assistants a possible medical problem and the conference.

[itkin]

Dear group.

In the middle of seeing doctors who are pressuring me to have a hip
replacement although I was told by an orthopedic surgeon would not stop
the pain. Would cut through the muscles and nerves. I mentioned
something I learned about me in the last few years. there seems to
be a disconnect between my fingers and objects on the floor, downward
motion) -- not the wall. I could not cut an asparagus on a cutting
board as knife would not connect with the vegetable and once touched it
and slipped off and could not simply screw something that was on the
floor although never had trouble on the wall. I assumed it was the CP.
Doctor (a neurologist) said no, it is not CP. Does anyone have
such a condition? I can't imagine what it can be if not the CP.

I find that doctors as well as assistants take over when they have a
disabled person and especially an older one such as I. Would love to
hear if anyone else has had such a problem and the result. I also am
sure that one must think for him or her self before submitting to any
surgery or change of any kind.

Bernice

[DR...@comcast.net]

hi Bernice,

if a hip replacement will not stop the pain, a hip. fusion might be
beneficial. i was in tremendous pain until my hip fusion at Standford
University Hospital in 1989. i have had no pain since then. you might
contact that hospital for more information on that surgery.

Bob

Bob Segalman, Ph.D., Sc.D. (Hon.), Founder of Speech-to-Speech
President, Speech Communications Assistance by Telephone, Inc.
515 P Street, #403; Sacramento, CA 95814
Call 1-888-877-5302 and then ask for me at 916-448-5517
E-mail: dr...@comcast.net
Website: http://www.speechtospeech.org
IM: Mensaman1 (in Yahoo) -- the fastest way to reach me.

[bb...@aol.com]

Bernice,

Maybe this is "flip" to say, but 58 years of being disabled tells me doctors have little to no clue,
especially about cp. I hope you get some relief.

Bobbi

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[Cpal...@aol.com]

Hi Bernice,

 

I hope things will work out. I have to say that I've heard of the hip replacement surgery as being called "the happy surgery" because you're no longer in pain once your hip's been replaced. Why this wouldn't be the case in your situation, I really don't understand.

 

However, I can tell you that you're one of the three people I know of with CP that is in their 80's. Hip replacements are rarely done in the CP population as I understand it. I know that you are dealing with very severe arthritis in your hips and knees and that you have very mild CP since you are walking independently and G-d willing you should continue to do so. Are you working with a doctor who's familiar with CP issues or not? How many hip replacements have they done on people your age and what was their outcome? I'd also ask them how tight and spastic your hips really are. If they're not too tight and spastic, then I would think that your outcome would be very similar to those in the general population that have had hip replacements.

 

We were told by Dr. Tosi at the first CPGroup conference that the issue with hip replacements in the CP population is that the spasticity will cause the hips to go out again and replacements wouldn't last as long because of that. However, since you're one of the three people that I know of in their '80's with CP, you are dealing with uncharted area in this situation. I have no idea if this situation would be true in your particular case or not.

 

I hope this helps somewhat and please feel free to email me off the list as well if you'd like,

 

Hugs,

Dina

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