MERGE Myalgic Encephalomyelitis Research Group 2005
ys...@juno.com
<http://www.meresearch.org.uk/index.html> MERGE e-Newsletter
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ME Awareness Week, 9th to 15th May 2005
Welcome to this edition of MERGE's e-Newsletter. Read here about our
latest
research news, recent events, and how you can help us to energise ME
research. Click the links for further details on each item. Please feel
free
to forward this e-newsletter to your friends so they can
<http://www.meresearch.org.uk/about/register.html> register for future
issues.
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HEADLINE NEWS
*
ME Awareness Week E-Cards. Why not send your "Best Wishes" to a
friend <http://www.meresearch.org.uk/about/ecard.html> on one of our
<http://www.meresearch.org.uk/about/ecard.html> special e-cards to mark
ME
Awareness Week. We have three to choose from: Inner lights with ME
(pictured
right) by Moira Robb; Moroccan Door with Cats by Nye Stenning; and the
intriguing Lotus in a Seemingly Round Bowl. Just make your choice,
create
your own personal message, and click! We shall send your friend the
e-card
during ME Awareness Week.
*
Shopping for Research. We are now registered with
<http://www.meresearch.org.uk/friends/shopping.html> UshopUgive, the
internet shopping website. It's quick, it's free and (with your help)
shopping this way could generate significant funds (on average a
generous 2%
of your total spend) for the advances in biomedical research that we
all
want to see. AND For a one-week period during ME Awareness Week - from
9th
to 15th May 2005 - UshopUgive will be
<http://www.ushopugive.com/default.asp?charid=637> donating 50p to us
for
every user who registers free on the
<http://www.ushopugive.com/default.asp?charid=637> UshopUgive site and
indicates on the site that they are doing so on behalf of MERGE.
*
A lark in the Clear Air. Our chairman, Dr Vance Spence, will be
taking part in a whirlwind series of talks and interviews all over
<http://www.meresearch.org.uk/friends/events.html> Ireland during ME
Awareness Week to stress the need for biomedical research into ME.
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ME Research News
* Read the presentation,
<http://www.meresearch.org.uk/melibrary/publications/parliament/parliamentpr
es1.html> Biomedical research in ME/CFS: issues and challenges, given
by our
Chairman, Dr Vance Spence, at the
<http://www.meresearch.org.uk/archive/parliament.html> Cross Party
Group on
ME reception for MSPs, members and scientists at the Scottish
Parliament.
* The Need for Subtypes. This
<http://www.ingentaconnect.com/content/klu/nerv/2005/00000015/00000001/00003
588;jsessionid=63no0924l1ad7.victoria> important new review highlights
the
pressing need for greater clarity in the diagnosis of ME/CFS.
* Dr David Newton has written
<http://www.meresearch.org.uk/research/sponsored/nontech.html>
non-technical
summaries of some of our research projects to date. These should help
readers without a medical or scientific background better understand
recent
work.
* Altered muscle excitability. An
<http://www.meresearch.org.uk/archive/muscle.html> intriguing
scientific
paper has just been published which strengthens the arguments for
abnormal
redox signalling in the muscle of CFS patients.
*
Get acquainted with ME/CFS research publications by downloading our
free
<http://www.meresearch.org.uk/melibrary/publications/researchdatabase/index.
html> database of 3000+ research abstracts (including those from the
<http://www.haworthpress.com/web/JCFS/> Journal of Chronic Fatigue
Syndrome)
from 1966 onwards, and the list of papers on ME epidemics from 1934 to
1980
collated by Dr J. Gordon Parish.
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Recent Events
*
Visit our <http://www.meresearch.org.uk/friends/recent.html> recent
events and <http://www.meresearch.org.uk/friends/events.html> upcoming
events webpages to see what's been happening in the world of the
<http://www.meresearch.org.uk/friends/index.html> Friends of MERGE.
Remember, YOUR narrative contributions to the
<http://www.meresearch.org.uk/friends/voices.html> Patient Voices
section of
our website are most welcome. And download our poster
<http://www.meresearch.org.uk/about/MERGE%20poster.pdf> here.
* The latest issue of Breakthrough, our 8-page printed glossy
magazine, is available, and has just been distributed to Friends and
supporters. If you are not on our Friends list and would like a copy,
please
e-mail <http://www.meresearch.org.uk/about/contact.html> headquarters.
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Ways To Help Us
MERGE receives no government funding and relies on donations from other
charitable trusts, and from donations and legacies from members of the
public. <http://www.meresearch.org.uk/friends/helpmerge.html#online>
Donations through our website to help us "energise ME research" can now
be
made via the Charities Aid Foundation efundraising service. Also, our
donations page has all the information you need on making a
<http://www.meresearch.org.uk/friends/helpmerge.html#order> regular
donation
to us by Standing order, Inland Revenue Self-Assessment, or the Give As
You
Earn scheme. For example, if your workplace has a
<http://www.hmrc.gov.uk/payrollgiving/index.htm> Payroll Giving Scheme,
and
you are taxed through PAYE, you can donate to MERGE direct from your
wages,
and it's tax-free!
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Revolving Links of Interest
*
<http://www.brame.org/> Brame - blue ribbon awareness of ME
*
<http://www.nlm.nih.gov/medlineplus/understandingmedicalresearch.html>
National Institutes of Health site on Understanding Medical Research
*
<http://listserv.nodak.edu/archives/co-cure.html> Co-cure -
international News on ME
*
<http://www.afme.org.uk/> Action for ME - the largest patient-based
ME charity in the UK
*
<http://www.scottish.parliament.uk/msp/crossPartyGroups/groups/cpg-me.htm>
Cross Party Group on ME - Scottish Parliament
*
<http://phoenix-cfs.org/index.htm> CFS Phoenix - novel thinking
about research and treatment issues in ME/CFS
*
<http://pets-in-pastel.org.uk/> Pets in Pastel - commission a
picture of your pet and benefit ME Research
*
<http://www.skinnyimages.co.uk/> Skinnyimages - the artistry of Nye
Stenning
*
<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi> Pubmed - the
National Library of Medicine's database of scientific articles
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