RES: Patients' experience with treatment of chronic fatigue syndrome- (Incl. Norweigen patient group survey on CBT/GET)
Tom Kindlon
From: ME/CFS and Fibromyalgia Information Exchange Forum
[mailto:CO-...@LISTSERV.NODAK.EDU] On Behalf Of Tate Mitchell
Sent: 14 June 2009 09:02
To: CO-...@LISTSERV.NODAK.EDU
Subject: [CO-CURE] RES: Patients' experience with treatment of chronic
fatigue syndrome- (Incl. Norweigen patient group survey on CBT/GET)
[Patients' experience with treatment of chronic fatigue syndrome.]
[Article in Norwegian]
*Bj�rkum T*
*Wang CE*,
*Waterloo K*.
torunn....@helse-forde.no Sogndal BUP Postboks 184 6851 Sogndal.
http://www.ncbi.nlm.nih.gov/pubmed/19521443
BACKGROUND: Chronic fatigue syndrome is a highly debated condition. Little
is known about causes and treatment. Patients" experience is important in
this context.
MATERIAL AND METHODS:828 persons with chronic fatigue syndrome
(ICD-10 code: G93.3) were included in the study. They were recruited through
two Norwegian patient organizations (ME-association and MENiN). The
participants filled in a questionnaire on their experience with various
approaches to alleviate their condition.
RESULTS: Pacing was evaluated as
useful by 96% of the participants, rest by 97%, and 96% of the participants
considered complete shielding and quietness to be useful. 57% of the
participants who had received help to identify and challenge negative
thought patterns regarded this useful. 79% of the participants with
experience from graded training regarded this to worsen their health status.
Overall, the results were similar, irrelevant of the severity of the
condition.
INTERPRETATION:Most participants in this study evaluated pacing,
rest and complete shielding and quietness to be useful. The experience of
the participants indicate that cognitive behaviour therapy can be useful for
some patients, but that graded training may cause deterioration of the
condition in many patients. The results must, however, be interpreted with
care, as the participants are not a representative sample, and we do not
know the specific content of the approaches.
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