I pray every day for guidance and I firmly believe God helps.
My brother-in-law seems to be getting weak. He can hardly stand from his walker.
He tells another"person" although no one present in the room to call my sister to help him. When it is really my sister he is talking to. Could he be forgetting what she looks like? He talks to other people in the room, and no one is there but her. My brother-in-law complains about his ankle hurting him. We took him to the ER. They x-rayed, did a ultra sound but could not find anything wrong. I don't think he is making it up because he seems to be writhing in pain. The doctor gave him pain medication but he sleeps a lot from it. He has this far away look on his face and he stares without moving his eyes at all. He seems to be in the middle stages of this dreadful disease. We can't take him out to dinner anymore or just shopping.
Thanks for listening and if anyone has any feedback, please write. BRI
> He tells another"person" although no one present in the room to call my > sister to help him. When it is really my sister he is talking to. Could he > be forgetting what she looks like? He talks to other people in the room, and > no one is there but her. ... > Thanks for listening and if anyone has any feedback, please write. > BRI
My sister-in-law seemed to regress to earlier days and would talk to her deceased parents and brother as if they were there with her. It brought us a small sense of relief to think that she might be, in her mind at least, with her loved family of years ago. Maybe your brother-in-law is experiencing a similar going back to good old days.
> I pray every day for guidance and I firmly believe God helps.
> My brother-in-law seems to be getting weak. He can hardly stand from his > walker.
> He tells another"person" although no one present in the room to call my > sister to help him. When it is really my sister he is talking to. Could he > be forgetting what she looks like? He talks to other people in the room, and > no one is there but her. > My brother-in-law complains about his ankle hurting him. We took him to the > ER. They x-rayed, did a ultra sound but could not find anything wrong. I > don't think he is making it up because he seems to be writhing in pain. The > doctor gave him pain medication but he sleeps a lot from it. > He has this far away look on his face and he stares without moving his eyes > at all. > He seems to be in the middle stages of this dreadful disease. We can't take > him out to dinner anymore or just shopping.
> Thanks for listening and if anyone has any feedback, please write. > BRI
I can't help but really feel sorry for your poor sister, and anyone else who is going through this caring for a loved one. I remember when we realized we couldn't take my mother in law out socially anymore. She would get so confused and actually forgot who I was on one occasion. After that I realized she was even less cognizant than we imagined she was. This is quite sadly, a downhill journey. It doesn't get any better, it just gets worse. That is just the way it is, unfortunately. There are meds that can help, but only a little. Sometimes we were very grateful for that much.
I am glad she is in touch with doctors and getting him medical help. They often can't explain that they have pain, or where it hurts or what is exactly hurting. My mother in law was developing pancreatic cancer and could not articulate that she had any pain or where it was. The only evidence we saw, was that she ate sparingly and only liked homemade soup. I suppose it was easier to digest, though I don't really know.
If the medication is making him sleepy, that may actually be a good thing. It is better than being paranoid or violent or accusatory or aggressive. All of those things are possible. At least if he is sleepy he is probably a little easier to deal with.
But always remember they don't have control over any of that like a normal person would. Alzheimers is a real organic brain disease that is actually visible in diagnostic tests, like PET scans etc.
Your sister is lucky to have you to help her out. We had no other family to help, but we did have a wonderful neighbor who occasionally granny-sat for us, which helped us save our sanity when it was rough.
Bud wrote: >> He tells another"person" although no one present in the room to call my >> sister to help him. When it is really my sister he is talking to. Could he >> be forgetting what she looks like? He talks to other people in the room, and >> no one is there but her. >... >> Thanks for listening and if anyone has any feedback, please write. >> BRI
>My sister-in-law seemed to regress to earlier days and would talk to her >deceased parents and brother as if they were there with her. It brought us a >small sense of relief to think that she might be, in her mind at least, with > her loved family of years ago. Maybe your brother-in-law is experiencing a >similar going back to good old days.
>Bud
My brother-in-law talks to his deceased parents and brother too. Sometimes he talks about things and we cannot make heads or tails out of it because we don't know who he is talking about.
Thank you for answering. It helps us very much to understand.
>I can't help but really feel sorry for your poor sister, and anyone >else who is going through this caring for a loved one. I remember >when we realized we couldn't take my mother in law out socially >anymore. She would get so confused and actually forgot who I was on >one occasion. After that I realized she was even less cognizant than >we imagined she was. This is quite sadly, a downhill journey. It >doesn't get any better, it just gets worse. That is just the way it >is, unfortunately. There are meds that can help, but only a >little. Sometimes we were very grateful for that much.
>I am glad she is in touch with doctors and getting him medical help. >They often can't explain that they have pain, or where it hurts or >what is exactly hurting. My mother in law was developing pancreatic >cancer and could not articulate that she had any pain or where it >was. The only evidence we saw, was that she ate sparingly and only >liked homemade soup. I suppose it was easier to digest, though I >don't really know.
>If the medication is making him sleepy, that may actually be a good >thing. It is better than being paranoid or violent or accusatory or >aggressive. All of those things are possible. At least if he is >sleepy he is probably a little easier to deal with.
>But always remember they don't have control over any of that like a >normal person would. Alzheimers is a real organic brain disease that >is actually visible in diagnostic tests, like PET scans etc.
>Your sister is lucky to have you to help her out. We had no other >family to help, but we did have a wonderful neighbor who occasionally >granny-sat for us, which helped us save our sanity when it was rough.
>Evelyn
Evelyn, Thank you for your feed back. You don't know how much we appreciate your answers.
It is like you said, it is a good thing he can sleep with the medication because he isn't as agressive or mean to my sister.
Today, we went to the bank to take care of business and he was just looking at other people to see what they were doing. Never interested in what the bank teller was saying. Before he had this sickness he would be in there reading every line and made sure they knew what they were doing. Today, he didn't seem to care.
> I pray every day for guidance and I firmly believe God helps.
> My brother-in-law seems to be getting weak. He can hardly stand from his > walker.
> He tells another"person" although no one present in the room to call my > sister to help him. When it is really my sister he is talking to. Could he > be forgetting what she looks like? He talks to other people in the room, and > no one is there but her. > My brother-in-law complains about his ankle hurting him. We took him to the > ER. They x-rayed, did a ultra sound but could not find anything wrong. I > don't think he is making it up because he seems to be writhing in pain. The > doctor gave him pain medication but he sleeps a lot from it. > He has this far away look on his face and he stares without moving his eyes > at all. > He seems to be in the middle stages of this dreadful disease. We can't take > him out to dinner anymore or just shopping.
> Thanks for listening and if anyone has any feedback, please write. > BRI
I doubt he was making it up either; the pain he felt he may have felt someplace else and simply gave the wrong word for; thus, 'ankle' when he meant pain in his shin, knee, hip, abdomen, etc... Or, who knows, he may have been reliving a previous pain in his life and recalling how bad it made him feel then. From what I know, people with AD often regress to about the age of 14 to 25 at least emotionally, maybe he was reliving some injury from back then as well? Hard to say, but no matter what it was, I'm glad he got treated for it anyway. Pain is what the patient says it is, IMO. Sorry this is happening to him and your family.
You asked for feedback, and this is my rejpititious feedback. Not pleasant to hear, but I see it in the nursing home I visit. You can be pretty certain your brother in law's ankle is hurting and he cannot sort out his condition. To everybody's consternation, I will repeat what is probably taking place. Some people are receiving anti-depressants and some are not in the nursing home. Anti-depressants and all stimulants have the capacity to harm innocent people by a mind/body connection. When the people that take anti-depressants talk to or observe another patient constantly, there is the uncanny ability for their anti-depressant to send harm to an innocent person. Strange and weird, that is apparently a symptom of crohns disease, which your brother in law would not experience except for the anti-depressant use in the nursing home. One male nurse and one patient had ankle pain for no apparent reason in the home I visit, The nurse quit his job when I told him it was a patient observing him constantly at his desk duties by sitting close by. The following week, he said the doctor diagnosed his condition as Crohns disease. The other, a woman who was not there for ill health, just an older woman who made herself so visible, and suffered constantly with a swollen stomach finally could not walk and said her feet or ankles hurt. They took her to the hospital and brought her back and she stays in bed all the time with tubes for feeding. The administrator said at the time she went to the hospital, she was resigned to dying. I knew however, if she got out of the nursing home, it could be the break she needed. I am angry at the nursing home for giving anti-depressants to some residents when they should be banned entirely. Another in law of ours was in a nursing home with alzheimers in addition to not being able to care for herself, and she had an obstruction that required an operation. She lived a short time afterward. I was not aware at the time that anti-depressants were used everywhere, but now know this and I see the consequences, where the administrators think everything is a natural progression of illness. IT IS NOT. I am writing so that you may understand your brother in law better when he complains of his ankles. It is VERY LIKELY that his ankles are hurting. What to do? That is my eternal question. No one would suffer these "extra" condition if they would ban the anti-depressants. Now everyone can dispute me as is usually the case, but I maintain it is so, and your brother in law desterves understanding. Gail Michael
Group: alt.support.alzheimers Date: Tue, Jul 15, 2008, 9:00pm (PDT+7) From: u35594@uwe (brianna_1938 via MedKB.com) I pray every day for guidance and I firmly believe God helps. My brother-in-law seems to be getting weak. He can hardly stand from his walker. He tells another"person" although no one present in the room to call my sister to help him. When it is really my sister he is talking to. Could he be forgetting what she looks like? He talks to other people in the room, and no one is there but her. My brother-in-law complains about his ankle hurting him. We took him to the ER. They x-rayed, did a ultra sound but could not find anything wrong. I don't think he is making it up because he seems to be writhing in pain. The doctor gave him pain medication but he sleeps a lot from it. He has this far away look on his face and he stares without moving his eyes at all. He seems to be in the middle stages of this dreadful disease. We can't take him out to dinner anymore or just shopping. Thanks for listening and if anyone has any feedback, please write. BRI -- Message posted via http://www.medkb.com
&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&& Brianna, I'm so sorry to hear of the very tough times your BIL, sister and you have been and still going through. This disease maimes, disables and kills equal to AIDS, yet there is no medicine for it in the richest country of the world except to fend for yourself. Shame on America. The only thing we can get for chronic illnesses is 'bandaid' medicine. It's pain pills, anti-depressants or nothin' at all.
news.chi.sbcglobal.net wrote: >You asked for feedback, and this is my rejpititious feedback. Not pleasant >to hear, but I see it in the nursing home I visit. You can be pretty >certain your brother in law's ankle is hurting and he cannot sort out his >condition. To everybody's consternation, I will repeat what is probably >taking place. Some people are receiving anti-depressants and some are not >in the nursing home. Anti-depressants and all stimulants have the capacity >to harm innocent people by a mind/body connection. When the people that >take anti-depressants talk to or observe another patient constantly, there >is the uncanny ability for their anti-depressant to send harm to an innocent >person. Strange and weird, that is apparently a symptom of crohns >disease, which your brother in law would not experience except for the >anti-depressant use in the nursing home. One male nurse and one patient >had ankle pain for no apparent reason in the home I visit, The nurse quit >his job when I told him it was a patient observing him constantly at his >desk duties by sitting close by. The following week, he said the doctor >diagnosed his condition as Crohns disease. The other, a woman who was not >there for ill health, just an older woman who made herself so visible, and >suffered constantly with a swollen stomach finally could not walk and said >her feet or ankles hurt. They took her to the hospital and brought her >back and she stays in bed all the time with tubes for feeding. The >administrator said at the time she went to the hospital, she was resigned to >dying. I knew however, if she got out of the nursing home, it could be the >break she needed. I am angry at the nursing home for giving >anti-depressants to some residents when they should be banned entirely. >Another in law of ours was in a nursing home with alzheimers in addition to >not being able to care for herself, and she had an obstruction that required >an operation. She lived a short time afterward. I was not aware at the >time that anti-depressants were used everywhere, but now know this and I see >the consequences, where the administrators think everything is a natural >progression of illness. IT IS NOT. I am writing so that you may >understand your brother in law better when he complains of his ankles. It >is VERY LIKELY that his ankles are hurting. What to do? That is my >eternal question. No one would suffer these "extra" condition if they >would ban the anti-depressants. >Now everyone can dispute me as is usually the case, but I maintain it is so, >and your brother in law desterves understanding. >Gail Michael
Thank you for your feed back. My brother-in-law does not take anti- depressants. He takes Seroquel and it is our understanding the medication helps him to combat agressiveness. My sister takes very good care of him and he is not in a nursing home. We need to talk to the doctor about this medication and find out more about it. I will do research on Crohn's disease and see if he has any of those symptoms.
Bri, you can believe all this stuff if you want to, but it is foolishness to believe that my taking antidepressants can harm another person who talks to me, or sees me. And saying that all antidepressant should be banned is pure silliness. I take an antidepressant because I need it. If I don't, I cry at the drop of a hat and can't seem to find a place to stop. When I take it, I very seldom cry. Chrons disease is not caused by antidepressants. It is a stomach, bowel problem! Gwen
************************************************************************ The older we get, the fewer things seem worth waiting in line for.
news.chi.sbcglobal.net wrote: >You asked for feedback, and this is my rejpititious feedback. Not >pleasant >to hear, but I see it in the nursing home I visit. You can be pretty >certain your brother in law's ankle is hurting and he cannot sort out his >condition. To everybody's consternation, I will repeat what is probably >taking place. Some people are receiving anti-depressants and some are >not >in the nursing home. Anti-depressants and all stimulants have the >capacity >to harm innocent people by a mind/body connection. When the people that >take anti-depressants talk to or observe another patient constantly, there >is the uncanny ability for their anti-depressant to send harm to an >innocent >person. Strange and weird, that is apparently a symptom of crohns >disease, which your brother in law would not experience except for the >anti-depressant use in the nursing home. One male nurse and one patient >had ankle pain for no apparent reason in the home I visit, The nurse quit >his job when I told him it was a patient observing him constantly at his >desk duties by sitting close by. The following week, he said the doctor >diagnosed his condition as Crohns disease. The other, a woman who was not >there for ill health, just an older woman who made herself so visible, and >suffered constantly with a swollen stomach finally could not walk and said >her feet or ankles hurt. They took her to the hospital and brought her >back and she stays in bed all the time with tubes for feeding. The >administrator said at the time she went to the hospital, she was resigned >to >dying. I knew however, if she got out of the nursing home, it could be >the >break she needed. I am angry at the nursing home for giving >anti-depressants to some residents when they should be banned entirely. >Another in law of ours was in a nursing home with alzheimers in addition to >not being able to care for herself, and she had an obstruction that >required >an operation. She lived a short time afterward. I was not aware at the >time that anti-depressants were used everywhere, but now know this and I >see >the consequences, where the administrators think everything is a natural >progression of illness. IT IS NOT. I am writing so that you may >understand your brother in law better when he complains of his ankles. It >is VERY LIKELY that his ankles are hurting. What to do? That is my >eternal question. No one would suffer these "extra" condition if they >would ban the anti-depressants. >Now everyone can dispute me as is usually the case, but I maintain it is >so, >and your brother in law desterves understanding. >Gail Michael
Thank you for your feed back. My brother-in-law does not take anti- depressants. He takes Seroquel and it is our understanding the medication helps him to combat agressiveness. My sister takes very good care of him and he is not in a nursing home. We need to talk to the doctor about this medication and find out more about it. I will do research on Crohn's disease and see if he has any of those symptoms.
