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Message from discussion Remicade and 7 Year old son
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Jeff and Mary Berk  
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 More options Sep 11 2006, 11:09 pm
Newsgroups: alt.support.crohns-colitis
From: "Jeff and Mary Berk" <the5be...@comcast.net>
Date: Mon, 11 Sep 2006 23:09:04 -0400
Local: Mon, Sep 11 2006 11:09 pm
Subject: Re: Remicade and 7 Year old son

i understand as of just in the last few years that children have been on remicade.  read doc's links, i think you will find what you are looking for.  of course, there are precautions to take (like tb testing), be sure to follow his dr's instructions to the letter.
jeff
  "Rob" <rwgu...@hotmail.com> wrote in message news:1IGdndj3soVCApnYnZ2dnUVZ_vqdnZ2d@adelphia.com...
  I tried to read a lot of the posts to see if this has been discussed lately, but didn't see anything, so figured I would ask this group their opinion.

  My 7 year old son has been fighting Crohns for over a year now.  The biggest symptom he had was an anal fissure.  He had surgery for the first time in December 05 and again in February 06.  In March, he was officially diagnosed with Chron's, but we started treating him in February.  He is on Pentasa, Azathioprine and Metronidazol right now (plus some iron to build up his reserves).  They are telling us if this doesn't work, they want to put him on Remicade.  Actually they have been wanting to put him on Remicade for a while, but we've been pushing it off.

  I hear that 6 young adolosents/children have been on Remicade (as well as other pills) and have come down with a fatal Lymphoma.  His grandmother had non hodgkins lymphoma about 7 years ago and is now in remission from it (thank God).  Obviously I am worried about this for him.

  Does anyone have any thoughts on Remicade for children.  Anyone have children on Remicade who can share their experiences?  How many children are even on Remicade?

  Any help would be greatly appreciated.  You can catch me at warth...@yahoo.com.


 
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