Need help understanding an unclear diagnosis.
jpla...@nospamjuno.com
Initially, the doctor thought the symptoms were classic for a parasite
like giardia. However, after treating her with a strong antibiotic
for a week the problem did not go away. Then he did a colonoscopy
and found that there were a lot of white plaque/lessions throughout
the colon which the doctor described as evidence of inflammation and
ulceration. The originally biopsy came back unclear but ruled out
the possibility of cancer. A 2nd biopsy also came back unclear and
the doctor has said that she has "either a resolving bacterial
infection or IBD". He put her on sulfasalazin which seems to be
resolving her symptoms.
Why can't the lab results come back more clear? Isn't pathology able
to analyze the tissue and determine not only the presence of cancer
but also identify either the bacteria/parasite or an inflamation that
can be classified IBD and even whether it is crohns or ulcerative
colotisis? The doctor has said that, after completing 2 months of
the sulfasalazin he wants to initiate treatment with Azulfidine. Our
doctor does not communicate well and his nurse is even more unclear.
Can anyone help us to better understand what might be going on and how
to get a better understanding of what the doctor is trying to
communicate? Any help will be appreciated
emsy
got food poisoning, along with two other members of my family. That led
to a disasterous series of episodes that left me seriously ill and unable
to walk, talk, eat or sleep for two months. I am still unwell and had to
fly to see a Specialist overseas who diagnosed Crohn's Disease with a
bacterial infection although he couldn't ascertain what it was. I
accepteed my diagnoses and looked in to the anti MAP treatment for Crohn's
Disease (this bacteria is thought to cause Crohn's in some people).
Anyway, after my first appointment with my new Gastroenterologist in my
own country he says he doesn't know if I do have Crohn's, there is no
doubt about bacteria having been there as it's caused damage in the
intestine but he doesn't know if it's Crohn's. He thinks I have post
infectious IBS although my symptoms seem to be very systemic in nature and
it is two years and eleven months since I started with the food poisoning,
I feel as if I still have a bacteria lurking.
I have done parasite cleanses and taken antibiotics too. Nothing much has
helped. I am desperate to be well, prior to this I was never ill.
I would suggest you get your wife a good Gastroenterologist and don't get
swept in to dodgy theories and buying dodgy products. Look at this site
for info, and it may tell you some things about parasites you didn't know,
although it is quite specifically based around two parasites.
Emsy
Sdores
without a diagnosis until my crohn's got so bad I ended up in surgery and
got diagnosed. What symptoms does she have now? Did her dr do any other
tests like bloods, urine, scans or anything else? Sometime they can get a
better diagnosis with more of the tests done. I would suggest you get a gi
who you can communicate with and understand. It is important to be able to
talk to the dr and ask questions and understand what you are being told. If
you haven't visited the Crohn's Colitis Foundation of America the address is
www.ccfa.org to learn more about what IBD is. UM MOM Susan
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Jeff and Mary
there is a difference. believe it or not, some information is gained from
"unspecific" biopsy analysis. i have experience in discussing my biopsy
with my derm doc for my pyoderma gangrenosum (pg). pg is determined, in
part, using a biopsy result of "unspecific". that is to say that things
such as infection, yeast and few other choice nastys are ruled out. if
biopsy was performed in the gi is anything similar to a derm biopsy, this
could help explain this. so it is possible at least you know in part, what
it ain't (such as you say, cancer was ruled out).
jeff
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