My brother-in-law seems to be getting weak. He can hardly stand from his
walker.
He tells another"person" although no one present in the room to call my
sister to help him. When it is really my sister he is talking to. Could he
be forgetting what she looks like? He talks to other people in the room, and
no one is there but her.
My brother-in-law complains about his ankle hurting him. We took him to the
ER. They x-rayed, did a ultra sound but could not find anything wrong. I
don't think he is making it up because he seems to be writhing in pain. The
doctor gave him pain medication but he sleeps a lot from it.
He has this far away look on his face and he stares without moving his eyes
at all.
He seems to be in the middle stages of this dreadful disease. We can't take
him out to dinner anymore or just shopping.
Thanks for listening and if anyone has any feedback, please write.
BRI
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My sister-in-law seemed to regress to earlier days and would talk to her
deceased parents and brother as if they were there with her. It brought us a
small sense of relief to think that she might be, in her mind at least, with
her loved family of years ago. Maybe your brother-in-law is experiencing a
similar going back to good old days.
Bud
Hi Brianna,
I can't help but really feel sorry for your poor sister, and anyone
else who is going through this caring for a loved one. I remember
when we realized we couldn't take my mother in law out socially
anymore. She would get so confused and actually forgot who I was on
one occasion. After that I realized she was even less cognizant than
we imagined she was. This is quite sadly, a downhill journey. It
doesn't get any better, it just gets worse. That is just the way it
is, unfortunately. There are meds that can help, but only a
little. Sometimes we were very grateful for that much.
I am glad she is in touch with doctors and getting him medical help.
They often can't explain that they have pain, or where it hurts or
what is exactly hurting. My mother in law was developing pancreatic
cancer and could not articulate that she had any pain or where it
was. The only evidence we saw, was that she ate sparingly and only
liked homemade soup. I suppose it was easier to digest, though I
don't really know.
If the medication is making him sleepy, that may actually be a good
thing. It is better than being paranoid or violent or accusatory or
aggressive. All of those things are possible. At least if he is
sleepy he is probably a little easier to deal with.
But always remember they don't have control over any of that like a
normal person would. Alzheimers is a real organic brain disease that
is actually visible in diagnostic tests, like PET scans etc.
Your sister is lucky to have you to help her out. We had no other
family to help, but we did have a wonderful neighbor who occasionally
granny-sat for us, which helped us save our sanity when it was rough.
Evelyn
My brother-in-law talks to his deceased parents and brother too. Sometimes he
talks about things and we cannot make heads or tails out of it because we
don't know who he is talking about.
Thank you for answering. It helps us very much to understand.
Bri
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Evelyn,
Thank you for your feed back. You don't know how much we appreciate your
answers.
It is like you said, it is a good thing he can sleep with the medication
because he isn't as agressive or mean to my sister.
Today, we went to the bank to take care of business and he was just looking
at other people to see what they were doing. Never interested in what the
bank teller was saying. Before he had this sickness he would be in there
reading every line and made sure they knew what they were doing.
Today, he didn't seem to care.
Thank you again,
Bri
I doubt he was making it up either; the pain he felt he may have felt
someplace else and simply gave the wrong word for; thus, 'ankle' when
he meant pain in his shin, knee, hip, abdomen, etc... Or, who knows,
he may have been reliving a previous pain in his life and recalling
how bad it made him feel then. From what I know, people with AD often
regress to about the age of 14 to 25 at least emotionally, maybe he
was reliving some injury from back then as well? Hard to say, but no
matter what it was, I'm glad he got treated for it anyway. Pain is
what the patient says it is, IMO. Sorry this is happening to him and
your family.
>
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Brianna,
I'm so sorry to hear of the very tough times your BIL, sister and you
have been and still going through. This disease maimes, disables and
kills equal to AIDS, yet there is no medicine for it in the richest
country of the world except to fend for yourself. Shame on America. The
only thing we can get for chronic illnesses is 'bandaid' medicine. It's
pain pills, anti-depressants or nothin' at all.
EddyJean
Thank you for your feed back. My brother-in-law does not take anti-
depressants. He takes Seroquel and it is our understanding the medication
helps him to combat agressiveness. My sister takes very good care of him and
he is not in a nursing home. We need to talk to the doctor about this
medication and find out more about it.
I will do research on Crohn's disease and see if he has any of those symptoms.
Thanks again,
Bri
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The older we get, the fewer things seem worth waiting in line for.
"brianna_1938 via MedKB.com" <u35594@uwe> wrote in message
news:8764991715064@uwe...
Bri, please pay no mind to the troll. She isn't even suggesting that
people who take antidepressants get crohns disease, but the people who
are in the vicinity of someone taking anti depressants. Needless to
say, it is a strange and unscientific idea, and something that is just
her delusion. Pay no mind to it. You'll be a lot happier. Listen to
your doctor instead.
Evelyn
Than you for answering. I am certain he is getting good care. If he is
not in the nursing home, which is good fortune for him, where is he.
I assume at home.
It is too bad that nursing homes use anti-depressants when they can use
other medication, like Valium which will harm no one and help the person
that needs it. I have no objection to a nursing home except for the
anti-depressants. They are a newer medication, I believe only the last 50
years or so. For some strange reason they are harmful to others that are
vulnerable. I also recognize the good they do, if not for this exceedingly
sad side effect. I will not bother answering the other posts, because
their minds are set that I do not know what I am talking about. I wish
they were right and I were wrong.
In the meantime, I hope your brother in law is comfortable and even
improving a little. I will pray that he is not in pain or unaware of the
good care he is receiving. Since he is not in a nursing home, there is no
danger of crohns disease.
But if you want to read about it, there is group on this usenet titled Alt.
support crohns-colitis. Sometimes I think it is better to know nothing
of the illness.
Sincerely
Gail
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Gail:
I don't understand it but you've been consistent from the start and care
about your fellowman. While I've not had good experiences with
anti-depressants, I do think some people are helped.There are unsolved
mysteries in the world and feel nowadays, anything can happen. As the
saying goes, sometimes truth is stranger than fiction. Thank you for
reporting it.
EddyJean
Hello Gail,
My brother-in-law is at home. He gets the best of care here. My sister
makes sure he is bathed, fed and takes his medication. She makes sure he
gets a haircut and does not miss his doctor's appointment. He is very
fortunate but since he does have this dreadful disease, he seems
unappreciative. He is mean, foul mouth and paranoid all the time.
We pray everyday for his well being. He is comfortable at home and as long
as she can care for him, he will stay at home. I try to help as much as I
can. But pretty soon, I am going to have surgery on my knee but I won't be
down for a long time. I will stay in bed and be out of the way.
Thank you, Gail,
I can truly relate to her situation, Bri. Anyone who has had first
hand experience in dealing with a person who has the illness can
understand. They get obsessed with some crazy idea and there is no
turning them away from it. My mother in law was always nurturing
some obsession ......until the next one would come along, and then it
would be that one, either for a few weeks or months or however
long.
Your sister may need to be very cagey about how she handles things
with the money especially. She worked all those years and it could
easily be argued that he was ABLE to save money because she used hers
to support the family's other needs, therefore she probably has every
much as right to it as he does.
But as we have said before, it isn't about what is fair or right
anymore. Alzheimers has its own set of rules and they may have
absolutely no connection whatsoever to what is actually right or fair.
Regards,
Evelyn