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pain clinic even worse than I thought
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Debs  
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 More options Oct 28 2007, 9:34 pm
Newsgroups: alt.support.chronic-pain
From: Debs <YOURFOOTdebs02...@yahoo.com>
Date: Sun, 28 Oct 2007 21:34:02 -0400
Local: Sun, Oct 28 2007 9:34 pm
Subject: pain clinic even worse than I thought
Well... I didn't think that my pain clinic could get any worse than just
basically ignoring me but... they have. I checked my mail tonight,
haven't done that in a while and what do I find in my mail? What could I
have ever found? The ins co OK'd my surgery for Oct 18th and
'somehow'... my pain clinic never knew?? How can it be? My pain Dr said
he wanted to do my surgery on Oct 18th. he repeated this to me over and
over again on my appt with him on Oct 22!!! Now I see in my mail that
the surgery for the 18th was APPROVED!! Is this cruel and unusual? My
pain has increased logarithmically since Aug. I can barely walk and am
trying to make it on a max of 2 hours of sleep a night and my pain could
be way decreased, WAY!!, if I had had the surgery before. Why? Is there
an answer? I will have to deal with this tomorrow but... I am literally
close to cutting off my feet. Nerve pain sucks and I just don't know
what to do. My pain clinic seems to think that nerve pain is nothing,
like a splinter or hang nail. I just couldn't believe my eyes when I
opened that letter. I am getting closer and closer to the saw. No feet
no pain... What's the worst that could happen? NOTHING!!!

Thanks again guys, I just can't see this getting any worse but each time
it just does...What have I done? Really I just can't take it.

Debs


 
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Joe_Z  
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 More options Oct 28 2007, 10:39 pm
Newsgroups: alt.support.chronic-pain
From: "Joe_Z" <J...@botkiller.com>
Date: Mon, 29 Oct 2007 02:39:23 GMT
Local: Sun, Oct 28 2007 10:39 pm
Subject: Re: pain clinic even worse than I thought

"Debs" <YOURFOOTdebs02...@yahoo.com> wrote in message

news:5okrebFn3tnhU1@mid.individual.net...

    They may want you to lower your meds for the surgery but I could be
wrong, maybe just lower it but not cut you off I would think, just my blind
shot in the dark, bestluck to you...Joe

 
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Debs  
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 More options Oct 28 2007, 11:27 pm
Newsgroups: alt.support.chronic-pain
From: Debs <YOURFOOTdebs02...@yahoo.com>
Date: Sun, 28 Oct 2007 23:27:48 -0400
Local: Sun, Oct 28 2007 11:27 pm
Subject: Re: pain clinic even worse than I thought
Thanks for the idea but they don't even give me much in the way of drugs
to start with. They are so damn incompetent! It should be illegal!!
Debs


 
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Hawaiian Wayne  
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 More options Oct 29 2007, 2:04 am
Newsgroups: alt.support.chronic-pain
From: Hawaiian Wayne <birdie...@hotmail.com>
Date: Mon, 29 Oct 2007 06:04:40 -0000
Local: Mon, Oct 29 2007 2:04 am
Subject: Re: pain clinic even worse than I thought
On Oct 28, 5:27 pm, Debs <YOURFOOTdebs02...@yahoo.com> wrote:

Aloha Debs!

First and most important, I'm so sorry that this happened. Have you or
will you be calling the clinic tomorrow to find out whether they even
got the same letter you did or at least an explanation as to how this
could have happened?

You sound worse than I am at checking my "snail mailbox" and I thought
I was the worst! I only check mine twice a month on average. I have my
own P.O. Box along with the 'family's' due to me having my own
accounting business from mid 2002 through December 2004. When the
business ended, I kept the box because there is not such thing as
"street delivery" for USPS mail. Of course there is for UPS, DHL, Fed
Ex and the like and if you are a newcomer to this rural island and
need a P.O. Box, there's a waiting list as long as our arms. I decided
to keep mine not out of greed, but out of necessity in case anything
negative ever happened to my marriage due to this CP. If you can't get
a P.O. Box, then you have to get it "General Delivery" and I don't
like how that "sounds". Makes everyone that has it sound 'homeless',
don't you think?!!? Anyway...

Debs, what I've found to be so very true is to NOT DEPEND on the
clinics, hospitals, doctors office (regular AND specialists that
you're sent to) and so on to make sure they get information they need
for anything on their own. Unfortunately, as if being proactive about
getting the proper treatment for our pain (like just FINDING a good
doctor), we also have to act like the "middle person" between docs
offices and pharmacies, we also have to stay "on top" of our insurance
carrier to make sure that all the necessary paperwork gets to the
proper people, hospital or clinic (and pharmacists in some cases).
That's the 2nd of the THREE steps of something the American People of
old (meaning, in the late 60's and back) never had to give a second
thought about. All the proper infrastructure was set up so if your doc
needed an x-ray of your for your next appt., you can bet that it would
be there without your involvement. Nowadays, the PATIENT has to wade
through the "red tape", get the physical film and hand deliver it to
the doctor when he walked in the little exam room!! (Of course just
recently, now a it's CD that has the films on them.) I'll never forget
the FIRST TIME I had t do that...I'd NOT been to a doctors office for
at LEAST 10 years and no one directly TOLD me to bring my film with
me, it never crossed my mind that it wouldn't be there unless I,
myself, got it and gave it to him! Imagine my astonishment when I
discovered THAT? I was also disgusted that a simple thing like an
orderly or clerk not being able to get x-rays and other films for
doctors and make sure  s/he had them well ahead of time so s/he could
look at them BEFORE the actual appointment. I think another
"joke" (pure sarcasm) is thinking a doctor can flip your films up into
the back-light thingy and in a matter of a minute or less (usually
MUCH less!) be able to tell if there are irregularities! I'd think s/
he'd be able to make a better call if s/he didn't have a patient
nervously staring at them. Don't you?  I felt like some sort of a
"slave" to my own doctor and that what I was doing was something that
I thought I'd always been paying for anyway. It all just seemed to
silly to me.

As usual, I'm going off in my own little story-land again. However,
when I do that, I do hope that there are some who read this and can
relate a little to what I say.

What we all have to do now in order to keep things like what happened
to you from happening to you again or to anyone for the first time is
BE THAT MIDDLE-PERSON!  Call the doctors or surgeons office and see if
they have all the paperwork a week ahead of time, if not, get on your
insurance company's ass. If they say they processed it already and
mailed it to the doctor/surgeon...call them back and tell the lazy
bastards that it's probably sitting in a pile of unopened mail that
came a few days ago on some lowly clerks desk and how VERY IMPORANT it
is that you have all your paperwork (insurance approvals, consent
forms and whatever else they may need) in order because you've been
living in such horrible pain for too long that this surgery has become
a matter of choosing to live of die to you (or something to that
effect, you know? Just make it sound as close to critical as you can
without them thinking you are crazy or going crazy - LOL! OK?) Oh...an
always try your best to keep your COOL. If you start to snap at them
or sound sarcastic or demeaning, they will pour on their defenses,
which they are very good at, and you may get NOTHING done.

I don't know if you've read some posts about how we all have to "play
the GAME by their rules"? Well, this is part of the GAME. We have no
choice but to put up with them and if we play their 'game' correctly,
WE will get what we NEED. If we don't play it correctly and sound like
this is something we only WANT them to do, odds are that after you
hang up the phone, that's all the person on the other end will do to!
We all know that won't do diddly-squat.

So now I guess what you have to do is not to point or play the "blame
game" right now, that won't help in getting your surgery re-set-up,
will it? Just show and tell the doctor what you've discovered and
leave the "blaming someone on his/her staff to them".  Tell him what
you did us without the anger in it and quickly move on to getting this
surgery set up and DONE!

Kile you said, that saw is getting closer and realistically, I believe
you KNOW that isn't the right thing to do. So the sooner you put this
behind you the better and get going. I know it's hard to do that.
Especially when you think you should be recovering right NOW instead
of still SUFFERING, However, facts are facts and we have to play along
as I stated above or nothing will get moving.

This time though, don't forget to stay on top of your insurance
company, and ALL INVOLVED to make sure all the "ducks are in a row".
VERY IMPORTANT!!

Well, that's my 3 cents Debs. For whatever it's worth.

Aloha Just For Now,
Hawaiian Wayne


 
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Debs  
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 More options Oct 29 2007, 2:17 am
Newsgroups: alt.support.chronic-pain
From: Debs <YOURFOOTdebs02...@yahoo.com>
Date: Mon, 29 Oct 2007 02:17:32 -0400
Local: Mon, Oct 29 2007 2:17 am
Subject: Re: pain clinic even worse than I thought
Thanks HW. Too bad I had been in touch with them a couple of times a
week min the whole time... They just lied. Plain simple...lied.
Debs


 
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cllmd  
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 More options Oct 29 2007, 1:36 pm
Newsgroups: alt.support.chronic-pain
From: "cllmd" <cl...@pacbell.net>
Date: Mon, 29 Oct 2007 17:36:18 GMT
Local: Mon, Oct 29 2007 1:36 pm
Subject: Re: pain clinic even worse than I thought
{{{{{{{{{{ Debs }}}}}}}}}

Your pain clinic gets the BOZO award, along with my insurance.  Do they get
paid to keep us in pain?

Does pressing your foot against something make it better or worse?  I can't
imagine the pain your bear.  Hope you don't mind if i pray for ya.

gentle affection,
Lavon

"Debs" <YOURFOOTdebs02...@yahoo.com> wrote in message

news:5okrebFn3tnhU1@mid.individual.net...


 
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Deb Schuback  
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 More options Oct 29 2007, 4:17 pm
Newsgroups: alt.support.chronic-pain
From: Deb Schuback <YOURFOOTdebs02...@yahoo.com>
Date: Mon, 29 Oct 2007 16:17:52 -0400
Local: Mon, Oct 29 2007 4:17 pm
Subject: Re: pain clinic even worse than I thought
Thanks A LOT Lavon. I will take all the help I can get. I feel like I
need a ton right now. Had ANOTHER appt at the clinic today. Wasted 2
hours of my time. Was told would have surgery next Tues. Then told no
way the tuesday after that one and oh yeah, we might have to take the
whole set-up out of you for a few weeks. Mind you I told them I can't
walk without it... Don't they realize they are dealing with actual
living people???

Thanks a ton Lavon. I appreciate it more than I can express,
Debs

--
remove YOURFOOT before responding

 
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Hawaiian Wayne  
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 More options Oct 29 2007, 10:11 pm
Newsgroups: alt.support.chronic-pain
Followup-To: alt.support.chronic-pain
From: Hawaiian Wayne <birdie...@hotmail.com>
Date: Tue, 30 Oct 2007 02:11:24 -0000
Local: Mon, Oct 29 2007 10:11 pm
Subject: Re: pain clinic even worse than I thought
On Oct 29, 10:17 am, Deb Schuback <YOURFOOTdebs02...@yahoo.com> wrote:

Aloha Debs!

I don't know Debs, There's just something about this whole thing
between your insurance company and the doctor and his office that
really rubs me the wrong way besides the obvious wrong.

>From what you've said about your most recent appointment and what's

happened in the recent past, there is an "undertone of dishonesty"
that I can't seem to shake the feeling of.  It's almost like your
doctor wants to do something to you that he KNOWS you wouldn't agree
to (why he would do this without telling you is beyond my scope of
understanding with the few facts I've got). Plus, to add even more
mystery to this 'caper', your insurance company may or may not be a
"co-conspirator".

Now Debs, I'm NOT telling you this to make you or anyone else
paranoid. I've given this a hell of a lot of thought because making us
CPer's even MORE leery than we already ARE dealing with the people
that sometimes (literally) hold our lives in their very hands is
simply something I'd never do on purpose or for ANY reason. I just
can't help feeling that if I were you, someone from the insurance
company has a LOT OF EXPLAINING TO DO and/or your doctor or his 2nd in
command because nothing about how this whole procedure was handled is
meshing into anything that comes close to being logical or seems to
make any kind of SENSE!

Am I the ONLY ONE that *feels* this way? I've never really thought
I've ever been intentionally 'mishandled/mistreated' after the first
18 months of my 10 1/2 years of dealing with any of my docs or my
insurance company. At least when something went the wrong way than it
was supposed to with me, I always got an answer that may or may not
have been the truth, but it was enough to clue me in as to what the
REAL truth was. So I have no "underlying" paranoid feeling towards the
medical profession. It's simply a feeling I have from what you told us
Debs.

It bothers me so much I'd love to have all your contact info for all
those involved and be your advocate on this and get to the BOTTOM of
this fv(k-up simply because after being taken advantage of for the
first 2+ years by the medical profession and then suddenly realizing
what "they" had been up to (doing absolutely unnecessary tests of all
sorts simply because they KNEW my insurance would cover them without
question and padding their pockets with NO REGARD to what "they" were
putting me through - some of those tests and procedures are VERY
painful or as the nurses aid told me once, "I wouldn't call it
"painful", I'd just say it will make you uncomfortable for a little
while." -uh, excuse me?!!? Uncomfortable/painful, painful/
uncomfortable...same thing to ME!) has left an extremely sour taste in
my mouth. Now, whenever a "test" is done, there'd better be a logical
reason for it or I simply refuse to do it. PLUS, when I hear from
others like YOU Debs that are being jerked around and left all alone
with nobody who seems to give a flying poop about your FEELINGS sets
so much RAGE in me I feel like a "Dr. Jekyll/Mr Hyde" at how opposite
the personality that comes out in me! No, I'm not bi-polar. At least
that's ONE thing my shrink hasn't said about me. LOL!

So..they screwed around with you on the first surgery and they've
already started their little "confuse the patient" game on the next.
Not only THAT, but the doc wants to do a procedure that will only
leave you in PAIN! Whats up with that? Why would he even THINK that
way? Doesn't he truly believe that you really ARE in pain?

Answers. Obviously, I need answers and I'd hope to see you be
proactive and GET THEM. OK? I'd at least talk to the insurance company
and try and find out WHY the doctors office didn't get the needed
information on time and if they screw around with you AT ALL, tell
them you're writing the State Insurance Commissioner because you never
get any CORRECT answers from them. THEN see how fast you get what you
WANT. Maybe....OK? If you want help, there's lots of us here that
would be happy to and be sure and include ME.

You need care and you're not getting it. I want to see you as
physically comfy as I am and I'm being very well taken care of as far
as my pain levels and breakthrough (and everything else) goes.
Everyone should be like this.

Sorry for the rant everyone. Now I have to go scrape the frost off of
my b@!!$!  Tsk...

Aloha Just For Now,
Hawaiian Wayne


 
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Debs  
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 More options Oct 29 2007, 10:52 pm
Newsgroups: alt.support.chronic-pain
From: Debs <YOURFOOTdebs02...@yahoo.com>
Date: Mon, 29 Oct 2007 22:52:10 -0400
Local: Mon, Oct 29 2007 10:52 pm
Subject: Re: pain clinic even worse than I thought
Thanks HW! I will let you know what's going on. Is it OK to email you? I
can make more sense when I am not so enraged. :-) Yes the pain clinic is
dicking me around. I am trying to deal with it but don't have the energy
to do a bang up job. It's really not the ins company; it's the pain
clinic. Cruel and unusual. I will email later if you give me the
Okie-Dokie.

Thanks again HW! It means a lot to me. I really can't believe I am at a
pain clinic that's world renowned (sp?)

Debs


 
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Hawaiian Wayne  
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 More options Nov 2 2007, 3:46 am
Newsgroups: alt.support.chronic-pain
Followup-To: alt.support.chronic-pain
From: Hawaiian Wayne <birdie...@hotmail.com>
Date: Fri, 02 Nov 2007 07:46:26 -0000
Local: Fri, Nov 2 2007 3:46 am
Subject: Re: pain clinic even worse than I thought
On Oct 29, 4:52 pm, Debs <YOURFOOTdebs02...@yahoo.com> wrote:

Aloha Debs!

Sorry for the late response, I've had a lousey day with pain and just
being totally tired (plus, a couple of my normally wonderful teeth
have decided to surprise me with some mild aching...AAARRGGG!

Absolutely! Anyone and EVERYONE may email me if and when the reason or
desire comes up. My email is exactly what it says in my profile.  Ha!
When I joined I didn't know that 99% of the membership used fake
profiles so I filled mine out just enough to let people contact me if
they wanted. I always figure if I don't like whoever is emailing me, I
can always block them. I can't remember doing THAT for YEARS and
years!

Yes. This treatment you are dealing with absolutely smells to high
heaven to me. I'm willing to help in any way I possibly can. I hope
you see this.

Maybe I already have your email. If so, I'll send this to YOU. So if
you don't see anything, that means I don't have it.

Aloha Just For Now,
Hawaiian Wayne


 
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