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Recurrent Cancer confirmed.
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ChuckP
Sep 8, 2012, 10:16:13 PM9/8/12
to
I had already vetted a doctor at Fox Chase here in Philadelphia when I saw
my first post op blip only to find that he isn't taking any new patients. I
suspect he is leaving. Found a new man whose practice centers on prostate
cancer and met him yesterday. Some imaging studies and blood work to be
done and we recovene mid October to discuss treatment plans and/or clinical
trials.
I rather expect Lupron for the holidays. Any advice as to best practices
to prepare will be welcome.
I'm back to the books to educate myself on pharmacutical warfare.
RP 6/15/2008 Gleason 5+4 = 9
PSA .1 9/10/2008 3mo post RP. Never became < .1
PSA .4 1/18/2011 then 38 sessions of IMRT 3/24/2011
PSA .4 5/31/2011
PSA .6 1/5/2012
PSA 1.0 4/10/2012
PSA 1.8 8/23/2012 Doubling 4.7 mths per MSK nomogram.
Chuck
my first post op blip only to find that he isn't taking any new patients. I
suspect he is leaving. Found a new man whose practice centers on prostate
cancer and met him yesterday. Some imaging studies and blood work to be
done and we recovene mid October to discuss treatment plans and/or clinical
trials.
I rather expect Lupron for the holidays. Any advice as to best practices
to prepare will be welcome.
I'm back to the books to educate myself on pharmacutical warfare.
RP 6/15/2008 Gleason 5+4 = 9
PSA .1 9/10/2008 3mo post RP. Never became < .1
PSA .4 1/18/2011 then 38 sessions of IMRT 3/24/2011
PSA .4 5/31/2011
PSA .6 1/5/2012
PSA 1.0 4/10/2012
PSA 1.8 8/23/2012 Doubling 4.7 mths per MSK nomogram.
Chuck
Sue Mullen
Sep 8, 2012, 10:31:53 PM9/8/12
to
"ChuckP" wrote in message news:k2gu5e$bg9$1...@dont-email.me...
I had already vetted a doctor at Fox Chase here in Philadelphia when I saw
my first post op blip only to find that he isn't taking any new patients. I
suspect he is leaving.
needed a med onc. If he is leaving, I bet it is to go to Moffit in Florida.
Before things got bad for Kevin we had talked about Moffit and he mentioned
Moffitt was trying to get him to switch. Back then he didn't want to leave
Philly, but maybe with Fox Chase being affiliated with Temple recently he
didn't like the changes.
Found a new man whose practice centers on prostate
cancer and met him yesterday. Some imaging studies and blood work to be
done and we recovene mid October to discuss treatment plans and/or clinical
trials.
I rather expect Lupron for the holidays. Any advice as to best practices
to prepare will be welcome.
I'm back to the books to educate myself on pharmacutical warfare.
great results several people have had with Abireterone. Also Dr Hudes was a
huge fan of it and it is already an approved drug. MDV3100 is another drug
that seems to have great results, but it is still in clinical trials. My
thinking having been there with Kevin, if you can have a drug that is
approved and doing well, I would not go for a clinical trial where you don't
know if you have the real thing or not.
Good luck to you!!
sue
ChuckP
Sep 10, 2012, 12:44:56 AM9/10/12
to
Hi Sue... Thanks for the reply. Hope you're well settled in in your new
venue.
Yes, Gary Hudes in the man. Can't confirm his departure but when I sought
an appointment they just said no new patients. My radiologist at Virtua
"thought" he had left so is sounds like he is in progress and winding down
on current patients. I recall you spoke well of him and sorry I missed him.
New guy is W. Kevin Kelly at Kimmel Cancer at Thomas Jefferson Hosp in
Philly. Great CV and background. A clinician, researcher, professor at TJU
and a nice guy as well.
Until the blood work is done, I won't suggest where my PCa is, other than
being a gleason 9, PSA 1.8, doubling time of 4.7 months.
This of course after failure following surgery and salvage radiation.
I am assembling a list of questions for him at out 10/16 meeting. The delay
due to our taking a trip to Chicago to visit family and friends the next few
weeks. Gives my some time to read up on relevent topics.
Thanks for your input here and in the past as well. You have been valued
contributor,
Happy holidays to you and yours
Chuck
"Sue Mullen" <suem...@frontier.com> wrote in message
news:ab2dcc...@mid.individual.net...
venue.
Yes, Gary Hudes in the man. Can't confirm his departure but when I sought
an appointment they just said no new patients. My radiologist at Virtua
"thought" he had left so is sounds like he is in progress and winding down
on current patients. I recall you spoke well of him and sorry I missed him.
New guy is W. Kevin Kelly at Kimmel Cancer at Thomas Jefferson Hosp in
Philly. Great CV and background. A clinician, researcher, professor at TJU
and a nice guy as well.
Until the blood work is done, I won't suggest where my PCa is, other than
being a gleason 9, PSA 1.8, doubling time of 4.7 months.
This of course after failure following surgery and salvage radiation.
I am assembling a list of questions for him at out 10/16 meeting. The delay
due to our taking a trip to Chicago to visit family and friends the next few
weeks. Gives my some time to read up on relevent topics.
Thanks for your input here and in the past as well. You have been valued
contributor,
Happy holidays to you and yours
Chuck
"Sue Mullen" <suem...@frontier.com> wrote in message
news:ab2dcc...@mid.individual.net...
Gourd Dancer
Sep 10, 2012, 3:11:46 AM9/10/12
to
Chuck, metastases developed?
Gourd Dancer
"ChuckP" wrote in message news:k2jr8g$b78$1...@dont-email.me...
Gourd Dancer
"ChuckP" wrote in message news:k2jr8g$b78$1...@dont-email.me...
ChuckP
Sep 10, 2012, 9:15:35 AM9/10/12
to
That question is what prompts the bone scan and ct scans. I am asymptomatic
at the moment.
He expects both imaging studies to be negative but must know before
development of a treatment plan.
They also set a baseline for any later studies.
Chuck
"Gourd Dancer" <!!!noreply!!!@gmail.com> wrote in message
news:k2k3rn$g8f$1...@dont-email.me...
at the moment.
He expects both imaging studies to be negative but must know before
development of a treatment plan.
They also set a baseline for any later studies.
Chuck
"Gourd Dancer" <!!!noreply!!!@gmail.com> wrote in message
news:k2k3rn$g8f$1...@dont-email.me...
Tom Cular
Sep 10, 2012, 5:48:30 PM9/10/12
to
I have to agree with Sue, clinical trials can be great or you may only be
getting the placebo and become another statistic.
My choice (and that's only my opinion) would be to stick to something with
proven results.
Fox Chase has a very good reputation.
In retrospect, I wish we had gone to MD Anderson in TX for my wife at the
beginning of her cancer issues, maybe, just maybe the outcome might have
been better
getting the placebo and become another statistic.
My choice (and that's only my opinion) would be to stick to something with
proven results.
Fox Chase has a very good reputation.
In retrospect, I wish we had gone to MD Anderson in TX for my wife at the
beginning of her cancer issues, maybe, just maybe the outcome might have
been better
Gourd Dancer
Sep 10, 2012, 5:59:10 PM9/10/12
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Good luck, guy. Since March 2003 I have had 22 bone scans and at CT Scans.
It's always good to keep that baseline marker. With a Gleason 9, you have to
keep an eye on.
After treatment for two mets to my spine, I have been clean on every scan
since February 2005. I was a Gleason 7 (4+3) who's primary treatment failed
within a year. Outside of Androgen patches, I have had no PCa treatment
since February 2010. So far still undetectible.
Keep kicking the bastard.
Gourd Dancer
"ChuckP" wrote in message news:k2lhqh$4t4$1...@dont-email.me...
It's always good to keep that baseline marker. With a Gleason 9, you have to
keep an eye on.
After treatment for two mets to my spine, I have been clean on every scan
since February 2005. I was a Gleason 7 (4+3) who's primary treatment failed
within a year. Outside of Androgen patches, I have had no PCa treatment
since February 2010. So far still undetectible.
Keep kicking the bastard.
Gourd Dancer
"ChuckP" wrote in message news:k2lhqh$4t4$1...@dont-email.me...
sue mullen
Sep 11, 2012, 11:50:38 AM9/11/12
to
On Sep 10, 12:45 am, "ChuckP" <drucel...@comcast.net> wrote:
> Hi Sue... Thanks for the reply. Hope you're well settled in in your new
> venue.
I am getting there, but not fully settled yet. I am replying via
> Hi Sue... Thanks for the reply. Hope you're well settled in in your new
> venue.
google right now, hope this works, since I forgot to change contact
information for my news server.lol
> Yes, Gary Hudes in the man. Can't confirm his departure but when I sought
> an appointment they just said no new patients. My radiologist at Virtua
> "thought" he had left so is sounds like he is in progress and winding down
> on current patients. I recall you spoke well of him and sorry I missed him
friends with Gary, so if he "thinks" Gary is leaving, it is true. . Dr
Ari is very good, sometimes a little hard to understand, but not a
real problem. His head nurse Claire is the best and if you do see her
tell her Kevin Mullen's wife Sue says a big HELLO. The rest of the
staff there is also excellent and very friendly.
sue mullen
Sep 11, 2012, 12:00:08 PM9/11/12
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Using google has me confused.lol
> New guy is W. Kevin Kelly at Kimmel Cancer at Thomas Jefferson Hosp in
> Philly. Great CV and background. A clinician, researcher, professor at TJU
> and a nice guy as well
Jefferson is also supposed to be very good. A woman I knew told me her
husband had PCa and had great results there and he now works withone
of the support groups they have.
> Until the blood work is done, I won't suggest where my PCa is, other than
> being a gleason 9, PSA 1.8, doubling time of 4.7 months.
> This of course after failure following surgery and salvage radiation.
> I am assembling a list of questions for him at out 10/16 meeting.
I am thinking it is time to do some scans to see exactly what is
happening.
The delay
> due to our taking a trip to Chicago to visit family and friends the next few
> weeks. Gives my some time to read up on relevent topics.
Enjoy your trip, family and friends are very important!!
> Thanks for your input here and in the past as well. You have been valued
> contributor,
Thanks, it helps me if I can help just one person here!!
> New guy is W. Kevin Kelly at Kimmel Cancer at Thomas Jefferson Hosp in
> Philly. Great CV and background. A clinician, researcher, professor at TJU
> and a nice guy as well
husband had PCa and had great results there and he now works withone
of the support groups they have.
> Until the blood work is done, I won't suggest where my PCa is, other than
> being a gleason 9, PSA 1.8, doubling time of 4.7 months.
> This of course after failure following surgery and salvage radiation.
> I am assembling a list of questions for him at out 10/16 meeting.
happening.
The delay
> due to our taking a trip to Chicago to visit family and friends the next few
> weeks. Gives my some time to read up on relevent topics.
> Thanks for your input here and in the past as well. You have been valued
> contributor,
sue mullen
Sep 11, 2012, 12:16:17 PM9/11/12
to
Kevin's psa was 0.1 after IMRT. When his psa started to go up he had
scans done and even though he was asymptomatic, the scans showed he
had mets. Hope this is not the case with you, but I agree they will
set a good baseline for you.
sue - who hates using google
On Sep 10, 9:15 am, "ChuckP" <drucel...@comcast.net> wrote:
> That question is what prompts the bone scan and ct scans. I am asymptomatic
> at the moment.
> He expects both imaging studies to be negative but must know before
> development of a treatment plan.
> They also set a baseline for any later studies.
>
> Chuck
>
> "Gourd Dancer" <!!!noreply...@gmail.com> wrote in message
scans done and even though he was asymptomatic, the scans showed he
had mets. Hope this is not the case with you, but I agree they will
set a good baseline for you.
sue - who hates using google
On Sep 10, 9:15 am, "ChuckP" <drucel...@comcast.net> wrote:
> That question is what prompts the bone scan and ct scans. I am asymptomatic
> at the moment.
> He expects both imaging studies to be negative but must know before
> development of a treatment plan.
> They also set a baseline for any later studies.
>
> Chuck
>
sue mullen
Sep 11, 2012, 12:19:28 PM9/11/12
to
On Sep 10, 5:48 pm, "Tom Cular" <tcular...@comcast.net> wrote:
> In retrospect, I wish we had gone to MD Anderson in TX for my wife at the
> beginning of her cancer issues, maybe, just maybe the outcome might have
> been better
Tom, I know how you feel about this. With me I just wish Abireterone
> In retrospect, I wish we had gone to MD Anderson in TX for my wife at the
> beginning of her cancer issues, maybe, just maybe the outcome might have
> been better
had been approved earlier. I believe that if it had been available for
Kevin, he might still be with me today.
sue
Alan Meyer
Sep 11, 2012, 2:21:14 PM9/11/12
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On 9/10/2012 5:48 PM, Tom Cular wrote:
> I have to agree with Sue, clinical trials can be great or you may only be
> getting the placebo and become another statistic.
That's right in many cases, but not all.
> I have to agree with Sue, clinical trials can be great or you may only be
> getting the placebo and become another statistic.
In some trials there is no placebo. The new treatment is measured
against the existing standard of care, e.g., a trial of Abiraterone vs.
Lupon. I wish more trials were done that way.
Also, in some trials that do have placebos, they may provide an option
whereby, if the disease is progressing on the placebo, the patient may
be able to move to the experimental drug. So if a clinical trial looks
interesting, it's necessary to read the details and, if it still looks
interesting, contact a trial site and ask questions.
Even where there is a straight drug vs. placebo, the ratio is not always
1:1. 2:1 is not uncommon nowadays with two people getting the
experimental treatment for each one on placebo.
Clinical trials are chancy. Most new treatments don't work out. But
they are the only path by which treatments advance. Unfortunately, one
of the barriers to progress in treating cancer and other diseases is
that not enough people sign up for clinical trials. Many trials are
abandoned because they can't recruit enough patients. So people who do
join a trial should know that they are doing an important service for
everyone as well as getting a possible shot at a valuable new treatment.
Alan
Alan Meyer
Sep 11, 2012, 2:32:27 PM9/11/12
to
Here are some questions to ask the oncologist:
1. What does he think of single ADT vs. ADT3 (e.g., Lupron, Casodex,
Avodart)?
2. What does he think about Dr. Amato's trial of chemotherapy plus
Lupron for early stage metastasis (Gourd Dancer has done outstandingly
well on this)?
3. What does he think about the Mayo Clinic's new C11 choline PET/CT
scan? The idea is to see if there are localized metastases that can be
treated with curative intent by radiation or surgery. See for example:
http://askdrbarken.wordpress.com/2011/12/25/c-11-choline-petct-scan-dr-eugene-kwon-mayo-clinic/
4. Is it possible or advisable to try Zytiga (Abiraterone) or Xandi
(MDV-3100) this early in treatment?
All of the above are aggressive approaches to medical treatment of PCa.
Numbers 2 and 3 are potentially curative. But all of them put more
demands on the body than the simple shot of Lupron does.
In aggressive treatment, one would begin treatment ASAP. Going the
other way, some doctors recommend waiting for treatment until the PSA
reaches some threshold value - though I should think that is
contraindicated with your PSA doubling time and is also now known to be
less effective than starting treatment early.
Best of luck.
Alan
Sue Mullen
Sep 11, 2012, 5:28:36 PM9/11/12
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"Alan Meyer" wrote in message news:504F83BB...@yahoo.com...
4. Is it possible or advisable to try Zytiga (Abiraterone) or Xandi
(MDV-3100) this early in treatment?
still in clinical trials. The MDV3100 phase III trial Kevin was in, the
placebo was like a sugar pill, it was not an alternative/known treatment.
I think clinical trials are very important, but when you are dealing with
your own life, I would choose a good/known/approved treatment before going
into a clinical trial.
sue
Steve Kramer
Sep 12, 2012, 3:37:01 PM9/12/12
to
Haven't seen what others wrote you, but Dr. Amato is taking a different
course on the "golden standard" of treatment with great success. Of course
it doesn't help that you're in NJ and he's in TX.
If you end up on ADT, the best advice that I can give is Illegtitimati non
carborundum - don't let the bastard wear you down. It was a struggle at
first and I've either defeated or learned to live with every SE. Walking a
lot helps me with a lot of it.
PSA OCT 2000 @ 46
Biopsy NOV 2000 3+4=7, T2c
RRP DEC 2000 3+4=7), T3cN0M0, SVI, Neg margins
PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
EBRT MAY - JULY 2002 @ 47
PSA .34 .22 .15 .21 .32 PSAD 0.56 years
Lupron started JULY 2003 @ 48
PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.40 years
Casodex added JUL 2006 @ 51
Last PSA <0.10 Next draw FEB 2012 @ 58
Illegitimati non carborundum
"ChuckP" wrote in message news:k2gu5e$bg9$1...@dont-email.me...
course on the "golden standard" of treatment with great success. Of course
it doesn't help that you're in NJ and he's in TX.
If you end up on ADT, the best advice that I can give is Illegtitimati non
carborundum - don't let the bastard wear you down. It was a struggle at
first and I've either defeated or learned to live with every SE. Walking a
lot helps me with a lot of it.
PSA OCT 2000 @ 46
Biopsy NOV 2000 3+4=7, T2c
RRP DEC 2000 3+4=7), T3cN0M0, SVI, Neg margins
PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
EBRT MAY - JULY 2002 @ 47
PSA .34 .22 .15 .21 .32 PSAD 0.56 years
Lupron started JULY 2003 @ 48
PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.40 years
Casodex added JUL 2006 @ 51
Last PSA <0.10 Next draw FEB 2012 @ 58
Illegitimati non carborundum
"ChuckP" wrote in message news:k2gu5e$bg9$1...@dont-email.me...
Alan Meyer
Sep 12, 2012, 10:02:44 PM9/12/12
to
name "Xtandi" (I spelled it wrong above). If you or your insurance
company can afford it, they're charging around $7,500 for a month's
supply of pills, you can get it now.
Alan
Tom Cular
Sep 13, 2012, 5:12:05 AM9/13/12
to
Alan,
I agree with your point that not all use placebos and some compare one drug
against the other. I've been clean and good psa's for close to 8 yrs. It's
almost 3 mos. since my wife's passing and I still wonder if we could have
done something better.
Tom
"Alan Meyer" <ame...@yahoo.com> wrote in message
news:504F811A...@yahoo.com...
I agree with your point that not all use placebos and some compare one drug
against the other. I've been clean and good psa's for close to 8 yrs. It's
almost 3 mos. since my wife's passing and I still wonder if we could have
done something better.
Tom
"Alan Meyer" <ame...@yahoo.com> wrote in message
news:504F811A...@yahoo.com...
ChuckP
Sep 14, 2012, 10:02:35 PM9/14/12
to
Apologies for my late response, but sometimes life does get the way.
Thanks to all for your thoughts. I understand and agree with the points re
trails. I'm not sure what trials may be offerred but they will need to
demonstrate that I'm not chancing an unproven treatment or worse, a placebo
which would be non-treatment.
Sue: I will pass on your best wishes next time I'm in Mt. Holly. I had Dr
Fife, not Ari.
.
"Tom Cular" <tcul...@comcast.net> wrote in message
news:k2s816$f9n$1...@dont-email.me...
Thanks to all for your thoughts. I understand and agree with the points re
trails. I'm not sure what trials may be offerred but they will need to
demonstrate that I'm not chancing an unproven treatment or worse, a placebo
which would be non-treatment.
Sue: I will pass on your best wishes next time I'm in Mt. Holly. I had Dr
Fife, not Ari.
.
"Tom Cular" <tcul...@comcast.net> wrote in message
news:k2s816$f9n$1...@dont-email.me...
Sue Mullen
Sep 14, 2012, 11:29:47 PM9/14/12
to
"ChuckP" wrote in message news:k30nk2$eia$1...@dont-email.me...
Apologies for my late response, but sometimes life does get the way.
Thanks to all for your thoughts. I understand and agree with the points re
trails. I'm not sure what trials may be offerred but they will need to
demonstrate that I'm not chancing an unproven treatment or worse, a placebo
which would be non-treatment.
now there are some approved treatments that were not available for Kevin.
Sue: I will pass on your best wishes next time I'm in Mt. Holly. I had Dr
Fife, not Ari.
saw him a couple of times when Dr Ari was not available and liked him. I
just noticed you are going to Mt. Holly, Kevin went to Voorhees, still
mostly the same staff and the Voorhees facility has moved to its new home on
Rte 73.
sue
Tom Cular
Sep 16, 2012, 3:04:55 AM9/16/12
to
Sue,
I never realized you guys were so close, I live in Brick and used to work
from an office in Moorestown.
Tom
news:abib19...@mid.individual.net...
I never realized you guys were so close, I live in Brick and used to work
from an office in Moorestown.
Tom
news:abib19...@mid.individual.net...
Sue Mullen
Sep 16, 2012, 9:35:30 AM9/16/12
to
Tom, we lived in Delanco, Burlington County, just a couple of minutes past
the DMV inspection station and Kevin worked for Lockheed Martin in
Moorestown. It is a very small world.
sue
"Tom Cular" wrote in message news:k33tmo$4bm$1...@dont-email.me...
the DMV inspection station and Kevin worked for Lockheed Martin in
Moorestown. It is a very small world.
sue
"Tom Cular" wrote in message news:k33tmo$4bm$1...@dont-email.me...
Tom Cular
Sep 17, 2012, 4:06:24 AM9/17/12
to
Sue,
Very possibly in the same office campus, Lockhead still has offices there,
on Strawbridge Drive. It's a small world, we speak to folks around the world
and some of us are just around the corner.
news:abm2t1...@mid.individual.net...
Very possibly in the same office campus, Lockhead still has offices there,
on Strawbridge Drive. It's a small world, we speak to folks around the world
and some of us are just around the corner.
news:abm2t1...@mid.individual.net...
Tom Cular
Sep 17, 2012, 4:31:48 AM9/17/12
to
Steve,
I'm in NJ, but if the situation arises, I'll be on the first thing smoking,
heading to TX. My oldest son lives just outside of Austin. From what I've
read and heard, I think MD Anderson is my choice. I only wish we brought my
wife there. I certainly don't say this to demean the care she got here, just
that maybe we could have done better.
Tom
"Steve Kramer" <skr...@cinci.rr.com> wrote in message
news:k2qo91$so4$1...@dont-email.me...
I'm in NJ, but if the situation arises, I'll be on the first thing smoking,
heading to TX. My oldest son lives just outside of Austin. From what I've
read and heard, I think MD Anderson is my choice. I only wish we brought my
wife there. I certainly don't say this to demean the care she got here, just
that maybe we could have done better.
Tom
"Steve Kramer" <skr...@cinci.rr.com> wrote in message
news:k2qo91$so4$1...@dont-email.me...
Steve Kramer
Sep 17, 2012, 3:46:16 PM9/17/12
to
Glen Beck has put considerable money and time into researching cancer cures
(don't know if that is his illness) and he believes MD Anderson where the
cure will come from for all cancers -- and soon.
"Tom Cular" wrote in message news:k36n7i$utq$1...@dont-email.me...
(don't know if that is his illness) and he believes MD Anderson where the
cure will come from for all cancers -- and soon.
"Tom Cular" wrote in message news:k36n7i$utq$1...@dont-email.me...
Sue Mullen
Sep 17, 2012, 6:05:01 PM9/17/12
to
Tom, Kevin was at the main campus on Bordon Landing Rd, but not far from
you. I see you were right off Pleasant Valley which I drove down at least
once a week or more. You must of crossed paths with me or Kevin many time.
This all reminds me of Allan Mathews who also went to FCCC. One day Kevin
and I were sitting in the waiting area and I heard the nurse call Allan. I
jumped up and introduced myself and when Kevin and I were done with the
doctor Allan and his wife were waiting for us. It was so great meeting them
and I wish we had known how close you were so we could of meet.
Speaking of FCCC, I was talking to my friend in Florida who sells insurance
to doctors and knows how to check Dr.s licenses. So far the med onc we used
thanks to you, does not have a Florida license. I wonder if is leaving or is
just so busy he can't take anyone new.
sue
"Tom Cular" wrote in message news:k36lm1$n4k$1...@dont-email.me...
you. I see you were right off Pleasant Valley which I drove down at least
once a week or more. You must of crossed paths with me or Kevin many time.
This all reminds me of Allan Mathews who also went to FCCC. One day Kevin
and I were sitting in the waiting area and I heard the nurse call Allan. I
jumped up and introduced myself and when Kevin and I were done with the
doctor Allan and his wife were waiting for us. It was so great meeting them
and I wish we had known how close you were so we could of meet.
Speaking of FCCC, I was talking to my friend in Florida who sells insurance
to doctors and knows how to check Dr.s licenses. So far the med onc we used
thanks to you, does not have a Florida license. I wonder if is leaving or is
just so busy he can't take anyone new.
sue
"Tom Cular" wrote in message news:k36lm1$n4k$1...@dont-email.me...
Tom Cular
Sep 18, 2012, 5:59:01 PM9/18/12
to
For my nickle, everything I've read and heard points to MD Andersons being
superior. There are great facilities in this area, MSK in NY and FCCC in
Philly, but if my life is on the line I'd like AAA not AA.
news:k37umb$okf$1...@dont-email.me...
superior. There are great facilities in this area, MSK in NY and FCCC in
Philly, but if my life is on the line I'd like AAA not AA.
news:k37umb$okf$1...@dont-email.me...
I.P. Freely
Sep 18, 2012, 6:40:21 PM9/18/12
to
Give me a AAA if there are guarantees, but since there are none, I
include other factors, including convenience. Consider IMRT, for
example: At some distant facility, a 7-week treatment course means three
hours of treatment wrapped in 800 hours of trying to find something to
do, getting fat on restaurant food, trying to get a good night's sleep,
and some lost pay. The same tx near home, if available, means getting to
work a few minutes late. The renown big city rad onc I consulted 220
miles away says that's ludicrous, that it's just not justified by any
facts.
That said, I will take a longer, harder look at the state of the art
IMRT facility 8 minutes from my home, because right now I'd favor
driving that 220X2 miles to and from Seattle each weekend. I do have
some standards.
I.P.
include other factors, including convenience. Consider IMRT, for
example: At some distant facility, a 7-week treatment course means three
hours of treatment wrapped in 800 hours of trying to find something to
do, getting fat on restaurant food, trying to get a good night's sleep,
and some lost pay. The same tx near home, if available, means getting to
work a few minutes late. The renown big city rad onc I consulted 220
miles away says that's ludicrous, that it's just not justified by any
facts.
That said, I will take a longer, harder look at the state of the art
IMRT facility 8 minutes from my home, because right now I'd favor
driving that 220X2 miles to and from Seattle each weekend. I do have
some standards.
I.P.
Steve Kramer
Sep 18, 2012, 7:21:06 PM9/18/12
to
I agree there are more criteria on the decision tree than AA and AAA. I
don't care enough for myself to drop a hundred grand, for instance, for any
treatment. I can send 2� grandchildren to Catholic schools with $100K.
However, for a one or two week treatment that can be followed up on here at
home, I might drive to TX and stay at a hotel. And there are more criteria
than that.
PSA OCT 2000 @ 46
Biopsy NOV 2000 3+4=7, T2c
RRP DEC 2000 3+4=7), T3cN0M0, SVI, Neg margins
PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
EBRT MAY - JULY 2002 @ 47
PSA .34 .22 .15 .21 .32 PSAD 0.56 years
Lupron started JULY 2003 @ 48
PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.40 years
Casodex added JUL 2006 @ 51
Last PSA <0.10 Next draw FEB 2012 @ 58
Illegitimati non carborundum
"I.P. Freely" wrote in message news:qL66s.892$U5...@newsfe01.iad...
don't care enough for myself to drop a hundred grand, for instance, for any
treatment. I can send 2� grandchildren to Catholic schools with $100K.
However, for a one or two week treatment that can be followed up on here at
home, I might drive to TX and stay at a hotel. And there are more criteria
than that.
PSA OCT 2000 @ 46
Biopsy NOV 2000 3+4=7, T2c
RRP DEC 2000 3+4=7), T3cN0M0, SVI, Neg margins
PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
EBRT MAY - JULY 2002 @ 47
PSA .34 .22 .15 .21 .32 PSAD 0.56 years
Lupron started JULY 2003 @ 48
PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.40 years
Casodex added JUL 2006 @ 51
Last PSA <0.10 Next draw FEB 2012 @ 58
Illegitimati non carborundum
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