[CFS-L] FW: Letter from OFFER (re: XMRV research)
Tom Kindlon
forwarding their e-newsletter to list. It's possibly best to say what the
money is for, if donating for XMRV research, which can usually be done when
paying through PayPal or else E-mail them after you donate. Tom]
OFFER
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Organization for Fatigue and Fibromyalgia Education and Research
December 2009
Dear member of OFFER community:
Imagine your life better because of new FMS & CFS research!
Then imagine significant research taking place here in Utah. Prime time
television ads have acquainted most households and thousands of medical
providers with FMS as a painful neurological disorder, yet only a handful of
on-going research projects throughout the U.S. have been searching for the
cause(s) of CFS----until now.
The biggest CFS news is the discovery of XMRV(xenotropic
murine leukemia virus-related virus), found to be highly associated with CFS
in a study published in the October 23rd issue of Science Magazine. This
retrovirus was found in the blood of the large majority of CFS patients in
this study compared to low levels in the general population. Now we need to
know more.
OFFER applauds this breaking research but recognizes the
imperative for more answers. OFFER would like your help in moving this
science forward quickly. A leading XMRV scientist, Dr. Ila Singh, is here on
the faculty of the University of Utah. Our own Dr. Lucinda Bateman, an
experienced clinician and recognized expert on CFS, would like to harness
the scientific genius of Drs. Alan and Kathy Light, recruit the local CFS
patient population as volunteers and combine resources with Dr. Singh to
study XMRV in CFS right now!
In addition, the CDC will be conducting XMRV studies. They
have asked Dr. Bateman and select clinicians around the country to obtain
blood samples from their local CFS patients. Beyond the costs of actual
laboratory research are the expenses of identifying and contacting patients,
obtaining Informed Consent, collecting, storing and shipping samples. So,
while exciting, it is extremely expensive.
We need your help now more than ever before. The "R" in the
OFFER name is for Research. OFFER needs your help now to accelerate this
ground-breaking research opportunity. Finding the cause(s) of CFS and FMS
will lead to more effective treatment, a possible cure and prevention.
OFFER has set a goal of raising $50,000 for research. We are
reaching out to you, the CFS/FMS community and the public at large, for help
to fund immediately-relevant, promising local research. We cannot emphasize
enough the importance of acting now. We are closer than we have ever been to
understanding these debilitating illnesses. Please help with your
tax-deductible gift. There is a link at the bottom of the page that will
allow you to make a contribution through PayPal, using your credit or debit
card or your check. Or, you can also donate on-line by visiting
www.OFFERUtah.org and using Pay Pal .
Watch our OFFER E-NEWS monthly newsletter for the date and
venue for our Spring 2010 Conferences for providers and patients.
Presentations will include XMRV research updates. Visit OFFERUtah.org to
sign up for the OFFER E-NEWS, to view past conference speakers, and much
more. Stay connected. Stay hopeful.
Sincerely, OFFER Board of Directors
OFFER: 1002 E. South Temple, Suite 408. Salt Lake City, UT
84102. Phone: (801) 328-8080. Fax: (801) 359-7404
Board of Directors: Lucinda Bateman MD, Stuart Drescher PhD, Ted
Kaly BSEE RR, Loren Lambert JD, Linda Milne, Paul Shepherd M Ed, N. Lee
Smith MD, Scott Stevens Webmaster. OFFER is a 501(c)(3) non-profit
organization
Paypal - the safer way to pay online!
PayPal - The safer, easier way to pay online!
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[Tom: there is a hotlink here but not sure if link will be different each
time so use the one on the OFFER site:
http://www.offerutah.org/donations.htm ]
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Fibromyalgia Education and Research, 1002 E South Temple Ste 408, Salt Lake
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