught up
eventually, and HPL enjoyed a revival with with the collegiate
crowd. Several contemporary authors like Masterton, Koontz,
Johnstone, Wilson, Strieber, Barker, and King got the ball
rolling on horror again. One of my favorite Oddballs of Note is
Rex Miller, who's protagonist is a monstrous human being called
Chaingang. IMHO, people make the best monsters.
And I visit this group (on an admittedly irregular basis) because
it's nice to relate to people with similar problems. That, and I
love a good argument. <g>
Best of luck to you and your son.
The force be with you both,
Rune
Mary Fisher
>
> I visit this group ... because it's nice to relate to
> people with similar problems. That, and I
> love a good argument. <g>
NO! Really?
Well I never :-)
>
Mary
Jan Silbermann
Lisa <loosin-...@excite.com> wrote:
>Hello Mary and others,
I am Jan. Been here forever, don;t post all that much.
I am the moderator of the yahoo infantile Spasms group.
I have five kids- one who had IS.
They are 12,10,8,5,3
My second child was the one with IS and is now perfectly fine.
I live in New Orleans and am a Jewish studies/Hebrew teacher.
This is my website
http://www.geocities.com/Heartland/Flats/2904/spasms.html
Eliana is truly a miracle girl.
Jan
John G. Rune
<mary....@zetnet.co.uk> wrote:
> "John G. Rune" <tact...@ptd.net> wrote:
....
> > There's a very old saying that life is only as long as a dream.
>
> How old is it? I've never heard it ...
Very old . And you just did.
> You can't teach a Tyke about nipping a currant in half.
Never heard that one before, but I like it.
> ? I didn't know they mined coal in Ireland??? If they did why did they
> bother to burn peat?
What I want to know is, why did they come to Pennsylvania and
what the heck were they doing down there in those darn tunnels?
> They are very clever people. The Irish could run the worl if only they could
> stop fighting among themselves. But they're encouraged in that by their
> descendants across the big water.
So the Queen was only trying to save the Irish from themselves?
> > Did the bee stings ever help your arthritis?
>
> Of course not. Why should they?
There's this "new age" business about using bee stings to treat
different maladies. Never tried it, but some people swear by it.
Especially the ones charging for the service.
> > Well, that and it's none of my beeswax. <groan>
>
> I have no idea what that means.
Outdated slang: "It's none of your beeswax." meaning "It's none
of your business."
> > Know any artists doing encaustic painting? I hear it's making a
> > big comeback.
>
> Yes but they don't do it properly. All they do is lay molten coloured wax on
> shiny paper or somesuch., Encaustic means buring and true encaustic painting
> is on a very absorbent medium and is 'burned' or at the very least melted
> INTO the medium. Once done it's done and can't be removed, unlike the modern
> abomination. Many of the ancient frescos were done with encaustic wax
> painting. some were painted with water paints on wet plaster but the colours
> didn't stay as vibrant.
The terminology is abused by convention. We use "fresco" to
refer to the wall/ceiling paintings themselves but it is properly
the name of the last technique you describe, applying water
soluble earth or mineral pigments to the intonaco while still
wet. For secco, tempera and oil paint were also used. And it
was common to do all sorts of overlays so that a finished
painting was rarely a "pure" application of a single technique.
From what I've read, oil paint (e.g., pigment in linseed) yielded
some of the brightest color. And not even Giotto limited himself
to pure fresco.
IIRC, the earliest surviving encaustic work is Roman? I'd have
to hit the library for that one. I wish I could see some of that
stuff up close and personal.
> So do you work?
Like a Swiss watch. With a few gears missing. ;-)
And you?
> Mary
John
CyberCafe
Jan Silbermann wrote:
Sorry to post under you, Jan, but wanted the message in the thread.
Won't admit my age but have adult children over age 30. Am married to a
wonderful man. Live on a farm in the middle of Wisconsin although I was
born and grew up in Milwaukee. Have had TLE ep since about age 20,
cause unknown, first starting as simple partial then complex partial.
Was not diagnosed for about 20 years (although I had seen doctors about
it). There are a few other people in my dad's family who had/have
epilepsy though not the form I have. My mom's side of the family seemed
to give some of us a blood clotting disorder, which also is another
possible cause of my ep. Will probably never know the answer to that
though. Hobbies include genealogy, sewing, quilting, gardening
(vegetables), and lots of other things. Currently am self-employed
offering office support services and transcription (general and
medical). Don't have a bachelors, but if you put together all the
college and technical college courses taken, I would have a bachelor's.
Always wanted to become a doctor (just a fantasy and not realistic at
all). Don't know what I want to do as a career for the rest of my life
now.
Favorite foods are everything I can't have. Love liver, spinach, fish,
chicken, pumpkin pie, banana cream pie, lemon meringue pie, Chinese
food, good ice cream, KFC. Don't really like pizza or any spagetti
other than Ragu (not even restaurant spaghetti), apple pie.
Hate snow and ice. Like mowing the yard and being outdoors when the
temp is nice. Don't mind getting rained on. Think that's about it.
Barb
MEStamey
My name is Mark Stamey.
I'm 54. I have 4 kids. Three are married in their mid 30's and one is 18. I
live alone now. I used to be very social and popular but am an urban hermit,
avoiding contact with others.
I grew up in Syracuse, in upstate New York in a slum.
I dropped out of high school and worked blue collar and dog collar jobs in a
dying economy. I worked in a foundry, carwash, factories and other makeshift,
opportunistic jobs. I was a commercial diver for about 8 years.
When I was 34 I took the Mensa IQ test and qualified for membership. I realized
I had a chance to succeed at college and wormed my way into a program that paid
my tuition and then got into Columbia University.
I did original research in extreme destitution in tunnels and abandoned
buildings in New York City. After graduating with a bachelors degree, I earned
a masters degree at Stony Brook, and worked in a think tank centering on my
poverty study. I earned another masters degree in journalism at Columbia in
1993.
I worked at ABC tv and was a "legman" reporter for the New York Times for a few
years before accepting a staff position at the New York Post.
I covered thousands of breaking news stories from the scene for years:
Columbine, JFK Jr., President CLinton, Kissenger, Giuliani, TWA 800, WTC 9/11,
thousands of murders, police shootings, the murder of police officers,
infanticides, riots, train wrecks, plane crashes, disastrophies and mayhem
beyond description.
I was the subject of two A&E documentaries that were broadcast worldwide, was
interviewed on National Public Radio, magazines and other venues. Tomorrow I
am being interviewed for a profile in New York Magazine. Big deal.
I have had epilepsy for years but was diagnosed as having "job stress" and was
treated with anti depressants despite having seizures in front of my doctor.
In June 2001 I had my first seizure while I was driving and almost drove off
the Triboro Bridge into the East River over 100 feet below. I woke up on life
support a week later and went back to work the next day.
I had another Status and spent another week on machines. When I was found (by
accident) I had been unconscious for at least three days.
I have an array of seizures and have been really sick. I lost contact with
everybody I know and stay by myself.
I call it Epileprosy.
I got diagnosed last April after spending a week at the NYU Comprehensive
Epilepsy Center. I'm waiting to do a Wada test to see if I can have surgery.
Last June, I told my boss at The Post I had epilepsy and got fired.
I am suing them under the Americans with Disabilities Act,
I get a lot of support from this group. I appreciate being able to introduce
myself and get to know some of you. Roll call is a good idea.
Thanks, kids.
If I can help you, you know where to find me.
Stay strong
Mark Stamey
John Collis
Mary Fisher wrote:
<snip>
>
> They are very clever people. The Irish could run the worl if only they could
> stop fighting among themselves. But they're encouraged in that by their
> descendants across the big water.
>
Mary, for a self declared historian, that's a very opinionated &
possibly racist comment, as a 1/2 irish person (mother) born & living in
the uk, I find your analysis one sided and gossamer thin.
I for one thank the US for being involved in guiding all parties,
republican, unionist and UK/Eire gov'ts to a conclusion within Ulster,
especially during the Clinton administration.
BTW, in response to your original (sensible) post,I had an assisted
birth, I have read elsewhere that the tongs used to remove babies who
present upside down, i.e. head down and not putting the right pressure
to deliver naturally, may damage temporal lobes?
I am 37, live in london and share my flat with my 12 yr old daughter, my
8yr old son lives mostly with his mum. My daughter is my epilepsy alarm,
just in case I go into status at night!
I was also born with club feet and quite a squint in one of my eyes,
which may be an indication of issues with my early (in womb) development?
My first documented seizures were when I was a child, known then (& now)
as febrile convulsions. These were co-terminus with childhood
inoculations (same for my son :-< )
I had a few school reports documenting lack of attention, looking out of
the window, which may possibly have been absences?
My adult seizures started when I was 25 then a grand-mal every few years
until last year, when an experiment with keppra seems to have opened up
routes to generalised seizures, 2x status & intensive care in 2002, then
in the last couple of months two grand mals! :-<
After my experiences last year, I thought I should be very open with
potential employers about epilepsy (almost evangelical), result no
interviews or jobs, since I have been more discreet, result one contract
role and currently awaiting result of 3rd interview for permanent job.
To answer RJ & Dave, the UK is not that much different from across the
atlantic, at least in the job discrimination respect!
To reply to Jed(&son), I don't really understand why anyone is
conservative, it may be because their leaders (in the UK only you
understand) appear to dim and simplistic, or maybe the prematurely
judgmental and divisive policies? My politics are liberal, market
oriented tending towards the libertarian? Not that it matters, but
thought I should respond to Jed!
Best wishes to all (including Mary - Irish name?)
John
CyberCafe
MEStamey wrote:
> Greetings
>
> My name is Mark Stamey.
>
> I'm 54. I have 4 kids. Three are married in their mid 30's and one is 18. I
> live alone now. I used to be very social and popular but am an urban hermit,
> avoiding contact with others.
You know, I wonder if you are still interacting with people but maybe within a
different mode. I mean, I spend more time writing people, including family and
friends, than I did when I was physically able to drive and go out with them
somewhere. So my contacts haven't really diminished, just changed.
> I grew up in Syracuse, in upstate New York in a slum.
>
> I dropped out of high school and worked blue collar and dog collar jobs in a
> dying economy. I worked in a foundry, carwash, factories and other makeshift,
> opportunistic jobs. I was a commercial diver for about 8 years.
>
> When I was 34 I took the Mensa IQ test and qualified for membership. I realized
> I had a chance to succeed at college and wormed my way into a program that paid
> my tuition and then got into Columbia University.
Did your doctors do an IQ test after you started having seizures? I am wondering
if prolonged or chronic seizures would affect the IQ at all and to what degree.
I'm not really talking about kids but us adults who were okay and then suddenly
started having seizures.
Boy, your life has been interesting, Mark.
Barb
>
>
> Mark Stamey
MEStamey
Thank you for your response, Barb. I was hoping I didn't say anything offensive
to anyone.
I find it easier to write about disasters than about myself, however I've been
a disaster lately and writing this was helpful.
>You know, I wonder if you are still >interacting with people but maybe within
>a different mode. I mean, I spend more >time writing people, including family
>and friends, than I did when I was >physically able to drive and go out with
>them somewhere. So my contacts >haven't really diminished, just changed.
I essentially hide from people. This newsgroup has become fairly important to
me. When I can, I go to a gym that is open 24 hours a day but I go when nobody
is there.
My former friends avoid me.
>
>Did your doctors do an IQ test after you started having seizures? I am
>wondering
>if prolonged or chronic seizures would affect the IQ at all and to what
>degree.
>I'm not really talking about kids but us adults who were okay and then
>suddenly
>started having seizures.
>
Yes. In the hospital I was given some superficial tests. My mentation was
severely impaired. I could not count. I lost my sense of smell.
There were memory problems, but I don't remember them.
I think my "elegant" functions are essentially intact, but some elemental
functions are either destroyed or impaired. I would like to have an exhaustive
battery like the Stanford - Binet or the Wexler to find out.
Please, do not take this wrong: Mensa offers cheap IQ tests. They are not IQ
snobs. They offer home IQ tests and an online version as well as a battery of
proctored exams in most locations. They can be reached at mensa.org. You do not
have to "join" or tell anyone your score.
It would help answer your excellent question.
Overall, I believe the seizures did a lot of damage to my ability to do some
things. Maybe this could be a good thread.
By the way, there may be some stories on the net from when I was a reporter. I
know there is one from when I was a diver, a looong time ago.
I was involved in retrieving a "UFO" from a mine pond in Carbondale,
Pennsylvania. If you are curious, look under those key words. There is more to
that story than that story.
Thank you very much.
Mark Stamey
Mary Fisher
"John Collis" <colli...@definitelynospam.btinternet.com> wrote in message
news:3E6EF373...@definitelynospam.btinternet.com...
>
>
> <snip>
> >
> > They are very clever people. The Irish could run the world if only they
could
> > stop fighting among themselves. But they're encouraged in that by their
> > descendants across the big water.
> >
>
> Mary, for a self declared historian, that's a very opinionated &
> possibly racist comment, as a 1/2 irish person (mother) born & living in
> the uk, I find your analysis one sided and gossamer thin.
I do apologise, if that's what I wrote. I intended to say that I was quoting
a valued friend, one Desmond Blair (no relation), an ex marine engineer, a
very intelligent and highly astute man. An Irishman. Do you mind being
included in my description of the Irish as "very clever people"? Or are you
picking and choosing what to be prickly about?
After a good dinner, with wine, is the time I post. I'm not blaming the wine
but I am aware that it might have an influence on my concentration ... apart
from my usual lack due to age, condition and, well, sex :-)))))))
I doubt that it could be classed as racist in any case, the Irish are
possibly almost as mixed as the English :-)
>
> I for one thank the US for being involved in guiding all parties,
> republican, unionist and UK/Eire gov'ts to a conclusion within Ulster,
> especially during the Clinton administration.
That's your privilege. I have the privilege of having my own opinions. But I
don't accept USA as the world's policeman/nanny.
>
> BTW, in response to your original (sensible)
(in your opinion!)
> post,I had an assisted
> birth, I have read elsewhere that the tongs used to remove babies who
> present upside down, i.e. head down and not putting the right pressure
> to deliver naturally, may damage temporal lobes?
I never knew what I wanted to be when I grew up, now I do but it's too late.
If I could choose now I'd be a midwife. I'm not and although I know a little
about normal presentations I can't comment on artificial aids.
>
> I had a few school reports documenting lack of attention, looking out of
> the window, which may possibly have been absences?
I did that at high school. At primary school the windows in the Victorian
building were far too high, if we'd been able to see out of them we'd have
seen the mills and other chimneys. My distractions were nothing to do with
absences in my time, I just preferred watching the rise and stone-fall of
larks rather than mathematics ...
>
> Best wishes to all (including Mary - Irish name?)
No. I suspect I was named after my mother, Mary Jane. Her sister was Sarah
Ann. all those names were very common in their generation. But I have often
been told that I have Irish colouring and an Irish face.
It has no effect on me at all. My Irish friends, from north and south, are
great people. But so are my English friends, and my Scottish ones, and my
Welsh ones and Scandinavian and American ones ...
Mary
Mary Fisher
"John G. Rune" <tact...@ptd.net> wrote in message
news:3e6ec13...@news.ptd.net...
> On Tue, 11 Mar 2003 21:06:11 -0000, "Mary Fisher"
> > > There's a very old saying that life is only as long as a dream.
> >
> > How old is it? I've never heard it ...
>
> Very old .
As old as me?
Evidence?
> And you just did.
No, I read it.
>
> > You can't teach a Tyke about nipping a currant in half.
>
> Never heard that one before, but I like it.
Hurrah!! I can do something good.
<preen>
>
> > ? I didn't know they mined coal in Ireland??? If they did why did they
> > bother to burn peat?
>
> What I want to know is, why did they come to Pennsylvania and
> what the heck were they doing down there in those darn tunnels?
I have no idea. I've never been to Pennsylvania. They weren't trying to mine
castles, I assume? Perhaps they were doing something they wanted to keep
private? Perhaps they kept bats as pets? Perhaps they were inventing another
life inhabited by Things Of The Dark? Perhaps they were experimenting with
phosphorus? Or were cavers? Or didn't want to risk sunburn?
>
> > They are very clever people. The Irish could run the world if only they
could
> > stop fighting among themselves. But they're encouraged in that by their
> > descendants across the big water.
>
> So the Queen was only trying to save the Irish from themselves?
Huh?
>
> > > Did the bee stings ever help your arthritis?
> >
> > Of course not. Why should they?
>
> There's this "new age" business about using bee stings to treat
> different maladies.
Oh that's not new age at all, it's been one of the (many) beekeeping myths
for millennia.
> Never tried it, but some people swear by it.
> Especially the ones charging for the service.
:-)
>
> > > Well, that and it's none of my beeswax. <groan>
> >
> > I have no idea what that means.
>
> Outdated slang: "It's none of your beeswax." meaning "It's none
> of your business."
Oh. Thanks for explaining that.
>
> > > Know any artists doing encaustic painting? I hear it's making a
> > > big comeback.
> >
> > Yes but they don't do it properly. All they do is lay molten coloured
wax on
> > shiny paper or somesuch., Encaustic means burning and true encaustic
painting
> > is on a very absorbent medium and is 'burned' or at the very least
melted
> > INTO the medium. Once done it's done and can't be removed, unlike the
modern
> > abomination. Many of the ancient frescos were done with encaustic wax
> > painting. some were painted with water paints on wet plaster but the
colours
> > didn't stay as vibrant.
>
> The terminology is abused by convention.
I know. But you asked me about it ...
> We use "fresco" to
> refer to the wall/ceiling paintings themselves but it is properly
Not originally ... that's what is understood by modern convention.
> the name of the last technique you describe, applying water
> soluble earth or mineral pigments to the intonaco while still
> wet. For secco, tempera and oil paint were also used. And it
> was common to do all sorts of overlays so that a finished
> painting was rarely a "pure" application of a single technique.
> From what I've read, oil paint (e.g., pigment in linseed) yielded
> some of the brightest color. And not even Giotto limited himself
> to pure fresco.
Well, phew, I didn't suggest that he did!
>
> IIRC, the earliest surviving encaustic work is Roman? I'd have
> to hit the library for that one. I wish I could see some of that
> stuff up close and personal.
I have a photograph of one such, which I use as an example. If I were
talented, graphically, I'd copy it. But I'm not.
>
> > So do you work?
>
> Like a Swiss watch. With a few gears missing. ;-)
Do they still put gears in watches? I have no idea, I don't have a watch.
>
> And you?
Oh no! I'm a kept woman, a lady of leisure, I sit and watch daytime
television with chocolates and gin.
Oh bugger, most people know we don't have a telly, that's blown that story
then :-(
Mary
Mary Fisher
"CyberCafe" <pk...@badger.tds.net> wrote in message
news:3E6ECB2A...@badger.tds.net...
>
<big, fascinating snip>
> Don't have a bachelors, but if you put together all the
> college and technical college courses taken, I would have a bachelor's.
I know that feeling. After doing much research and all the typing and
travelling for three BAs and one MA I reckon I've got several degrees by
proxy!
> Don't know what I want to do as a career for the rest of my life
> now.
Join the club!
>
> Favorite foods are everything I can't have. Love liver, spinach, fish,
> chicken, pumpkin pie, banana cream pie, lemon meringue pie, Chinese
> food, good ice cream, KFC. Don't really like pizza or any spagetti
> other than Ragu (not even restaurant spaghetti), apple pie.
>
> Hate snow and ice. Like mowing the yard and being outdoors when the
> temp is nice. Don't mind getting rained on. Think that's about it.
It's splendid!
When I suggested, very hesitantly, that we could have a roll call I didn't
expect such a wonderful response. It's great!
Mary
>
> Barb
>
>
>
>
Mary Fisher
Mary Fisher
"MEStamey" <mest...@aol.com> wrote in message
news:20030312122005...@mb-fj.aol.com...
Firstly, I apologise for zapping that last post without replying to it, I
was too hasty.
>
> Thank you for your response, Barb. I was hoping I didn't say anything
offensive
> to anyone.
It wasn't at all offensive, it was fascinating. I'm just very sorry that you
feel that you have to be so reclusive after living what must have been such
a mixed social life.
>
> I find it easier to write about disasters than about myself, however I've
been
> a disaster lately and writing this was helpful.
At the risk of repeating myself (a frequent failing) I'll say that support
groups are just about that. Catharsis is an important part of them, when we
can't talk to people IRL for whatever reason it keeps us sane to 'talk' to
virtual friends. Or even not-so-friendly people :-)
>
>
> I essentially hide from people. This newsgroup has become fairly important
to
> me.
I hope you don't give up on it.
>
> My former friends avoid me.
I had that response from some friends and a duaghter when I was diagnosed
with breast cancer. I couldn't understand it - the people you'd think would
be the most supportive abandon you. I THINK I've worked out that it's
nothing to do with me - or you - but because they can't handle what they
hear, what they think they understand but don't.
It's up to us to show that we're real people behind the label ...
>
> >
> >Did your doctors do an IQ test after you started having seizures?
>
> Yes. In the hospital I was given some superficial tests. ... I lost my
sense of smell.
So did I, before my meningioma was diagnosed. As soon as I came round from
surgery I could smell everything, it was divine. A daughter brought a little
bunch of freesias in and I I had the joy of their scent all through the
night.
>
> There were memory problems, but I don't remember them.
LOL!
>
> I think my "elegant" functions are essentially intact, but some elemental
> functions are either destroyed or impaired. I would like to have an
exhaustive
> battery like the Stanford - Binet or the Wexler to find out.
I would like to understand that last paragraph ...
>
>
> Overall, I believe the seizures did a lot of damage to my ability to do
some
> things. Maybe this could be a good thread.
Start it.
>
> By the way, there may be some stories on the net from when I was a
reporter. I
> know there is one from when I was a diver, a looong time ago.
>
> I was involved in retrieving a "UFO" from a mine pond in Carbondale,
> Pennsylvania. If you are curious, look under those key words. There is
more to
> that story than that story.
I'll have a look.
>
> Thank you very much.
Thank you for the posts.
Mary
>
> Mark Stamey
John G. Rune
wrote:
> Hello Mary and others,
> My name is Lisa. Most of you know me as the one that started that
> awful debate on pot. Since then, not only have I quit the pot, I quit
> ciggerates too. I figured if I'm going to quit smoking, I might as
> well go all the way--and they're both expensive habits. I'm 29 years
> old, three kids (ages 7, 9, 12), and married to wonderful man. I've
> never been outside of the USA and with the talk of war, I think I'll
> keep it that way. I've delivered the newspaper for many years, but
> lost my job last year when word got out that I may be having seizures.
> In the past year, my husband and I have gotten into body piercing.
> My family thinks we're freaks, but we've learned to accept being a
> "freak" as a compliment. This is the first newsgroup that I've ever
> made more then one post to. I don't like heated debates because I'm
> not overly educated like John or some of the other people here.
Dr. Isaac Asimov had a story involving himself and his mechanic.
One day, the mechanic says, "Doc, a deaf-and-mute guy goes into a
hardware store to buy some nails. He puts two fingers together
on the counter and makes a hammering motion with the other hand,
so the clerk brings him a hammer. The deaf-and-mute guy shakes
his head and motions to the fingers he was hammering, so the
clerk brings him a selection of nails to choose from. He picked
out the sizes he wanted and left."
"Well, Doc, the next guy who came in was a blind man. He wanted
scissors. How do you suppose he asked for them?"
Indulgently, Dr. Asimov held up his right hand and made
scissoring motions with his first two fingers.
Whereupon the mechanic laughed and said, "Why, you dumb jerk, he
used his voice. I've been trying that one on my customers all
day."
"Did you catch many?", asked Dr. Asimov.
"Quite a few, but I knew for sure I'd catch _you_."
"And why is that?"
"Because you're so goddamned educated, I knew you couldn't be
very smart."
And as Dr. Asimov wisely concluded, "I have the uneasy feeling
that he had something there."
> Future post will prove that my spelling sucks. I would like to be
> part of this group for a while. Knowing that I'm not the only one
> going through this really does help.
Hey, I don't rub stinky cheese on people for grammatical errors.
Carol's got quite a strange case of dyslexia herself, but it
didn't stop her from becoming a minister, a spiritual teacher, a
therapist, an artist, a clothing designer, a good mother, and so
on. She sure doesn't _like_ having to contend with dyslexia on
top of TLE, but she gets around it.
Rune
John Collis
Your last point was very much in line with my outlook, view individuals
on their merits, whatever their race, creed or colour, I have met
stupid, prejudiced and racist people from all backgrounds and colours,
including irish people.
In response to your point about not needing the US to be the world's
nanny or policeman, it is probably inevitable given europe's inability
to get it's collective act together?
I agree with you about wine, generally acceptable behaviour, although
some people with ep. are more sensible than you or I about alcohol?
fyi, one of my proudest moments was helping my son's mum in delivering
him; for those of you who follow rugby, I was the scrum half!
John
Amber
My name is Amber I am 23yrs old and live in North Carolina (hurricane
alley!)
I was diagnosed with "petit mal" epilepsy when I was 14yrs old due to a
brain leision.
My seizures have become more like "complex partial" in the past few
years. I havent been to a Dr. (neurologist) in several years partially
due to finances and my mother....mom was a RN who herself had a brain
tumor of which she was in denial about so I think she was in denial
about my condition too....
She had 4 brain surgeries and went back to work AMA after thee first 3
the 4th cancer was found and she (unwillingly) could not work and
underwent radiation after the surgery The cancer returned n Feb. 2002
and she died in August...still in denial.
As you see I was very dependent on my mom now that she is gone I have
taken steps to obtain medical asst. and disability. Matter of fact I am
having my first MRI in 5yrs tomorrow :-)
As John said its damed if you do work and dammed if you dont. I have
been fired from at least 2 jobs due to my seizures and had hours cut on
others.
Please dont think of me as a "parasite" because I am seeking
disability....I am hoping to get it as a "stepping stone" I want to work
but until I can get medical care where they are controlled I cant. I had
34 seizures (that I know of) in Feb alone.
This group has aleaady helped me....this is the first time I have ever
seen other people mention the "Deja Vu" feelings that I have and people
who have the same type seizures I do. :-) Its been wonderful to finnaly
find people to whom I can relate.
My passion is classic literature and non-fiction. I love art...and still
have hopes of going into costume design.
John G. Rune
On Thu, 13 Mar 2003 01:12:07 -0500 (EST), fear_t...@webtv.net
(Amber) wrote:
> Well....I might as well jump in :-)
Rune the Pirate says, "ARRHHH! Here there be Dragons! ARRHHH!"
<g>
> My name is Amber I am 23yrs old and live in North Carolina (hurricane
> alley!)
> I was diagnosed with "petit mal" epilepsy when I was 14yrs old due to a
> brain leision.
>
> My seizures have become more like "complex partial" in the past few
> years. I havent been to a Dr. (neurologist) in several years partially
> due to finances and my mother....mom was a RN who herself had a brain
> tumor of which she was in denial about so I think she was in denial
> about my condition too....
>
> She had 4 brain surgeries and went back to work AMA after thee first 3
> the 4th cancer was found and she (unwillingly) could not work and
> underwent radiation after the surgery The cancer returned n Feb. 2002
> and she died in August...still in denial.
My condolences about your Mom, Amber. And even though she may
have been in denial, it still sounds as though she had plenty of
strength and courage to go around. I'll bet you have lots of
good memories.
> As you see I was very dependent on my mom now that she is gone I have
> taken steps to obtain medical asst. and disability. Matter of fact I am
> having my first MRI in 5yrs tomorrow :-)
MRI's are almost painless these days. :-)
Even EEG's are simple now. Years ago they used a thick pink
paste to glue the electrodes to your scalp. It dried like cement
and you had to work it out of your hair after you got home.
Looked pretty funny if you forgot to bring a hat to the hospital.
> As John said its damed if you do work and dammed if you dont. I have
> been fired from at least 2 jobs due to my seizures and had hours cut on
> others.
>
> Please dont think of me as a "parasite" because I am seeking
> disability....I am hoping to get it as a "stepping stone" I want to work
> but until I can get medical care where they are controlled I cant. I had
> 34 seizures (that I know of) in Feb alone.
There's no chance of anyone here thinking of you as a "parasite."
Because most of us know first-hand what it means to have
epilepsy, a seizure disorder, brain farts, call it what you will.
But you will encounter prejudice from people who don't understand
epilepsy. They might know the "facts", but they don't
understand.
It ain't easy, but I'm sure you know that by now. ;-)
> This group has aleaady helped me....this is the first time I have ever
> seen other people mention the "Deja Vu" feelings that I have and people
> who have the same type seizures I do. :-) Its been wonderful to finnaly
> find people to whom I can relate.
>
> My passion is classic literature and non-fiction. I love art...and still
> have hopes of going into costume design.
If you don't mind my asking, what's "fear_the_duck" about? It
sounds familiar.
And speaking of art, how do you feel about a sort of modern
expressionism practiced by a self-taught painter who also has a
seizure disorder? <HINT, HINT> ;-)
John
Mary Fisher
>
> Hey, I don't rub stinky cheese on people for grammatical errors.
When DO you rub it on?
Mary
Mary Fisher
"Amber" <fear_t...@webtv.net> wrote in message
news:29035-3E...@storefull-2272.public.lawson.webtv.net...
> Well....I might as well jump in :-)
I'm pleased you did.
>
<snip interesting stuff>
>
> My passion is classic literature and non-fiction. I love art...and still
> have hopes of going into costume design.
What kind of non-fiction and what kind of costume?
Mary
>
>
Cats ~R2~ Cool
John G. Rune
When I run out of crackers, of course.
> Mary
Graham
Rozbud
My name is Janette and I live in North Yorkshire, England. I've been reading
the "roll call" and think it's a wonderful idea Mary for people to get to
know each other and their different circumstances regarding epilepsy.
I hope you don't mind me joining in.
I am 45 and started with epilepsy at 31 suddenly after a flu-type illness. I
had a few grand mal seizures and then lots of tests etc where doctors
decided because I had been a breech birth twin, the slight trauma to my
brain on birth (I was born first, head to head with my sister) could have
caused the problem(!) My epilepsy was controlled with Epilim (Sodium
Valporate) quite well. I got pregnant the following year and apart from
extra scans for spina bifidia (a risk to the baby from the medication) I was
well. I had a status fit a week before the baby was due and ended up on life
support and my baby delivered by emergency ceasarian. I did'nt even know
about my baby until 3 days later when I was well enough to come off the
ventilator. Fortunately since then I have been well controlled and even
weaned myself off medication 2 years ago, since when I have had no fits
whatsoever.
I have since had another child, normal birth and am still well. I am working
as a teaching assistant at my daughter's primary school and also type for a
local publishing company from home.
Thanks for listening.news:20030312015347...@mb-fc.aol.com...
Amber
Mary
Well frankly anything I can get my hands on. I love the tudor period and
own many books on Henry VIII,Elizabeth I,Anne Boleyn ,etc.
Biographies of Yeats, Poe, Millay....Also I inherited my fathers books
about the american civil war...not my favorite period but good reading.
Man books about art/artists Pre-Raphaelites, Aubrey
Beardsley,Botticelli,Klimt,Art Nouveau.
As for costume I enjoy historical costume. like
medevial,Elizabethan,17th-early 20th century...I am very vocal when I
see a costuming mistake in a period play or film,much to my friends
chagrin.:-)
Amber
My condolences about your Mom, Amber. And even though she may have been
in denial, it still sounds as though she had plenty of strength and
courage to go around. I'll bet you have lots of good memories.
Thank you John. She was a strong woman whos only flaw was pride...but in
a way I am glad she had so much pride and strength or I would have lost
her sooner.
"MRI's are almost painless these days. :-)
Even EEG's are simple now. Years ago they used a thick pink paste to
glue the electrodes to your scalp. It dried like cement and you had to
work it out of your hair after you got home. Looked pretty funny if you
forgot to bring a hat to the hospital."
Yeah my MRI was a breeze....i'm glad the tech gave me earplugs this
time. Also helped that due to my lack of sleep I didnt move or twitch
this time :-)
"There's no chance of anyone here thinking of you as a "parasite."
Because most of us know first-hand what it means to have epilepsy, a
seizure disorder, brain farts, call it what you will. But you will
encounter prejudice from people who don't understand epilepsy. They
might know the "facts", but they don't understand.
It ain't easy, but I'm sure you know that by now. ;-)"
Yeah it gets old explaining to people what epilepsy is the first
question I usually get is "so you swallow yer tounge,don'cha?" and when
I explain what my partial are like the must not pay attention because
i've been asked many times am I on drugs...or they just dont know what
to think.
"If you don't mind my asking, what's "fear_the_duck" about? It sounds
familiar."
weird sense of humor I guess.
Remember the budweiser "fear the penguins" campaign? I combined that
with my love of ducks. Daffy rules. LOL
"And speaking of art, how do you feel about a sort of modern
expressionism practiced by a self-taught painter who also has a seizure
disorder? <HINT, HINT> ;-) "
"modern expressionism"? hmmmmm......
Vicky
Mary Fisher wrote:
>
> Hello anyone who bothered to open this post,
>
> I've only been here for a short time and feel that I'd like to get to know
> others.
>
> In case anyone IS reading I'll introduce myself:
Hi Mary,
I am new here and I figure I had better introduce myself in case
people start thinking I am a troll or just plain weird..
I started reading this group regularly back in september to gain an
understanding of the different types of seizures. My Mother who was
dxed with grand mal seizures when I was little stopped taking meds for
seizures about 20 or more years ago and was relatively seizure free up
until about 2 years ago when my younger brother and I noticed her having
absences on the phone when we talked to her... Until this summer I had
not actually witnessed a seizure in her but that all changed this summer
and when I would try to talk to her about it she was having a difficult
time believing/ understanding/ accepting that she was having seizures.
During the end of last year I was having health problems myself
with some strange neurological things happening.. I won't go into that
right now but I was tested poked and prodded and had a MRI on my liver
because there were tumors on it later to be found benign..
Anyway I had surgery in Dec and my Mom stayed and helped me for week
and then on New Years day my Mom ended up in the hospital with COPD or
pneumonia and when she was discharged my older brother and I decided it
would be best for my Mom to come stay at my house as she was still weak.
My Mom had just retired from a State job in November and was having
what we at first thought were panic attacks at work..
Anyway during the time my Mom stayed here she got better until they
put her on Cipro ( a antibiotic) and she began to have repeated seizures
through out the first full day after they changed the antibiotic to
Cipro.
My older brother and I took her to the hospital that evening to get
this situation straightened out by the Drs...
We walked out with a script for Depakote for my Mom and the Dr
suggested to my Mom not to drive for a couple of days and to make a
appointment with the Neuro... But my Mom blew a gasket after we left
the hospital and insisted on driving after we got to my brothers place
and demanded her keys from my brother.. She was screaming at him in the
parking lot and didn't want me to drive the 1/2 mile back to my place (
we had taken her car to the hospital because it had been sitting at my
house for a week and my Mom wanted my brother to drive it to the
hospital)
Anyway we got back to my place and my Mom still was having absences
and when the Dr called on the phone to grill me about how many times my
Mom had been having them my Mom was having one when I was on the phone..
My Mom was so pissed off about people (Drs.) knowing that she was
having seizures and fearful that My brother and I were trying to control
her..... She left in the middle of the night that night in her car back
to her place over a hundred miles from here...
Anyway, I haven't seen my Mom that crazy acting since when she was
actively drinking alcohol over 20 years ago...
In hindsight I think she was getting some kind of post seizure
confusion and aggression states..
Anyway, I don't know what I am doing here exactly... I would like
to help my Mom if I could but it is really up to her.. to get help,
everyone in the family has tried to talk with her and reason with her
but she just isn't getting the magnitude of what is going on with her.
She made a appointment with a Neuro and told me "Are you happy
now?" sarcastically and this was last month.... then she canceled the
Neuro appointment....
I don't know, I know you guys have to deal with this and it may be
out of line for me to come and talk about my Mom ,,,, but My Mom and I
are so close ... I have experienced some of what it is like to have
seizures but not fully... I have aura's and deja vu and visual
distortions sometimes and I freeze and can't move or speak
momentarily.. But my problems I attribute to Aspergers Syndrome which I
was dxed with in 99...
Anyway,,, I am sorry to get so long winded.. that is not that
common for me.... I have just been reading reading reading about
epilepsy in the past 6 months trying to process some of this so I can
maybe help my Mom ..
Vicky/ 46 in California
Bart Derks
I'm Bart, 38 years young and I live in the Netherlands.
I was first diagnosed about 10 years ago after a grand mal but... The
longer I've been having grand & petit mals the more I'm convinced that
I already had small seizures long before that... Why else would I have
had sudden memoryloss every now and then since age 10-12 ?
Besides Epilepsy I also have diabetes and I think that my diabetes has
a lot of influence on my seizures. Sofar I had all my seizures at
night and main problem for me is the memoryloss... I stopped working
as computerprogrammer because of the memoryloss and unfortunately I
encounter the greatest problems with studying. The first course is
learned in no time, but after the second course I already forgot the
first one which makes it more and more difficult studying succeeding
courses.
I do work as genitor on a school for kids aged 4-12 at the moment
and... I'm having lots'n lots of fun doing that. It can be hard to
explain collegues(& other people) what epilepsy means to me, but
luckily most collegues trust me when I say that I'm not forgetting on
purpose. 2 of my collegues (teachers !!!!!!!!) however do think I'm
forgetting on purpose.....
Besides grand&petit mals I also had a narcoleptic seizure recently...
I just had a grand mal, I slept for about 3 days and I couldn't sleep
for 2 days after that. So... I was reading a book in bed and... at a
certain moment I switched from bed to sailingboat within a second.
Apparently I had started dreaming while I was still awake, I could
still read the book, but I also steered the boat at the same time...
Strange experience....
I do love all kinds of music and I do play african drums. Besides that
I'm totally in love with making/throwing/catching boomerangs and I
also love to drive my kitebuggy/ sail sailboats.
Well... that's me for now... Unfortunately I don't have much time to
write, but every morning I do read most msgs on this newsgroup.
Best wishes to all,
Bart Derks.
On Mon, 10 Mar 2003 20:58:47 -0000, "Mary Fisher"
<mary....@zetnet.co.uk> wrote:
>Hello anyone who bothered to open this post,
>
>I've only been here for a short time and feel that I'd like to get to know
>others.
>
>In case anyone IS reading I'll introduce myself:
>
>I'm an English, old, fat, opinionated, pedantic and arrogant woman with a
>husband (Spouse) of 44 years, several grown children and more grandchildren.
>
>Until last year when arthritis got the better of me I kept bees - for 25
>years. I still have a couple of hens although we live in the inner city.
>
>In my spare time I'm a beeswax and tallow chandler. If you're REALLY
>interested in what else we do you can look at my website but it's irrelevant
>to epilepsy.
>
>It really would be good to know more about at least some of the people on
>this ng. It seems to me to be very helpful to those who need it. My epilepsy
>is very mild since I had a craniotomy in 1993 to remove a meningioma but, as
>with my breast cancer, I know that it might not remain stable so I want to
>know more about this fascinating condition.
>
>Mary
>www.candlermaker.org.uk
John G. Rune
(Amber) wrote:
....
> weird sense of humor I guess.
> Remember the budweiser "fear the penguins" campaign? I combined that
> with my love of ducks. Daffy rules. LOL
:-)
> "And speaking of art, how do you feel about a sort of modern
> expressionism practiced by a self-taught painter who also has a seizure
> disorder? <HINT, HINT> ;-) "
>
> "modern expressionism"? hmmmmm......
Well, as opposed to the first explosion of German Expressionism,
which was a short-lived but very self-contained movement. I'm
not quite sure _what_ to call my own artwork (I feel guilty even
calling it art. <g>)
I like the term "disordered art", both for it's obvious
connection to "seizure disorder" and for the fact that it is
probably an accurate description of my approach to painting.
Plus it diverts my attention away from the everyday nonsense,
like worrying about seizures, meds, etc. <shrug>
Best wishes,
John
gaross
about Vicky's Mom being Non-complaint with seeing her Neuro Referral
through, even though she is exhibiting Absence and other seizure types.
She also Continues to drive. (Body of Original Post is below.)
In Most States, the Dr. who did the Referral should have forwarded a
report to the Motor Vehicles people, so she should be 'on file' when her
Driver Licence comes up for renewal. She would have to get a Medical Form
completed at that point if that were the case. Many times Doctors may not
go through that Government link to complete that follow up.
Normally they should have Reported her Immediately as possibly having a
seizure condition, and she'd have to wait until all Tests are done showing
she Didn't before she could get her Driver Licence back in Top Form.
********
(IF you wanted you could contact the First Doctor to tell him she hadn't
gone on to see the Neurologist. ***HE** Should have seen that, since
normally on a Referral the Neuro would send him back a report, or note on
her Diagnosis for the Family Doctor's File.)
Note that in MOST areas, so long as the Family Doctor has a Record that he
referred her, HE can keep his **Medical Licence** if she were to have an
Accident or Kill someone. It is not his job to escort her to the Referral,
it is hers.
IF she has an Accident and Injures or Kills anyone, her Car (Liability)
Insurance is Void, since she drove with a Known Medical Condition. She or
her Estate is responsible first to pay off Liability Claims caused by the
accident-- if the Person was the 'breadwinner' and was killed, the Estate
is responsible for any Children, until they complete Education-- about age
21-25.
Any Funds left over, will go to next of kin.
Those laws may vary by State or Country. But it's not much of a Memory to
leave behind, just because someone wants to Drive. G.R.
***
P.S. With respect to your Auras and Deja Vu symptoms at bottom, under one
of Julie Walton's posts is the Idaho Website address. Within there is a
First Aid for Seizures Chart that describes various Seizure types, the Aura
(feeling) and Behaviours they produce when a person is having them, and the
First Aid for each.
You might want to check either Simple Partial or Complex Partial
seizures there, compared to yours below. The Deja Vu sensation is often
part of the Aura (Simple Partial Seizure) preceding a RIGHT Temporal Lobe
Seizure. (Temporal Lobe seizure types on older sites are now included
within Complex Partial Seizures on current sites.) //
*******
"Vicky" <eye-e...@attbi.com> wrote in message
> Hi,
gaross
Separate message thread like it was supposed to. G./
"gaross" wrote in message news:g0nca.124539...
> I renamed this and moved it from the 'Roll Call' message thread. It's
> about Vicky's Mom being Non-complaint <---** with seeing her Neuro
Referral
> through, even though she is exhibiting Absence and other seizure types.
> She also Continues to drive. (Body of Original Post is below.)
G.R.
> ***
Mary Fisher
> What kind of non-fiction and what kind of costume?
> Mary
>
> Well frankly anything I can get my hands on. I love the tudor period and
> own many books on Henry VIII,Elizabeth I,Anne Boleyn ,etc.
I'm not at all keen on the ****** Tudors but I do enjoy biographies.
>
> As for costume I enjoy historical costume. like
> medevial,Elizabethan,17th-early 20th century...I am very vocal when I
> see a costuming mistake in a period play or film,much to my friends
> chagrin.:-)
>
So am I ... do you make costume?
Mary
Mary Fisher
"Rozbud" <sp...@craven33.freeserve.co.uk> wrote in message
news:b4r4sv$8or$1...@newsg2.svr.pol.co.uk...
> Hi Group,
> My name is Janette and I live in North Yorkshire, England. I've been
reading
> the "roll call" and think it's a wonderful idea Mary for people to get to
> know each other and their different circumstances regarding epilepsy.
> I hope you don't mind me joining in.
Well I don't but I have to say that it's not an original idea, it happens in
other ngs I subscribe to.
I'm in Leeds. Where in NY are you? Perhaps I should mail you rather than
upset folk by having personal conversations on the group ...
> I did'nt even know
> about my baby until 3 days later when I was well enough to come off the
> ventilator.
You've said nothing about the baby since then ...
> Fortunately since then I have been well controlled and even
> weaned myself off medication 2 years ago, since when I have had no fits
> whatsoever.
> I have since had another child, normal birth and am still well. I am
working
> as a teaching assistant at my daughter's primary school and also type for
a
> local publishing company from home.
> Thanks for listening.
Well I think that replies to roll calls are fascinating and I'm glad I had
the courage to start one. We have an annual one in the breast cancer support
ng and it brings up all sorts of new and old people as well as new and old
problems.
Thank you for replying!
Mary
Vicky
gaross wrote:
>
> I renamed this and moved it from the 'Roll Call' message thread. It's
> about Vicky's Mom being Non-complaint with seeing her Neuro Referral
> through, even though she is exhibiting Absence and other seizure types.
> She also Continues to drive. (Body of Original Post is below.)
>
> In Most States, the Dr. who did the Referral should have forwarded a
> report to the Motor Vehicles people, so she should be 'on file' when her
> Driver Licence comes up for renewal.
Hmm, ya maybe when the Dr called at my home after we left the
hospital back then she was trying to ascertain whether she would report
this or not..
While we were there she said that she wasn't going to report my Mom's
seizures so I found the phone call afterward a bit confusing as to why
she (the doc) was trying to establish how long my Mom's seizures had
been going on and the frequency. Nothing was said in that phone call
about reporting my Mom.
My older brother later talked to my Mom's regular Dr on the phone
and what was said I am not sure but he wanted him to be aware of my
mothers seizures... I have the feeling that the hospital HMO that my
Mom goes to is very lax in how they deal with this sort of situation..
She would have to get a Medical Form
> completed at that point if that were the case. Many times Doctors may not
> go through that Government link to complete that follow up.
I suppose we will find out in November around her birthday..
> Normally they should have Reported her Immediately as possibly having a
> seizure condition, and she'd have to wait until all Tests are done showing
> she Didn't before she could get her Driver Licence back in Top Form.
We did a medical short appointment that night with the HMO she
belongs to and she had never seen this dr before... the dr called a
neuro on staff to see what he thought and he told the dr to write a
script for Depakote and advise the patient to do a follow up with a
Neurologist appointment at the HMO hospital. Technically she was never
seen by a neuro that night..
> ********
> (IF you wanted you could contact the First Doctor to tell him she hadn't
> gone on to see the Neurologist. ***HE** Should have seen that, since
> normally on a Referral the Neuro would send him back a report, or note on
> her Diagnosis for the Family Doctor's File.)
Yeah, I am kind of just watching the situation as my older brother
did some follow up but the Dr he talked to was evasive at best.
> Note that in MOST areas, so long as the Family Doctor has a Record that he
> referred her, HE can keep his **Medical Licence** if she were to have an
> Accident or Kill someone. It is not his job to escort her to the Referral,
> it is hers.
> IF she has an Accident and Injures or Kills anyone, her Car (Liability)
> Insurance is Void, since she drove with a Known Medical Condition. She or
> her Estate is responsible first to pay off Liability Claims caused by the
> accident-- if the Person was the 'breadwinner' and was killed, the Estate
> is responsible for any Children, until they complete Education-- about age
> 21-25.
Another wards they would bankrupt her
> Any Funds left over, will go to next of kin.
> Those laws may vary by State or Country. But it's not much of a Memory to
> leave behind, just because someone wants to Drive. G.R.
> ***
I know, like I said we have tried to reason with her to no avail so
far.
> P.S. With respect to your Auras and Deja Vu symptoms at bottom, under one
> of Julie Walton's posts is the Idaho Website address. Within there is a
> First Aid for Seizures Chart that describes various Seizure types, the Aura
> (feeling) and Behaviours they produce when a person is having them, and the
> First Aid for each.
> You might want to check either Simple Partial or Complex Partial
> seizures there, compared to yours below. The Deja Vu sensation is often
> part of the Aura (Simple Partial Seizure) preceding a RIGHT Temporal Lobe
> Seizure.
Thank you , yes I have scoured the site but from what I understand
unless I was to have a bonified loss of consciousness it would more than
likely be dismissed by most neuro's I would think..
Vicky
gaross
prescription. At the very least the Depakote might have gotten her Absences
(Simple Partial Seizures) under control, or the family Doctor? would have
expected to do some blood work after about 2-3 months to see that she was at
a Safe level for the medication (some of us absorb or expel medications
quicker than others, so need a higher dose, or if we were Over Medicated,
the symptoms can be like being intoxicated.)
The earlier a Doctor sees any negative effects like that, the earlier
they can change pills or adjust the dose to the correct level, since each of
us reacts differently to different pills.
>
> Yeah, I am kind of just watching the situation as my older brother
> did some follow up but the Dr he talked to was evasive at best.
>
I wasn't really trying of Over-scare you, but Ontario is reviewing
mandatory retesting of *all Drivers starting at age 50. There have been
several horrific accidents (*Not involving anyone with uncontrolled
seizures, but involving people with other Aging Disorders and loss of
Reaction times which caused some fairly horrific accidents over the past 2
years).
I was concerned when you suggested (above?) that she had some Absences
(Simple Partial Seizures). If she were to use a Highway much, or even in
the city and was having those, it only takes 20-40 seconds of 'Absence' to
be in potential danger.
I used to have Absences (part of Simple Partial Seizure) as part of the
start of my Complex Partial Seizures. Once the Complex Partial seizure has
started (AND the Grand Mals?) that's when the patient usually loses
consciousness.
That's why I suggested you'd find the First Aid Chart at Julie's Idaho
website of interest, since it describes (for you) how each of the szr. types
can appear, and how you or she might behave while within one of those types
(whichever applies). Many of the other sites have general information, but
don't summarize what sorts of behaviours we might go through once we've
entered 'The Twilight Zone'. Before my C.P. Seizures were controlled, I
had no memory of what happened after I had moved from the Aura phase into
the Generalized C.P. Phase. I'd either come out (slowly) about 10% of the
time, or lose consciousness the other 90% of the time. Neither would have
been helpful if I had owned a car or drove. G.R.
Julie
our cozy little ng. My name is Julie, I work from my home as a web site
designer. I have had epilepsy since I was about 12, but I wasn't diagnosed until
I was 18. My tonic clonic seizures have been under control with medication for 8
years.
My mother doesn't have epilepsy but she has wanted to drive for years. She is 83
and doesn't quite have all her faculties. So we told her that she couldn't drive,
even just a few blocks to the church. We recently had a friend killed by a car
accident that really brought this point home -- why certain people should not be
driving.
My best friend's mother-in-law (Joyce) was visiting here in Boise from Nevada
because her daughter (Molly) just had a baby. Joyce was staying with her
daughter-in-law's mother (Marian) and got in her car to drive to her daughter's
house excited to be able to hold her new grandchild. A couple hours went by and
Marian got a call from Molly wondering where her mother was. She should have been
there in a few minutes time.
Molly called the police, they put her through to the coroner's office. They had
been trying to reach Joyce's family in Nevada and didn't know who to contact here
in Boise.
A 71 year old woman drove her car down a street, hit a 72 year old woman's car and
continued down the street. Her car sped up and crashed into Joyce's car. Joyce
was killed, we had a memorial service for her Tuesday.
I stayed with Marian Sunday afternoon and let her talk about her experience of
contacting her daughter and son-in-law on the phone and having to tell him that
his mother had been in an accident and that she had died.
I do not know what happened to cause this woman to hit two cars. It is possible
that she had a medical problem. She went to the hospital and I imagine the police
are figuring it all out. But this is why we will not allow my mother to drive,
and why I do not drive when I'm not feeling well. There is the possibility of
injuring or killing someone.
I hope you can help your mother to understand the importance of valuing the lives
of others.
P.S. The seizure recognition chart that G.R. has referred to is located at
http://epilepsyidaho.org/seizure.htm
Take care,
Julie Walton, Volunteer Webmaster
Epilepsy Foundation of Idaho
http://www.epilepsyidaho.org
Vicky
Julie wrote:
>
> Hello Vicky, sorry to hear about your problems with your mom. We welcome you into
> our cozy little ng. My name is Julie, I work from my home as a web site
> designer. I have had epilepsy since I was about 12, but I wasn't diagnosed until
> I was 18. My tonic clonic seizures have been under control with medication for 8
> years.
Hi Julie,
I saw your reply in my inbox first so I replied to you in personal
email..
Thanks for the welcome and wake up call..
Take care,
Vicky
pablo
rather a sad story and a lesson to us all. when my father who is 72 went to
renew his licence last year we all protested because he has lost or
diminished faculties, his hearing's bad, his eyesight is poor and he lacks
concentration. it didn't matter what any of us said he was determined to
renew his licence and the more we argued the more stubborn he became. since
he got his licence he's never got behind the wheel of a car. it was obvious
that he wanted to just maintain his independence and prove he wasn't a
useless old man. (phew!)
i'm like you, if i'm feeling at all off, my keys stay on the hook in the
kitchen and take a taxi, i'd hate to wake up and found i had someone's blood
on my hands.
pablo
"Julie" <efiw...@netscape.net> wrote in message
news:3E72CC05...@netscape.net...
Lisa
> That should be 'non-compliant' speelcheker! and it didn't move to a
> Separate message thread like it was supposed to. G./
> "gaross" wrote in message news:g0nca.124539...
On Google it moved to a separate message thread...
Lisa
Thus far, no one has reported me. The neurologist threated it, but
didn't do it. I'm waiting to see a second neurologist. After reading
your post (gaross) my guess it this one will probably take my license.
I go out of my way not to have to drive, but when you live out in the
boondocks, it's very hard. I forwarded your post to my family that
lives close by. Maybe after reading it themselves, they won't expect
me to drive even a short distance.
"gaross" <gar...@rogers.com> wrote in message news:<Vdxca.133024$em1....@news04.bloor.is.net.cable.rogers.com>...
gaross
expect you might be at risk. My Doctor knew that (1) I didn't currently
(still don't) own a car and (2) that I realized the risk, if I were not
properly controlled, of driving. If your types of seizures are the type
that gives you Auras or Feelings that you're 'not right', like my auras I
used to get before I was controlled, you'd be aware if you were at risk or
not. So you could Choose to not drive on those days. Seems simple enough.
Although I wouldn't do something that would put myself or Innocent
others at risk, I also would expect other People with Epilepsy (PWE) to do
the same... If some *one of us were to have some spectacular accident and
it made the News, it would just reflect on the rest of us innocent people.
(I posted a few weeks ago, about a Senior with Alzheimer's? or similar
last year, who was in an accident like I described above. She hadn't been
aware she had struck a Pedestrian in a crossing, and had carried on home.
(That's all the detail I need post here.) It was on all the TV and Radio
newscasts, and led to multiple demands for a Review of People who might be a
risk to others, including a suggestion that ALL people in Ontario over *50
be required to re-qualify for their Driver's Licence each 3 years, with
Retesting and Driver tests, as now happens when people reach 65. (Currently
new Photo ID. is done each 5 years.) Since I don't own a car, I'd first have
to rent one, then have a Responsible Driver go with me while I practised for
the test.)
I only use my Photo ID. Card as a Second piece of ID. since it has my
address and name with the Photo on it. There are only a few places left
where I might cash checks anyway. Most of the rest take 'plastic'. G.R.
"Lisa" <loosin-...@excite.com> wrote in message
news:19563971.03031...@posting.google.com...
> I've seen two regular doctors and one Neurologist about my seizures.
> Thus far, no one has reported me. The neurologist threated it, but
> didn't do it. I'm waiting to see a second neurologist. After reading
> your post (gaross) my guess it this one will probably take my license.
> I go out of my way not to have to drive, but when you live out in the
> boondocks, it's very hard. I forwarded your post to my family that
> lives close by. Maybe after reading it themselves, they won't expect
> me to drive even a short distance.
>
> "gaross" wrote in message
> > "Vicky" wrote in message
turbinado
My name is Hilary, I'm 37 and live in Vancouver, Canada. I was diagnosed
with absence seizures as a teenager (after getting struck by lightning) and
had my first grand mal around age 22 in my sleep. My poor husband didn't
know what was happening and was quite traumatized, but he's learned to cope
with it and has been very supportive. I managed to stay off meds until about
2 years ago, but when my seizure frequency increased my doctor insisted.
I've been seizure free since last June :) thanks to Tegretol. I work as a
proofreader for a marketing company, and I'm also working on a marketing
degree.
Fortunately, I've never experienced the kind of discrimination others here
have written about. My current employer has been very understanding, even
when I had several seizures in the office (although some of my colleagues
were very freaked out). I had a seizure at my previous job as well in front
of about 30 people, and my boss was just hurt that I had never told him. I
guess things are different in the States, but no one has ever asked me about
medical conditions when I've applied for jobs (maybe they're not allowed
to?).
Anyway, nice to "meet" all of you.
Hilary
Dave 忽帕
Sure am!
I am an avid snuff sniffer.
Try:
http://www.howdydave.com/snuff.html
or go to the grand site of snuff:
http://www.snuffbox.org.uk
Sorry for the slow response but I've been out of town investigating the
snuff market! :)
--
Dave 忽帕
"Lisa" <loosin-...@excite.com> wrote in message
news:19563971.0303...@posting.google.com...
> Hello Dave,
> I tried going to your page. It wouldn't load. No, I've never tried
> snuff. Are you suggesting it?
>
>
> "Dave 忽帕" <da...@howdydave.com> wrote in message
news:<v6s21d...@corp.supernews.com>...
> > Howdy Lisa!
> >
> > Giving up cigarettes, eh?
> >
> > Did you ever think about taking snuff?
> > (See my snuff page.)
> >
> > --
> > Dave 忽帕
> >
> > http://www.howdydave.com
> >
> >
> >
> >
> >
> > "Lisa" <loosin-...@excite.com> wrote in message
> > news:19563971.03031...@posting.google.com...
> > > Hello Mary and others,
> > > My name is Lisa. Most of you know me as the one that started that
> > > awful debate on pot. Since then, not only have I quit the pot, I quit
> > > ciggerates too. I figured if I'm going to quit smoking, I might as
> > > well go all the way--and they're both expensive habits. I'm 29 years
> > > old, three kids (ages 7, 9, 12), and married to wonderful man. I've
> > > never been outside of the USA and with the talk of war, I think I'll
> > > keep it that way. I've delivered the newspaper for many years, but
> > > lost my job last year when word got out that I may be having seizures.
> > > In the past year, my husband and I have gotten into body piercing.
> > > My family thinks we're freaks, but we've learned to accept being a
> > > "freak" as a compliment. This is the first newsgroup that I've ever
> > > made more then one post to. I don't like heated debates because I'm
> > > not overly educated like John or some of the other people here.
> > > Future post will prove that my spelling sucks. I would like to be
> > > part of this group for a while. Knowing that I'm not the only one
> > > going through this really does help.
> > >
> > > "Mary Fisher" <mary....@zetnet.co.uk> wrote in message
> > news:<3e6cfccb$0$256$4c56...@master.news.zetnet.net>...
> > to
> > > > know more about this fascinating condition.
> > > >
> > > > Mary
> > > > www.candlermaker.org.uk
Mary Fisher
"turbinado" <turbina...@telus.net> wrote in message
news:Q%Pca.31187$wW.26...@news2.telusplanet.net...
> Well I might as well get in on the action too, if a bit late...
I don't think it's ever too late!
> My name is Hilary, I'm 37 and live in Vancouver, Canada. I was diagnosed
> with absence seizures as a teenager (after getting struck by lightning)
Good Heavens! I wonder how common that is as a cause?
> Fortunately, I've never experienced the kind of discrimination others here
> have written about. My current employer has been very understanding, even
> when I had several seizures in the office (although some of my colleagues
> were very freaked out). I had a seizure at my previous job as well in
front
> of about 30 people, and my boss was just hurt that I had never told him. I
> guess things are different in the States, but no one has ever asked me
about
> medical conditions when I've applied for jobs (maybe they're not allowed
> to?).
They're not supposed to in UK but somehow other reasons are found...
> Anyway, nice to "meet" all of you.
And you. and everyone. I had no idea what I was starting but it's been
great.
Mary
> Hilary
>
>
Jilly Lyth
Mary - once again - great idea to do a roll call!
I'm Jilly, and I live in Sheffield - a Yorkshire lass born and bred!
I was diagnosed when I was twelve, and have been on Epilim ever since (I'm
now 26).
Apart from being a little cheesed that I can't join my husband scuba diving
on holiday, and of his perpetual fear of me having a motorbike, I consider
myself pretty lucky - I have strong auras (some might class them as Simple
Partials) a few times a week, but I only average 1 grande mal every 2 or3
years. Touch wood, I'm long overdue now, as my last was some time ago!
I practice T'ai Chi which helps, and love to pretend that I'm really healthy
by going to the Gym etc. It's all a facade - stick me in front of MTV with
a pizza and I'm happy!!!
If a SOUTH Yorkshire lass can join in, I'm starting to think that we should
have a Yorkshire girls get-together!
Lots of love,
Jilly
--
Jilly Lyth
email: jilly AT lyth DOT co DOT uk
NB Reply-to address is spam-trapped
Mary Fisher
"Jilly Lyth" <ji...@TAKETHISOUT.lyth.co.uk> wrote in message
news:104785878...@despina.uk.clara.net...
>
> If a SOUTH Yorkshire lass can join in, I'm starting to think that we
should
> have a Yorkshire girls get-together!
Why not? I've forgotten (!) who the other was - somewhee up in the Dales I
seem to remember. I'm half way between, we could party here!
I'm serious. If anyone wants to pursue it but doesn't want to clutter the ng
we could do it by mail. My address is uncomplicated by anti-spam bits and
pieces, I don't understand them!
I've had meets with like-minded folk on other specialist ngs and it can be a
very happy experience.
Mary
Bob
Hi All
I'm Bob and am 60+ but my problems are not age related. The terminology for my
condition as verified by my doctor is Simple & Complex Partial Seizures. They
came back in recent years following a urinary tract infection and after having
been gone for over 20 years. There are serious memory problems now (CRS), but
over the months & years I've started remembering some bits & pieces of having
these problems in my 30's, 20's and probably back into my high school & grade
school years. They may possibly have started in my 8-10 yr old timeframe when I
was hospitalized a couple of times including for a case of mumps that turned
into meningitis.
The MRI, CT-Scan, & EEG are all clean except that a sleep-deprived EEG showed
some spikes in the right temporal lobe. Medication over the past 2 1/2 years has
reduced the number of seizures from many/multiple per day and muted the severity
of the ones I do have. In spite of that and either from the underlying medical
problems or the drugs, I feel very depressed and funny all day every day.
I've been shy about posting on this because just about all the posts so far have
been about gran mal seizures. My heart goes out to those who have those
seizures, but I've never (to my knowledge or memory) ever had a tonic-clonic
convulsive seizure and only learned in the past ~3 years that my condition was a
form of epilepsy as I had never heard the term applied to me before.
I sort of wonder if there aren't quite a few lurkers out there following these
epilepsy newsgroups who have a condition like mine and haven't posted here
because they don't think their condition is serious enough for the newsgroup.
Sure would like to hear from them if they are out there!
Bob
Mary Fisher
"Bob" <spsandl...@inter.net> wrote in message
news:3E762F4D...@inter.net...
>
> Hi All
>
> I'm Bob and am 60+ but my problems are not age related. The terminology
for my
> condition as verified by my doctor is Simple & Complex Partial Seizures.
They
> came back in recent years following a urinary tract infection
!
> and after having
> been gone for over 20 years. There are serious memory problems now (CRS),
but
> over the months & years I've started remembering some bits & pieces of
having
> these problems in my 30's, 20's and probably back into my high school &
grade
> school years. They may possibly have started in my 8-10 yr old timeframe
when I
> was hospitalized a couple of times including for a case of mumps that
turned
> into meningitis.
!
>
> The MRI, CT-Scan, & EEG are all clean except that a sleep-deprived EEG
showed
> some spikes in the right temporal lobe. Medication over the past 2 1/2
years has
> reduced the number of seizures from many/multiple per day and muted the
severity
> of the ones I do have. In spite of that and either from the underlying
medical
> problems or the drugs, I feel very depressed and funny all day every day.
>
> I've been shy about posting on this because just about all the posts so
far have
> been about gran mal seizures. My heart goes out to those who have those
> seizures, but I've never (to my knowledge or memory) ever had a
tonic-clonic
> convulsive seizure and only learned in the past ~3 years that my condition
was a
> form of epilepsy as I had never heard the term applied to me before.
>
> I sort of wonder if there aren't quite a few lurkers out there following
these
> epilepsy newsgroups who have a condition like mine and haven't posted here
> because they don't think their condition is serious enough for the
newsgroup.
> Sure would like to hear from them if they are out there!
I'd like to think that there are and that they will come out now. I've
learned a lot from this roll call - I never would have suspected that a
urinary tract infection or mumps could have a causal effect.
But I'm amazed that tests are done with sleep deprivation. Surely this is
likely to cause unusual brain patterns in the most 'normal' of brains?
Keep posting, Bob.
Mary
gaross
> I'm Bob and am 60+ but my problems are not age related. The terminology
for my
> condition as verified by my doctor is Simple & Complex Partial Seizures.
They
> came back in recent years following a urinary tract infection and after
having
> been gone for over 20 years. There are serious memory problems now (CRS),
but
> over the months & years I've started remembering some bits & pieces of
having
> these problems in my 30's, 20's and probably back into my high school &
grade
> school years. They may possibly have started in my 8-10 yr old timeframe
when I
> was hospitalized a couple of times including for a case of mumps that
turned
> into meningitis.
Complex Partial Seizures now, was Temporal Lobe Seizures. On any websites
you might still find stuff listed under those Subjects in the Temporal Lobe
section of an article.
As you likely know by now, we have about 4-5 people with Right Temporal
Lobe seizure Focii -- producing the Deja Vu, often a sour taste or odour
(mine is lemon), etc.
Several of the AEDs (below) can have depression as a side effect. If it
is persisting you might want to consider asking the Doctor if they might
want to try some of the Newer pills that supposedly have less of the side
effects like that. (I've been able to use Tegretol CR with Frisium, while
others 'around here' had reactions to Tegretol or poor szr. control.) But
ONE of the potential side effects of Tegretol is, I think, depression. You
might be able to get an Add-on pill or relaxant that might allow you to
still take the regular dose you're using, if you have good to excellent szr.
control now.
In the paragraph below where you mention feeling 'funny'.. can you
describe that a little? Is it like a drunk or dizzy feeling? Or lost or
disoriented? Or like Jackie Gleason! :->
If the medication is slightly high (at least with my Tegretol), the dizzy
sensations are some side effects that the dose might Now be too high for me.
A slight adjustment might be all that's needed to recover full control and
get rid of the depression.
Also if you've used the same medication for a long time, there may be
changes in your body etc. with age (!) that is altering the rate you're
absorbing the pills. You might be able to lower the dose slightly each or
alternate mornings, with your Doctor's assistance, and get the blood level
balance back that you had.
When you had mentioned Deja Vu, I was going to guess the Right Temporal
Lobe (below), since that's the area where that sensation is usually
triggered. Just some (more) thoughts. G.R./
Bob
> "Bob" <spsandl...@inter.net> wrote in message
> news:3E762F4D...@inter.net...
> > Hi All
> <snip>
> You probably already know, but the older term for what's grouped into
> Complex Partial Seizures now, was Temporal Lobe Seizures. On any websites
> you might still find stuff listed under those Subjects in the Temporal Lobe
> section of an article.
The Neurontin has stopped my Complex Partials, but when I was having them the
effects could last for a lengthy period of time. There was never a loss of
consciousness, but a loss of memory as to what had gone on during that period
and there was erratic behavior during the seizure period.
> As you likely know by now, we have about 4-5 people with Right Temporal
> Lobe seizure Focii -- producing the Deja Vu, often a sour taste or odour
> (mine is lemon), etc.
I think you're talking about the Simple Partials here. From the EEG results, I
guess mine must be RTL also, but I have no Deja Vu, tastes, or odors. What I get
is a strange very unique feeling like no other feeling in my life. I mentioned
it once before here and thought that a lot of others would say "me too", but
nobody did. Let's just call it my "epilepsy feeling" and when I first felt it in
recent years, I recognized it immediately as something that I had felt in the
past.
> Several of the AEDs (below) can have depression as a side effect. If it
> is persisting you might want to consider asking the Doctor if they might
> want to try some of the Newer pills that supposedly have less of the side
> effects like that. (I've been able to use Tegretol CR with Frisium, while
> others 'around here' had reactions to Tegretol or poor szr. control.) But
> ONE of the potential side effects of Tegretol is, I think, depression. You
> might be able to get an Add-on pill or relaxant that might allow you to
> still take the regular dose you're using, if you have good to excellent szr.
> control now.
The Neurontin & Phenobarbital have worked well to stop the actual seizures, but
I sure don't feel anything like "normal". and I will sometimes get a small
twinge of that "epilepsy feeling".
> In the paragraph below where you mention feeling 'funny'.. can you
> describe that a little? Is it like a drunk or dizzy feeling? Or lost or
> disoriented?
Sorry, but nothing like that. I just meant a general feeling of malaise and with
my right-ear tinnitus ringing like crazy.
> Or like Jackie Gleason! :->
Not that! ;-)
> If the medication is slightly high (at least with my Tegretol), the dizzy
> sensations are some side effects that the dose might Now be too high for me.
> A slight adjustment might be all that's needed to recover full control and
> get rid of the depression.
> Also if you've used the same medication for a long time, there may be
> changes in your body etc. with age (!) that is altering the rate you're
> absorbing the pills. You might be able to lower the dose slightly each or
> alternate mornings, with your Doctor's assistance, and get the blood level
> balance back that you had.
Control has actually been improving the past week or so and I don't want to rock
the boat. I've also rejected the proposal of taking an additional drug for
depression. I'm taking too many drugs already and would rather have the
depression than risk the side-effects of yet another drug.
> When you had mentioned Deja Vu,
Sorry, but I didn't mention that and don't get it.
> I was going to guess the Right Temporal
> Lobe (below), since that's the area where that sensation is usually
> triggered. Just some (more) thoughts. G.R./
> <snip>
Thanks for the thoughts!
Bob
Bob
> "Bob" <spsandl...@inter.net> wrote in message
> news:3E762F4D...@inter.net...
> <snip> I've
> learned a lot from this roll call - I never would have suspected that a
> urinary tract infection or mumps could have a causal effect.
That infection may be only coincidental and the doctors reject any connection,
but the mumps meningitis as a kid could very easily be the root cause of this.
Meningitis is an infection/inflammation of the lining of the brain and can cause
serious neurological problems including all types of epilepsy.
> But I'm amazed that tests are done with sleep deprivation. Surely this is
> likely to cause unusual brain patterns in the most 'normal' of brains?
It's a quite common test for epilepsy and is routinely run when epilepsy is
suspected if nothing shows up on a regular EEG such as in my case. I imagine
that an EEG of a very sleep-deprived "normal" person might show patterns that
didn't exist when they were well-rested, but not the types of EEG patterns that
are recognized as being epilepsy.
Bob
gaross
(site) I found a few months ago, wrt National Institute of Neurological
Disorders and Stroke (NINDS).
They have a web page I just saved since I had Encephalitis in 1979,
before my szrs. showed up in 1993. But it is NINDS Encephalitis and
**Meningitis Information Page.
In case I didn't post it, or others might want to look through the site
sometime, it should be at:
http://accessible.ninds.nih.gov/health_and_medical/disorders/encmenin_doc.ht
m !!!
I had only printed the first 4 pages, so I'd have above address, but
there are links and a NINDS Search slot, where you can key in particular
topics, then click GO to get to the rest of the site. It was interesting
that they clustered Enceph. and Menin. together, but there may be some
Research/ Neuro similarities for the Doctors or ?? who might search the
site.
The apparent (3) 'blanks' above in the address are actually Underscores
that were displayed on the page I printed, but the auto-underline above
hides them. If you can get into the site from above, there's a Home Page
that might be easier to set a Bookmark on-- and it might be Shorter too!!
G.R.
"Bob" <spsandl...@inter.net> wrote in message
news:3E762F4D...@inter.net...
Toygirl
with epilepsy 11 months ago, at age 52. Her grand mals have been under
control (non-existent, knock on wood) since starting meds (Trileptal, and
then added Keppra 2 months ago. Keppra hasn't helped - she has periodic
episodes of being unable to speak for 10-20 seconds, as before Keppra. She
has a "strange feeling" usually within an hour of the onset - she has
difficulty explaining it. I think maybe, it's something like an aura.
Sometimes, a headache goes with them - sometimes not. She also has feelings
of being 'jittery' very shortly before it's time to take a pill. That's a
new experience in the past couple of weeks. I'm going to fax her szr
history to the neuro this week to see what he wants to do, if anything. Had
a minor problem with his response time, so we made a side-trip to Mayo in
MN.
G'luck.
The Toyman
gaross
an Interest in Epilepsy or Seizure treatment can post here. You just don't
get first choice of the cookies until your second post! :-> G.R.
"Toygirl" <toygirl00(nospam)@hotmail.com> wrote in message
news:edtda.120476$F1.3547@sccrnsc04...
> I'm probably not real welcome here, but my wife (The Toygirl) was
diagnosed
*****************************
> with epilepsy 11 months ago, at age 52.
> etc.
> G'luck.
>
> The Toyman
gaross
one line:
http://accessible.ninds.nih.gov/health_and_medical/disorders/encmenin_doc.ht
m where the blank spots as before I think I said are underscores and not
blanks. G.R.
"gaross" <gar...@rogers.com> wrote in message
news:L_sda.63281$a41....@news01.bloor.is.net.cable.rogers.com...
Julie
Julie
paul potter
choc chip please
Debi
"Toygirl" <toygirl00(nospam)@hotmail.com> wrote in message
news:edtda.120476$F1.3547@sccrnsc04...
Mary Fisher
"paul potter" <paul.p...@ntlworld.com> wrote in message
news:7Kmea.1145$q05.1...@newsfep2-win.server.ntli.net...
> I am the wife of a husband who has a seizure disorder and I'd like a
double
> choc chip please
It's my birthday - what can I have which is VERY special?
Mary
paul potter
Is that a leading question???
Happy birthday....hope it was a good one?
Debi
"Mary Fisher" <mary....@zetnet.co.uk> wrote in message
news:3e7a04cc$0$251$4c56...@master.news.zetnet.net...
LaFleur
"paul potter" <paul.p...@ntlworld.com> wrote in message
news:7Kmea.1145$q05.1...@newsfep2-win.server.ntli.net...
double
> choc chip please
>
> Debi
My wife (25) was diagnosed with juvenile myoclonic epilepsy in August. She
was working as a phlebotomist and had her first seizure in the lab. After
several random seizure days, the hospital put her on unpaid leave and
encouraged her to "come back if she got better". We all knew what they were
really saying. She is taking Topamax and has not had any tonic-clonic
seizures in almost 3 weeks. However, she is more forgetful now and has
trouble sometimes concentrating on procedural tasks. Her partial seizures
always start with her jaw quivering, and the presence of slurred speech or
stuttering usually means a grand mal is coming sometime that day. Because
she is also hypoglycemic, and her partial seizures mimic low blood sugar
signs, I always check her glucose when something significant changes about
her speech or behavior. If her sugar hovers around 115 like usual (on a
good day), we know to attribute her activity to the epilepsy.
Fortunately, I'm an engineering student and we already had plans to move to
Lafayette (Purdue Univ., Indiana). I hear they have a good bus system there
that will help with her independence. The city we are in now doesn't even
have a taxi service.
She has been seeing a counselor for depression and feeling helpless, and
hates not being able to work or pursue nursing school. Does anyone have
suggestions on how I can help her feel less lonely? I don't think there are
any support groups for epilepsy in our area, and she rarely uses the
internet to look up information on it.
Lainie
You say she hasn't had a TC in 3 weeks. Is that due to a med change
(was topamax recently started)? I know from recent experience that a
med level change in my dilantin can take my body 3-4 weeks to adjust
(i.e. that trouble concentrating and forgetfulness you mentioned). If
the topamax is working to control her szs she may just have to give it
time for her body to become acclimated to the drug.
Just my 2 cents.
Lainie
"LaFleur" <laf...@cheetaa.com> wrote in message news:<b5e0nc$sq5$1...@news.chatlink.com>...
Mary Fisher
--
Not in my name: <http://www.stopwar.org.uk/
"paul potter" <paul.p...@ntlworld.com> wrote in message
news:4gsea.1983$fZ1...@newsfep1-gui.server.ntli.net...
> Hi Mary
>
> Is that a leading question???
>
> Happy birthday....hope it was a good one?
Still is - my dinner guests have just arrived!
Mary
Mary Fisher
>
> "paul potter" <paul.p...@ntlworld.com> wrote in message
> news:4gsea.1983$fZ1...@newsfep1-gui.server.ntli.net...
> > Hi Mary
> >
> > Is that a leading question???
> >
> > Happy birthday....hope it was a good one?
>
> Still is - my dinner guests have just arrived!
And it was a great evening - the huge piece of Welsh beef was perfect,
everything except the Australian fizz was perfect. Even that was drinkable.
I'm sorry I cut off the previous post. Don't know what the leading question
question was, if it was my age, I'm now 64. And showing every wrinkle of it
:-)
With age comes wisdom - and the experience which gives the wisdom! But it
doesn't end ... and it's nice :-)
Mary
>
John G. Rune
<mary....@zetnet.co.uk> wrote:
> >
> >
> > "paul potter" <paul.p...@ntlworld.com> wrote in message
> > news:4gsea.1983$fZ1...@newsfep1-gui.server.ntli.net...
> > > Hi Mary
> > >
> > > Is that a leading question???
> > >
> > > Happy birthday....hope it was a good one?
> >
> > Still is - my dinner guests have just arrived!
>
> And it was a great evening - the huge piece of Welsh beef was perfect,
> everything except the Australian fizz was perfect. Even that was drinkable.
>
> I'm sorry I cut off the previous post. Don't know what the leading question
> question was, if it was my age, I'm now 64. And showing every wrinkle of it
> :-)
But the question is, who are you showing them _to_? <g>
> With age comes wisdom - and the experience which gives the wisdom! But it
> doesn't end ... and it's nice :-)
Wisdom my bum! Sounds like somebody got lucky last night! ;-)
> Mary
RJ
Mary Fisher
"John G. Rune" <tact...@ptd.net> wrote in message
news:3e7cf2a5...@news.ptd.net...
> On Sat, 22 Mar 2003 00:49:30 -0000, "Mary Fisher"
> <mary....@zetnet.co.uk> wrote:
> > > > Hi Mary
> > > >
> > > > Is that a leading question???
> > > >
> > > > Happy birthday....hope it was a good one?
> > >
> > > Still is - my dinner guests have just arrived!
> >
> > And it was a great evening - the huge piece of Welsh beef was perfect,
> > everything except the Australian fizz was perfect. Even that was
drinkable.
> >
> > I'm sorry I cut off the previous post. Don't know what the leading
question
> > question was, if it was my age, I'm now 64. And showing every wrinkle of
it
> > :-)
>
> But the question is, who are you showing them _to_? <g>
Only one person wants to look :-)))
>
> > With age comes wisdom - and the experience which gives the wisdom! But
it
> > doesn't end ... and it's nice :-)
>
> Wisdom my bum! Sounds like somebody got lucky last night! ;-)
Two, in fact ... !
Pan @ Olympus
<mary....@zetnet.co.uk> wrote:
>
>"John G. Rune" <tact...@ptd.net> wrote in message
>news:3e7cf2a5...@news.ptd.net...
>> On Sat, 22 Mar 2003 00:49:30 -0000, "Mary Fisher"
>> <mary....@zetnet.co.uk> wrote:
>> > > > Hi Mary
>> > > >
>> > > > Is that a leading question???
>> > > >
>> > > > Happy birthday....hope it was a good one?
>> > >
>> > > Still is - my dinner guests have just arrived!
>> >
>> > And it was a great evening - the huge piece of Welsh beef was perfect,
>> > everything except the Australian fizz was perfect. Even that was
>drinkable.
>> >
>> > I'm sorry I cut off the previous post. Don't know what the leading
>question
>> > question was, if it was my age, I'm now 64. And showing every wrinkle of
>it
>> > :-)
>>
>> But the question is, who are you showing them _to_? <g>
>
>Only one person wants to look :-)))
>>
>> > With age comes wisdom - and the experience which gives the wisdom! But
>it
>> > doesn't end ... and it's nice :-)
>>
>> Wisdom my bum! Sounds like somebody got lucky last night! ;-)
>
>Two, in fact ... !
make it three! i do not think that a woman under 45 knows enough
about 'encounters' or has had time enough to 'hone her edge' enough to
make a great lover. with age comes perfection
the young ones (men and women) may be energetic and bouncy perhaps,
but for them it is probably just a romp, not a fine art.
what say all of us (to coin a phrase) 'old farts' get together and
exchange the wisdom, insite, technique and appreciation for the little
details that the kids are not old enough to appreciate?
i am in line rj is in line i know that howddave and lisa butts are
also in line.
how many others?
live and learn and pass it on!
pan
Mary Fisher
"Pan @ Olympus" <pan_o...@hotmail.com> wrote in message
news:t5bp7v44cruiehmpl...@4ax.com...
> >> > I'm sorry I cut off the previous post. Don't know what the leading
> >question
> >> > question was, if it was my age, I'm now 64. And showing every wrinkle
of
> >it
> >> > :-)
> >>
> >> But the question is, who are you showing them _to_? <g>
> >
> >Only one person wants to look :-)))
> >>
> >> > With age comes wisdom - and the experience which gives the wisdom!
But
> >it
> >> > doesn't end ... and it's nice :-)
> >>
> >> Wisdom my bum! Sounds like somebody got lucky last night! ;-)
> >
> >Two, in fact ... !
>
> make it three!
Oy! There were only two in MY bed ...
> i do not think that a woman under 45 knows enough
> about 'encounters' or has had time enough to 'hone her edge' enough to
> make a great lover. with age comes perfection
A 45yo woman - or man - is a mere tyro ...
>
> the young ones (men and women) may be energetic and bouncy perhaps,
> but for them it is probably just a romp, not a fine art.
Quite.
>
> what say all of us (to coin a phrase) 'old farts' get together and
> exchange the wisdom, insite, technique and appreciation for the little
> details that the kids are not old enough to appreciate?
>
> i am in line rj is in line i know that howddave and lisa butts are
> also in line.
>
> how many others?
>
> live and learn and pass it on!
I'm not sharing my secrets! They've been learned and improved by hard work.
And I suspect that all the old folk you mention re at the other side of the
Pond from me ...
And NO-ONE is going to share Spouse :-)
Mary
Bob
> "Pan @ Olympus" <pan_o...@hotmail.com> wrote in message
> news:t5bp7v44cruiehmpl...@4ax.com...
> <snip>
> Oy! There were only two in MY bed ...
> <snip>
> I'm not sharing my secrets! They've been learned and improved by hard work.
> And I suspect that all the old folk you mention re at the other side of the
> Pond from me ...
>
> And NO-ONE is going to share Spouse :-)
I strangely enough can't recall starting all these other discussions when I gave
my Roll Call.<roflmao>
Bob :-)
Mary Fisher
> >
> > And NO-ONE is going to share Spouse :-)
>
> I strangely enough can't recall starting all these other discussions when
I gave
> my Roll Call.<roflmao>
>
> Bob :-)
It's called Thread Drift.
But I'm sure you know that ...
Fun, innit?
Mary
>
>
Pan @ Olympus
wrote:
i guess this all should have gone to the dark side roll call.
pan
Pan @ Olympus
i know where ainnit comes from (milwaukee). where does innit come
from?
pan
Bob
> > >
> > > And NO-ONE is going to share Spouse :-)
> >
> > I strangely enough can't recall starting all these other discussions when
> I gave
> > my Roll Call.<roflmao>
> >
> > Bob :-)
>
> It's called Thread Drift.
The bouncy or the experienced style?
> But I'm sure you know that ...
>
> Fun, innit?
I dunno as I wasn't there. You'll have to answer that one.<lol>
> Mary
Bob
Mary Fisher
> are you from the midwest mary?
Midwest?
Hmm. Almost the middle, certainly not west.
Of England :-) Leeds, in Yorkshire.
>
> i know where ainnit comes from (milwaukee). where does innit come
> from?
It's just a slang corruption, I occasionally use words like that as what I
perceive as a comical affectation. Most people here say it all the time,
they also say "dunnit" and "gunna" (going to) and other such ugly
diminitives.
I don't know why people degrade our beautiful language. I'll stop
immediately!
Mary
Mary Fisher
>
> i guess this all should have gone to the dark side roll call.
?
Mary
--
Not in my name: <http://www.stopwar.org.uk/
> pan
>
Pan @ Olympus
WATCH YOUR STEP MARY!!
howdydave is corrupting you! next thing you know you will start using
standard contraction (apostraphies and everything) and start writing
the way most people talk!
pan
Mary Fisher
> all i have to say is:
> WATCH YOUR STEP MARY!!
>
> howdydave is corrupting you!
He has no chance. Nobody does.
> next thing you know you will start using
> standard contraction (apostraphies and everything) and start writing
> the way most people talk!
Well, I certainly prefer to use apostrophies rather than apostraphies and I
never persue things as I've noticed some round here do - I prefer to pursue
them/.
But there again, as I said to some young people in Wa who asked where I
learned to talk 'like that': I'm English and speaking (or in this case
writing) English.
If you prefer I'll start writing Yorkshire ... not many people will
understand that!
:-)
Mary
Pan @ Olympus
<mary....@zetnet.co.uk> wrote:
>
>"Pan @ Olympus" <pan_o...@hotmail.com> wrote in message
>news:16tr7v09vi4uauarm...@4ax.com...
>> all i have to say is:
>> WATCH YOUR STEP MARY!!
>>
>> howdydave is corrupting you!
>
>He has no chance. Nobody does.
>
>> next thing you know you will start using
>> standard contraction (apostraphies and everything) and start writing
>> the way most people talk!
>
>Well, I certainly prefer to use apostrophies rather than apostraphies and I
>never persue things as I've noticed some round here do - I prefer to pursue
>them/.
if you do not watch your step some of us will be pursuing you (in
order to corrupt you) all the way to the apothecary!
>
>
leeds... hmmm. what do you know about greens of leeds? (
pan
Mary Fisher
> On Sun, 23 Mar 2003 18:07:50 -0000, "Mary Fisher"
> <mary....@zetnet.co.uk> wrote:
>
> >
> >> next thing you know you will start using
> >> standard contraction (apostraphies and everything) and start writing
> >> the way most people talk!
> >
> >Well, I certainly prefer to use apostrophies rather than apostraphies and
I
> >never persue things as I've noticed some round here do - I prefer to
pursue
>
> if you do not watch your step some of us will be pursuing you (in
> order to corrupt you) all the way to the apothecary!
Having worked in a pharmacy it holds no phears.
> >
> >
> leeds... hmmm. what do you know about greens of leeds? (
Nowt. How about you?
I'm always eager to learn.
Mary
>
> pan
>
Pan @ Olympus
found him on howdydaves site
pan
On Mon, 24 Mar 2003 20:22:13 -0000, "Mary Fisher"
Mary Fisher
"Pan @ Olympus" <pan_o...@hotmail.com> wrote in message
news:ga1v7vo4ugc9m84oa...@4ax.com...
> greens of leeds is a tobacconist who sells snuff on the internet.
> found him on howdydaves site
>
> pan
Oh. You learn something new every day.
But I know nothing about Greens of Leeds.
Mary
>
Tammy
news:Q%Pca.31187$wW.26...@news2.telusplanet.net...
> Well I might as well get in on the action too, if a bit late...
I hope it is not too late, since I am jumping in now too. =)
My name is Tammy. I am a 31yr old mother of two. I had my first seizure at
13/14, somewhere around there. I had an EEG that came back normal and my
parents were told that I needed psychiatric help, that it was all in my
head....(well...duhhh...just not the way he meant). That was my one and only
grand mal.
I have had seizures over the intervening years that I have gone to different
doctors for and have been told the same thing as what the first doctor told
me. Since, as far as I knew, I didn't lose consciousness during the
seizures, I guess that they didn't take my seriously. I had no idea that I
could be having seizures, so I never questioned or pushed. I guess after
enough times of being told that it was 'all in my head', I just figured I
would have to deal with it. No amount of counseling has ever taken these
away.
About 9 months ago the seizures started again with more frequency and
severity then I had previously experienced. I lost consciousness on at least
one occasion. I have lost motor functions for periods after the seizures
have subsided. I have also had memory problems and difficulty speaking off
and on since. I started hearing things and my vision would be off every now
and then. I figured I was just really losing it, but I figured it wouldn't
hurt to talk to a Dr one more time. I did push this time and after a barrage
of blood tests and preliminary mental evals, I was finally referred to the
neurologist who diagnosed me with Myoclonic seizures.
I have been on Lamictal for 4 months now and have reached my Dr's desired
dose about a month ago. I had my last major episodes a little over a month
ago and since then I have had very few problems. I still get that 'funny'
feeling every now and then and my arms or legs will still jerk every so
often, but all in all I am doing much better. I don't even get that constant
deja vu that I have experienced since I was a teen. (I never even thought to
question that it may not have been normal to have deja vu as consistently as
I did.)
As for everything else.....let's see.....I like to cook. I read anything I
can get my hands on. I am involved in SCA (historical reenactment). I am
learning how to make candles, wire work and beading, and I plan to tackle
wheat weaving next. I work with computers and spend as much free time as I
can with my kids and my fiancée.
I don't post in here too often now, but I do make it a point to read posts
as often as I can. I really don't have much to contribute since this is
still all so new to me. However, it does make dealing with this a bit easier
to just everyone's rants and advice, esp on those days that I just feel
'off'.
Thanks for the opportunity to get to know you all a little better.
Tammy
Mary Fisher
If it doesn't let me know.
Mary