A positive approach to dystonia and other movement disorders
distoweb
I come to this support group to collaborate as much as I can after
having done the same in similar groups in many countries along the
world for a year.
I must say I started to live with torsion generalized dystonia (a rare
movement disorder that causes pain, cramps, lack of skill, etc., and
many difficulties in daily life) when I was about 11. Now I am 44 and
some months ago I felt I could help other people with my personal
experience, my way of facing this illness now and in the past, and so
on.
So here I am trying to share the keys of my experience, what I call ‘a
positive approach to dystonia’ but also to… any other chronic,
incurable, or similar disorder.
I use to say that, of course, I am not a model of anything, and I also
say I trust those people who help you with an extra bit of
understading, something so really expensive to get these days.
‘Understanding’: in my opinion, the best medicine to deal with.
In a simple way, and absolutely far from any interest but showing my
own experience, I have spent long time months designing and developing
a webspace from which I try to help sharing very carefully the best of
me in a practical way and considerating not only physical aspects but
animics too. You can also access to free pro physiotherapy advice.
The url:
Please, this is as yours as mine. Do not doubt doing with it whatever
you feel it can be useful to other people, specially to ill people
close to depression. I feel it can help.
My best wishes,
Fernando
Valencia-Spain