March Net Pal List Part 3
Gloria Bond
Netpal List part 3 of 3
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Gary Meier
Age 26
Tempe, Arizona
Profession: nursing home custodian
Seizure type: mild complex partials...taking lamictal
Interests: books of helpful wisdom, exercising and video games.
Getting into woodworking.
E-mail: grm...@aol.com
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Jett Family
Atlanta, Georgia
Ten year-old son has complex partial seizures and takes dilantin.
Medical Concerns..all health issues, parenting, effects on school
performance and ADD symptoms
Interests: woodworking, fishing, reading, old movies, and the
Alabama Crimson Tide
E-mail: Jetts.R...@worldnet.att.net
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Nikhil Nicholas D
Age 27
Singapore
Radiation Technologist
Seizure type: complex-partial, TLE, already cured by surgery 1994
Interests: PC assembly, tennis, mountaineering, helping
people with the same plight
E-mail: nikh...@singnet.com.ag
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David J. Maguire
Age 27
Profession: advertising
Seizure type: complex partial and taking dilantin and lamictal
Interests: reading good books, exercising, politics, and advocacy
E-mail:dmag...@gtn.net
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Timothy Sherlock
Age 23
Manchester, England
Frontal Lobe Epilepsy
Profession: engineer(CAE)
Interests:anything to do with computers (inc. programming), music
reading, walking
E-mail: tim...@nebula9.demon.co.uk
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Michelle Hoffman
Age 22
Minnesota
Taking dilantin and has taken tegretol and depakote
Interests:advocacy,computers,reading,etc
E-mail: mict...@aol.com
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Gina Maliga
Age 36
Location.Bloomfield,CT
Profession: Manager Corporate Graphics
Interested in the ketogenic diet for her 9yr old son who has been
on dilantin for 4 years and seizure free for that time
E-mail: gma...@concentric.net
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Tracey Campbell
Age 32
Entrepreneur/business owner from Connecticut
All types of seizures since 1969
Interests: Ongoing interest in homeopathic approaches
E-mail: tra...@cris.com or tra...@concentric.net
(supposed to be concentric.net but my
experience was that cris.com is successful
so try both when first writing)
URL..<a
href="http://www.o-c-s.com/epilepsy/"http://www.o-c-s.com/epilepsy/
</a>
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Ana Reis
Age 38
Lives in Estoril, Portugal
Unemployed and looking for ideas on a small business
Seizure type: unknown
Interests: trading music on IRC, lots of off road sports and formula
races, how these relate to seizures..female problems,side effects
of tegretol and or gamibetol and low/hi blood sugar levels
Also IRC channels
E-mail: Pax...@ip.pt
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Ben Baptiste
Age 61
Retired Safety Engineer in San Francisco Bay area
Seizures:simple and complex partial since the '60s, and one grand
mal in 1981...100% controlled with tegretol
Interests: barbershop quarteting, Broadway musicals,senior softball,
bowling, and computers
E-mail..Bassman@mail.viacomcv.hybrid.com
URL: <a
href="http://home.netscape.com/people/bkim/BAM">http://home.netscape.com/peo ple/bkim/BAM</a>
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Bob Raymond
Age 44 ,living in Phoenix,Az.
Wal-Mart associate
Seizures: mostly complex partial starting at age 19 after a head injury,
had rt temporal lobe surgery in Dec '94 and just having
seizures at night since
Interests: movies,video production,golf,learning to surf the net,
swimming and anything to get some exercize
E-mail: bet...@primenet.com (Betsy is wife)
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Beverly Dye
Age 37
Profession:home based travel agent specializing in cruise vacations
Mother of two.
Seizures:grand mal
Taking dilantin and lamictal
Interests:family,travelling(cruises),keeping physically fit
E-mail:bev...@norwich.net
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Clark Iverson
Age 36
Michigan
Profession:office worker and writer
Seizures:grand mal
Takes dilantin
Interests:poetry,diplomacy games, writing, ice cream,
discussing side-effects of medication, and more
E-mail:civ...@cms.cc.wayne.edu
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Mark Polk
Age 32
Rockville, MD
Seizures:grand mal,complex and simple partials
Had recent surgical procedure which has removed only the
auras, making "life creative".
Interests:computers, animals, music,and videos
E-mail..markpolk@erols.com
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Kristina
Complex partial seizures
E-mail:Kel...@aol.com
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Joette
Age 33
Temporal Lobe seizures..diagnosed April,1995
Interests..her 3 children,art,volleyball,animals
E-mail:Jet...@aol.com
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Emerson Champion
Interested person whose spouse had epilepsy
Pasadena,MD
Interests:computers,amateur photography,kites,reading
E-mail:cha...@juno.com
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Chuck Norris
Age 29
Tampa,FL
Seizures:psychomotor/temporal lobe
Interests:"things net-pal",reptiles,coffee,hiking/camping,beachcombing,
concerts,weekend TV(cop flicks,sci-fi,crime dramas),
movies,listening to music
E-mail:nor...@chuma.cas.usf.edu
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Sam
Ontario,Canada
E-mail:mac...@terraport.net
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William Snyder
Age 48
Artist/Teacher in Michigan
Seizure type..tonic/clonic, most often occuring during sleep
Interests:art,literature,computers,and people
E-mail:wsn...@chris.com
URL:<a href="http://www.wp.com/hambones/">http://www.wp.com/hambones/</a>
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Steve Vogel
Age 43
Florida
Profession:freelance copywriter
Seizure type...grand mal
Meds:last 7 years on Tegretol. Before that, 17 years on Dilantin
Transition also included Depakote and Phenobarbitol.
Interests...marathoning to reclaim his body, snow skiing, eating right
and staying fit.
Now trying to gather information on surgerical alternative to spending
the rest of his life on meds.
Would like to hear surgery stories.
E-mail:SC...@aol.com
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Mary Nawrocki
Looking for patient referrals to find a doctor who has successfully
treated epileptic seizures without surgery
E-mail..vanmen@ix.netcom.com
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Mark
Mark's 3yr old son, Luke has partial focal seizures and a scar on the
left parietal lobe most likely due to a stroke during gestation.
He is allergic to tegretol and Mark is considering the keto diet
or surgery.Luke is being evaluated for options and on July 9 is
seeing a doctor at Johns Hopkins Hospital
E-mail:bnic...@aol.com
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Kevin Hackett
Age 31
Systems Analyst in Toronto
Seizures:grand mal and petite mal since age 17 and is taking
dilantin.
Has short-term memory problems and other side effects of medication
Interests:hard rock music/concerts, tv, computers, and his upcoming
status as a new father in August
E-mail:hac...@pathcom.com
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Linda Lach
Age 49
Adoption attorney in Lihue,Hawaii
Seizure type:complex/partial/temporal lobe adult onset (age 46)
taking Primidone and allergic to dilantin and tegretol
Hoping to scuba dive in spite of the seizures
E-mail:sun...@aloha.net
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Sandra Chapman
Age 35
Solar System Plasma Physicist at the University of Warwick, UK
Seizures:complex temporal lobe for over ten years
Finally is well controlled on Tegretol and Frizium
Interests:would like to hear from others with memory problems and
discussing how complex partial seizures affect our experience
of life
E-mail:san...@astro.warwick.ac.uk or s.c.c...@warwick.ac.uk
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Jojo Gartner
Age 34
Just started having seizures a few months ago (as of July,1996)
and still in the process of figuring this out
Interests..movies,reading,her golden retriever and cat, walking,
and getting this under control!
E-mail:joj...@aol.com
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Paul Mansell
Age 37
San Diego, Office Coordinator
Seizures:tonic-clonic and absence
Interests:surfing the net, epilepsy advocacy and teaching children
how to use a computer
E-mail:pman...@aol.com
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Neill Atkins
Age 30 , living in Portsmouth, UK
Software consultant for his own company, First Word Software Ltd.
Seizures:grand mal which were bad but have dimished in frequency
Has had these since age 11 (head injury)
Interests:lifeguarding, swimming, and his new son Thomas
E-mail:ne...@firstwrd.demon.co.uk
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Kristy Fujikawa
Mother of 20mo old(as of June 96) daughter with infantile
spasms who is taking tegretol, vigabratrin, and lamictal
E-mail:K_Fuj...@msn.com
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Lewis Strassberg
Age 50
Systems analyst in Boston,MA
Seizures..petit mal and grand mal
Has had left frontal lobe surgery and is well controlled with meds
E-mail:la...@pipeline.com
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Dorothy Jambrek Updated March,98
Age 35
Accounting clerk in Wisconsin
Seizures: Complex Partial
Medications: Felbatol and Acetazolamide
Two surgeries on temporal lobe
Interests:surfing the net,finding new info on epilepsy,piano/organ
playing,counted cross-stitch,baking
E-mail:jam...@acronet.net
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Sarah and Tony Winn
Son Jonathan, age 12, has Lennox Gastaut and cognitive disability
Seizures:generalized tonic clonic, clonic, atonic, and brief
"dizzy" spells...on felbamate with poor control.
Interests:would like to communicate with other parents who have
a child with Lennox Gastaut, and /or who have been using the
ketogenic diet.
E-mail:wi...@mail.onalaska.k12.wi.us
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Julie Shapiro
Bookkeeper and Student at California State University Fresno
Seizures:complex partial and petit mal
E-mail:je...@csufresno.edu
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Karen D. Osborne
Executive Director of the Epilepsy Foundation of SW Florida
E-mail:kdos...@aol.com
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Gayle Peterson
Age 37
Northwoods of Wisconsin
Grand mal seizures since age 6,currently on 300 mg of
dilantin and 600mg lamictal
Interests:eating,drinking,partying,sleeping
E-mail..dongayle@century.net
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Lisa Hetherington
Mother of two girls
Stay at home mom in Hamilton,Ontario
Seizure type:grand mal. Takes tegretol and clobazam
Interests:reading,spending time with family and friends,sports,
surfing the net
E-mail:li...@freenet.hamilton.on.ca
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Steve and Jane Miller
Boulder,CO
Daughter Age 7 on Ketogenic Diet
Seizures somewhat improved with diet
E-mail:Jruss...@aol.com
102633,11...@CompuServ.com
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Claire Fuller
Age 25
Grand Mal Seizures since age 19
Dilantin working fine
Internal Auditor
Interests..sports,the arts
E-mail:cfu...@frontier.ca
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Mike Smith
Age 32 in 1996
A Californian living in Plymouth,Devon,England
On Epilim(sodium valproate)
200 Station computer network manager in a high school
3 Known Grand mal seizures since Age 25..generalized ideopathic
Interests:ice hockey,foreign languages,skiing,used to like
Scuba diving(had been commercial before seizures)
Also likes programming in C.
E-mail:mi...@msmith.zynet.co.uk
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Tammi
Age 21
Jacksonian seizures on Depakote
E-mail:pbo...@ix.netcom.com
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Steve
Age 39
Grand Mal and Petit Mal seizures
On Dilantin,Depakote,Neurontin,and Clorazapate
Interests:poetry,writing,family and children,talking with others
about life with epilepsy
E-mail:Daf...@aol.com
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Jane Husted
Age 60
Mother of five
Grand mal seizures since age 19 which recently recurred
Interests:writing,painting,poetry,advocacy,the internet
E-mail:jchu...@borg.com
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Candace Rush
Age 48
Legal Administrator
Complex partial and generalized seizures
Takes neurontin and clorazapate
interested in hearing other folks' experiences with neurontin
Interests:gardening,travel,reading,and PC's and their capabilities
E-mail:KKF...@Prodigy.com
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Judy Jones
Mother of 22 month old daughter having generalized seizures which
have become absence and myoclonic
Daughter is taking Valproate Sprinkles and Clonazepam
E-mail:JJO...@vichosp.london.on.ca
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Michael McDonald
Age 40 in 1996
Whitinsville/Waltham MA
Complex partial and generalized seizures
Taking dilantin and felbatol
Computer programmer and author
Interests:kids,reading,football,hockey
E-mail:mike...@tiac.net
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Penny de Vries
Durban,South Africa
9yr old daughter has been diagnosed with epilepsy and will take tegretol
daughter also has cerebral palsy
E-mail: pdev...@specialty.co.za
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Bobby Finley
Wants to make new friends
E-mail: bfi...@hsonline.net
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Mary Leslie Leochner
Age 35
Complex partial seizures
Left temporal lobe surgery 1986,seizure free for 5yrs
Second surgery 1996
Two kids,age 6 and 2 and a wonderful husband
E-mail: Leoc...@aol.com
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Linnea Schamber
Age 22
Huntington Beach,CA
Psychomotor,tonic clonic,focal,absence, had successful surgery
Student
Taking Mysoline
Interests:Christianity,music,people and animals,cooking,coffee houses,
general going/doing/having fun
E-mail:dan...@haven.ios.com
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Dennis Hamel
Son Mike,3 1/2,has grand mal seizures
Son takes tegretol and neurontin
Has normal CAT scan,MRI and EEG
He likes Thomas the Tank Engine and Friends(Mike,not Dennis)
E-mail:76562...@Compuserv.com
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Lisa Bernardi
Age 29
Montreal,Canada
X-ray technician
Seizure type:petit mal and clonic partial
Interests:camping,training,skiing,tennis
E-mail:rea...@aei.ca
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Pete McKechnie
Age 26
Ontario,Canada
Disabled due to seizures
Tonic clonic,complex partial,and absence
Takes many meds,currently taking epival
Interests:read(classics and almost anything else),walking and
music
E-mail:pet...@on.ca
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Lucy Hoke
Age 19
Attending college
Sister who is 16 has complex partial and grand mal seizures
E-mail:lh...@rwd.goucher.edu
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Michele Mohammadi
Age 30
Chicago,IL
Math/science teacher 7/8th grades
Interests:music(voice),virology,biology,education,family..hoping
to start one soon!!
E-mail:Moham...@aol.com
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Melissa
Grand Mal and Complex Partial Seizures
Taking depakote and tegratol
Interests:sailing and scuba diving(before seizures)
misses being able to date
E-mail:7456...@Compuserv.com
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Michael Bowers
Age 27
New Brunswick,NJ,
ex-foreign service "brat"
Comp-sci/political-sci student;partner in WWW design co.
Grand mal seizures with no aura
Interests:music(guitar,songwriting),reading,hiking,WWW,graphics
E-mail..bowersm@eden.rutgers.edu
bow...@ubicom.com
URL:<a href="http://www.ubicom.com">http://www.ubicom.com</a>
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Ann Ramos
Age 41
Chicago
Communications specialist
Has had grand mal and another type(some impairment of consciousness
with anxiety,mostly at night
Seizures recently returning after ten years
Interests:bike riding,travel,computers
E-mail:abr...@mcs.com
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Gloria Bond
Age: 44
Occupation: Personal Computer Specialist (disabled)
Location: Glen Burnie, MD
Seizures:Simple partial with mild complex symptomatology
Meds: Dilantin, Neurontin, and Tranxene
Interests--computers,writing,reading,movies(esp.Charlie Chaplin),
shortwave radio,cats,crocheting--and working
on the net-pal list
E-mail..gbond@erols.com and gb...@sprynet.com
URL<a
href="http://home.sprynet.com/sprynet/gbond">http://home.sprynet.com/sprynet/gbond</a>
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That's all for this month. As usual, if anyone wishes to join the
list just send me the vital info and I'll add you for the next month.
gloria