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Remicade and 7 Year old son

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Rob

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Sep 10, 2006, 7:29:39 PM9/10/06
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I tried to read a lot of the posts to see if this has been discussed lately, but didn't see anything, so figured I would ask this group their opinion.
 
My 7 year old son has been fighting Crohns for over a year now.  The biggest symptom he had was an anal fissure.  He had surgery for the first time in December 05 and again in February 06.  In March, he was officially diagnosed with Chron's, but we started treating him in February.  He is on Pentasa, Azathioprine and Metronidazol right now (plus some iron to build up his reserves).  They are telling us if this doesn't work, they want to put him on Remicade.  Actually they have been wanting to put him on Remicade for a while, but we've been pushing it off.
 
I hear that 6 young adolosents/children have been on Remicade (as well as other pills) and have come down with a fatal Lymphoma.  His grandmother had non hodgkins lymphoma about 7 years ago and is now in remission from it (thank God).  Obviously I am worried about this for him.
 
Does anyone have any thoughts on Remicade for children.  Anyone have children on Remicade who can share their experiences?  How many children are even on Remicade?
 
Any help would be greatly appreciated.  You can catch me at wart...@yahoo.com.

Doc

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Sep 10, 2006, 8:36:46 PM9/10/06
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"Rob" <rwg...@hotmail.com> wrote in
news:1IGdndj3soVCApnY...@adelphia.com:

Medline has a page regarding Remicade. It mentions children.
http://www.nlm.nih.gov/medlineplus/druginfo/uspdi/203667.html

Overveiw of IBD medications and children
http://www.ccfa.org/info/treatment/kidsmeds

Websites regarding Remicade and children
http://www.medicalnewstoday.com/medicalnews.php?newsid=40982
http://www.webmd.com/content/article/122/114745.htm

Information from Centocor
http://www.centocor.com/news/news_051906.jsp
patient information:
http://www.centocor.com/biomedicines/pdf/REMICADE_PPI.pdf
page 4 has some mention of side effects and children

Sdores

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Sep 11, 2006, 7:28:33 AM9/11/06
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Sorry to hear one so very young has to deal with this disease. I have been
posting here for a few years and actually don't remember any young people
this young being put on the Remicade, so keep asking, even I'd be interested
in keeping an eye on this thread to hear. I wish your son the best of luck
and please do keep us updated. Sorry I can't be of any help. UM MOM Susan

"Rob" <rwg...@hotmail.com> wrote in message
news:1IGdndj3soVCApnY...@adelphia.com...

peterc_7

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Sep 11, 2006, 11:41:11 AM9/11/06
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What about the 5-asa drugs like Asacol, sulfasalizine,etc ?? I have a
16 yo (diagnosed Crohn's at 13) and he's been taking sulfasalizine for
several years now. He has the occasional flair-up, especially when he
eats spicey foods. There are also some anti-biotics used for Crohn's
as well. Check out
www.ccfa.org

Let us know what works for him !

Peter

Paul Hinman

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Sep 11, 2006, 11:59:18 AM9/11/06
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Just for the record, Susan is one of the kindest, most supportive of the regulars in this group, I consider her to be a friend and when she expresses concern is is truly from the heart.

Paul

-- 
Paul S. Hinman - VE6LDS
long West 113 deg 27 min 20 sec
lat  North 53 deg 27 min 3 sec
Maidenhead Locator DO33gk

Jeff and Mary Berk

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Sep 11, 2006, 11:09:04 PM9/11/06
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i understand as of just in the last few years that children have been on remicade.  read doc's links, i think you will find what you are looking for.  of course, there are precautions to take (like tb testing), be sure to follow his dr's instructions to the letter.
jeff

Rob

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Sep 18, 2006, 5:04:26 PM9/18/06
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I'm not sure about 5-asa drugs.  I believe that Metronidazol is an anti biotic especially for Chron's.  We have him close (if not at) the maximum dose now.

--
Rob Warthen
University of Phoenix Online Faculty
RobWa...@email.uophx.edu

Rob

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Sep 18, 2006, 5:04:51 PM9/18/06
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Thanks Paul and thanks Susan.  I really appreciate it.

--
Rob Warthen
University of Phoenix Online Faculty
RobWa...@email.uophx.edu
"Paul Hinman" <paul....@shaw.ca> wrote in message news:qJfNg.527356$Mn5.332883@pd7tw3no...

Rob

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Sep 18, 2006, 5:06:39 PM9/18/06
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Thanks Doc.  Some of these are new to me and some had the same worry I already knew.  :)  Greatly appreciated.
 
Sounds like very few children are on Remicade yet.  Knowing that 6 out of around 400 known children that I know were on Remicade makes me a bit nervous still.  Will be talking to the Doctor more about it when we go back in a couple of weeks.

--
Rob Warthen
University of Phoenix Online Faculty
RobWa...@email.uophx.edu

mgbio

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Sep 18, 2006, 9:40:52 PM9/18/06
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Rob,

You might want to contact the young man who runs the website http://www.ibdcure.org. He was a teenager when he first received Remicade. I don't know if what he learned can help you, but he is very knowledgeable of his disease and the effects it has/had on his growth. Good luck.

:) mgbio

Rob wrote:

> Thanks Doc. Some of these are new to me and some had the same worry I
> already knew. :) Greatly appreciated.
>
> Sounds like very few children are on Remicade yet. Knowing that 6 out
> of around 400 known children that I know were on Remicade makes me a bit
> nervous still. Will be talking to the Doctor more about it when we go
> back in a couple of weeks.
>
> --
> Rob Warthen
> University of Phoenix Online Faculty

> RobWa...@email.uophx.edu <mailto:RobWa...@email.uophx.edu>
>
> "Doc" <d...@oeltd.spam.yechh.net <mailto:d...@oeltd.spam.yechh.net>>


> wrote in message news:Xns983AB32B...@216.168.3.44...

> "Rob" <rwg...@hotmail.com <mailto:rwg...@hotmail.com>> wrote in


> news:1IGdndj3soVCApnY...@adelphia.com:
>
> > I tried to read a lot of the posts to see if this has been discussed
> > lately, but didn't see anything, so figured I would ask this group
> > their opinion.
> >
> > My 7 year old son has been fighting Crohns for over a year now. The
> > biggest symptom he had was an anal fissure. He had surgery for the
> > first time in December 05 and again in February 06. In March, he was
> > officially diagnosed with Chron's, but we started treating him in
> > February. He is on Pentasa, Azathioprine and Metronidazol right now
> > (plus some iron to build up his reserves). They are telling us if
> > this doesn't work, they want to put him on Remicade. Actually they
> > have been wanting to put him on Remicade for a while, but we've been
> > pushing it off.
> >
> > I hear that 6 young adolosents/children have been on Remicade (as
> well
> > as other pills) and have come down with a fatal Lymphoma. His
> > grandmother had non hodgkins lymphoma about 7 years ago and is now in
> > remission from it (thank God). Obviously I am worried about this for
> > him.
> >
> > Does anyone have any thoughts on Remicade for children. Anyone have
> > children on Remicade who can share their experiences? How many
> > children are even on Remicade?
> >
> > Any help would be greatly appreciated. You can catch me at

> > wart...@yahoo.com <mailto:wart...@yahoo.com>.

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