FW: Video of Dr. Nancy Klimas Discussing the XMRV Virus
Tom Kindlon
_____
From: Daniel Moricoli [mailto:dmor...@cfsknowledgecenter.com]
Sent: 15 October 2009 18:46
To: CO-...@LISTSERV.NODAK.EDU
Cc: Tom Kindlon
Subject: NOT: Video of Dr. Nancy Klimas Discussing the XMRV Virus
Dr. Nancy Klimas of the University of Miami discusses the XMRV virus, what
it means, what's next and what you can do in a video tape made yesterday,
October 12, 2009.
The video tape may be seen, and downloaded for further distribution, at the
www.ME-CFSCommunity.com <http://www.me-cfscommunity.com/> . website.
Daniel Moricoli
<http://www.cfsknowledgecenter.ning.com/> ME-CFSCommunity website
ME-CFSKnowledgeCenter website
Community, Guidance & Practical Information for Those Affected by ME/CFS
email: dmor...@cfsknowledgecenter.com
Bobbie Sellers
I don't see a way to download it unless signing up is a requirement
and I have enough people talking to me in e-mail already. I don't need
ads and I don't want video chats with other sick people. I only like
to watch videos that amuse not those that attempt thru a medium
lacking precision that attempt to elucidate recondite theories.
Get a transcript and I will read it.
later
Bobbie Sellers
KATHY DURKIN
has to register with the group.
Kathy
Tom Kindlon
~~~~~~~~~~~
Taped Oct. 12th 2009 in her office. Dr Klimas talks about XMRV, what it
means, what's next and what you can do.
Feel free to copy and re-post the video to assure maximum distribution.
Apologies for the poor sound of a home video machine.
~~~~~~~~~~~
So it may get re-posted elsewhere at some stage.
I'm afraid I don't have the time or energy to summarise or transcribe it.
Tom
________________________________
From: Daniel Moricoli
[mailto:dmor...@cfsknowledgecenter.com]
Sent: 15 October 2009 18:46
To: CO-...@LISTSERV.NODAK.EDU
Cc: Tom Kindlon
Subject: NOT: Video of Dr. Nancy Klimas Discussing the XMRV
Virus
Dr. Nancy Klimas of the University of Miami discusses the
XMRV virus, what it means, what's next and what you can do in a video tape
made yesterday, October 12, 2009.
The video tape may be seen, and downloaded for further
distribution, at the www.ME-CFSCommunity.com
<http://www.me-cfscommunity.com/> . website.
Daniel Moricoli
ME-CFSCommunity <http://www.cfsknowledgecenter.ning.com/>
KATHY DURKIN
Kathy
----- Original Message -----
From: "Tom Kindlon" <tomki...@OCEANFREE.NET>
Newsgroups: alt.med.cfs
To: <CF...@LISTSERV.ICORS.ORG>
Samuel Wales
If this is an important announcement for us, why is Dan requiring us
to go to his site instead of the original site? Why is he requiring
registration?
I cannot speak for others, but I avoid sites when I see them making
traffic-generating posts to mailing lists. I know of two other sites
that do that on Co-Cure and at this point I skip their teasers. I
resolve to get the information elsewhere.
Also, I am confused why you are forwarding so many things to this
list, Tom. Won't people who want to see Co-Cure posts join that list?
I am on both lists, and there is no consistent way to filter your
forwards. I value you as an advocate and as a contributor to Co-Cure
and I see posts by you and others on that list.
--
Q: How many CDC "scientists" does it take to screw in a lightbulb?
A: "You only think it's dark."
For 25 years, CDC denied what it mislabels "CFS"
Retrovirus: http://www.wpinstitute.org/xmrv/xmrv_qa.html
Tom Kindlon
problems previously posting to Co-Cure (he didn't put in the correct prefix
so not many people got the message(s) - I wrote to him to tell him) so he
has asked for my help on the issue. I said it'd be better if he posts the
messages out than I do and I've tried to show him how.
But I'm not going to get involved in a debate about his website and how it
is set up (which is a not-for-profit group as far as I know).
Tom
Samuel Wales
Of course nobody wants a debate about Dan's website. And nobody started one.
The question was asking why a mailing list post about a video that was
apparently intended by Nancy to be available to all did not include a
direct and registration-free link. Or at least a note that it
requires registration would have been nice. It is becoming standard
practice to do so. That is not a debate about a website.
I can understand if this is not important to you, but please don't
misunderstand the issue to be a debate about Dan's website, how it is
set up, or whether it is commercial.
Again I value your contribution, and I look forward to watching
Nancy's video when possible.
Jerry
http://cfsknowledgecenter.ning.com/video/klimas-on-xmrv
----- Original Message -----
From: "Samuel Wales" <samol...@GMAIL.COM>
Newsgroups: alt.med.cfs
To: <CF...@LISTSERV.ICORS.ORG>
Samuel Wales
That is much better!
KATHY DURKIN
Brain fog can impede computer work with any steps whatsoever.
Kathy D.
KATHY DURKIN
to keep saying the newly-found virus.
Bobbie Sellers
Does not seem to work with Firefox.
ahimsa
a Q & A session with Dr. Klimas here:
http://consults.blogs.nytimes.com/2009/10/15/readers-ask-a-virus-linked-to-chr
onic-fatigue-syndrome/
You have to register to see articles at the NY Times. This may be short enough
to copy into the text here so I'll try it (see below).
Hugs,
Marjorie
=======================================================
Readers Ask: A Virus Linked to Chronic Fatigue Syndrome
Denise Grady, a science writer for The New York Times, recently explored the
link between a recently discovered virus called XMRV and chronic fatigue
syndrome, in "Is a Virus the Cause of Fatigue Syndrome?" On the Consults blog,
scientists and doctors from the International Association for Chronic Fatigue
Syndrome, a society of 500 biomedical and behavioral professionals, took
readers' questions on chronic fatigue syndrome.
Here, Dr. Nancy G. Klimas, who serves on the board of directors of the
organization, answers questions on the recently discovered retrovirus and
clinical care of chronic fatigue syndrome. Dr. Klimas is a director of the
department of immunology of the University of Miami School of Medicine and
director of research for clinical AIDS/H.I.V. research at the Miami Veterans
Affairs Medical Center. Also read Fred Friedberg's responses to
behavior-related questions in "Behavioral Treatments for Chronic Fatigue
Syndrome."
Is Chronic Fatigue Syndrome Contagious?
Q. I've had C.F.I.D.S. for 25 years. If it is a virus, is it contagious? How
is it transmitted? Now I worry about passing it on to others. Thank you.
Nona
A. Dr. Klimas responds:
In general, retroviruses are not spread by air or droplet but are transmitted
sexually, vertically (mother to fetus) and by blood transfusion. From what we
have learned about other retroviruses, it is clear that the amount of virus
matters, and people with low amounts of circulating virus are not as
infectious as people with high levels of virus in the blood. With XMRV, the
retrovirus recently found in many patients with chronic fatigue syndrome, we
do not have enough information to judge how infectious it might be.
Whenever the possibility of sexual transmission comes up, people worry that
they are in some way responsible for infecting sexual partners. While this is
possible, it is important to remember that many infections can come from
exposures between great-great-grandparents and maintained for generations as
latent infections, or as infections from early experiences of any sexual
partner in a chain of partners. We know that it is very unusual for both
partners to develop chronic fatigue syndrome, or C.F.S. And while
mother-to-child C.F.S. can happen, it is unusual.
It is clear that there are a number of factors that increase the risk for
C.F.S.: genetics, immune function, severity of inciting infection - to name a
few. Just being exposed to, or even infected with, a virus does not mean that
a person will become ill. We don't even know if infection with the XMRV virus
actually causes illness, or if it one of several associated reactivated
viruses (like HHV-6, EBV and enterovirus).
It important not to take these new findings about the XMRV virus as anything
more than an exciting new development. We need confirmatory studies, then
studies to see if the virus is contributing to the cause of illness
persistence and symptoms. The good news is that if XMRV is linked to C.F.S.,
there are many antiviral drugs that have already been safety tested in H.I.V.
that may inhibit viral replication. So those studies could be designed very
rapidly
Is There a Blood Test for the C.F.S. Virus?
Q. Is there a specific test, blood or other, to determine whether a person is
infected with the XMRV virus?
Beau Brincefield
A. Dr. Klimas responds:
The test for XMRV that has been reported is currently used only in research
settings. The research director of the Whittemore Peterson Institute, which
was involved in the recent findings, was quoted as saying they were developing
a commercial assay that they expected to be available "within weeks." Several
other commercial laboratories are also developing assays.
Some important points: First, antibody tests mean you have been exposed to a
virus and do not tell you actually have an active infection. Second, a
technique known as P.C.R. assays measures something called "viral load," and
the assay is designed to measure either active replicating virus or latent
(inactive) virus. Either measure would be helpful with this new virus, but we
don't have access to them except in research settings.
Another way to see if you are infected is with viral cultures. The recent
study published in Science used both cultures and P.C.R. assays.
Exercise and Chronic Fatigue Syndrome
Q. I used to be very active and used to love playing sports. Then I was hit
with some sort of infection. Eventually, after going to different doctors and
health professionals, I was finally diagnosed with C.F.S.
I'm finding it easier to cope now. I try to have rest periods during the day.
I would love to play sports again, but I just so feel so ill after I try and
my muscles feel so sore. Have you any advice? Should I push through and go
back to playing sports? I'm finding it tough enough as it is keeping up with
college and the normal walking you have to do. I don't want to drop out of
college.
Pat
A. Dr. Klimas responds:
Most C.F.S. patients do better if they break up their exercise into short
segments, take brief rest periods and then try again. Certainly pushing
through can cause "crashes" and relapses that can last days, even weeks. So I
tell my patients the five-minute rule: five minutes of exercise, then five
minutes lying flat, then five more minutes - increasing their exercise by
five-minute increments.
If you can already tolerate more exercise than this, then try going that far,
taking a break, then trying another round. Also, C.F.S. patients tolerate
flexibility and resistance exercise (stretching and weight training) better
than aerobics. Because C.F.S. patients are prone to blood pressure drops while
exercising, they usually tolerate aerobic training best while in a flat
position - swimming, recumbent bicycling, that sort of thing.
Can I Volunteer for a Study?
Q. I'd like to second Post No. 25 and ask when and how one could volunteer to
be part of a drug trial? Please help us.
Sally
A. Dr. Klimas responds:
There are drug trials and other studies under way all around the United States
and the globe looking at this illness and its possible treatments.
Investigators at the Whittemore Peterson Institute and elsewhere are already
planning antiviral trails based on this exciting research development. I would
watch three Web sites in particular - the International Association for
CFS/ME, the CFIDS Association of America, and the Whittemore Peterson
Institute for Neuro-Immune Disease for more developments.
Was a C.F.S. Virus Discovered Years Ago?
Q. Back in the early 1990s, Dr. Elaine DeFreitas at the Wistar Institute in
Philadelphia discovered a novel human retrovirus (very closely related to HTLV
2, with Spuma-viruslike aspects) in C.F.I.D.S. patients. This was subsequently
confirmed by two other prominent researchers (and a commercial laboratory).
Dr. DeFreitas was almost done sequencing its genes and published a meticulous
paper in a top journal. Then the Centers for Disease Control and Prevention
and the National Institutes of Health intentionally destroyed her reputation
because it did not mesh with their vigorous assertions that C.F.I.D.S. was
psychoneurosis. No one else has followed this up for fear that their career
might likewise be destroyed. This was all detailed in the amazing book
"Osler's Web."
Is this the same virus as the "novel" XMRV?
Justin Reilly
A. Dr. Klimas responds:
Dr. DeFreitas was doing exciting work and should be congratulated for her
early results suggesting retroviral infection in C.F.S. Since that time,
technology has advanced in a dramatic way, giving investigators new tools to
search for viruses that were yet to be identified in 1990-92, including the
XMRV virus.
New antiviral drugs have also been developed that could potentially be
effective in controlling this sort of infection. We also have a much stronger
understanding of these drugs' toxicity and safe use.
I congratulate the Whittemore Peterson Institute researchers for their
diligent work. I am also very happy for Elaine today. I would also ask
patients to be patient a little bit longer so that researchers can devise and
perform the sort of clinical trials that will let us know if this virus is the
linchpin in continued illness.
Links Between H.I.V. and XRMV?
Q. I found the comparison to H.I.V. (all because it happens to be another
retrovirus) to be alarmist, unnecessary and at worst, the kind of sensualist
factoid reporting that's more typical of a tabloid! From what I gather . the
link between the two is weak and general at best.
What angers me is that the comparison to H.I.V. is completely out of context;
there are many retroviruses that are not known to cause any pathologies at all
- comparing it to the one that is most well known and feared is simplistic and
quite simply wrong. We should not forget that retroviruses have been common
through out human history, and while some do not cause disease at all, most
are nowhere near as extreme as H.I.V.
To compare the virus to H.I.V. is to create undue alarm and suffering to
people who are already dealing with a difficult disease. Not only is the
comparison useless outside its context, it does nothing to provide useful
information to the reader.
I ask that you think of the moral consequences of your sloppy comparison - the
horror and anguish of those that might have thought that it might be as
debilitating as H.I.V., as well as the dread of the thought of potentially
passing it on to another person.
David
A. Dr. Klimas responds:
You make a good point. This is one study, the results needs to be validated,
then the next study will look at treatment options. And you are right, some
retroviruses are seemingly benign, whereas others are pathogens.
But I hope you are not saying that C.F.S. patients are not as ill as H.I.V.
patients. My H.I.V. patients for the most part are hale and hearty thanks to
three decades of intense and excellent research and billions of dollars
invested. Many of my C.F.S. patients, on the other hand, are terribly ill and
unable to work or participate in the care of their families.
I split my clinical time between the two illnesses, and I can tell you if I
had to choose between the two illnesses (in 2009) I would rather have H.I.V.
But C.F.S., which impacts a million people in the United States alone, has had
a small fraction of the research dollars directed towards it.
Despite these limitations, there has been considerable effort to understand
the cause and develop effective treatments. The Whittemore Peterson Institute
should be congratulated for its outstanding work, performed in a brand new
center paid for with private donations, state money and N.I.H. collaboration.
Creative research and creative financing!
Is Sleep a Factor in Chronic Fatigue Syndrome?
Q. Do you think sleep could be a factor in C.F.S.? Have you heard of Xyrem
being used to facilitate Stage 4, deep sleep? Most everyone with fibro and/or
C.F.S. report of not being able to sleep deeply - to have restorative sleep.
We are all anxiously waiting for help in this lifetime. So many years have
been lost to these illnesses.
Abot Bensussen
A. Dr. Klimas responds:
There is a clinical trial under way to study the effects of Xyrem, a
medication used to treat sleep disorders like narcolepsy, in fibromyalgia.
Certainly, getting restorative sleep is a good thing, and slow wave sleep is
key to restorative sleep. A sleep expert can help with this part of treatment,
but it is important to have a sleep study done before considering any sleep
inducers.
In a study by my group, we found that about half of C.F.S. patients develop
some level of sleep apnea over time, a treatable condition that could be
worsened with some sleep medications.
Michele Townsend
I used to belong to Co-Cure, but could no longer swim thru all of those
posts to get to the ones that are relevant enough me to read, so I
appreciate what Tom is doing.
I do belong to the CFS-ME ning community, however, I never get unsolicited
emails from them. I got the same intro page that you got, so I checked on
get registered and it went to the home page as it then recognized me. This
is one of the sites that you have to go onto the web to use and if you don't
go, you don't even know that you belong!! So you have nothing to lose by
registering.
Hugs, Michele - Nana to Twins Alexis and Ryan, 3 yrs.,
Zachary, 5 yrs., Ethan, 9 yrs., and Tony, 13 yrs.
Samuel Wales
Perhaps a good solution would be for people who forward from a list to
use a consistent syntax in the Subject header, so they can be easier
to filter out automatically in the mail user agent for those who are
already subscribed. e.g. "FW-C
Samuel Wales
that people can use to automatically filter out forwards. Just a
possibility, of course.
Roger Burns
The distribution of this discussion group's messages is sponsored
by the non-profit ICORS listserv. ICORS recently received this
year's L-Soft Choice Award. Part of the award process is that we and
our sister lists at ICORS will get a special promotion and exposure
of our various lists to a large audience that will be vastly different
from those from whom CFS-L usually receives attention.
In short, more people may find out about us, and CFSers who might
need the help and support that we share here may be more likely to
find us and join us.
Here's the catch: in order for CFS-L to participate in this
opportunity, I need to answer the questions shown below. But I don't
quite have the brainpower to do it. I merely have a CFS brain.
But we have an entire email group here, and so we have *many* CFS
brains. So if some of you could suggest answers to the following
questions, then maybe we can submit something and then something good
may get done.
So please help by offering suggestions about the following questions
that need to be answered, and I'll see that we submit something to
the right place:
Please provide a brief description of your list:
- Purpose: please include the challenge facing subscribers and the
solution/support offered by your list
- content overview
- Subscribership: please include a general description, such as
"parents with disabilities"
Please provide one or two examples (without names/identifying
information) of how your list has helped its subscribers.
Please describe how your list provides a unique service and benefits
to its subscribers.
Please describe how your list makes use of various LISTSERV features
to accomplish its mission and add value to subscribers' interaction
with the list.
What is the one thing you would most like people to understand about
your email list?
What are some of the key issues and challenges facing your
subscribers and stakeholders? How does email list technology enable
you to assist them with these issues?
Please provide a quote summarizing the way your list helps change and
improve people's lives.
- - - - - - - - - - - - - - - -
Thanks for any help.
- Roger Burns, moderator and founder of CFS-L
CB
describes the list and answer some of the questions below. Quote them,
modify them, use pieces of them or hit the delete key ;) - use them as
you see fit.
Cathy
CFIDS/ME is an illness that is poorly understood, both by the medical
community and the population in general. This list enables individuals
to share their knowledge and experiences in an environment of
compassion, understanding and acceptance.
Dealing with a life-changing chronic illness such as CFIDS/ME is
difficult, to say the least. This list provides members with the
support and information they need to make lifestyle changes, deal with
financial difficulties, obtain social services, get appropriate medical
care, communicate effectively with medical providers and deal with the
inevitable changes in relationships that accompany being ill.
This group has been like a candle in the dark for me. Cathy (You can
put my name at the end of this last one, if you want.)
--
What good is an education if you are too sick to work? Support Universal Healthcare.
KATHY DURKIN
Very good job.
I'm going to take a crack at it but have bad allergies and a headache so
don't know if I can help or not, but will try. I, alas, like Roger, have
only a CFIDS brain, but it waxes and wanes, something surprising me and then
later disappointing me.
Kathy D.
----- Original Message -----
From: "CB" <cathy...@NETSCAPE.NET>
Newsgroups: alt.med.cfs
To: <CF...@LISTSERV.ICORS.ORG>
>> Please provide a brief description of your list: People who suffer from
>> CFIDS.
>>
>> - Purpose: please include the challenge facing subscribers and the
>> solution/support offered by your list
Challenges are many: living with a chronic, daily illness with a
variety of symptoms, which can vary or stay the same from day to day;
dealing with the symptoms, dealing with the obtaining the necessities of
life when ill, financial difficulties, dealing with friends and relatives,
trying also to obtain the socialization we need but being faced with the
disease's limitations which may not allow that.
>>
>>
>> - content overview
>>
>>
>> - Subscribership: please include a general description, such as
>> "parents with disabilities"
Individuals with disabilities related to CFIDS.
>>
>>
>> Please provide one or two examples (without names/identifying
>> information) of how your list has helped its subscribers.
Provides concrete information on health care, where/how to obtain
information on related matters from nutrition to health care specialists, to
social services, legal and financial matters, or references to obtain this.
Provides social support, understanding and empathy to those who have
CFIDS.
>>
>>
>> Please describe how your list provides a unique service and benefits to
>> its subscribers.
Provides concrete information on many matters related to living with a
chronic disease and provides group support and compassion.
>>
>>
>> Please describe how your list makes use of various LISTSERV features to
>> accomplish its mission and add value to subscribers' interaction with the
>> list.
>>
>>
>> What is the one thing you would most like people to understand about your
>> email list?
>> It's made up of people who have CFIDS, the common denominator, so the
>> experiences and thoughts and suggestions are valuable to others similarly
>> afflicted.
>>
>> What are some of the key issues and challenges facing your subscribers
>> and stakeholders? How does email list technology enable you to assist
>> them with these issues?
Key issues and challenges: Obtaining medical care by professionals who
are knowledgeable about and understand CFIDS and know how to be helpful;
obtaining social services and legal assistance, if needed; suggestions on
how to get all of necessities for daily existence; discussion of possible
helpful treatments; emotional support, understanding and sympathy by those
who have had similar experiences.
Email list technology enables the group to communicate with and aid
each other.
>>
>
>>
>> Please provide a quote summarizing the way your list helps change and
>> improve people's lives.
This is beyond my capability. Are we quoting Walt Whitman or Langston
Hughes or whom?
I bet Katrina Berne has a great quote that fits in here but it is
over my head.
Douglas Lobel
have never contributed in writing. So after 12 years, here is my little
contribution:
>> - Purpose: please include the challenge facing subscribers and the
solution/support offered by your list
The most important aspect of this list for me is to monitor the progress in
understanidng this disease and to keep updated on possible diagnositc tools
and treatemnt.
>> - Subscribership: please include a general description, such as
"parents with disabilities"
I am a CFS patient and have been for over 12 years. The beginning of my
illness was like living in hell but I have managed to recover where I can
lead a fairly normal life.
>> Please provide one or two examples (without names/identifying
information) of how your list has helped its subscribers.
I can't necessary provide any specific examples. I have tried various
suggestions over the years that I have reviewed on this site but I can' say
that anyone of them has worked with great signifigance..
>> Please describe how your list provides a unique service and benefits
to its subscribers.
Viewing other people's battle with this illness on the list provides some
comfort and suppor tknowing that one is not alone. Viewing on the occassion
the positive storeis of recovery or improved advanement also provides hope.
I hope some of this helps,
Regards,
Doug
----- Original Message -----
From: "CB" <cathy...@NETSCAPE.NET>
Newsgroups: alt.med.cfs
To: <CF...@LISTSERV.ICORS.ORG>
Sent: Sunday, November 08, 2009 1:23 AM
Subject: Re: A chance to help promote CFS-L
Bobbie Sellers
> >From the CFS-L moderator:
>
> The distribution of this discussion group's messages is sponsored
> by the non-profit ICORS listserv. ICORS recently received this
> year's L-Soft Choice Award. Part of the award process is that we and
> our sister lists at ICORS will get a special promotion and exposure
> of our various lists to a large audience that will be vastly different
> from those from whom CFS-L usually receives attention.
>
> In short, more people may find out about us, and CFSers who might
> need the help and support that we share here may be more likely to
> find us and join us.
>
> Here's the catch: in order for CFS-L to participate in this
> opportunity, I need to answer the questions shown below. But I don't
> quite have the brainpower to do it. I merely have a CFS brain.
>
> But we have an entire email group here, and so we have *many* CFS
> brains. So if some of you could suggest answers to the following
> questions, then maybe we can submit something and then something good
> may get done.
>
> So please help by offering suggestions about the following questions
> that need to be answered, and I'll see that we submit something to
> the right place:
>
>
> Please provide a brief description of your list:
>
> - Purpose: please include the challenge facing subscribers and the
> solution/support offered by your list
>
To help members with some practical matters and to provide
possibly useful approaches to the problems of living with a debilitating
illness.
>
> - content overview
>
Suggestions for approach to explaining the illness to others.
Food supplements found useful
Behavioral changes we must make to ameliorate the effect
of the illness
Commiseration with others who suffer in a like manner
A place to vent our emotions at the medical and personal
neglect we encounter.
>
> - Subscribership: please include a general description, such as
> "parents with disabilities"
>
People with Chronic Exhaustion and Refractory exhausion due
to a variety of circumstances.
>
> Please provide one or two examples (without names/identifying
> information) of how your list has helped its subscribers.
>
Promulgation of the idea that more rest is better for people
with these conditions sometimes referred to as ART for
Aggressive Rest Therapy entailing up to 18 or more hours per
day in recumbent mode.
>
> Please describe how your list provides a unique service and benefits
> to its subscribers.
>
This list and its offshoot the alt.med.cfs Usenet newsgroup were the
first contact I had with other people suffering this peculiar debility.
>
> Please describe how your list makes use of various LISTSERV features
> to accomplish its mission and add value to subscribers' interaction
> with the list.
>
Well it provides a threading context for post on the similar
topics over time.
>
> What is the one thing you would most like people to understand about
> your email list?
>
It has helped me. I first encountered the idea of two different
"therapies"
one was ART and the other is the use of Undenatured Whey Protein. Both
have been very useful to me.
>
> What are some of the key issues and challenges facing your
> subscribers and stakeholders? How does email list technology enable
> you to assist them with these issues?
>
The problem of connection to other people with useful experiences
to share among other things for people who may find travel to meetings
and group interaction a less than optimal way to deal with such matters,.
>
> Please provide a quote summarizing the way your list helps change and
> improve people's lives.
>
Without the CFS-L list I might have given up long ago and collapsed
into a drugged desuetude. -Bobbie Sellers, Retired Nurse, former
political activist,
>
> - - - - - - - - - - - - - - - -
>
> Thanks for any help.
>
> - Roger Burns, moderator and founder of CFS-L
>
>
I hope this will help Roger.
Sorry I couldn't get to it earlier but trying to keep
up with daily life leaves me flat too often.
Bobbie Sellers
Rika Kageyama
This is Rika from Tokyo.
I wonder if I could ask Cathy or someone (native English
speakers) to add the texture of the "international" or
"global" to the following Cathy's great statement, please?
>This list enables individuals to share their knowledge
>and experiences in an environment of compassion,
>understanding and acceptance.
Thanx :)
Rika from Tokyo, Japan