~*Online WACOC News January 2010*~
DGSaba
WACOC + M
~*A comment or two*~
To all my northern friends and family, please stop blowing the cold
air south ~ Just the snow :-) Let it snow, Let it snow, Let it snow!
What an amazing year 2009 was, welcome 2010.
Some may be interested in reading about Dr. Edward Back.
Heal Thyself by Dr. Edward Bach
http://bachtherapy.org/Books/Heal%20Thyself%201931.pdf
~
Website updated
The website of the National CFIDS Foundation, (http://www.ncf-
net.org) , has been updated with a few articles from our Fall
newsletter as well as a listing of the winter edition's articles.
The Memorial List has been updated. If there are names that other
groups or patients want added to our Memorial List of patients who
have died after being diagnosed with CFS, CFIDS, or ME, they're
welcome to send us the information for the addition.
An added update has been "Abbreviations Unscrambled" that helps many
understand terminologies such as "CFIDS".
We're grateful to our volunteer webmaster, Hugh Rout, for the
updates.
For better health,
Gail Kansky
President, National CFIDS Foundation
103 Aletha Rd.
Needham, MA 02492-3931
781-449-3535
http://www.ncf-net.org
~
From the Fall Edition:
"National CFIDS Foundation Funds New Cutting-Edge Research"
http://www.ncf-net.org/forum/2009fall1.htm
"Facts About Cyanobacteria and Cyanobacterial Harmful Algal Blooms"
http://www.ncf-net.org/forum/2009fall2.htm
Could This Be You? The Hennessy Fund Launched
http://www.ncf-net.org/forum/2009fall3.htm
"Just Ask! An NCF Column for Inquiring Patients"
http://www.ncf-net.org/forum/2009fall4.htm
"Cyanobacteria In The News"
http://www.ncf-net.org/forum/2009fall5.htm
~
The National CFIDS Foundation Medical Discoveries
http://www.ncf-net.org/Discoveries.htm
Patient and Physician Information about CFIDS/ME
http://www.ncf-net.org/patient-physician.htm
Ciguatera Epitope is Autoimmune Marker
http://www.ncf-net.org/pdf/HokamaCardiolipinCFS2008.pdf
The National CFIDS Foundation's Patents of Interest
http://www.ncf-net.org/patents.html
Research Supported by Grants from The National CFIDS Foundation
http://www.ncf-net.org/NCFresearch.htm
Often Forgotten Marker is One Key to Unlocking the CFIDS/ME Mystery
http://www.ncf-net.org/forum/2009summer1.htm
A Call For Action: The Recognition of Myalgic Encephalomyelitis
http://www.petitiononline.com/MEitis/petition.html
http://www.ncf-net.org/petition.htm
Wistar Institute, Dr. Elaine DeFreitas, and the Cheney-Bell DeFreitas
Work: Startling Revelations from Wistar's World Patent and Serious
Reasons for Concern Now Revealed!
http://www.ncf-net.org/forum/revelations.html
Thank you Mr. Thomas Hennessy Jr. Founder of RESCIND, Inc., and
International M.E. Awareness Day
http://may121992.com/
RESCIND NCF Petition
A Call For Action: The Recognition of Myalgic Encephalomyelitis as A
Serious and Debilitating Disease
http://www.petitiononline.com/MEitis/petition.html
Health Care Bill Must Ensure Scientific Integrity, Groups Say
http://www.commondreams.org/newswire/2009/11/03-8
Uninsured Americans Hope Reform Brings Health Coverage
http://www.commondreams.org/headline/2009/09/16-2
The Article Library of the National CFIDS Foundation
http://www.ncf-net.org/library.htm
M.E. Deserves Quality Research.
The patient's voices have been heard.
To all of you, thank you.
NCF Fundraiser For Research Ends in May 2010
See Special Offers
http://patricialynch.avonrepresentative.com/online_event/view.php?rep_spnsr_evnt_id=9003
~*Online WACOC News December 2009*~
http://groups.google.com/group/alt.med.fibromyalgia/browse_thread/thread/356a9e984089262d?hl=en#
A past president's every other word -- Accountability
Our new president speaks of -- Change
What we need is change we can believe in...
More later...
Please keep my loved one's in your prayers, as I do yours.
Soft hugs and prayers to those who need them.
In memory of those remembered
http://www.ncf-net.org/memorial.htm
Diana Saba
Disabled Retired Nurse
Proud member of NCF
M.E. Deserves Quality Research
"What lies behind us and what lies before us, are tiny matters,
compared to what lies within us"
~Ralph Waldo Emerson~
DGSaba
Women and Children of CFIDS + Men
WACOC + M
~*A comment or two*~
It's snowing!
There is an excellent report by the National CFIDS Foundation (NCF)
Medical Committee in The National Forum: Vol. 13, No.3 Winter 2009-10
National CFIDS Foundation Comments on XMRV
If you don't already subscribe please email NCF at: in...@NCF-Net.org
Thanks for sharing!
When a Hidden Infection Is the Culprit
http://www.bottomlinesecrets.com/article.html?article_id=50442
More XMRV Follow Up...
Via Co-Cure Archives: http://listserv.nodak.edu/archives/co-cure.html
CFS Patients in UK Show No Signs of Suspect Virus
Excerpt:
The Robert Koch Institute (RKI) in Berlin, Germany, is also examining
the link between XMRV and CFS. In November, its collaborators posted
a short statement on the web saying that CFS patients had so far
"rarely" tested positive for the virus. They later removed the
statement.
According to Norbert Bannert, one of the virologists at the RKI, the
statement was correct, but he adds: "It's not fair to give numbers
when
you're at the beginning of the investigation, and the first results
have not yet been confirmed by an alternative test." He declines to
give further details. McClure has also hinted that several studies due
to be published soon have also found no link.
http://www.newscientist.com/article/dn18341-cfs-patients-in-uk-show-no-signs=-of-suspect-virus.html
Scientists' Claim to Have Found the Cause of ME is 'Premature"
http://www.independent.co.uk/news/science/scientists-claim-to-have-found-the-cause-of-me-is-premature-1859003.html
WPI Response to the UK XMRV Study
http://www.wpinstitute.org/news/docs/WPI_Erlwein_010610.pdf
Chronic Fatigue Syndrome attacked again
Excerpt:
"We take no pleasure in finding colleagues wrong or dashing the hopes
of patients, but it's imperative the truth gets out."
http://sciencenow.sciencemag.org/cgi/content/full/2010/106/1
New virus is not linked to Chronic Fatigue Syndrome, suggests UK
research
http://www.medicalnewstoday.com/articles/175231.php
Scientist smackdown: Is a virus really the cause of Chronic Fatigue
Syndrome?
http://blogs.discovermagazine.com/80beats/2010/01/06/scientist-smackdown-is-=a-virus-really-the-cause-of-chronic-fatigue-syndrome/
Imperial College XMRV study - article from The (UK) Economist
http://www.economist.com/sciencetechnology/displayStory.cfm?story_id=3D15=211401
From the Fall Edition:
"National CFIDS Foundation Funds New Cutting-Edge Research"
http://www.ncf-net.org/forum/2009fall1.htm
"Facts About Cyanobacteria and Cyanobacterial Harmful Algal Blooms"
http://www.ncf-net.org/forum/2009fall2.htm
Could This Be You? The Hennessy Fund Launched
http://www.ncf-net.org/forum/2009fall3.htm
"Just Ask! An NCF Column for Inquiring Patients"
http://www.ncf-net.org/forum/2009fall4.htm
"Cyanobacteria In The News"
http://www.ncf-net.org/forum/2009fall5.htm
The National CFIDS Foundation Medical Discoveries
http://www.ncf-net.org/Discoveries.htm
M.E. Deserves Quality Research.
Keyword: Neurotoxins
DGSaba
WACOC + M
~*A comment or two*~
A message from Tom H. of R.E.S.C.I.N.D.
"thanks to all online who wrote a card, sent an email, made a
contribution or sent cookies and gum and paper and envelopes
and stamps, and good wishes!"
A Cherokee Hello
Pronunciation: Oh-see-YOH
December ~ The month of the Snow Moon
January ~ The month of the Cold Moon
Diana aka tsgwa-le-gwa-la ~ Whippoorwill
Watch this child.
Patrick Henry Hughes
http://www.youtube.com/watch_popup?v=9xwCG0Ey2Mg
A patient on another list mentioned:
Besides brain hypoperfusion, look at the problematic immune system
blood test results common in those with CFS!
I asked, Gail, President and Editor of NCF about your comment and this
is her response:
But, of course, the "problematic immune system blood test results"
aren't anything new. This was from, I think, a 2007 edition of the
Forum (it's online):
Q: What, if any, blood tests does the NCF currently recommend for
patients? (Internet/phone)
A: The NCF really recommends the following blood tests for patients:
1. Immune/Lymphocyte profile via flow cytometry - Absolute and
percentage for each of the following cell markers:
CD3 - Total Lymphocytes
CD4 - Helper T-cells
CD8 - Cytotoxic/Suppressor T-cells
CD19 - Mature B-cells
CD4/CD8 Ratio Lymphocyte profiles are used by immunologists to get a
captured view for the current state of the patient's immune system.
Alterations to the cellular arm of the immune system can be readily
recognized by the CD3, CD4, CD8 and CD4/CD8 ratios while the humoral
arm is represented by the CD19 marker. These are basic immune profile
tests. Lymphopenias (the loss of lymphocytes) have been seen in CFIDS
patients for each of these different cell types and are representative
of the immune dysfunction characteristic of this disease.
2. Kappa/Lambda Light Chains (Monoclonality and aberrant clonal excess
evaluation)
3. Soluble IL-2R (Cellular activation is directly proportional to
Karnofsky or disability score)
4. Ciguatera Epitope (As discussed in previous Forums)
The NCF encourages every patient to thoroughly discuss these important
blood tests with their physicians. Be as proactive about your health
as you can be!
In the winter issue of 2006-7.
DGSaba
Women and Children of CFIDS + Men
WACOC + M
~*A comment or two*~
New category added to website
Dear Friends,
The National CFIDS Foundation has a new category on their website that
is comprised of "documents of interest" in CFIDS/ME. The last ones to
be added were the first 1988 research definition of Chronic Fatigue
syndrome by Holmes et al along with the next, slightly watered down
1988 "Working Case Definition" by Fukuda et al. These were added at
the request of both physicians and researchers because the most recent
"CFS" clinical definition does not fit what we call CFIDS/ME (chronic
fatigue immune dysfunction syndrome/myalgic encephalomyelitis).
With that latest publication found to fit depressed patients (Jason
et al) and other "fatiguing illnesses" which have nothing to do with
CFIDS/ME, we put the original papers on our website to help others.
Patients have seen many new publications from medical journals that
use either or both of these older medical journal definitions due to
this problem. One example of this that is available on our website
specifying the Fukuda Definition is the 2009 medical journal article
entitled "Anticardiolipin Antibodies in the Sera of Patients with
Diagnosed Chronic Fatigue Syndrome" by Hokama et al which shows CFS to
be in the autoimmune disease category.
For better health,
Gail Kansky
President, National CFIDS Foundation, Inc.
103 Aletha Rd.
Needham, MA 02492-3931
~
CFIDS/ME Documents of Interest
http://www.ncf-net.org/patents.html
National CFIDS Foundation Comments on XMRV
Winter 2009-2010 -- Vol. 13, No. 3
http://www.ncf-net.org/forum.htm
Hemispherx submits new Ampligen data to FDA
http://www.bizjournals.com/philadelphia/stories/2010/01/11/daily39.html
Dr. Richard Bruno - Is this the same Dr. Richard Bruno, our ME/CFIDS
and Polio community are familiar with, or another Dr. Richard Bruno?
http://www.lynn.edu/alert
Topic: Earthquakes - Inform
http://www.inform.com/Earthquakes
The Blue Pill Or The Red Pill?
When it comes to meds, cheaper is not always better.
http://www.forbes.com/2010/01/14/health-care-reform-costs-medicine-opinions-contributors-tomas-j-philipson.html?partner=alerts
Soft hugs & prayers,
Diana Saba
Disabled Retired Nurse
M.E. Deserves Quality Research
A Proud Member of NCF
DGSaba
WACOC + M
~*A comment or two*~
We're getting rain, ice and snow over the next few days.
Free testing for a limited time
For a limited time, the John A. Burns School of Medicine (University
of
Hawaii) is offering free testing to any patient who is interested and
fits the
following criteria:
-The patient must be clinically diagnosed with chronic fatigue
syndrome
-The patient must be willing to fill out a short questionnaire
about
their health history as it relates to CFS
-The patient will be sent their MIA/ciguatera testing/CFS lipid
profile test results but should be aware that any results from other
uses of
their serum will not be individually reported to them although their
identities will remain anonymous and only be used for scientific
purposes.
The test for ciguatera toxin poisoning is only offered, at this
time,
through the medical school. It has been found to be a biomarker for
autoimmune
diseases that includes CFS via replicated research.
Those who want to be tested (or retested) for this current work at no
cost
for the test may e-mail the researchers at cfs.t...@yahoo.com
for instructions.
For better health,
Gail Kansky
President, National CFIDS Foundation, Inc.
103 Aletha Rd.
Needham, MA 02492-3931
cfs.testing @ yahoo.com ~ (without the spaces)
CFIDS/ME Documents of Interest
http://www.ncf-net.org/patents.html
National CFIDS Foundation Comments on XMRV
Winter 2009-2010 -- Vol. 13, No. 3
http://www.ncf-net.org/forum.htm
Hemispherx submits new Ampligen data to FDA
http://www.bizjournals.com/philadelphia/stories/2010/01/11/daily39.html
Dr. Richard Bruno - Is this the same Dr. Richard Bruno, our ME/CFIDS
and Polio community are familiar with, or another Dr. Richard Bruno?
http://www.lynn.edu/alert
"National CFIDS Foundation Funds New Cutting-Edge Research"
http://www.ncf-net.org/forum/2009fall1.htm
M.E. Deserves Quality Research.
Keyword: Neurotoxins
A past president's every other word -- Accountability
Our new president speaks of -- Change
What we need is change we can believe in...
More later...
Please keep my loved one's in your prayers, as I do yours.
Soft hugs and prayers to those who need them.
In memory of those remembered
http://www.ncf-net.org/memorial.htm
Diana Saba
Disabled Retired Nurse
Proud member of NCF
M.E. Deserves Quality Research
"What lies behind us and what lies before us, are tiny matters,
DGSaba
Women and Children of CFIDS + Men
WACOC + M
~*A comment or two*~
We got about 9" on snow and it's beautiful :-)
CDC Update: Dr. Elizabeth R. Unger will be replacing Dr. William
Reeves
Bio of Dr. Elizabeth R. Unger
http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1001e&L=co-cure&T=0&F=&S=&P=963
Do a search re: Past CDC Director: Julie Gerberding
Pay attention to these dates ~ More pieces to the puzzle.
Hello Diana,
This wasn't what I was looking for but to my surprise this
paper was published in 1953 but also with Refr's from 1941-45 on
"Fibrositis!" Countries: `Sweden, `India, `England, `France,
`Switzerland, `The Netherlands `Washington, `New York & `Argentina
etc. seemingly all had a vested interest in Fibrositis being a
Committee of the International League Against Rheumatism.
I had no idea that Fibrositis had been around this
long DejaVue? I was dx'd with Fibrositis before early 90's name
change. May I ask you if you could please post this, It may be of
interest to some on Google's alt.med.fibromyalgia Fibrositis &
Fibromyalgia List since Fibrositis has been around at least early
40's! I'll find the reference to The WHO's collaborative decision
about holding off on some kind of report based on Fibromyalgia I
believe in late 2010 which may or may not coincide or merely
coincidently with The WHO's Study from 1990 to 2010 of their Global
Burden of Disease to be announced in November 2010. I have yet to
find anyone that was invited to be a participant or take part of The
World Health Organization's Global Burden of Disease (GBD) 20 year
study. Not even a data taker, tactician have I come up with, just
absolutely no one knows Nut"in Honey!
Thank you very much for helping me with this,
Pat (but known as Myalgic on Google's alt.med.fibromyalgia
Fibrositis & Fibromyalgia List)
---------------------------------------------------------------------------------------------------------
http://whqlibdoc.who.int/trs/WHO_TRS_78.pdf
This report contains the collective views of an International Group of
Experts and does not necessarily represent the decisions or the stated
policy of the World Health Organization. World Health Organization
Technical Report Series No. 78 Expert Committee on Rheumatic Diseases
First Report Page Terms of reference
31. Introduction
42. Nomenclature and classification
53. Incidence and prevalence
64. Medical education and research
105. Prevention and control
126. Treatment
157. Role of World Health Organization in relation to rheumatic
diseases
17 Annex
1. Provisional classification of "rheumatic" diseases
19 Annex
2. A summary of recent statistical studies of the prevalence and
incidence of the chronic rheumatic diseases
21 World Health Organization Palais Des Nations Geneva April 1954
Page 2
Expert Committee on Rheumatic Diseases First Session Geneva 31
August-4 September 1953
Members:
Dr. W. S. C. Copeman Physician-in-Charge Department of Rheumatic
Diseases West London Hospital London England Chairman
Dr. F. Coste Professeur de Clinique de Rhumatologie à la Faculté de
Médecine Université de Paris France
Dr. G. Edström Associate Professor of Rheumatology Director Department
and Clinic for Rheumatic Diseases University Hospital Lund Sweden
Professor J. Goslings Department of Rheumatology University Hospital
Leyden Netherlands Rapporteur Professor A. Ruiz Moreno Director Anti-
Rheumatic Centre Faculty of Medical Sciences National University of
Buenos Aires Argentina Vice-Chairman
Consultants:
Dr. E. T. Conybeare Senior Medical Officer Ministry of Health London
England
Dr. A. Höjer Principal Medical College Trivandrum India Secretariat:
Dr. J. S. Peterson Director Division of Organization of Public Health
Services World Health Organization Dr. T. S. Sze Social and
Occupational Health Section WHO Secretary
The report on the first session of this committee was originally
issued in mimeographed form as document World Health Organization/
Rheum. Dis./12 14 September 1953 Printed in Switzerland
First Report 19 Annex 1 Provisional Classifications of "Rheumatic"
Diseases
*I. Diseases Commonly Accepted as Rheumatic
(1) With articular localization
(a) Inflammatory Rheumatic fever Rheumatoid arthritis Special forms:
Psoriatic arthritis
Still's disease
Felty's syndrome
Sjogren's syndrome
Ankylosing spondylitis or rheumatoid spondylitis
Arthritis due to specific infection Reiter's syndrome
Articular hypersensitivity against drugs protein etc.
Palindromic rheumatism and intermittent hydarthrosis
(b)Degenerative Osteo-arthritis or degenerative joint disease
including the spine Chondromatosis Intervertebral disk lesions
(2)With non-articular localization for example: FIBROSITIS (various
types)Bursitis Tenosynovitis Periarthritis etc.
.
*This list is based on a classification drafted by a Committee of the
International League Against Rheumatism
________Page 25
First Report 25 Sweden The available figures 6 suggest that there are
at least 17,500 cases in a population of 7 million Netherlands If the
data obtained in a recent investigation 2 are applicable to the whole
country the total number of cases in a population of 10 million would
be 100,000 Although this is not the most common of the chronic
rheumatic diseases it is one of the most serious and it seems clear
that in all countries where reliable studies have been made the
prevalence rate is especially high among women possibly amounting in
some parts of some countries to 1 in 25 of the adult female
population.
*References
1./Blakeslee A. L. 1952 Arthritis—and the miracle drugs New York p. 5
Public Affairs Pamphlet No. 166
2./Blécourt J. J. de 1953 Rev. Rhum. 20 numéro spécial p. 105
3./Brooke E. M. 1953 Monthly Bull. Minist. Health London J 12 114
4./Kellgren J. H. Lawrence J. S. & Aitken-Swan J. 1953 Ann. rheum.
Dis. 12 5
5./Mathieu-Pierre-Weil Sichere R.-M. Van Peteghem J. Gassot B. &
Michaud P. 1953 Rev. Rhum. 20 numéro spécial p. 25
6./Sweden Social departementet 1945 1941 árs
reumatikervãrdssakkunnigas betänkande
Del III: Utredning om reumatikervârdens utbyggande och vidtagande i
òvrigt avätgärder för de reumatiska sjukdomarnas bekämpande Stockholm
Ministry of Social Affairs "1941" Experts Report on the care of
Rheumatic Patients
Part III: Analysis of developments in the care of rheumatic patients
and additional measures for controlling rheumatic diseases
7./Woolsey T. D. 1952 Rub!. Hlth Rep. Wash. 67 505
~End of message~
M.E. Deserves Quality Research.
Keyword: Neurotoxins
NCF Fundraiser For Research
DGSaba
Women and Children of CFIDS + Men
WACOC + M
~*A comment or two*~
CDC Update: Dr. Elizabeth R. Unger will be replacing Dr. William
Reeves
Bio of Dr. Elizabeth R. Unger
http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1001e&L=co-cure&T=0&F=&S=&P=963
OTHER: Factual correction Elizabeth Unger Bio
Full excerpt:
Dr. Unger actually began work at Emory University in 1986 and for 11
years,
where she was an assistant, then associate, professor in the
department of
pathology and laboratory medicine at Emory University. In 1997, she
joined
the CDC=92s staff as section chief, molecular pathology laboratory in
the
Viral Exanthems and Herpesvirus Branch within the National Center for
Infectious Diseases.
http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1001e&L=co-cure&T=0&F=&S=&P=2592
Follow up on Gulf War Illness (GWI)
Full excerpt:
RES: (Ongoing GWI study) "Exercise-Induced Cerebrospinal Fluid
Proteomic Biomarkers of Fatigue" (in plain English)
http://www.ngwrc.org/index.php?option=com_content&view=article&id=84
Exercise-Induced Cerebrospinal Fluid Proteomic Biomarkers of
Fatigue
User Rating: / 0
PoorBest
Principal Investigator: BARANIUK, JAMES N
Institution Receiving Award: GEORGETOWN UNIVERSITY
Program: GWIRP
Proposal Number: GW080053
Funding Mechanism: Investigator-Initiated Research Award
Partnering Awards:
Award Amount: $921,000.00
View Technical Abstract - [TK: I can't open this for some reason]
PUBLIC ABSTRACT
The objective of this study is to understand what goes wrong in Gulf
War
Illness (GWI). We have previously performed lumbar punctures (spinal
taps)
in GWI subjects and identified a dozen proteins that were present in
GWI but
not "healthy control" subjects. This suggested that these proteins may
be
useful as biomarkers of GWI, and that they may be used to develop new
tests
for the condition. The pattern of the proteins also provided some
ideas
about how the brain may be injured in GWI. Long lasting, low-grade
injury
could lead to the symptoms of GWI and related illnesses such as
chronic
fatigue syndrome and fibromyalgia.
In order to gain more valuable information about what is going wrong
in GWI,
we propose to enlist groups of 20 GWI and 20 healthy veterans (HVets)
from
the period of the Gulf War. All of the subjects will be treated in the
same
fashion. First, brain scans (functional magnetic resonance imagining,
[fMRI]) will be performed to compare the brains of GWI and HVets. Then
they
will have two days of exercise testing. The exercise will be a
standard
bicycle exercise stress test to determine fitness. Subjects will also
squeeze a hand-held strain gauge until they cannot hold the
contraction any
longer. This type of muscle contraction is known to stimulate the
nervous
system and cause and increase in blood pressure and heart rate.
However,
****we have determined that people with chronic fatigue syndrome have
blunted responses compared to control subjects****. We anticipate this
to be
true in GWI as well. We anticipate that this exercise will have little
effect on the HVets, but will cause some tiredness and fatigue in the
GWI
subjects.
Therefore, on the second day, we anticipate that GWI subjects will be
fatigued and will not be able to perform as efficiently at either the
bicycle exercise or isometric hand grip tests. In fact, we propose
that the
Day 1 exercise will induce some level of fatigue, or "exertional
exhaustion"
in the GWI group. If so, then we anticipate that the GWI subjects will
not
be able to perform as effectively on the bicycle stress test or the
hand
grip as the HVets.
After the Day 2 exercises, the fMRI brain scans will be repeated. Just
like
the exercise tests, we expect that the GWI subjects will show evidence
of
poor brain functions in thinking, making decisions, and planning
compared to
the HVet group. The fMRI scans will tell us which parts of the brain
are not
functioning as efficiently.
In addition, we will be collecting fluid from around the brain by
doing a
spinal tap. We anticipate that the fluid will again contain proteins
found
only in GWI and not in HVets. If so, these proteins can be developed
as
diagnostic tests for GWI. This would have a tremendous impact on GWI
since
it may be possible to perform a test and determine if a veteran has
this
condition or not. That determination would change the way the person
was
treated.
By studying these proteins in the fluid from around the brain as well
as
blood and other fluids, it may be possible to identify a pattern of
proteins
and other mediators that begin to suggest a cause, or causes, for the
fatigue and related symptoms in GWI. From these studies, we may be
able to
piece together the mechanism(s) that go awry in GWI subjects. If so,
we
could test new drugs and other therapies against the proposed
mechanisms to
see if they blocked the fatigue or other symptoms. We will be
gathering a
large amount of information in this study, and have great confidence
that
the mechanism(s) of GWI will begin to reveal themselves. The time
limit for
this grant is 3 years, so I would anticipate that we would begin to
report
our progress in about 2011. While this may seem a long time to wait
for a
"cure," it is important at this time to be sure we understand what has
gone
wrong to lead to GWI symptoms, and then to determine the best way to
correct
those changes. Our work should provide a solid foundation for all GWI
investigators, and based on our shared information, we will be <ends
there>
http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1001e&L=co-cure&T=0&F=&S=&P=2021
RES: XMRV- Host range and cellular tropism of the human exogenous
gammaretrovirus XMRV.
http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1001e&L=co-cure&T=0&F=&S=&P=1856