Discussions - alt.med.cfs

	MED: (Part c - 2) Tom Kindlon's submission on the CDC's draft 5-year plan for CFS
	(I have had to split part c into 2 parts as it was too long) ====================== Survey 5: (UK) Action for ME (2003) Action for ME in 2003 wanted to follow up on its previous survey to see whether changes were occurring with regards to members' experiences of treatments. It restricted responses to treatments received over the... more » By Tom Kindlon - Jul 2 - 1 new of 1 message

	MED: (Part c1) Tom Kindlon's submission on the CDC's draft 5-year plan for CFS
	(I have had to split part c into 2 parts as it was too long) ============================= Survey 3: (UK) 25% ME Group (2004) In the UK, there is an ME charity specifically for severely affected patients with ME, called the 25% ME Group. It conducted a survey of its members which got a response rate of 66% or 437... more » By Tom Kindlon - Jul 2 - 1 new of 1 message

	MED: (Part g) Tom Kindlon's submission on the CDC's draft 5-year plan for CFS
	The other point I want to re-iterate is my problems with the way the CDC CFS team have “operationalized” the Fukuda definition with the “empiric definition” (Reeves, 2005). I have previously mentioned virtually all the points I would like to make on the topic as comments on papers that involved the definition. They are... more » By Tom Kindlon - Jul 2 - 1 new of 1 message

	MED: (Part f) Tom Kindlon's submission on the CDC's draft 5-year plan for CFS
	Survey 9: Norway (2009) [Patients' experience with treatment of chronic fatigue syndrome.] Tidsskr Nor Laegeforen. 2009 Jun 11;129(12):1214-6 [Article in Norwegian] Bjørkum T Wang CE, Waterloo K. torunn.bjoer...@helse-forde.no Sogndal BUP Postboks 184 6851 Sogndal. [link]... more » By Tom Kindlon - Jul 2 - 1 new of 1 message

MED: (Part d) Tom Kindlon's submission on the CDC's draft 5-year plan for CFS

Surveys from other countries: The 6 above surveys are from the UK. I have information on some surveys undertaken by local groups in the UK which would also report high rates of adverse reactions both from CBT and especially GET. However reports of adverse reactions are not restricted to the UK. Gijs Bleijenberg PhD is a Dutch psychologist which the CDC has worked with.... more »

By Tom Kindlon - Jul 2 - 1 new of 1 message

	MED: (Part e) Tom Kindlon's submission on the CDC's draft 5-year plan for CFS
	Survey 8: Survey of 3 Dutch ME/CFS patient organizations (December 2008): 3 Dutch ME/CFS patient organisations published in December 2008 at: [link] the results of a large survey they undertook. Following the link, one can see the questionnaire that was used.... more » By Tom Kindlon - Jul 2 - 1 new of 1 message

	MED: (Part a) Tom Kindlon's submission on the CDC's draft 5-year plan for CFS
	-----Original Message----- ...[mailto:CO-C...@LISTSERV.NO DAK.EDU] On Behalf Of Tom Kindlon Sent: 01 July 2009 13:16 To: CO-C...@LISTSERV.NODAK.EDU ...draft 5-year plan for CFS (Part 1 of 2) I sent the information about the 10 surveys out a few days ago (I have altered the wording slightly as one person pointed out it is a... more » By Tom Kindlon - Jul 2 - 1 new of 1 message

	A Gene Signature for Post-Infectious Chronic Fatigue Syndrome - Source: BMC Medical Genomics, Jun 25, 2009
	[link] I only sent one page of the Pro-Health Newsletter. From a quick glance, all the contents are very interesting. Hope you all can access the whole Newsletter by clicking on Home - or you all already receive it. If not, will send on in its entirety.... more » By Rita Joy - Jul 1 - 2 new of 2 messages

	MED: Typo: RE: (Part 4 of 4) Results from 10 ME/CFS surveys from the past and a request for further information
	Typo: <snip> ...is not By Tom Kindlon - Jun 29 - 1 new of 1 message

	MED: (Part 4 of 4) Results from 10 ME/CFS surveys from the past and a request for further information
	Survey 9: Norway (2009) [Patients' experience with treatment of chronic fatigue syndrome.] Tidsskr Nor Laegeforen. 2009 Jun 11;129(12):1214-6 [Article in Norwegian] Bjørkum T Wang CE, Waterloo K. torunn.bjoer...@helse-forde.no Sogndal BUP Postboks 184 6851 Sogndal. [link]... more » By Tom Kindlon - Jun 29 - 2 new of 2 messages