You cannot post messages because only members can post, and you are not currently a member.
Description:
This is a generalized Epilepsy group that comes as a result of my former work researching potential links between Epileptic Seizures & Weather Conditions. The website for that is http://www.stsepilepsy.org. - John Coyle
|
|
|
childhood epilepsy and memory problems
|
| |
Hello again,
Thank you all for helping me with my research project on childhood
epilepsy
and memory problems. I am hopeful to gather a few more participants in
order
to complete my project and would be delighted if you would consider
taking
my survey at [link]... more »
|
|
|
childhood epilepsy and memory problems
|
| |
Hello again, Thank you all for helping me with my research project on childhood epilepsy and memory problems. I am hopeful to gather a few more participants in order to complete my project and would be delighted if you would consider taking my survey if you have not done so yet. Below is the blurb I sent out a month... more »
|
|
|
childhood epilepsy and memory problems
|
| |
Hello All-
I won't even pretend to understand what it is like to raise a child
with epilepsy.... And while I can't imagine what it is like to walk in
those shoes I think we would all agree that we need to learn more
about epilepsy for the sake of improving the lives of children and
their families. That is exactly why I have chosen to do my... more »
|
|
|
Seizures and Barometric Pressure
|
| |
John... Your email is very informative because I have tried to relate my seizure activity to the weather in many ways. Of course, since I'm on meds, I don't have full-blown seizures unless something is very wrong. However, we all know how we feel and it seems that barometric pressure has a lot to do with my seizure feelings...the humidity affects the other parts of my body, but doesn't seem to affect my head. As I probably mentioned, I tried to keep a list for at least a month, but got busy with other things and haven't gone back to it. There is one detail that I've always noticed and that is the heavy, pushed down feeling that I get right before it rains...after the rain starts, the feeling goes away. This is 1 important reason that living in Oregon (even Central Oregon) is sometimes difficult...I usually feel much better in a warmer (hotter) climate and eventually plan to move back to Las Vegas or Apple Valley in California.... more »
|
|
|
Unofficial Findings Regarding Epilepsy & Weather
|
| |
Hello All,
I would like to say thank you all for your information. Though I
cannot make an official announcement at this time, I would like all of
you to know that no matter what the zipcode, it appears - *** appears
*** - that more people with seizures are seizing 24-48 hours prior to
severe weather changes.... more »
|
|
|
WEB SITES ON TRAUMATIC BRAIN INJURY
|
| |
Many of you probably know that the reason for 70% of seizures is
unknown still. However, doctors have been able to relate many seizure
disorders to TBI's or Traumatic Brain Injuries. Mine is such. I
thought it might be helpful to post this for any of you others that
may fall into that group.
Cheers,... more »
|
|
|
Looking For Someone To Make A New Logo
|
| |
Hello All, Seeing that Shake That Seizure ( [link] ) is going through some changes, I am wondering if there is anybody here in the group that would be up for making a new banner for the one currently on the website. I am hoping for something colorful - out with the black and grey and let's get something different there.... more »
|
|
|
Time to get cracking again!
|
| |
Hello All, It has been a long year for me and I have been quite absent from my duties here in the group. I will be updating the website soon and would love to hear comments from all of you about content that you would like to see. If you have interesting articles or other information that you think would be good for the website and its new... more »
|
|
|
topamax with some success
|
| |
I was diagnosed when I was 18 and had 4 grand mals including other small ones, not sure what you call them. I have been on 3 diffrent meds. I am now 28 yrs old. Unable to drive dont really want to, do miss it though.
|
|
|
Benign Epilepsy
|
| |
My son has recently been diagnosed as having a Benign Epilepsy disorder. It has been explained to us that he has been having seizures in his sleep that do not manifest themselves as a physical seizure. We have been trying to get a better understanding of what is going on with him and what we can expect in the future. If anyone could guide us to a... more »
|
|
|
|
