(http://www.zwire.com/site/news.cfm?brd=2703) 04/26/2008 Kiron
youth named National Epilepsy spokesperson Wayne Fritzinger
Madison Gierstorf of Kiron meets with Congressman Steve King during
her trip to Washington D.C. Photo submitted
Madison Gierstorf of Kiron traveled with her parents, Donavon and Stephanie
Gierstorf to Washington, D.C., March 30 through April 1 to meet with
congressional leaders.
The Gierstorfs hoped to gain the support of legislators for the restoration
of the Americans with Disabilities Act and for epilepsy public health
programs, and more research toward a cure for epilepsy.
Madison, age 10, was one of 50 young people with epilepsy who participated
in Kids Speak Up!
Kids Speak Up! is a national program coordinated by the National Epilepsy
Foundation providing an opportunity for children with epilepsy and their
parents to visit the nation's capitol and visit with their legislators and tell
their personal stories.
Madison visited with Congressman Steve King and aides representing Senators
Charles Grassley and Tom Harkin.
Kids Speak Up! is a part of the Public Policy Institute.
Children are selected by the National Epilepsy Foundation to take part in
the program and represent their home state. One child is selected from each
state.
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bdid=79146) Kids Speak Up! is supported by Abbott, a health care company
devoted to the discovery, development, manufacturing, and marketing of
pharmaceuticals and medical products.
The program rallies young ambassadors with epilepsy between the ages of 7
and 16 to advocate for the more than 3 million Americans living with the
condition.
Besides meeting with their congressional leaders, the children were treated
to a magic show featuring award-winning magician Bradley Fields and met
Mighty Mike Simmel, an entertainment basketball player of the world famous Harlem
Wizards. Simmel, who has epilepsy, inspires young people to follow their
dreams despite their obstacles.
Epilepsy is the most common neurological condition in children.
Each year approximately 45,000 children under age 17 are diagnosed with the
disorder.
Despite modern therapy, about one million people in the U.S. continue to
experience seizures or significant side effects from treatment for their
epilepsy.
Karly Ashlock, Service Coordinator for Iowa, announced that Iowa just opened
up its first Epilepsy Foundation office last fall.
Individuals or families such as Madison's may contact Ashlock at the
Epilepsy Foundation of North/Central, Illinois, Iowa, and Nebraska, 1111 9th Street,
Suite 275, Des Moines, Iowa 50314. Ashlock's phone number is 515-238-7660
and her e-mail address is www. kashl...@efncil.org.
Madison is a fifth grader at Schleswig Elementary School.
"She loves to play softball," said her mom, Stephanie Gierstorf.
Dale Todd
Vice-President Project Development
Premier Recreation Products, Inc.
1821 Grande Avenue SE
Cedar Rapids, Iowa 52403-2225
319-366-8158
Cell-319-389-6071
Fax-319-247-0652
dtoddpa...@aol.com
_http://gametime.com/_ (http://www.gametime.com/)
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