They want me to try it again.
Pope Pie (Sy Lehrman)
covered with a rash and burning up with fever. They never did culture
anything out of the rash and after feeding me a dozen different
antibiotics and one thing and another, I vaguely recall an episode of
atrial fibulation and just possibly conversations with the fairies. Or
maybe that was one of the nurses.
Anyway, now that I am starting to feel human again they shrug and say I
should try it again. I'm thinking about it. But I'm not happy.
RoseB
I don't blame you for being leery.
You have been through a very scary experience. I wonder why they are
so set on imuran.
Keep us posted.
Rose @}->--
Being educated means that rather than fearing the unknown,
one seeks to understand it.
Please remove "Ima" to reply.
sweetp...@spamknology.net
blame you for being leery (sp) and not being happy.
Gwen
********************************************************
"Worry does not empty tomorrow of its sorrow; it
empties today of its strength."
(Corrie Ten Boom)
"Pope Pie (Sy Lehrman)" <lao...@spam.cox.net> wrote in message
news:uz3rk.2023$Rs1...@newsfe08.iad...
Pope Pie (Sy Lehrman)
> Make them give you their reasons for wanting you to go there again! I don't
> blame you for being leery (sp) and not being happy.
> Gwen
>
loujeanb
and hands and really felt miserable for a week. My doctor wanted to try it
again. I said let's just assume I am allergic to it and try something else.
I think that's the approach I would suggest you take.
--
Navy
Take out the FISH to email me.
"Pope Pie (Sy Lehrman)" <lao...@spam.cox.net> wrote in message
news:Mv5rk.199$Jk...@newsfe01.iad...
Nann Bell
(in message <uz3rk.2023$Rs1...@newsfe08.iad>):
> Anyway, now that I am starting to feel human again they shrug and say I
> should try it again. I'm thinking about it. But I'm not happy.
Can't blame you in the least for being "not happy"! I' want a lot more
assurances from the docs that Immuran had nothing to do with it all. And the
fact that they shrug about it all would not be reassuring at all. If they
don't know what caused it, how can they be sure the Immuran didn't
contribute?
I prefer he approach of my RD wo, after my mysterious, apparent reaction to
Enbrel, refuses to get me anywhere near TNF inhibitors until/unless they
figure out more about what's een going on.
--
Nann
remove the Gator cheer to email me
Change everything. Love & forgive.
Donna G.
Loujean,
Given that the rash he had wasn't an allergic reaction but some type of
infective type rash, it isn't that unreasonable to be asked to try the
medication again.
Imuran can be a very good medication for some and he wasn't on it long
enough to really know if it would work for him or not.
Yes, I would definitely be nervous about it after having what ever
infection he did that caused the rash and with all he went through, but
realistically, ALL of these meds for RA, PA, etc lower our immune
systems and leave us open for infections of all sorts. Hopefully the
infection that made him so sick was just a fluke thing and won't happen
again! Hopefully the Imuran will work for him and he will get to doing
better with regards to his joints.
.
.
.
.
Donna
.
.
.
.
1.) ANGELS EXIST, but some times, since they don't all have wings, we
call them FRIENDS......
2.) J.K.M.A.
Pope Pie (Sy Lehrman)
>
>
>
> Loujean,
>
>
> Given that the rash he had wasn't an allergic reaction but some type of
> infective type rash, it isn't that unreasonable to be asked to try the
> medication again.
>
> Imuran can be a very good medication for some and he wasn't on it long
> enough to really know if it would work for him or not.
>
> Yes, I would definitely be nervous about it after having what ever
> infection he did that caused the rash and with all he went through, but
> realistically, ALL of these meds for RA, PA, etc lower our immune
> systems and leave us open for infections of all sorts. Hopefully the
> infection that made him so sick was just a fluke thing and won't happen
> again! Hopefully the Imuran will work for him and he will get to doing
> better with regards to his joints.
>
infection was or where it came from but it seems to be gone now. Having
taken half the antibiotics known to man and currently taking a course of
antifungal agents there is no specific diagnosis, except that it seems
to have been quite unusual. Everyone seems to agree that it wasn't a
drug reaction and that it wasn't the sort of thing one might expect from
a suppressed immune system.
So the word seems to be to come back a week or two after the fluconazol
is gone and we'll start over.
I think I'll keep a bag packed.
sweetp...@spamknology.net
Gwen
--
***********************************************
The Son of God became man to enable
men to become sons of God. (C S Lewis)
"Pope Pie (Sy Lehrman)" <lao...@spam.cox.net> wrote in message
news:BKnrk.6754$Is1....@newsfe04.iad...
Donna G.
Jim,
Was an infectious disease doctor consulted during all of this?
I have been on Imuran for many many years and it works wonderful for me,
so hope this next try will go better for you, but guess I don't blame
you for being prepared with a packed bag again. Hopefully it was a one
time thing.
Donna G.
Jim,
What dose of the Imuran did they start you on?
Pope Pie (Sy Lehrman)
>
>
> Jim,
>
>
> What dose of the Imuran did they start you on?
>
day of whatever those things are plus some methotrexate on the weekend.
All of that is on hold until some of these other things have run their
course, probably for another couple of weeks. Right now I just have a
gradually diminishing dose of prednisone to keep me going. Sigh.
janers
I was on imuran and every time I puked my guts out an hour after taking it. It went on for days
till rheumy stopped it. No counter meds helped the nausea then severe vomiting.
Of course a few months later she said we could try it again, that maybe just maybe it was a FLUKE as
someone said.
Well no way. It happened again and again so I said NEVER again and that was that.
I would be more than leery. There are other drugs to try and if you had a rash like that and pulse
problems. I for myself would tell them NO way and maybe it is because you can't remember it all but
it sounds to me like life threatening and believe me I have seen plenty
janers
Harvey R. Stone
> I have been on Imuran for many many years and it works wonderful for me,
> so hope this next try will go better for you, but guess I don't blame
> you for being prepared with a packed bag again. Hopefully it was a one
> time thing.
> Donna
> .
hhhhmmmm, Years,,,, You and your doctor must not agree with this page
below. I was thinking of talking to my doctor about it but now I don't
know. Please discuss it some,,,,
http://www.medicinenet.com/azathioprine-oral/article.htm
Harv
loujeanb
that I got sick during. It probably had no connection, and in that case,
sure, try it again. I was thinking of the situation where we need to
communicate with our doctors on things that do make us nervous. We have
enough meds, etc, like you said, to leave us open to infections of all
sorts. So far, I've not had to use the strong medications some of you have
talked about, as far as I know. I hope to learn from all of you of things I
*do* need to watch for. Thanks for all the advice.
--
Navy
Take out the FISH to email me.
"Donna G." <DKGB...@webtv.net> wrote in message
news:25905-48A...@storefull-3112.bay.webtv.net...
Kelly
know in arthritis we take much lower doses. Imuran is similiar and has been
used safely for years for some people. It is similiar to mtx which is why
my doctor doesn't want me taking it (I have quite strong reactions regarding
white blood cells with mtx).
Kelly
"Harvey R. Stone" <hrs...@swbell.net> wrote in message
news:%Vprk.20446$uE5....@flpi144.ffdc.sbc.com...
Harvey R. Stone
Harv
"Kelly" <kell...@shaw.ca> wrote in message
news:psqrk.25505$hx.10725@pd7urf3no...
Donna G.
Well, Harv, I was originally put on the Imuran when I developed my first
full blown episode of interstitial lung which at that point they weren't
sure whether it was from the mtx or from the RA. So, they pulled me off
of the mtx and put me on high dose pred and Imuran. The Imuran is often
used in cases of interstitial lung. In any case, I have been on it at
200 mg a day for about 9 years or so now. Started off at 100 mg
initially. After I developed several additional problems with wide
spread interstitial lung, we finally were able to track that it was from
the RA and not from the mtx. So, I stayed on it, along with mtx,
rituxan, and pred. This is the regimen that works for me. My RA has
primarily attacked more of my organs than joints, thus the heavy duty
regimen. The mtx and the rituxan have probably equally as serious
warnings of side effects, but as we all know, the RA can do some very
serious damage as well. So, sometimes we take our chances with the
more powerful meds and hope that we do ok with them. For me, this has
meant a whole lot less attacks of iritis, pericarditis, saliva gland
inflammations, interstitial lung flare ups, etc.
Nann Bell
discover a way to reset our immune systems to only attack what we want them
to...............
--
Nann
remove the Gator cheer to email me
Change everything. Love & forgive.
On Thu, 21 Aug 2008 23:50:29 -0400, Donna G. wrote
(in message <25905-48A...@storefull-3112.bay.webtv.net>):