reminder of parent survey

[Robin Wisner]

Parents,

I am forwarding you a reminder in case you are interested in taking a survey about what parents of kids who use AAC think.  After the information, you will find the informed consent form from Idaho State University. It is "legalese" that the university needs to write up for any research that involves people. The survey is only available for a short time, so don't put it off if you want to share your opinion.

Robin

 

Have you taken the AAC Parent Survey yet? Only a short amount of time to take it!

*Does your child use an AAC device?
*Would you like to share your valuable opinions?

 

My name is Emily Tuttle and I am a second year graduate student in the Master’s
program in Speech-Language Pathology at Idaho State University-Meridian.

I am conducting a research study using an online survey. The purpose of
this study is to find out more about the factors that parents feel lead
to success with an AAC device or abandonment of the device by their
child. Gathering these important opinions will help educate teachers, speech-language pathologists, AAC device manufacturers, and others of the areas that need improvement.

Important:
*The survey will take roughly
10 minutes to complete.
*Your name and personal
information will remain anonymous.
*Opportunities to share your
opinions are usually limited!

The survey can be accessed at this link: https://www.surveymonkey.com/s/37HNXZN

Your help with completing the survey is very much appreciated!

Idaho State University

Human Subjects Committee

Informed Consent Form for Non-Medical Research

 

CONSENT TO PARTICIPATE IN RESEARCH

Parents’ Opinions Concerning Success and Abandonment of AAC Devices

 

You are asked to participate in a research study conducted by Emily Tuttle, B.S. (tutt...@isu.edu), and Dr. Jeanne Johnson, PhD, CCC-SLP (joh...@isu.edu), 1311 E. Central Dr., CSED, Meridian, ID 83642, 208-373-1728 from the Communication Sciences and Disorders Department at Idaho State University-Meridian. The primary researcher for this study is a student who is using the results of the research for her thesis.  You have been asked to participate in this research because you have a child that uses an AAC device. The number of participants in this research project will depend on how many choose to take the Internet survey.  Your participation in this research project is voluntary. You should read the information below, and ask questions about anything you do not understand, before deciding whether or not to participate.

 

1. PURPOSE OF THE STUDY

The purpose of this study is to find out more about the factors that parents feel lead to success with an AAC device or abandonment of the device by a child.

 

2. PROCEDURES

If you volunteer to participate in this study, we would ask you to do the following things:

Use a computer to take the Internet survey using the provided Surveymonkey.com link.  Completion of this survey should take roughly 10 minutes.  Once the survey is completed, you are finished with your participation in this study.

 

3. POTENTIAL RISKS AND DISCOMFORTS

The research procedures may involve risks that are currently unforeseeable.

 

4. ANTICIPATED BENEFITS TO SUBJECTS

The anticipated benefit for taking the survey is the opportunity to voice your valuable opinions.  You have the right to refuse participation in this research study.

 

5. ANTICIPATED BENEFITS TO SOCIETY

The benefit to society is that knowing parent opinions may help speech-language pathologists provide services that are more sensitive to family needs, thus strengthening AAC device implementation and success in the future.

 

 

6. ALTERNATIVES TO PARTICIPATION

This research study aims to protect the identity of both participants and non-participants.

 

7. PAYMENT FOR PARTICIPATION

You will not be paid or offered other benefits for participation in this research study, other than the knowledge that you are providing your opinions.

 

8. FINANCIAL OBLIGATIONS

There are no financial obligations for you to participate in this research study.

 

9. PRIVACY AND CONFIDENTIALITY

Due to the recruitment methods for this survey, the members of the research team will not know who has chosen to take the Internet survey.  By using SurveyMonkey.com to host the survey, you will continue to remain an anonymous participant in the research study.  The anonymous individual data will be stored in a password-protected file on the personal computers of the members of the research team.  Data will be kept for 7 years after an article is published on this research.

 

10. PARTICIPATION AND WITHDRAWAL

Your participation in this research is VOLUNTARY. If you choose not to participate, that will not affect your relationship with Idaho State University, or your right to receive services at Idaho State University to which you are otherwise entitled. If you decide to participate, you are free to withdraw your consent and discontinue participation at any time without prejudice to your future at Idaho State University.

 

11. WITHDRAWAL OF PARTICIPATION BY THE INVESTIGATOR

The investigator may withdraw you from participating in the research if circumstances arise which warrant doing so. If you do not have a child that uses an AAC device or if the child only uses sign language, you may have to drop out of the research, even if you would like to continue. The decision may be made either to protect your health and welfare, or because it is part of the research plan that people who develop certain conditions may not continue to participate.

 

12. IDENTIFICATION OF INVESTIGATORS

In the event of a research related injury or if you experience an adverse reaction, please immediately contact one of the investigators listed below. If you have any questions about the research, please feel free to contact Emily Tuttle, B.S. (tutt...@isu.edu), and Dr. Jeanne Johnson, PhD, CCC-SLP (joh...@isu.edu), 1311 E. Central Dr., CSED, Meridian, ID 83642, 208-373-1728.

 

13. RIGHTS OF RESEARCH SUBJECTS

You may withdraw your consent at any time and discontinue participation without penalty. You are not waiving any legal claims, rights or remedies because of your participation in this research study. If you have any questions regarding your rights as a research subject, you may contact the Human Subjects Committee office at 282-2179 or by writing to the Human Subjects Committee at Idaho State University, Mail Stop 8130, Pocatello, ID 83209.

 

 

 

 

 

[Gull-Britt Orsén]

Hi Robin,

 

Will they share the results from the survey with us? (I have already taken part in the survey, I am just curious what the results will be).

 

Best regards, Gull-Britt

[EnjoyHi5Autism]

Thanks for the relevant AAC survey. May we share it with other Parents
who are not in the AAC Google Group?

[Robin Wisner]

yes, please pass the survey information on to other parents.

Sent from my Droid Charge on Verizon 4GLTE

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[EnjoyHi5Autism]

Greetings AAC Parent Google Group. I have had 2 people mention they
could not access the Augmentative and Alternative Communication
Devices Parent Survey link. I reverified access via Internet
Explorer, Safari and a smartphone. Our posted link is operable. It
seems when you 'cut and past the link', there may be a problem.
Otherwise, clicking on a hyperlink of the survey sends you directly to
the correct page via Survey Monkey. Please continue to share this
research link to give Parent input on the 'Success and Abandonment of
AAC devices'. Thanks to the University of Idaho-Meridan.

On Dec 1, 12:40 pm, "Robin Wisner" <robin.4k...@yahoo.com> wrote:
> yes, please pass the survey information on to other parents.
>
> Sent from my Droid Charge on Verizon 4GLTE
>
>
>
>
>
>
>
> ------Original Message------
> From: EnjoyHi5Autism <babymiracl...@yahoo.com>
> To: "AAC Parents" <aacpa...@googlegroups.com>
>

> Cc: <enjoyhi5aut...@live.com>,<enjoyhi5aut...@gmail.com>,<babymiracl...@yahoo.com>