Epilepsy Google Group

childhood epilepsy and memory problems

2009-03-08T19:01:14Z

Hello again,

Thank you all for helping me with my research project on childhood
epilepsy
and memory problems. I am hopeful to gather a few more participants in
order
to complete my project and would be delighted if you would consider
taking
my survey at [link]

childhood epilepsy and memory problems

2009-01-20T00:45:47Z

Hello again,
Thank you all for helping me with my research project on childhood epilepsy
and memory problems. I am hopeful to gather a few more participants in order
to complete my project and would be delighted if you would consider taking
my survey if you have not done so yet. Below is the blurb I sent out a month

childhood epilepsy and memory problems

2008-10-29T01:36:21Z

Hello All-

I won't even pretend to understand what it is like to raise a child
with epilepsy.... And while I can't imagine what it is like to walk in
those shoes I think we would all agree that we need to learn more
about epilepsy for the sake of improving the lives of children and
their families. That is exactly why I have chosen to do my

NEW website about young people's experiences of epilepsy!

2008-05-25T16:59:55Z

The UK national charity DIPEx has launched the new website about young
people and epilepsy at [link]. The site is
based on first-class research at University of Oxford.
The site features young people TALKING openly about all aspects of
living with epilepsy and includes 350 VIDEO, audio and written clips of

Seizures and Barometric Pressure

2008-05-25T16:54:25Z

John...
Your email is very informative because I have tried to relate my seizure activity to the weather in many ways. Of course, since I'm on meds, I don't have full-blown seizures unless something is very wrong. However, we all know how we feel and it seems that barometric pressure has a lot to do with my seizure feelings...the humidity affects the other parts of my body, but doesn't seem to affect my head. As I probably mentioned, I tried to keep a list for at least a month, but got busy with other things and haven't gone back to it. There is one detail that I've always noticed and that is the heavy, pushed down feeling that I get right before it rains...after the rain starts, the feeling goes away. This is 1 important reason that living in Oregon (even Central Oregon) is sometimes difficult...I usually feel much better in a warmer (hotter) climate and eventually plan to move back to Las Vegas or Apple Valley in California.

Unofficial Findings Regarding Epilepsy & Weather

2008-05-13T18:10:35Z

Hello All,

I would like to say thank you all for your information. Though I
cannot make an official announcement at this time, I would like all of
you to know that no matter what the zipcode, it appears - *** appears
*** - that more people with seizures are seizing 24-48 hours prior to
severe weather changes.

WEB SITES ON TRAUMATIC BRAIN INJURY

2008-01-03T00:08:30Z

Many of you probably know that the reason for 70% of seizures is
unknown still. However, doctors have been able to relate many seizure
disorders to TBI's or Traumatic Brain Injuries. Mine is such. I
thought it might be helpful to post this for any of you others that
may fall into that group.

Cheers,

Looking For Someone To Make A New Logo

2007-08-24T16:59:54Z

Hello All,
Seeing that Shake That Seizure ( [link] ) is going
through some changes, I am wondering if there is anybody here in the
group that would be up for making a new banner for the one currently
on the website. I am hoping for something colorful - out with the
black and grey and let's get something different there.

Time to get cracking again!

2007-02-20T14:18:27Z

Hello All,
It has been a long year for me and I have been quite absent from my
duties here in the group. I will be updating the website soon and
would love to hear comments from all of you about content that you
would like to see. If you have interesting articles or other
information that you think would be good for the website and its new

Re: topamax with some success

2007-01-12T21:01:56Z

I just had one in my sleep the other night and now am going to be on
Topamax(for daytime) and Phenotek(nighttime).

topamax with some success

2007-01-11T02:43:14Z

I was diagnosed when I was 18 and had 4 grand mals including other
small ones, not sure what you call them. I have been on 3 diffrent
meds. I am now 28 yrs old. Unable to drive dont really want to, do miss
it though.

Re: FROM EPILEPSY: Re: Benign Epilepsy

2006-10-07T06:07:55Z

Hello Joy -

I am sorry you are having so much trouble finding the right medications to
control your seizures, with minimum side effects. Although most neurologists
philosophy is to control your seizures, there are many reasons which effect
their treatment. Some are interested in helping the patient to the best they

Re: FROM EPILEPSY: Re: Benign Epilepsy

2006-10-06T22:56:03Z

Hello Joy -

RE: FROM EPILEPSY: Re: Benign Epilepsy

2006-10-05T05:20:27Z

Hi Jody,
I have been suffering from epilepsy for the past 22 years and am still relying on the drug cocktails whih are bound to change with every visit to the neurologist. These cocktails have done me more harm than good. Controlling the seizures seems to be the focus of the neuro's. The side effects, they claim is part of the package. After all permutations and combinations, today I am forced to rely on anti-depressants as well. I am totally governed by these drugs and with every new combination in drugs, a new avatar pops-up in me. Surprisingly, I am not a candidate for surgery or VNS.

Re: FROM EPILEPSY: Benign Epilepsy

2006-10-05T01:23:19Z

Hello Ed -

I am so sorry to hear about your son. I hope they can find a way to
control his seizures, there are so many choices to choose from today. I had
epilepsy since I was 8 months old from a high fever. Due to technology, or lack
there of, it took doctors and numerous types of tests 22 years to diagnose me.