God, why it is coming back!!!
jdo...@gmail.com
5 years ago. At that time, I thought it was a simple disease coming
and going. I did not even follow doctor's instruction to take medicine
on time. ( "Carbatrol" 100 mg every twice a day).
Until some auto accident happened about 4 years ago, then the second
and third one happened 6 months after. I felt kind of nervous and
started my medicine taken strictly on time ( "Carbatrol" 200 mg every
twice a day) and limited my driving as little as possible.
By now it is almost 3 years after the last car accident, everything
was "almost" back to normal. But it HAPPENED again today. I was so
frustrated as I thought it was 100% under control and I might have the
medicine decreased by now.
Questions:
1. For those who had his seizure controlled, what kind of medicine you
are taking, and by how long you think your issue is controlled.
2. And what happened when you find out that it was not 100%
controlled, do you change your doctor ?
3. And what does your doctor do, does he ask you to try different
medicine. ?
( Just something I have noticed, as I limited my car driving, I do
bicycle for about 70% of my commute. How come I never have SEIZURE
anytime I was bicycling ? )
Then
George H
the frequency of my seizures. The only advice I would give is to follow
your doctors orders....and keep rockin !!!!
jdo...@gmail.com
Does anyone have any type of indication, before the seizure
happening?
G.
If you see a post I did about a week ago (Websites of use to newer
people), there's a First Aid for seizures page under the Idaho Website
I listed (I think there is also a direct link to the First Aid
chart). It lists some of the common sensations or 'auras' that can
precede some of the seizure types.
I used to get a Deja Vu feeling (like I had been here before, said
this before) before the onset. Also a profound Lemon taste or aroma
that wasn't 'there'. Those were both symptoms listed under Right
Temporal Lobe seizure focus (now listed under Complex Partial szrs.).
Many of the sensations are distinct enough that whichever feeling
might arise gives the Doctor a strong clue as to which area of the
brain, and type of seizure, might be happening. Usually further
tests (EEGs or MRIs) might be done after that to confirm if that is
where the Seizure Focus is, and newer medications are often targeted
toward those szr. types. G./
Sofia
"G." <gar...@rogers.com> wrote:
> >
> > Does anyone have any type of indication, before the seizure
> > happening?
>
> If you see a post I did about a week ago (Websites of use to newer
> people), there's a First Aid for seizures page under the Idaho Website
> I listed (I think there is also a direct link to the First Aid
> chart). It lists some of the common sensations or 'auras' that can
> precede some of the seizure types.
> I used to get a Deja Vu feeling (like I had been here before, said
> this before) before the onset. Also a profound Lemon taste or aroma
> that wasn't 'there'. Those were both symptoms listed under Right
> Temporal Lobe seizure focus (now listed under Complex Partial szrs.).
Yes, perhaps this is true for some types of Complex Partial seizures,
but can I just add that seizures and the people who have them
(ourselves of course) are all individuals and they are effect us all in
different ways.
I have several different types of seizures including the Complex
Partial, but I don't get "auras" or any kind of sign at all before
getting one. Don't be too frightened whether you do or don't get
them, you aren't alone and there will always be one of us in the
newsgroup that shares your feelings.
Can I also add that as it is against the law for people with seizures
to drive a car until they haven't had one after 3 whole years, then I
have never been allowed to drive here all my life. Hubbie does that
for me, so I'm glad to have him by my side as my carer! I can't say
why you never get seizures while cycling, but as mine turn up at
random at any time,any place and anywhere, I should suspect it could
happen to anybody... including you!! You just haven't had seizures
long enough to have experienced it yet though!
I also have a brilliant neurologist and wouldn't change him for any
other one. Unless yours is particularly useless, I really don't think
you should think of ridding of them, after all they are there for you!
All the best
Sofie
--
Please visit my deviantART page: http://sofen.deviantart.com/
Vaecordia
>
> Can I also add that as it is against the law for people with seizures
> to drive a car until they haven't had one after 3 whole years,
>
>
>
> Sofie
>
>
That's not entirely true Sofie.
The length of time someone will have their driving priviledges revoked
depends on your geographic location, whether your seizures affect
consciousness, were caused by a shift in medication that has now been
corrected, and several other factors.
Here in Newfoundland if you have been seizure free for six months, you
are entitled to get your licence back again.
Pam
Epilepsy NL
George H
have. Others just happen.
I regret I have but one life to give for my country....
Sofia
Vaecordia <vaec...@hotmail.com> wrote:
> The length of time someone will have their driving priviledges revoked
> depends on your geographic location, whether your seizures affect
> consciousness, were caused by a shift in medication that has now been
> corrected, and several other factors.
>
> Here in Newfoundland if you have been seizure free for six months, you
> are entitled to get your licence back again.
Hi Pam, I haven't a clue where Newfoundland is, but here in England,
UK, if you have many abscence seizures you aren't allowed to drive
unless you haven't had one for 2 whole years. If they are also
accompanied with tonic-clonic's, you aren't allowed to drive for 3
whole years!!
G.
(I took out your Web address as we're still getting buried by spams
and trolls at eml addresses after posting here. I use Spamkiller, but
will now have about 3x30 messages discarded a day, for 1 week, by
doing this post for first time in 50? days.
The group has grown siginificantly quieter since about 2006, because
of Asia and East Europe yobs who harvest by robot. Even text that's
not readable is still a poor advertisement for countries who want to
sell products overseas. I *still tell stores to 'put that back, I
don't Buy stuff from Troll Capitals of the Internet, what do you have
from the U.S. or Canada? " ) My comments on this thread are at end,
below. //
Newfoundland is the Eastmost Province of Canada, the Island. It was
one of the places where the Europeans thought they had 'discovered'
the New World, or China, and a New Found Land....
Laws with respect to how long you have to be Seizure free before
you can drive vary in Each of our 12+ Provinces, probably each of the
50 U.S. States and in many other countries around the world. I think
most of the Provinces of Canada you have to be szr. free for a Year.
The site I described for them earlier, describes some of the
*common auras of several of the szr. types, if they hadn't encountered
them. An Aura is *common with Complex Partial szrs. and is part of a
Simple Partial szr. that can precede a stronger szr. A Lemon taste
and Deja Vu sensation is a non-invasive way for a Dr. to feel that the
szr. focus is in the RIght Temporal lobe, so can direct tests to
confirm that without using more invasive treatments. (I *hated that
Lemon Taste and still can't eat foods that are heavily treated with
Lemon, like Salmon etc. )
An Eggy aroma or taste, and Jamais Vu (where your own place can
feel like a stranger's house), is a marker (supposedly) common of a
**Left Temporal Lobe szr. focus (startup).
Both types of Temporal Lobe seizures (described as that from 1930s
to 1970s?) are now grouped within Complex Partial Seizures if the
Poster was doing a **search. That was why I referred them to a post
I did that had about 6 websites they could look at.
The Idaho First Aid chart (if it's still active) was a useful way
to see what symptoms *might determine the szr. type a person was
having. Based on that, and the **Doctor's experience, newer more
Targeted medications can be prescribed rather than the olde Hit or
Miss tries used in pre-1960s to find pill(s) to try control their
seizures. G./